Send your comments and tips to email@example.com
Beth Israel Deaconess Medical Ctr.
Boston Medical Center
Brigham and Women's Hospital
Cambridge Health Alliance
Caritas St. Elizabeth's Medical Ctr.
Children's Hospital Boston
Dana-Farber Cancer Institute
Joslin Diabetes Center
Mass. General Hospital
Mass. Health Law
New England Baptist Hospital
Short White Coat
Tufts-New England Medical Center
UMass Memorial Medical Center
University of Massachusetts
VA Medical Centers
A Healthy Blog
Running A Hospital
Nature Network Boston
SciBos - Corie Lok's blog
Nurse at small
Dr. Gwenn Is In
Healthy Children blog
Other Globe Blogs
Elizabeth Cooney is a health reporter for the Worcester Telegram & Gazette.
Boston Globe Health and Science staff:
Karen Weintraub, Deputy Health and Science Editor, and Gideon Gil, Health and Science Editor.
Short White Coat blogger Ishani Ganguli
Short White Coat blogger Jennifer Srygley
Wednesday, October 3, 2007
Researchers gain access to Framingham Heart Study data
Three generations of Framingham Heart Study participants have shared their medical information with researchers learning about cardiovascular disease. Now the landmark study's files will be opened to scientists around the world so they can explore the links between genes and disease.
Framingham is the first study in an open-access project launched by the National Heart, Lung, and Blood Institute. The data come from more than 9,300 Framingham participants who had their DNA tested for 550,000 genetic variations. Researchers will have free access to that genetic information as well as clinical and laboratory test results. Names of the study subjects have been removed.
The Framingham study, sponsored by Boston University School of Medicine, Boston University School of Public Health and the NHLBI, will continue to add information from ongoing research. NHLBI will also add data from other large studies to the new program called SHARe, short for SNP Health Association Resource. SNP stands for single nucleotide polymorphism, which is a kind of genetic variation. Researchers can find out about access to SHARe data at the NIH database of Genotypes and Phenotypes.