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The effects of ADHD can last a lifetime--what parents need to do

Posted by Dr. Claire McCarthy  March 4, 2013 08:10 AM

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ADHD isn't just a kids' problem. It's a grownup problem too--and there's more bad news.

In a study just released in the journal Pediatrics, nearly a third of a group of adults who had ADHD (Attention Deficit Hyperactivity Disorder) in childhood still had it as adults. A third. That's a lot of people to still be struggling with concentration and learning, still have trouble with impulse control, still have problems interacting with others--while they are trying to make a living, and possibly raising a family too.

But here's where it gets worse. The majority (56.9 percent) of the adults who had ADHD as children, whether or not they still had it, had at least one psychiatric diagnosis. The most common one was alcohol dependence or abuse, which was followed by antisocial personality disorder, other substance abuse disorders, hypomania, anxiety and depression. 

And there was more: compared with the control group in the study, adults who had childhood ADHD were twice as likely to have considered or attempted suicide by age 21. 

Considering that ADHD is the most common neurodevelopmental disorder of childhood, affecting at least 3 to 7 percent of school-age children in the United States, this is scary stuff. 

The authors of the study (including Dr. Barbaresi from Boston Children's Hospital, where I work) say that we need to stop thinking of ADHD as just a childhood learning and behavior problem, and start thinking of it as a chronic disease. They are right; like diabetes, ADHD clearly has effects that can be very serious--and last a lifetime.

It's going to take a while for the medical profession to wrap their minds around this, I think. I mean, it's not that hard to understand intellectually--but putting the needed evaluations, supports and treatments into place will be harder. Not impossible--and actually, thinking of it as a chronic disease helps, because it gives us models to follow--but harder.

In the meantime, I think it's going to be up to the parents--and doctors and teachers and counselors--of kids with ADHD to really advocate for them. Every kid with ADHD should have:
  • Regular contact with a mental health professional. This might be every week for some children. For other children it might be much less frequent--but all children should have it. It's not okay to just get a prescription for ADHD medication--good mental health care is way more than that.
  • The school program they need. Each child is different, but kids with ADHD have different learning styles and needs than kids who don't have it. Far too many of them end up feeling stupid, or doing poorly when a different program could have helped them to succeed--and both have lifelong consequences, whether or not the ADHD hangs around. Know your child's rights--and fight for them. Ask for help if you need it--from your doctor, your teacher, an educational advocate. 
  • A doctor who is aware of, and screening for, ongoing ADHD and other mental health problems that may come with it. As teens become young adults and enter the adult health care system, it's especially important that they keep this in mind.
To learn more, check out the CDC's ADHD page, or the website of CHADD, Children and Adults with Attention Deficit Disorder.

Is there something you would like me to write about? Leave me a message on my Facebook page.

This blog is not written or edited by or the Boston Globe.
The author is solely responsible for the content.

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About MD Mama

Claire McCarthy, M.D., is a pediatrician and Medical Communications Editor at Boston Children's Hospital . An assistant professor of pediatrics at Harvard Medical School and a senior editor for Harvard More »

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