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September 26, 2008 Permalink

Childhood Cancer Awareness Month

Families, caregivers, charities and research groups across the United States are observing September as Childhood Cancer Awareness Month. In the U.S., over 12,000 children under the age of 21 are diagnosed with cancer every year, approximately 3,000 of them will not survive the disease. A diagnosis can turn the lives of a family upside down - days suddenly filled with alternating moments of courage, frustration, boredom, anxiety and pain. The objective of Childhood Cancer Awareness Month is to put a spotlight on the types of cancer that largely affect children, survivorship issues, and - importantly - to help raise funds for research groups working towards cures (links below images). Here are a few recent photos of families, all dealing with childhood cancer in their own ways. (19 photos total)

"You're gonna be brave, right?" "Right." Diana, age 5, and her father share a moment before she receives her weekly dose of chemotherapy through a port in her chest, January 10, 2007. Diana has Wilm's Tumor, a cancer of the kidney that typically occurs in children. (© Kendrick Brinson)
more photos
This page lists only comments and the first photo for the entry.
To see the entire entry, with all photographs, click here.


1080 comments so far...
1.

Note from the author - Two things:

1) Many of these images are shared here directly from the families affected, I ask that if you comment, you do so respectfully, thanks.
2) These images tell a story, not all stories, nor every story. If you feel that a particular disease/country/race/cause is not represented here, it is not due to deliberate discrimination. If you have appropriate links to other resources, please share them in the comments.

Posted by alan taylor September 26, 08 11:42 AM
2.

Thanks so much for helping raise awareness for childhood cancer. IAs a mother of a 3-year-old cancer survivor who battled cancer for 16 months, it brings hope -- hope that a cure can be found.

Posted by Kara Cunningham, mommy to "Super" Lane -- cancer-fighting hero! September 26, 08 11:50 AM
3.

I felt number 13 was very touching… showing how the treatment can sometimes take the focus away from the person and the trauma they are going through.

Posted by Robert Neal September 26, 08 11:50 AM
4.

Very very touching. Thank you all for sharing your photos. Thanks Alan.

Posted by B September 26, 08 11:53 AM
5.

Beautiful! I love #6 and #13. Photography is an important way to show everyone not only how those child are suffering, but also how small acts of kindness can transform their lives.

Posted by Antoine September 26, 08 11:57 AM
6.

I'm in tears

Posted by Jason Hanford-Smith September 26, 08 12:00 PM
7.

I work for the Ottawa Regional Cancer Foundation (in Ottawa, Canada) and I found these images incredibly compelling - it's so seldom that families can even think to take images during these struggles; let alone share them with the world.

With permission, I'd like to direct our donors here from our website www.ottawacancer.ca

Thank you,

Posted by Justin Van Leeuwen September 26, 08 12:07 PM
8.

Thank you for featuring this important story. Few are aware of the problem, much less its magnitude. So, it is not common knowledge that:

• cancer is the # 1 killer disease of our children
• 1 in 300 boys & 1 in 330 girls will be diagnosed with cancer before age 20
• 46 children are diagnosed with cancer every day, 12,500 every year
• 1 in 4 or 5 of those children will not survive, 3,000 every year
• cancer kills more children than asthma, diabetes, cystic fibrosis, congenital anomalies, and pediatric AIDS combined

The National Cancer Institute's (NCI) federal budget was $4.6 billion. Of that, breast cancer received 12%, prostate cancer received 7%, and all 12 major groups of pediatric cancers combined received less than 3%

You don't know that unless you've been there. I have been. I lost my 14 year old son AJ on January 5, 2008. He was a happy, healthy, athletic young man getting ready to start high school, looking forward to playing football and deciding which college to go to. That all changed overnight. Since then, I have decided to fight back.

One initiative is the Petition to Cure Childhood Cancer at http://www.thepetitionsite.com/1/CureChildhoodCancer. It has over 16,000 signatures and will be used to hopefully leverage a network TV special solely on childhood cancer or a similar high profile project. Last month I also started the People Against Childhood Cancer community at http://curechildhoodcancer.ning.com. We are growing network of nearly 1,000 parents, friends, family, concerned citizens and childhood cancer organizations (CureSearch, Alex's Lemonade Stand, St. Baldrick’s, Make-A-Wish and more) whose sole mission is to present a unified voice to raise awareness of childhood cancer.

I hope that you take some time to consider joining the fight. It is a national tragedy. It is underfunded and underpublicized. You can help make a difference. The child you hlep save may be your own.

Posted by AJs Dad September 26, 08 12:09 PM
9.

Chernobyl is it region of Ucrania

Posted by fresquete September 26, 08 12:11 PM
10.

Alan, THANK YOU for sharing our kids stories on this delicate subject. I think you picked some great pictures to share that showed the wide range of emotions our kiddos and us parents go through.

Thank you for listening to Bob's requests and helping us honor our kids this month for Childhood Cancer Awareness Month!

Heather, Lukas mommy
www.caringbridge.org/visit/lukasmacdonnell

Posted by Heather MacDonnell September 26, 08 12:14 PM
11.

The photos are tragically beautiful. And certainly touching. And will continue to be taken unless we act. Please support each of the organizations listed in the link section. Together we can make a difference.

Posted by AJs Dad September 26, 08 12:16 PM
12.

Chernobyl location fixed, thanks fresquete

Posted by alan taylor September 26, 08 12:18 PM
13.

Beautiful pictures! Our children, are still beautiful as they fight so hard and endure so much in order to live. There are no pleasant treatments in the pediatric cancer world. Only more research will change the statistics. Far too many die after valiant effort to live. We spend so much money helping others in the world and so little on diseases that kill our own children.
Jalena Bowling, grandmother of Nicholas Carter ( Craniopharyngioma)

Posted by Jalena Bowling September 26, 08 12:19 PM
14.

Don't know how you can look at these pictures and not be deeply touched. I remember (picture #14) Julian Avery's mother's (Mimi) poignant words that Forrest Whittaker read at the Stand Up 2 Cancer telethon a few weeks ago. "He only wanted to be 5." Julian didn't make it to 5, but with more research, maybe someday there won't be any kids losing their battle with the monster, cancer.

Posted by Pam Holmes September 26, 08 12:24 PM
15.

I look at these photos and wonder why we aren't doing more to fund research?These children deserve a chance at life, and so many do not get it. We need to raise more awareness, and stress to those who approve the funding that more research is crucial to saving many lives.These sweet children and their families are going thru some of the most horrible feelings ever imaginable. They live every day wondering if it will be there last. So many of us have been affected by this, isn't it time we do something?

Our friends little guy is in picture #8. He is such a sweet little guy.

Posted by JJ September 26, 08 12:25 PM
16.

Thank you for bringing us these incredible pictures. They speak thousands of words we all need to hear!

Posted by Jennifer Collado September 26, 08 12:25 PM
17.

The photos are stunning and all the more touching because I know some of those families.

My niece died at age 4 in 1996 from an inoperable brain tumor. My 14-year old son was diagnosed 5 years ago at age 9 with a different sort of brain tumor.

My son is a survivor struggling to deal with the effects of the whole-brain radiation he received in our attempt to save his life.

We need better choices for those innocent kids and their families.

Thank you for spreading sharing these.

http://stevenbell.blogspot.com

Posted by Kathy September 26, 08 12:25 PM
18.

Thanks, Alan .
Although heart breaking to see my angel on here ( Julian #14 ) , it is good to see that the word is getting out ...

Mimi ( http://www.carepages.com/carepages/JuliansWorld )

Posted by Mimi Avery September 26, 08 12:26 PM
19.

Very very touching. I have 2 kids, 12 and 2 years old. Pic #1 makes me cry.

Posted by Ingo Vogelmann September 26, 08 12:27 PM
20.

So sad. :[

Posted by Richi September 26, 08 12:28 PM
21.

Very eye opening. Its a topic you don't here about all that often.

I love the blog keep it up.

http://glandberg.blogspot.com

Posted by Glenn Landberg September 26, 08 12:28 PM
22.

Does #18 depict a safe/standard way to perform surgery or was it just posed specially?

Posted by Curious September 26, 08 12:29 PM
23.

I will hug my children closer tonight after viewing these heartbreaking images. Parents of kids with cancer will be in my prayers tonight.

Posted by Chris September 26, 08 12:30 PM
24.

#6 made me cry. So sad, my heart goes out to all families of afflicted children.

Posted by Eric September 26, 08 12:35 PM
25.

After losing my precious 12yr old Abbey to this horrific cancer, and reading the facts of how much of our donations to Cancer Research actually goes to Pediatric Brain Tumor Research, how disapointing. Check out the stats, it truly is sad.
We have too many children fighting for their lives, lets start pointing the money in the right direction. To our future!

Posted by Renee Rodkey September 26, 08 12:35 PM
26.

THANK YOU SO MUCH! GOD BLESS YOU! WE REALLY APPRECIATE THIS MUCH MORE THAN WE CAN EXPRESS. Be Blessed.

Posted by Kendra September 26, 08 12:36 PM
27.

PRAYERS AND YOUR THOUGHTS are needed.........but so is your support in other ways........click the links........join in the fight......on behalf of the 46 kids diagnosed with cancer today, tomorrow, and every day, every year.....THANKS!

Posted by AJs Dad September 26, 08 12:40 PM
28.

As a brain tumor survivor myself, I'm sitting here at work with tears in my eyes. Thank you for these beautiful pictures and these inspiring stories. A person with a disease is a still a person, and it's so important that we always remember that. Given this month's movement for awareness, please please please consider donating some of your time or money to some of the many wonderful organizations that support cancer research. I donate when I can because I can never forget that I am one of the lucky ones.

http://www.jimmyfund.org/

Posted by Matt September 26, 08 12:42 PM
29.

You know, we talk about a TRILLION dollar or whatever buy-out of Wall St on Page 1, and then we look at these photos and hear these stories, and yet...we just can't seem to find any money to save the lives of thousands of our children each year. And thousands more next year. And thousands more the year after that. And so on.

If you ever knew a child with cancer or his/her family, you'd be outraged.

Posted by Curt McCormick September 26, 08 12:42 PM
30.

The best, and the worst Big Picture blog entry ever.

This is perspective. Thank you

Posted by MarketGarden September 26, 08 12:44 PM
31.

The National Cancer Institute's (NCI) federal budget was $4.6 billion. Of that, breast cancer received 12%, prostate cancer received 7%, and all 12 major groups of pediatric cancers combined received less than 3%. Why is that?

Posted by why is that? September 26, 08 12:51 PM
32.

A healthy child desires many things. A child with cancer desires but one.

Posted by Jim September 26, 08 12:51 PM
33.

Thank you for printing and helping to spread awareness. And a big thank you to all the families who shared their images. I agree with comment #23. Why are we "bailing out" the multi-million dollar companies that are in this position partly due to the greed and selfishness of their CEO's and BOD members? These children and families deserve it so much more! Can you imagine what $700 million could do for these kids? Spread the awareness! A cure is possible.

Posted by Angie Clements September 26, 08 12:53 PM
34.

>> PRAYERS AND YOUR THOUGHTS are needed

"Prayers and thoughts" are useless. Universal healthcare is needed. What is not shown is how many children die with little to no treatment.

Posted by DMB September 26, 08 12:59 PM
35.

Thank you, thank you, thank you. Our childrens stories need to be told. This is wonderful! Thank you for this. Please be sure to visit the groups listed!! Spread the word! We need to find a cure!!!


Aunt to ^Angel^ to Michael Brian (12.24.00 - 6.22.08, Stage IV Neuroblastoma)
http://caringbridge.org/pa/michaelbrian/

http://curechildhoodcancer.ning.com/

Posted by Annaliese September 26, 08 01:00 PM
36.

Thank you so much for doing this piece, may it be the first of many to come until this ugly beast goes away forever never again to make a child suffer and leave this world so soon.

Posted by Bridget September 26, 08 01:00 PM
37.

see comment #32 - i meant i agree w/ comment #28. but i do also agree with #23, there were several that brought tears to my eyes. Thanks.

Posted by Angie Clements September 26, 08 01:02 PM
38.

Thank you for printing this and spreading awareness. Anyone with contacts that can get this in other news-papers around the country would be wonderful. Please do it for the children.
A cure is possible we just need more funding for children. These children deserve it!

Posted by Janice September 26, 08 01:03 PM
39.

Thank you for bringing awareness to the number 1 disease killer of children, cancer. My son has leukemia, and although he is doing very well in his second year of treatment he has spent more than half of his life on chemotherapy and still has 17 months left. Then we sit and wait to see if all of these poisons killed the cancer. We need a cure!

Posted by WendyK September 26, 08 01:05 PM
40.

Thank you for this effort. I am going to forward the link to my local newspaper in yet another effort to get some response from the editors on this very important subject.

The pictures are beautiful, but they only BEGIN to tell the story. I have spent 19 months with my godson in the nitty-gritty of the horror that pediatric cancer treatment is.

Posted by Rebecca Wright September 26, 08 01:09 PM
41.

Thanks doing this. These kids deserve much more attention. There is so much needless suffering. Please keep this on your radar screen and help awareness grow.


Posted by Kelly F September 26, 08 01:11 PM
42.

Thank you for this touching call to awareness and action.

Posted by Shellie September 26, 08 01:14 PM
43.

Thank you for bringing some attention to this cause! As the mother of a healthy 3 year old, my heart breaks for all these parents who have to watch their babies suffer. The saying "A picture speaks a thousand words" rings true here. Look at these pictures and say you don't care...I don't think so!

Posted by Katie B. September 26, 08 01:17 PM
44.

This are moving. My dad is day 30 after a stem cell transplant for brain lymphoma. I cannot image if it were the other way around. Thank you for the photos.

Posted by Kaitlin September 26, 08 01:19 PM
45.

All together against cancer!

Posted by Ulises September 26, 08 01:23 PM
46.

Childhood cancer needs so much more attention and fundraising. Each and everyone of us can help!

Posted by Deanna McKee September 26, 08 01:27 PM
47.

This is the only blog I know of where people post to say thank you to an individual for doing what he does.

Pretty sure you are going to be up for some serious awards Alan.

In my opinion you will have deserved every single one of them...

Posted by Jon T September 26, 08 01:29 PM
48.

Great article on Childhood Cancer, the pictures are beautiful. When our granddaugther, Jenna, was diagnosed 3 years ago, I did not realize how common cancer in children was. Sadly, I think many are that way, maybe because children with cancer have no voice -- no money. They are not seen much publicly either. Parents and caretakeres tend to keep them away from others for fear of them catching something that is potentially life threatening . Thank you for shedding some light on a cause that is so important and close to our hearts, affecting our most precious gifts in life.

Posted by Janet Wilson September 26, 08 01:31 PM
49.

Wow. As a cancer researcher, these images give more meaning to my work and to that of my colleagues than any accolades or grant money or visits from donors or anything else ever could. Time to get back to work.

Posted by Ben Ferguson September 26, 08 01:40 PM
50.

Thank you Alan for covering the story. Pediatric cancer needs more funding for research. These kids and their families are courageous and inspiring.

Posted by Julie Graham September 26, 08 01:44 PM
51.

Thank you so much for this article. We NEED so much more than one article though to call attention to this disease. The vast majority of society never gives childhood cancer a thought because you think it can and will never happen to you or your family. Please believe me when I say I never in a million years thought I'd be taking my 14 month old son to St Jude to recieve treatment for a brain tumor (ATRT-Atypical teratoid rhabdoid tumor). Thank you to all of the angels out there working tirelessly to bring awareness to childhood cancer.

www.carepages.com (onelovedbaby) Caleb Milligan

Posted by Heather Milligan September 26, 08 01:50 PM
52.

the images so real ,and true captured in a photograph , what many of us parents see that our children have to indure.awareness that needs to be seen , and a cause that needs a cure , to many warriors and way to many angels taken to young .

Posted by jenn, (mother of a hero an angel kevin) September 26, 08 01:51 PM
53.

Thank you for doing this piece. These children deserve better. They deserve better treatments and cures. They deserve more funding to develop these cures.

In the last few months, my son Jackson was diagnosed with Neuroblastoma (cancer of sympathetic nervous system). I am writing this from the Pediatric Intensive Care Unit at Cornell (NY) and will transfer back to Memorial Sloan-Kettering today/tomorrow. He had a tumor removed from just above his lung, after undergoing chemotherapy in Dallas.

Along our way, we have met some of the most wonderful people. Some are very brave children going through treatment. Others are families of these warriors. And still others are charity groups and volunteers. We have a new family now, but as much as I love and respect these people, it does not help the fact that not enough is being done to cure these diseases and find new treatments.

If these children have touched your heart, please write Congress to ask them to fund a bill recently passed to spend $30 MILLION over the next few years on pediatric cancer research. Please help the children.

Posted by Joe Boyd September 26, 08 01:53 PM
54.

These pictures are startling and beautiful. Very moving and say so much more than words.

Posted by Judy D September 26, 08 02:01 PM
55.

We appreciate you adding this story and giving our kids the recognition they deserve - for your awareness, that can help bring about money for research, better treatments, and cures. Imagine the progress we could have made with the $44 million dollars it cost to build this summer's Olympics? Or the billions being spent on oversees wars. I wish everyone could shift their priorities and focus a little more on what is most important - our kids, which are our future - they deserve to live and thrive. I'm glad you added these photos, which say more than any words that can be written in the article or comments. Thanks to the families for sharing.

Posted by Natalie, Ethan's Mommy September 26, 08 02:02 PM
56.

My heart breaks for the two beautiful children in photo #10. Not only because they are my niece and nephew but because they both, along with their parents had/are enduring this horrific pain of childhood cancer. No family ever thinks it will strike them and the fear of even the thought is unthinkable. When someone you love is the one in 300 you never have the luxury of not thinking about it again. Let's foster awareness. Sign the petition.

Posted by A.J.'s and Katelyn's Auntie. September 26, 08 02:02 PM
57.

How can beautiful and tragic fit into the same phrase?My 3 kids have lost 5 friends to pediatric cancer this year!Simple coughs,enlarged lymph nodes,headaches,tummyaches are not just that simple for them.They know CANCER could be the cause.Horrific thoughts for 9,6,and 4 year olds to have to even think about.They can't play make believe especially since they buried their own playmates.None of us are immune from this epidemic wiping precious souls off the face of the earth.We're in a war all by ourselves and funding has to be begged for,imagine that,begging for our little ones to stand a chance.I don't fear traumatic deaths of my children anymore,the kind you read about,hit by car,etc.I fear the MONSTER each and every day.Sadly,so do my kids.

Posted by Diane Mcgrath September 26, 08 02:06 PM
58.

Comment in response to #34 - to DMB.
To you, prayers and thoughts may be useless. To me when I was watching my seven year old nephew battle and lose to cancer prayers and thoughts were anything but useless. When the treatment options run out, praying for a miracle sometimes helps. I'm sure this photo blog isn't meant to be a political statement, but it is here to raise awareness. If we can raise the awareness, we can get the funding, and find a cure, so children won't need to be treated ever again.
You're free to your opinion, but this isn't the place for you to tell someone their feelings are useless.

Posted by Annaliese September 26, 08 02:11 PM
59.

re: #12

Is that the Ortiz jersey that someone tried to bury under the new Yankee Stadium?

Posted by Lindsay September 26, 08 02:13 PM
60.

THANK YOU THANK YOU people need to know what is happening to our children.
Childhood cancer needs more funding

Posted by Maureen (mother of a cancer fighter) September 26, 08 02:14 PM
61.

ah......the $30 million bill in Congress to fund research........that's what we spend in Iraq in 2.5 hours! That's Exxon's profits in about 5 hours!........we need corporate sponsorship for CHILDHOOD SPECIFIC ORGANIZATIONS THAT FOCUS SOLELY ON CHILDHOOD CANCER RESEARCH. These kids are not just little adults, they have growing, developing bodies which can not be treated with downsized adult chemo. The long term effects include greater risk of secondary cancers, impacts to major organs and greater chances of heart, liver and kidney problems later in life, as well as infertility.

IT TAKES RESEARCH SPECIFICALLY DEVOTED TO KIDS. CureSearch, St. Baldricks, Alex's Lemonade Stand, Curing Childhood Cancer Fund are some of the kid specific orgs out there to support.

Posted by a cancer kid parent September 26, 08 02:20 PM
62.

These children........full of hope, full of potential, full of enthusiasm for life.....and in the blink of an eye, a cancer diagnosis and life is never again the same. Far too many, taken from this world too soon by a beast we have yet to conquer, CHILDHOOD CANCER. Thank you Alan, and The Boston Globe, for sharing this "world" with others. It's too late for my angel, Krista, but whose child or grandchild is next? It happens .... more than we'd like to admit....1 in 300 kids....it happens. Please continue to help us in creating awareness so that other children and families may be spared this nightmare in the future.
http://curechildhoodcancer.ning.com/

Posted by Pam Wilson September 26, 08 02:25 PM
63.

It's about time that people woke up to the horrifying reality that is childhood cancer. We need to do more about this people! September is National Childhood Awareness Month!!!
Beautiful children- I wish there could be a cure. No child deserves this.
Just as no adult deserves to have cancer, children DEFINITELY do not deserve this.

Posted by Randi Booth September 26, 08 02:26 PM
64.

Beautiful, bittersweet pictures. Thank you for doing your part to help bring about awareness. One day, the GOLD ribbon will be as well known as the PINK one. And, hopefully not too long after that we won't need a ribbon anymore ...

~Heide Randall
m/o Jessica; forever 17; 6/6/90 - 6/9/07; Brain Cancer (click for story)
Join Team Unite! Many Families | One Cause!

Posted by Heide Randall September 26, 08 02:29 PM
65.

God Bless you for doing this article and we all need to joint the fight against this dreadful thing called cancer. Our children are the future and we need them healthy. We need to all be aware of the Childhood Cancer and make every person out there aware.
We fight for the kids. And support their parents and family............

Posted by Grandma Aileen September 26, 08 02:30 PM
66.

Thank you for this moving story and pictures. I have two healthy children but I follow the care pages of many little fighters and angels. We desparately need more funds for childhood cancer research.....for our future children.

Posted by Cindy Smith September 26, 08 02:32 PM
67.

Thank you for shining a light on this often under-reported subject. More publicity will lead to more awareness, which will hopefully lead to greater private and public funding for medical research. Research will lead to a cure, and anything less than a cure is just unacceptable.

Posted by Dave Nickason September 26, 08 02:36 PM
68.

This is a really touch and needed feature. Thanks for bring light to this issue. There are so many kids who need help and its horrible that kids have to endure this disease. Parents should not have to see their kids suffer though this at such a young age. There is a lot of good information on the governments website about childhood cancer treatment http://www.cancer.gov/cancertopics/types/childhoodcancers and you can mind some more at http://www.cancertreatment.net I know that cancer research in general is important but childhood cancer should really be pushed to the front of the media and be seeking additional funds to fight this horrible disease.

Posted by Ryan Hernandez September 26, 08 02:37 PM
69.

As a mother of a 6 year old cancer warrior, I am very thankful for this article. The photos tell a too-familiar story of the lives of families who are affected by this monster known as CANCER. Thank you again for sharing these glimpses of our journey and to acknowledge Childhood Cancer Awareness Month.

Stephanie Thornton, Chance's mom

www.caringbridge.org/visit/chancethornton

Posted by Stephanie Thornton September 26, 08 02:40 PM
70.

Wow. So touching. My thoughts and prayers go out to all of them.


- Blake J. Nolan
http://www.BJNArt.com

Posted by Blake J. Nolan September 26, 08 02:41 PM
71.

The exposure is awsome....my son, Caleb, was diagnosed with High Risk Medulloblastoma in June of 2006. Although he is doing well, we are still very timid during checkups and MRI's as recurrance of this type of cancer is all too common. There is no doubt that people need to be made aware of the magnitude of children and families that suffer this disease. Keep up the good work. Together, we can make a difference.

http://www.caringbridge.org/visit/calebmosley


Posted by Deborah Mosley September 26, 08 02:46 PM
72.

thank you for helping to create more awareness of pediatric cancer. I am the mother of Jake, a 3 year old in remission from Neuroblastoma who was diagnosed at 15 months old. No child should have to go through what our son did.

Posted by Jodi Williams September 26, 08 02:47 PM
73.

Thank you for this beautiful collection of photos. I have been involved in the childhood cancer world for five years (since my own daughter was dx with stage IV neuroblastoma) but these pictures took my breath away. Thank you for representing what we as families face--so much fear, so much heartbreak, but always so much hope.

http://www.bandofparents.org

Posted by Jen Click September 26, 08 02:48 PM
74.

Janet posted an interesting comment: We seldom SEE these kids because, during treatment, they are so vulnerable to infection that we can't risk taking them out in public. Sadly, it is often not the cancer that kills them, but the infections they contract because of weakended immune systems. If that were not the case, I would have my godson out with me 24/7 so that people could see the FACE of childhood cancer. I would dare anyone to look at this sweet little 5-year-old and then turn away from this cause!

And yes -- This COULD be your child! We certainly never expected it to be ours, but we are doing everything we can to see that he and his friends survive and that no other child has to go through this nightmare.

Posted by Rebecca Wright September 26, 08 02:49 PM
75.

Thank you so much for your article. Please join us at http://www.teamunite.net. and see how you can help us raise awareness and find a cure!!!

Posted by Dianne Killian September 26, 08 02:53 PM
76.

The pictures really touch home and tug at the heart, I can relate my son also had cancer and is doing good now but many are not that lucky !!!!!!
More people need to be aware of childhood cancer.

Posted by Beth Norwick September 26, 08 02:54 PM
77.

Best ever Big Picture album. No Words to express my feeling right now.

Posted by Dianne Goldstein September 26, 08 02:55 PM
78.

Thank you for highlighting and acknowledging these brave, wonderful, incredible children and their families. Unfortuantely pediatric cancer awareness has previously not been a priority - and that needs to change NOW! These children deserve seniority from the government powers to be in that pediatric cancer treatment, pain management, and the "cure" have been too little too late too often! People - the every day citizen - has to finally realize and appreciate and understand that No One is excempt - pediatric cancer does not descriminate. Maybe, finally, hopefully mountains will be moved on behalf of those children whose memories are cherished, or maybe for the ones still in battle aka treatment or maybe for the ones yet to be diagnosed but it will take public pressure, input and a reality check when it comes to being "aware" of all that a child/family fighting cancer invovles!!!

Posted by randy w. September 26, 08 02:56 PM
79.

thank you so much for this piece. so many people are working like mad to get childhood cancer more awareness and funding, and sadly, the subject didn't even get very much attention in its own "month". great, great work

Posted by natasha hilke September 26, 08 02:58 PM
80.

Thank you for this article. This is a tragedy for all close to these children. The weight is almost unbearable. If only more news agency's would take notice. They need more than 3% for research to stop this monster from destroying families.

Step-mom to Brooklyn Durham currently on paliative care after an almost 9 year battle with ALL.We pray she makes it to October 12th to blow out 12 candles on her birthday cake.
caringbridge.org/brooklyndurham

Posted by Angie Durham September 26, 08 03:00 PM
81.

Thank you for the photos that look like something out of my life. I cried when I saw the picture of AJ and his sister, I can feel their emotion and the love that siblings have for each other. How heartbreaking for her to lose him. Thanks to AJ's Dad for his everlasting crusade for my daughter (4 year old cancer survivor), we appreciate and admire him more than words can convey.

Posted by Bobbi Kain September 26, 08 03:06 PM
82.

Thank you for sharing these pictures. They really bring to light how we must focus more of our efforts on finding a cure for these pediatric cancers.
My prayers go out to the family and young patients.
God bless you.

Posted by Christina September 26, 08 03:16 PM
83.

My beautiful great grandson Lukas is picture #8. He has been through more treatment in the last 9 months than most adults have in a lifetime.

Thank you so much AJ's Dad for getting this project on display. Your kindness in the face of your tragedy is heartwarming.

With more awareness, my dream is that childhood cancer will receive the funding necessary to defeat this monster.

Thanks to the Boston Globe for publishing these beautiful/sorrowful pictures.

Posted by Emma "MAMAW" Petty September 26, 08 03:20 PM
84.

These photos bring tears to my eyes. The saddest part is these photos will continue to be taken unless we act. Please support each of the organizations listed in the link section. Together we can make a difference.

These children are true HERO's and need our support!!!!

Posted by Misty Kershaw September 26, 08 03:24 PM
85.

Thank you for providing this coverage on Childhood Cancer, something that does not seem to receive much attention. We need more funding and research. Perhaps this will be an aid to that end. My grandson is currently battling Neuroblastoma. Help save our children!!

Posted by Janet Palmer, Dante's Nana September 26, 08 03:26 PM
86.

Childhood cancer deserves more funding. It is a disgrace that of the government funding for cancer only 3% goes to childhood cancer. And that 3% is shared by all forms of childhood cancer. What was congress thinking. Let it happen in their home and see if then they think 3% is appropriate.

Posted by Michael Russo September 26, 08 03:26 PM
87.

Thank you so much for helping bring awareness to our cause. My youngest daughter, Courtney, passed away Nov. 14, 2006 - just a week before her 20th birthday after fighting the disease (acute lymphocitic leukemia) since the age of 13. Sadly, it wasn't the disease that killed her, but the results of the treatment. www.freewebs.com/courtneynicole

Please don't let this happen to your child/grandchild/neighbor's child! Join us in the war to raise awareness and gain much needed funding!

One initiative is the Petition to Cure Childhood Cancer at http://www.thepetitionsite.com/1/CureChildhoodCancer. It has over 16,000 signatures and will be used to hopefully leverage a network TV special solely on childhood cancer or a similar high profile project. Last month I also started the People Against Childhood Cancer community at http://curechildhoodcancer.ning.com. We are growing network of nearly 1,000 parents, friends, family, concerned citizens and childhood cancer organizations (CureSearch, Alex's Lemonade Stand, St. Baldrick’s, Make-A-Wish and more) whose sole mission is to present a unified voice to raise awareness of childhood cancer.

I hope that you take some time to consider joining the fight. It is a national tragedy. It is underfunded and underpublicized. You can help make a difference. The child you hlep save may be your own.

Posted by Debbie Manning September 26, 08 03:27 PM
88.

As a mother of two beautiful children I broke into tears when I saw these pictures, especially #6. The pain of loosing a child is unbearable, I hope I will never experience that. Thank you for sharing these stories.

Posted by Sandra Jörgensen September 26, 08 03:27 PM
89.

Wonderful photos. My son was diagnosed with high risk neuroblastoma just shy of his second birthday, and spent the next 3 years in treatment, much of it very painful. Thankfully, he is still with us and started first grade this year. We knew one of the subjects of your photos (Nathan) who was treated at the same hospital as my son. I wish he was still with us too. Too many of the kids that we met on this journey are no longer here.

Posted by Bonnie September 26, 08 03:30 PM
90.

Thank you so much for bringing attention to this. Almost everyone knows about the pink ribbons for breast cancer but too few know about gold ribbons or that September is National Childhood Cancer Awareness month. I thik AJ must be very proud of his dad for the work he has done in his son's memory.

Posted by Sharon Harris September 26, 08 03:30 PM
91.

Thank you for these thought-provoking photos. We all take our health for granted, but it's arguably our more precious possession. With much love to all the kids in these photos, and all the others suffering around the world.

Posted by Matt September 26, 08 03:38 PM
92.

Thank you for helping to bring awareness to childhood cancer. We never knew the full story of cancer until Tyler, my 15 year old son, was diagnosed with Burkitt's Lymphoma last year. That is the same cancer as A.J. had in photo #10. AJ's dad has become a dear friend and supporter as we have fought this cancer.

tyleralfriend.blogspot.com

Posted by Kyle Alfriend September 26, 08 03:38 PM
93.

These photos say it all - cancer sucks! Thanks to the parents who share their stories and photos. Maybe this will draw some more attention where it is badly needed.

Posted by Linda K. September 26, 08 03:39 PM
94.

We must all join together to see that all children with cancer get the treatment they deserve. More needs to be done to fund research. The courage that these children show while fighting this disease is remarkable. Their smiles show through as they fight this battle. We, the adults, must do more for these kids, they are the future. Love to all the children and families, who are going through this ordeal. Thanks to the medical teams, volunteers and supporters who make the journey more endureable. Special thanks to AJ's dad.

Posted by Christine DeLuca September 26, 08 03:40 PM
95.

More needs to be done for our kids!

Posted by Traci Weirich September 26, 08 03:42 PM
96.

Thank you for sharing these photos. Beautiful, painful photos, but they need to be seen. My son was diagnosed with leukemia when he was 2 1/2. He relapsed 3 times and then underwent a stem cell transplant, all in less than a year.

When I saw Nathan Gentry in photo #6 I started bawling. He has my son's feet, which I spent a great deal of time holding and rubbing, when he was in pain. I only read his mother's words after I noticed the similarity.

Love, hugs, hope and prayer for everyone who has to deal with these terrible diseases. Cancer sucks.

Posted by Kimberly Madrid September 26, 08 03:46 PM
97.

Thankyou for raising awareness.
These photo's certainly bring a sense of reality.

http://www.caringbridge.org/ne/kaitlyn

Posted by Colleen - Kaitlyn's mum September 26, 08 03:57 PM
98.

I lost my son Tyler after only a 23 day battle with cancer. He was 15 and full of life. These pictures are so moving and pull at every heartstring. They are the faces of kids who fight harder and are braver than many adults I have met, they are true warriors. I pray that someday we find a cure for this horrific beast so no other family has to hear those awful words "I'm sorry, your child has cancer."
Tyler Cyr #32 and Forever 15!!

Posted by Kelly Cyr September 26, 08 04:01 PM
99.

Time to scream for attention. Write your Congressmen and your senators. We need more federal funding for cures, support and prevention. Sign the petitions noted by AJ's dad. Please considering donating to curesearch or other PEDIATRIC cancer organization.

Thank you to to parents of the angels for channelling their rage into action. I am so very grateful.

Mom to Ellie (SPNET brain tumor, out of treatment two months).

Posted by Mary Flaherty September 26, 08 04:07 PM
100.

In the 12 years between the time my 4 year old daughter was diagnosed with stage 4 neuroblastoma and the time of her relapse in 2006 there was shockingly little progress made in developing a cure for this disease despite tireless efforts by many devoted medical professionals and parents. My child received an experimental treatment this summer developed by a company right here in Boston! The treatment produced a fantastic response. For those who want to donate to childhood cancer research, look carefully at the organization and make sure to ask what percentage goes directly to trials for pediatric patients.
Thank you for the photojournal, it is stark reality and pure beauty.

Posted by susan k September 26, 08 04:07 PM
101.

In every one of these pictures, the children are either smiling or reflecting. Not a sad look among them. Every one of them reflect love, joy and happiness...as life should be. Let's keep pushing the awareness on Childhood Cancer. We should not lose any of our children and no parent should have to go through the loss of a child. We can't stop it all but we can make a positive difference in the statistics. Great article!

Posted by Nancy Lyon Douglas September 26, 08 04:14 PM
102.

Cheers to Boston.com for running this!!!
http://curechildhoodcancer.ning.com/

Posted by dari mcmanus September 26, 08 04:19 PM
103.

Thank you for bringing much needed attention to the nightmare of Childhood Cancer.

Posted by Stacey Borst September 26, 08 04:26 PM
104.

#6's description touched me.

Posted by Hax Or September 26, 08 04:33 PM
105.

We have to work together (and fund appropriately) the fight against childhood cancers. These children are innocent victims of a horrific disease and they deserve the best we have to offer in their fight to be disease-free and happy. They just want to play, they just want to have fun with their family and friends, they just want to have the chance to grow up...they all deserve a real shot at life.

Posted by Elsa Englund Kayuha September 26, 08 04:37 PM
106.

Thank you for the great article! I hope many other esteemed papers will follow your lead! The children deserve it! From the mom of one precious child fighting this dreadful, horrible disease-we are grateful. Every day ought to be childhood cancer awareness day.
Kimberly, Mom to Evan the Warrior
http://www.evanthewarrior.com
http://www.carepages.com/carepages/evanthewarrior

Posted by K. Hutchison September 26, 08 04:41 PM
107.

"Juju , I miss you . I wanna go up a sky and play with you . Mama, why did him have cancer in him head ? John Eric had cancer too , Mama? I have cancer too , now I go up a sky to play with them "
These are words I hear from my three year old William's mouth pretty regularly .
These are words I wish I'd never hear but rather his and Julian's laughters mixed together because they are right here by me .
Except Julian ( #14) was killed by cancer and William , Sam and Alex were robbed of ever seeing him grow up , or play soccer , or even start kindergarten as he was supposed to a month ago .
This is NOT fair and HAS to stop...GET INVOLVED !!!! Follow the links below the pictures ...
Julian's broken hearted but hopefull Mama
http://www.carepages.com/carepages/JuliansWorld

Posted by Myriam Avery September 26, 08 04:43 PM
108.

What a beautiful and moving story !!!!
These are our friends- We have been fortunate- Lexie is still here with us- Some of our friends have not been so lucky to still have their kids-
The story needs to be told- Regular citizens need to know-
alice, mother of lexie, age 10, brain tumor

Posted by Alice Williams September 26, 08 04:44 PM
109.

Thank you for doing your part in publishing these pictures of children affected by Childhood Cancer.
Hopefully many will see them and realize that at any moment their child could be that 1 in 330 like our Abby was!
More money and more research all start with more awareness!

http://curechildhoodcancer.ing.com/

http://www.carepages.com/carepages/AbbySafleyCarePage

Posted by Jackie Safley September 26, 08 04:56 PM
110.

Stunning photographs. Thanks so much for shedding light on this neglected area of research.

Posted by Peg September 26, 08 04:59 PM
111.

These pics are amazing...I am sitting at my desk close to tears...I am Pop pop to Julia.dx with Acute Lymphoblastic Leukemia in 12/05. This past Feb 2008, Julia received her last chemo treatment and is now in Kindergarten with monthly blood checks.

These are very special angels...let's pray for a cure

Posted by Fran Becht September 26, 08 05:02 PM
112.

As a parent of two healthy children I simply can not imagine the pain these children and there parents go thru. Something needs to be done for these families it's not fair. These are beautiful innocent children they deserve more. It's about time more awareness is brought to people's attention about pediatric cancer. My prayers to everyone who has or is going through this.

Posted by Maisie Michels September 26, 08 05:05 PM
113.

Thank you, thank you, thank you- from all of us whose hearts and lives have been touched by childhood cancer. More than anything, these children need their voices to be heard so that new treatments, and ultimately a cure, can be found. May other journalists and photographers follow your lead and spread the word. One child lost is too many. We cannot rest until we beat Childhood Cancer! Thank you again!

Posted by Barbara Wetherhold September 26, 08 05:09 PM
114.

WoW...every picture here speaks volumes. Cheers to Boston.com for running this. Thank you for bringing much needed attention to the nightmare of Childhood Cancer.

Posted by KAS September 26, 08 05:09 PM
115.

Thank you so much, Alan, for taking the time to show the world a reality that can touch any of us at any time...and has impacted many more than can be shown in 19 pictures! We need to keep this in front of the public; we need to make them aware!

Thanks also to the very special families who, in spite of their pain, chose to share these moments with us...my heart breaks for you.

We all need to gather together to support this cause and push for funding - several opportunities have been linked in this blog...so please, don't hesitate...to add to what AJsDad said about the child you save being your own...don't wait until it becomes personal...it may be too late then!

Posted by Victoria September 26, 08 05:11 PM
116.

These photos are so touching, and there're just a small sampling of what these kids go through. There needs to be more money put toward research for children's cancer. No mom or dad should ever have to lose their baby to this monster. No child should ever have to go this. Thank you for bringing light to this topic and for recognizing that September is Childhood Cancer Awareness month.

Posted by Donna Aronne September 26, 08 05:13 PM
117.

THANK YOU SO MUCH FOR MAKING THIS VERY PUBLIC CRY FOR HELP WITH CHILDHOOD CANCER. LISTING THE LINKS TO THE VARIOUS SITES THAT ARE TRYING TO HELP WITH FUNDING FOR RESEARCH WAS ALSO VERY HELPFUL. IT IS A DISGRACE THAT OUR COUNTRY SPENDS SO LITTLE TO HELP OUR LITTLE CANCER FIGHTERS. WE NEED TO FIND A CURE NOW...OUR CHILDREN ARE OUR FUTURE!

Posted by June Knight September 26, 08 05:13 PM
118.

Thank you boston.com for taking the time to talk about what is happening to our children.


Please help us to help our children! Join in the fight at
www.curechildhoodcancer.ning.com

or sign our petition to increase awareness:
www.thepetitionsite.com/1/curechildhoodcancer

Thank you.
Kathi
www.caringbridge.com/visit/kelsiemckune

Posted by kathi clarke September 26, 08 05:18 PM
119.

Thank you for this article. People need to be aware of what is happening to our children. More research that will require more funding is needed so badly. Our children should not have to go through this!!

Posted by Traci Gentry September 26, 08 05:19 PM
120.

Alan, thank you for bringing reality to light. I've followed many of the children that you have shown, sadly several of them are no longer with us. But we still have an opportunity to stop this beast. Your pictoral shows reality - what families, friends and most importantly, what these children must go through. Please, everyone support these organizations - let's stop this right now!

Posted by Karen September 26, 08 05:19 PM
121.

Thank you for bringing a little attention to Childhood Cancer. Next year we want to see as many gold ribbons and gold products as we see pink ribbons in Oct. We have too many friends affected by this horrible disease and we hope to bring more awareness so we can help these children and families. As our friend Kennedy says, "don't turn your head, kids get cancer too". We have lost too many friends this year, lets hope next year brings advances in treatment and more lives saved.

http://www.onetruemedia.com/otm_site/view_shared?p=4b5db518d7c2cab86afd65

Posted by Jennifer Hettiarachchy September 26, 08 05:20 PM
122.

WOW is all I can say - Very touching. I have a good friend whose little boy's best friend just had an 8 hour surgery to remove spinal tumors and they also found one in his head. There are way too many kids that are going through this horrific stuff. Of course my favorite pic is #14 - Sweet, sweet King JuJu...but all the pictures have touched me!! Amazing!!! Thanks for doing this story!!

Posted by Amy September 26, 08 05:25 PM
123.

Thank you! Thank you! Thank you! The children find a voice everytime someone such as youself takes the time and interest to spead the word that cancer strikes children too. That babies are affected and suffer just like those with breast cancer or prostate cancer or other cancers we typically hear about in the media. These photos are heart wrenching and they brought me to tears. However, it is so incredibly important that the eyes of the world are open to this topic. More needs to be done about childhood cancer. If you look at the statistics and what little is being done to research a cure for pediatric cancer ~~ people would be amazed! Thank you for being an ambassador for the children.

Posted by patty September 26, 08 05:25 PM
124.

I want to thank you for bringing attention to the monster these children are fighting. Until recently when I started following the stories of these warriors I had no idea of what these little ones endured and the heartache that was inflicted on the families. I now rejoice in their in good news and scans and also have shed many tears in their fears and losses. I have been praying on their behalf and will continue to do so. It is such a small contribution that I make but I also talk to people and try to make them aware. I hope we soon see more gold ribbons - like we do pink ones. Thank you again and wouldn't it be great if AP picked up on this.

Posted by Julie Woodson September 26, 08 05:25 PM
125.

As a parent, nothing terrifies me more than childhood cancer. Please, if you're reading this, and you haven't yet signed the petition for People Against Childhood Cancer please, please do so. It's one of the links after the pictures in the article.

Posted by Sandra Garcia September 26, 08 05:25 PM
126.

Thank you for bringing awareness about childhood cancer. People need to know that it doesn't just happen to "other peoples' kids". It could be your child. The statistics are overwhelming. Not enough is being done to find a cure for this devastating disease. Thank you for sharing the pictures.

Posted by ACI September 26, 08 05:28 PM
127.

Thank you for bringing attention to Childhood Cancer, my nephew was diagnosed at 9 yrs old and finally I am starting to hear about the fight for our children.

Posted by Debby McKinney September 26, 08 05:29 PM
128.

I'm so glad that someone is bringing attention to this much neglected topic. I was thinking about it today; who would imagine that a 2 year old little girl would get cancer. Who would imagine that she would die 2 1/2 years later because there is no successful treatment for relapsed Neuroblastoma. I never imagined that little girl would be mine. Next time it may be yours. Thanks for being a voice for the children, their brothers, sisters, and parents. Alone, no one hears us, but together we will be heard.

www.caringbridge.org/visit/elesha
See also http://www.anewyearofhope.org/

Posted by Karen Debenport September 26, 08 05:29 PM
129.

THANK YOU for bringing attention to this!! May God bless all of the little ones fighting out there!!

Posted by The Fischer's September 26, 08 05:29 PM
130.

WOW!! What an amazing article to see, I am absolutely blown away!! I have shared with all of my family and friends in hopes to get even more signatures on the petitions! Thank you Alan for doing this article!

Posted by Jess Toomey September 26, 08 05:31 PM
131.

Dear Government,

Please send all the money to the cancer researchers. The big companies don't need it as much.

Posted by Kristen DeDeyn Kirk September 26, 08 05:33 PM
132.

Thank you so much for letting everyone know that this is a reality for some very precious children. It hurts my heart to see the pictures of such special faces that have had to endure so much pain in their short lives. Hopefully, all will see the importance of this issue and do something! I know that I will.

Posted by Donna Coleman September 26, 08 05:33 PM
133.

Thank you so much for doing this story. My 8 year old son, Tanner, is a cancer survivor. He was diagnosed with Burkitts Lymphoma in August 2007. He underwent 6 rounds of chemotherapy and 12 radiation treatments and 2 surgeries and has been in remission for 9 months.

Posted by Tammy September 26, 08 05:35 PM
134.

I cannot thank you enough for running this story and capturing these moments. I am the mother of a child that is currently battleing an extremely aggresive and inoperable tumor in her brainstem. the medical term is Diffuse Instrinsic Pontine Glioma and although it is called "rare" each week I learn of a new child that has been diagnosed with this type of tumor. The warriors that are in the fight against cancer are some of the bravest and happiest children I know. The awareness you have created by running this is wonderful; finally some attention for how serious pediatric cancer is in this country and across the world.

Ellie's mama,
Niki Willaert

www.caringbridge.org/visit/elliewillaert

Posted by Niki Willaert September 26, 08 05:35 PM
135.

As I sat here with tears I would like to Thank you! for doing this for all the kids that are in this nightmare for life. I am the very proud Grandma of Julian Avery. May God Bless all the Kids in this fight. Please let us fine the cure soon.
Julian's Grandma

Posted by Judy Avery September 26, 08 05:36 PM
136.

Thank you for giving this cause a voice! These children need our help, and if they can't inspire you, what will? Julian Avery's story alone is what brought me to support Childhood Cancer Awareness. Hopefully all the stories you've shown here will inspire even more support. Thank you.

Posted by Michelle Acker September 26, 08 05:36 PM
137.

I see my little Julian's picture, and it brings so many memories flooding back, especially of how brave he was, and how his parents Mimi and Ken never gave up hope. I am only a carepage reader, have not had childhood cancer up close, and yet it is very personal to me. I've gotten to know all these wonderful children, and have lost too many this past year. I'm praying and working toward a cure for all these precious children. Thank you so much for doing this article and putting some sweet faces with this horrible disease. I believe it's the first one I've seen of this type. As you know, childrens cancer seems to take the back seat to many other types of cancers (all horrible) in the publicity it receives. Thank you so much for bringing attention to these children. Hopefully one day there will no longer be a need, when they finally cure childhood cancer.

Posted by Kathleen Hall September 26, 08 05:37 PM
138.

Hello to all the familys fighting childhood cancers. this pictures can tell a storys. many of our kids of cancer go thru so much pain but always with a smile!! i'am a father of a 5 yr old girl tha has beating a rare form of cancer call neuroblastoma in less then 3 yr's. All this kids are my hero's I will trade places with any of this kids. cancer has hurt my family alot! we share the pain of many family going thru this sad life of childhhood cancer I only wish our kids will get more cancer story as a father I will never give up because alyssa has shown me to live life without looking back her strengt is out of this world. to all the family there hope feel free to follow alyssa web site www.carepages.com visit alyssa ramos just become a member then type her name we all my love thank you for supporting childhood cancer...

Posted by MICAHEAL RAMOS September 26, 08 05:39 PM
139.

Thank you for posting! It's amazing how many families are out there thinking and praying for us! Owyn's mom # 16 www.caringbridge.org/visit/owyntylerlaw

Posted by Holly September 26, 08 05:40 PM
140.

Thank you so much for bringing attention to that fact the kids get cancer too. As the mom of a 4 year old cancer survivor people need to know that even though my daughter has beaten cancer she will live with the side effects for years to come. Today she was fitted for leg braces, just one of the many side effects of her chemo.

Posted by Tiffany Beamer September 26, 08 05:42 PM
141.

Thank you for helping to bring the reality of childhood cancer to more people that are unaware of just how prevalent it is. We were in this naive group four years ago until it came knocking at our door. Our son was diagnosed with a glioblastoma multiforme brain tumor and battled for ten months. The unbelievable statistics of childhood cancer and the lack of funding for research was a devastating and maddening fact to learn as we watched our our son draw his last breath feeling helpless because we could not find a medical option to save him. These kids deserve attention - they are the innocents without a voice. We must not let this continue to happen. Please spread the word!

www.caringbridge.org/visit/zacharytucker
www.sherrytucker.net
If you would like to understand more of what childhood cancer brings to a family read "Unfinished Love -- Walking by Faith through Pediatric Cancer" available on Amazon.com

Posted by Sherry Tucker September 26, 08 05:42 PM
142.

How can a person read this article and see these pictures and not be touched in some way. These children need our prayers, our help, our donations, our voices. These children are our future. God bless every one of them!!

Posted by J. Gonabe September 26, 08 05:42 PM
143.

Thank you for writing this story and bringing attention to pediatric cancer! The pictures are beautiful and very moving.

Posted by Julie September 26, 08 05:43 PM
144.

Thank you for these photos, they were very moving. Thanks also to the kids and their families for sharing their stories with us, it couldn't have been easy to do. Hopefully this is just the beginning and soon kids with cancer will get the attention and the cure they deserve...

Posted by Chantal Basch-Tetreault September 26, 08 05:44 PM
145.

Thank you Boston.com!
My little Khalid is 3 and has Neuroblastoma and is currently recovering from a stem cell transplant. It is so important to draw attention to childhood cancer so new treatments and cures can be found.

Wear Gold for the Kids!

Posted by Danielle Cureton September 26, 08 05:45 PM
146.

These are all very touching stories. What a nightmare these children have to go through and the siblings, parents, friends. Childhood Cancer is so very real, why can't it get more in the eyes of all so they realize these babies, kids need us they need us to fight for them and to find a CURE. Please don't shut these little ones out HELP THEM

Posted by Lisa September 26, 08 05:45 PM
147.

THANK YOU for helping raise awareness of CHILDHOOD Cancer.

Posted by SueEllen September 26, 08 05:45 PM
148.

Thanks for this article to raise awareness for all the children who are fighting this horrible beast called cancer and for those who will be diagnosed. My son was diagnosed with stage IV aveolar rhabdomyosarcoma in November, prior to that I had no idea that 46 children are diagnosed every day. This has not only changed Jeremy's life but the life of our entire family. Our kids do not deserve a life with cancer, we need to find a cure.

Thanks to Bob(AJ's dad) for all he does to raise awareness.

Posted by Annmarie Campus September 26, 08 05:48 PM
149.

Keep politics out of it? Hell with that! How else is anything going to be done about this?? Charity? Private foundations? Some company's going to see a profit potential? Please, some answers anyone!

And the truly sad thing is that the children shown here are the lucky ones. So many others never get an early enough diagnosis (or never get one at all) to even get a fighting chance at receiving treatment. We can afford everything in the world in this country -- wars, airline bailouts, mortgage industry bailouts, missions to space, you name it. Everything except for healthcare that could lead to better screening.

Posted by kevjohn September 26, 08 05:50 PM
150.

Very heartbreaking. Thank you for the story.

Posted by Dede Smith September 26, 08 05:51 PM
151.

No one, least of all children, should have to suffer at the hands of this horrible disease. Please, please support the race to cure all cancers and we lift our voices to ask specifically for cures for the children who are in waiting!

Posted by Claudia Phillips September 26, 08 05:53 PM
152.

Thank you for sharing your stories.
Our children should not be suffering this way.
God bless you all.

Posted by C Moore September 26, 08 05:54 PM
153.

My wish is that there would be no photos to be taken, because there would be no child with cancer!

Posted by Sharon Currie September 26, 08 05:56 PM
154.

Thank you for the pictures of these beautiful children... each and every one of them. They represent the multitude of children suffering with childhood cancer. Remember to pray for them and their families -- and the physicians who are treating them. There has got to be a cure for this monster !!

Posted by Shannon Wilder in Chickaloon, Alaska September 26, 08 05:57 PM
155.

Alan, I want to thank you for getting the word out about the month of September being Childhood Cancer Awareness in honor of all the little ones fighting this battle.You shared some very touching pictures. My 3 year old grandson is one of these little warriors. Thank you!!!!

Posted by Jan September 26, 08 05:59 PM
156.

Thank you so much Alan for spreading awareness. My cousin was diagnosed with glioblastoma in 1998 and earned his wings in 2000. His father earned his wings in 1977 from glioblastoma as well. Not nearly enough is being done to help these children. Don't forget to eat at Chili's on Monday as 100% of their proceeds will go to St. Jude.

Posted by Nicole C. September 26, 08 06:01 PM
157.

Thank you for bringing attention to the terrible plight facing our children. I am sick of the government telling us there is not money to do anything about cancer...about children with cancer. We can find $10billion lying around to send to Iraq to fight an unnecessary war, but we can't find any money for research to keep our children from having to suffer. I really wonder where the govenrment's priorities are! People, show these jokers at the voting booth what is important! Make them answer to us on the war on cancer, a war WORTH FIGHTING! Save our children! Save our future!

Posted by Terri GIllespie September 26, 08 06:02 PM
158.

Thanks for this much needed effort. I am a cancer survivor myself and have numerous friends with children who are battling or have lost the battle with childhood cancers. During my treatment at MD ANDERSON, I was in the Lymphoma area which was very near the childhood cancer wing. It was so, so sad. Alan, You are now one of my heros for writing this article and for getting this done! God Bless you and all those affected by this horrible disease!

Posted by Norm September 26, 08 06:02 PM
159.

" Our brightest blazes of gladness are commonly kindled by unexpected sparks"
Thank you so very much for bringing to light Childhood Cancer Awareness. You have in pictures touched hearts ...touched lives. My Son Sinjin continues to fight for his life as do far to many other children. The children who have lost their fight have forever touched us. With unstoppable hope Sinjin's mama
www.caringbridge.org/sinjinandrukates

Posted by Lorna Mahan September 26, 08 06:04 PM
160.

Thank you for the beautiful pictures and article. Our daughter is 19 and fighting ALL. Leukemia. Anything that can be done to put this monster into the front of people's minds and increase funding and research is wonderful. If even part of the effort that is being given to some adult cancers would be switched to childhood cancers - think what might be possible. It is a forgotten area. So many bright and beautiful children......

Posted by jan anderson September 26, 08 06:04 PM
161.

Cancer, touching the life of even one child, is way too many. Photo 14 is a picture of my friend's son. He loved the color yellow... he has three brothers.. a Mama and a father, relatives and friends... who would give anything to spend one more moment with their son, brother and friend.

Cancer needs to be stopped... if we can send man to the moon then there is no reason why we should not be able to find the causes and discover the cures for these little heros... wise beyond their years.

Our government is talking about a bail out beyond any amount ever considered in history... if we do that , then there is no reason why, for a much better cause, that we should not make the financial resources available to invest in the cures needed for childhood cancers.

All cancers are rare forms... treat them as such!

September - Childhood Cancer Awareness... do something about it TODAY!!!

Posted by Deb Klopp September 26, 08 06:04 PM
162.

Very touching photos. Well done series. I am so sorry that there is a need for such a series, but there is! This topic was lovingly and sensitively handled. Thank You!

Posted by Susan Meyers September 26, 08 06:04 PM
163.

I never realized how many precious babies, children and even young teens and young adults are being treated for cancer, too many different types of cancer and tumors at that. We have no idea what these victims and their families endure while battling cancer. I lost a very precious young man in my life, my nephew, Jeffrey Cade "Wheeler" shouppe had battled ALL for 5 years, went into remission 3 times and had success with a BMT for 6 months. Wheel's cancer returned and he lived 92 days, earning his "Angel Wings" 15 days after he turned 13. We love and miss you Wheel, in loving memory. Aunt Jackie

Posted by Aunt Jackie September 26, 08 06:05 PM
164.

Thanks so much for bringing awareness to these babies!

Posted by Sandra Clark September 26, 08 06:07 PM
165.

Thank you for taking the time to write this article and helping to bring awareness to childhood cancer. The pictures are both beautiful and heartbreaking. Although I do not know any of these precious children personally, it doesn't matter. They could be anyone of our children....they ARE all of our children.

Posted by M. Goodwin September 26, 08 06:08 PM
166.

Thank you for bringing awareness to Childhood Cancer! Too many sweet children are affected by this ugly beast.
Pic #8 of Lukas is precious! He is such an inspiration to me during my journey. He's so strong and never lets anything slow him down. Go Super Lukas!!!
The pictures speak more powerful "words" and any writings or columns could ever do. Keep up the awareness!

http://www.caringbridge.org/visit/lukasmacdonnell

Posted by Leeayn Byrd September 26, 08 06:10 PM
167.

My daughter was born with Down Syndrome. I was told that children with Downs have a higher percentage of getting Leukemia than a typical child. As time went on, I didn't think about Leukemia. I was enjoying my daughter who I love so much. Then I heard the words most parents do not want to hear. I found out she had Acute Lymphoblastic Leukemia on December 28, 2005. I was told this was the 'good' cancer, more survivable. Sierra was treated for 2 1/2 years and was done with treatment in March of 2008. Two weeks later, we were told she had relapsed and would need a bone marrow transplant. We never did make it to transplant. Sierra passed away on May 3, 2008. Our family will never be the same. My hope now is for no more parents to ever have to bury their child because of this demon...Childhood Cancer. It really isn't as rare as one might think.

www.butterflysnrainbows.blogspot.com

Posted by Mary Lynn Kesler September 26, 08 06:11 PM
168.

Thank you, Alan Taylor, for caring enough to remember our kids. My son, Andrew #7, is a survivor, and for that we are eternally grateful. Our family will never forget the dear children who left us too soon. Childhood cancer remains the leading cause of death by disease in this country. More reminders of this fact need to be in front of the public. I'd like this blog in Times Square under a giant GOLD ribbon.
As a parent who advocates for more research, awareness and education, I am very grateful for this deeply touching portrait of cancer's youngest patients.

Posted by Cyndi MacKinlay, Andrew's mom September 26, 08 06:12 PM
169.

Thanks for helping spread awarness of Childhood Cancer, there is just NOT enough who know about it and it effects so many lives! Not only the childrens, but the ones that love them dearly as well.

I have been helping writing to sick children for many years and thought I have never personally met Julian Avery, there were so many times I laughed and cried right along with this family.

Please spread the word and let all know that we need to find the cure for CANCER so no else needs to go thru all the pain and suffering.

Posted by Cheryl C September 26, 08 06:16 PM
170.

Thank you, thank you, for shining light on the lives of these children and the struggles they and their families endure after a diagnoses of cancer. I have been following three little boys in Washington (2 with neuroblastoma, and one with another form of cancer) as their families turn their lives upside down to support these kids through month after month of brutal treatments and side effects. We have to do better for these kids. They endure so much and, in too many cases, they still do not survive.

Posted by Jan M September 26, 08 06:19 PM
171.

Thank you for the attention to Childhood Cancer...we all need to get involved...ask yourself "What if it was my child". What fight would you give then? Don't wait. Again thank you thank you thank you. We all need to become one and get more then 3% to childhood cancer.

Posted by Christy September 26, 08 06:20 PM
172.

Thanks for acknowledging Childhood Cancer Awareness Month. The pictures are great, however, these are the good times. Unfortunately, these children have gone through so much, some enduring surgery, then radiaton, and chemotherapy. Sadly, some have earned their wings after a long hard fight. God Bless those wonderful children, and God bless and help those parents (King Julian #14), who must live without their little angels to hold, hug and kiss. No parent should have to go through what cancer parents do, watching their children suffer through this horrible disease. Whether a child is one or even 32, a parent should not have to watch their child go through this ordeal. Everyone needs to step up and fight to keep our children from the pain of cancer.

Posted by Rosemary September 26, 08 06:25 PM
173.

This is a beautiful story, thank you for writing about our children. I do not understand why more research dollars aren't spent fighting these horrible diseases. My 12 year old daughter was diagnosed with GBM brain cancer and an inoperable tumor in October of '07. We are continuing to fight. Please help us find research dollars so that a cure can be found! Katherine is my only child. I don't want to lose her and I don't want any other parents to have to go through the horrors that we have been through.
Laurie mother of Katherine
www.caringbridge.org/visit/katherinebarnard

Posted by Laurie Haas September 26, 08 06:30 PM
174.

Thank You so much for your pictures of your beautiful children.

I lost my 10 yr old grandson on May 1 , 2008.
He was diagnosed with DIPG ( Diffuse Intrinsic Pontine Glioma ).
A very ( supposedly rare ) there are so many many many children with this type of brain tumor. It is NOT RARE :*(
Dae Hon Gonzales , now known & remembered by all on the net as panda boy due to the love of panda bears.

PLEASE PLEASE give more to the funding for research for childhood cancer and childhood braint tumors , so no more sweet innocent children have to suffer and lose their ives.

http://www.caringbridge.org/visit/dae_hon_gonzales

My Memorial pages for my sweet grandson , Dae Hon.
http://daehon.bravehost.com/index.html


http://sugiesworld.homestead.com/HOME.html
more links about Dae Hon above


THANK YOU

Posted by Cheryl Culley-Reynolds September 26, 08 06:30 PM
175.

These children are so beautiful. Thank you for publishing this!!! Too many of the world's little ones are lost to a variety of diseases, while research into them continues to be severely underfunded. These kids need everything we can give them! Help kill the cancer beast!!

Posted by Cassie Fish September 26, 08 06:33 PM
176.

Thank you so much for this beautiful piece of work, that features our beautiful children fighting the ugliest monster.... I want you to know this is so important to us and we appreciate every effort given to help our brave children!
Proud mom of Maddie....

Posted by Debbie Evans September 26, 08 06:37 PM
177.

Thank you for adding some awareness to Childhood Cancer Awareness month...I wish more media time was dedicated to bringing the Nation together for a good cause.

Posted by Craig Overly September 26, 08 06:39 PM
178.

This cruel disease touches all of us....these could be, and are, our children, our nieces, nephews, friends, neighbors, and other loved ones. Cancer is not only cruel, but unfair. These beautiful young people deserve their chance at a healthy life. We've got to do something to stop this nightmare for these kids and their families and loved ones. These heartbreaking pictures need to be seen by the world. People need to understand that there is a need NOW. Many people don't respond or react until it actually touches their lives personally. Thanks to all of you who have brought attention to childhood cancer through articles like this and hopefully, it will encourage many more to join the fight!

Posted by Monique Nielson September 26, 08 06:40 PM
179.

Thank you for the article and the beautiful pictures. It takes each and every one of us to do our part to raise enough awareness of this monster that is killing our children to make a difference; to raise funding to find a cure! These brave warriors deserve our help and I applaud you for doing your part. I thank God every day that my son is healthy but there is no promise that tomorrow he will still be. Please continue to spread the word so that no more children, no more families have to face this horrendous fight. It needs to stop!!

Thank you!!

Posted by Inga Mondeau September 26, 08 06:42 PM
180.

So sad that it is these extremes of suffering, and anguish that brings out the very best and most noble in us. The big big hearts in these pictures are such a contrast with the vanity, bickering, and bluster of the very small politicians in Washington right now. One of these groups needs to grow up, and it's not the children. Thank you for these marvellous portraits.

Posted by James September 26, 08 06:42 PM
181.

Thank you so much for the pictures. We have a three year old daughter who recieved a bone marrow transplant due to failing induction chemotherapy.

Posted by Tiffany September 26, 08 06:43 PM
182.

Thank you for making public these amazing stories and picures. As my beautiful15 year old niece battles cancer, I pray every day for a cure!

Posted by Lisa Lancette September 26, 08 06:44 PM
183.

Thank you for helping to spread awareness about Childhood Cancers. My son was diagnosed with a malignant brain tumour shortly after his 6th birthday. He is in remission now after 15 months of treatment that included the tumour resection, the installation of a port and feeding tube, physical, occupational, and speech therapy, and of course radiation and chemotherapy. A cancer diagnosis for a child is a diagnosis for the whole family. Our children are true warriors.

http://mommysms.spaces.live.com

Posted by Shawna Singleton, Nova Scotia, Canada September 26, 08 06:44 PM
184.

Thank you for helping bring awareness yo childhood cancer!!!! There needs to be so much research done to cure this awful monster. Please help bring more awareness to childhood cancer. The color is Gold!! We need to see just as much gold as we do pink!!!!!

Posted by Melanie September 26, 08 06:45 PM
185.

Thank you for posting this. It is indeed sad for children to suffer from this disease. My heart goes out to families who must deal with this terrible disease.

Posted by Stan Tahara September 26, 08 06:47 PM
186.

Alan -- If someone has not already asked you to do so, please add these links:

teamunite.net
bandofparents.org

Thank you,
Rebecca

Posted by Rebecca Wright September 26, 08 06:48 PM
187.

I hope and pray that cancer is soon a distant ,painful memory.
I know this sounds cliche but it is so true...if cancer hasn't affected you personally yet, i.e; you do not know anyone who has been tortured by this painful monster, rest assured you WILL know somebody with this horrible illness, someday.
From the youngest babies, to the fathers and mothers of those babies, to your grandmother...Cancer seems to strike without warning, without cause. If the illness itself does not ravage them slowly and painfully, then the poisins that are pumped into the victims' beaten down bodies, to give any chance of killing the disease, can actually take their lives. It is a lose lose situation, that no one should ever have to go through.

Posted by Amy September 26, 08 06:48 PM
188.

This is a wonderful and necessary article. Childhood cancer does not get the attention it needs or desevres. Thank you for printing this article. My 23 month old cousin earned his angel's wings in May of this year due to cancer and several of the children pictured in this article I have been following their care pages. Children deserve to be careful and innocent- cancer takes that from them and changes all of us. God bless all of them and I pray for a cure!

Posted by Christine Green September 26, 08 06:49 PM
189.

Nobody ever thinks of kids having cancer, including so many doctors. I lost my only child Tony to cancer 6 yrs. ago at the ago of 18,He was diagnosed with Hodgkins Lymphoma at the age of 17. I had my son to the doctor anywhere from 2 - 4 times a week for over a year, they thought I was crazy but I knew something was wrong..after he lost approx. 35lbs. in 1 month they realized he REALLY was sick! by the time they found his cancer it was in it's final stages and he endured HORRIBLE treatments to try to stay alive, things NO human should ever have to endure let alone a child, a teen or young adult!!! Thank you to all who are involved in trying to help raise awareness. I pray for the day when no parent ever has to hear the words,"your child has cancer or your child won't make it past the next couple of hours".

Posted by Sharon Orben September 26, 08 06:49 PM
190.

KUDOS AND HEARTFELT THANKS for publishing this article and these touching photos. For anyone who has or is caring for a child with cancer and for anyone who has lost a precious one, this is the real story. It's our truth, our journey. Not one of us would wish to see another child added here. Perhaps this will open some eyes and touch some hearts. We need a cure! Thanks again from the appreciative mom of a beautiful angel, gone too soon.

Posted by Anne Brassard September 26, 08 06:50 PM
191.

I am so thankful to see this piece. Childhood cancer is not recognized enough. As a Breast Cancer survivor, I cannot even comprehend a child having to go through all that cancer brings. So we need to work together to bring more awareness and support to these families. Thank you

Posted by Shannon Pinkard September 26, 08 06:52 PM
192.

Thanks for doing this article in honor and memory of all our precious children that are fighting and have fought this NASTY BEAST. I wish every paper in every city would do what you have done. We need every family involved in this fight. My son was diagnosed at the age of 2 with Rhabdomyosarcoma. Bless you for this wonderfut article.

Posted by Donna Islam September 26, 08 06:52 PM
193.

Thank you so much for bringing the need for MORE FUNDING for Childhood
Cancer. I have seen the effects in my 5 year old nephew. He is my hero, and
is always so brave. Thanks to AJ's Dad-We know this must not be easy for you.
These pictures say a million words for those of us who are there now, and for
those looking in. Please help up beat childhood cancer!

Judy Pelton

Posted by Judy Pelton September 26, 08 06:52 PM
194.

So much more awareness needs to be raised for Childhood cancer. This should have the TOP priority of funding. These children are our future and they are all so very brave. My heart breaks for them and their familys. We need to find a Cure now. I hope everyone can find it in their hearts to donate to this most needed cause.

Posted by Karen September 26, 08 06:52 PM
195.

Every child is precious. Please bring awareness to the forefront of our nation. I have two children and pray that this monster doesn't show it's ugly face. These children deserve to play and be just children!

Posted by Jennifer September 26, 08 06:54 PM
196.

Thank you for this beautiful presentation! Research is so underfunded. May God bless these children & their families.

Posted by Marilyn Long September 26, 08 06:56 PM
197.

Thank you for publishing these photos. They show all sides of childhood cancer, not just the smiling kids. Childhood cancer is an evil killer, it rips innocent kids out childhood and out of their parents loving arms. Childhood cancer tears families up, even those with survivors. It robs kids of innocence, steals their promise of bright futures, it takes their very life away.

I am the proud father of a cancer warrior. My son has been battling medulloblastom (a pediatric brain cancer) since he was diagnosed in April of 2006. The worst day of my life was when I heard those awful words: "your son has cancer".

My dream is that with increased awareness and much needed additional funding future parents who hear those words will know that there is a cure for the sweet little one and not feel the devastation of this evil disease.

Thank you again for publishing these pictures and links, It is a tremendous step forward in the fight so many of us are in.

Michael, Jarrod's ever so proud Daddy.
Jarrod gets to win!!!!

Posted by Michael M. September 26, 08 06:57 PM
198.

These photos just broke my heart. My heart is heavy for those lives that have been lost and the families that must continue to grieve after the loss. There needs to be more done to acknowledge how wide spread and common these childhood cancers are. I lost my husband at an early age of 31. He was a strong healthy vibrant man, and the toll that cancer took on him was tremendous. I cannot begin to imagine with these children must be going through. And the fact that budget does not allow for more than 3% for research is shocking!! If that was your child you would do whatever it takes to make people aware!!

Posted by Shannon Carlo September 26, 08 06:59 PM
199.

More needs to be done to promote National Childhood Cancer Awareness and the government needs to slate more funds to go to the search for a cure for cancer, and particularly childhood cancer. To hear of even one child losing his/her life is too much, but if you take the time to see, you will find that there are thousands of kids suffering and dying every day. The emotional and financial ruin alone caused by cancer to so many families in the United States and around the world is cause enough for our government to make finding a cure for cancer a PRIORITY in this country!!

Posted by Pam B. September 26, 08 07:02 PM
200.

Everyone needs to see these pictures and know these stories. Why is childhood cancer put on the back burner? Why do we hear so much about breast, colon, prostate, etc. etc. cancer's? Is it because only adults get those?

Posted by Tracey September 26, 08 07:02 PM
201.

Oh, did these pictures touch my heart ~ and I know this is unfortunately just the very tip of a tremendous iceberg that keeps growing and impacting all our lives!!! Thank you for helping to bring more attention to the reality of childhood cancer!!!

Posted by Nancy September 26, 08 07:06 PM
202.

I just wanted to thank you for sharing these photos and bringing to light the fight of these young ones. Please continue to run stories like these!!!

Posted by Heidi Penrod September 26, 08 07:06 PM
203.

Thank you for helping raise awareness for Childhood Cancer. These brave kids deserve it!

Posted by Erin September 26, 08 07:07 PM
204.

Thank you, Alan, for this article, and for bringing Pediatric Cancer into the headlines.
My son, Owen, was diagnosed with medulloblastoma, a rare cancer of the brain and spine, when he just three years old. Less than one week after being diagnosed, he underwent intensive brain surgery to remove the tumor in his brain. He endured 37 radiation treatments to his head and spine, leaving his tender skin burned and raw. The horror stories you hear about adults going through chemo pale in comparison to watching how your young child reacts to it. When you hold his tiny little body as they are vomiting nothing but green bile because there is nothing left in his tummy. When his white blood cell is so low that even the tiniest infection could become dangerous. He spent over 140 days in the hospital since his diagnosis. Owen had several infections during which his fever was over 104 degrees, and his body was shaking, his face twitching because his electrolytes were so off...This was all before his 4th birthday.
Currently, Owen is in Hospice Care and at the end stage of his illness. I do not know how many days or hours I have left with him. Our lives have changed so much because of this. Soon, I will not have my youngest son. So many have been lost. I know that there is research being done to help to find a better way to treat cancer, and to hopefully have a higher cure rate so that no other families have to know what it feels like to have to wake up each day knowing that you will not be able to watch your child grow up.
Jennifer Pieber
www.owenpieber.blogspot.com

Posted by Jennifer Pieber September 26, 08 07:09 PM
205.

Alan,

Thank you so much for this article. It was impossible not to cry. Why do we still have cancer? It doesn't make sense. A cure is out there and it must be found, soon.
My life has been touched by this hideous monster. Keep bringing this to people's attention, please.

Posted by Shannon September 26, 08 07:10 PM
206.

Thank you for this article. I didn't really realize the world of Childhood Cancer existed until 4 years ago when our son, then 5, was diagnosed with a brain tumor. Our lives have been changed forever. I wish no family ever had to start this extremely difficult journey. I pray for awareness, funding and ultimately a cure but most especially for my son and all the others waging this battle that no child should ever have to fight.

Posted by Nancy McKeon September 26, 08 07:14 PM
207.

Thank you for bringing some much deserved attention to pediatric cancer. As this month draws to a close, I am shocked and saddened how few people know that September is pediatric cancer awareness month. Unfortunately, I know as my seven year old son was treated for medulloblastoma, the same brain cancer that took sweet Julian Avery. We had part of our son's treatment in Boston, and will be forever grateful to the amazing people we met at the proton center at Mass General.

Posted by Dr. Carolyn Schwartz September 26, 08 07:14 PM
208.

Thank you so much for bringing much needed awareness to help further the cure for childhood cancers.

Posted by Amy Blackwell September 26, 08 07:18 PM
209.

Thank You for showing the heart wretching pictures of Childhood Cancer. Thank You for making the" PEOPLE" of this nation realize what these children have to deal with. Thank You for! I am the mother of 4, and the gradmother of 1. I am a pediatric nurse who has seen far to many children die do to the raging horrors of cancer. I sat in fear of a diagnosis of neuroblastoma for my son(but by the grace of God it was a wrong diagnosis). It is sad that treatments for many childhood cancers are the same as they were 25 years ago. We need more childhood cancer research! The children are our future ! How many future presidents, doctors, CEO"S, farmers etc, have we already lost without ever having the chance to fulfill their dreams and perhaps save our nation.Thank you!! Please keep it up!!!

Posted by Sue Costantino September 26, 08 07:19 PM
210.

Thanks so much for bringing awareness to both sides of childhood cancer. God bless these children and their families.

Posted by Kenneth H. September 26, 08 07:19 PM
211.

Everytime I see or hear of a child (My Little Buddies) suffering from cancer my heart breaks just a little more, and my resolve all the more steeled. I will not quit running till the cure(s) is found. Thank you for the photo journey on the road less mentioned-childhood cancer. The story needs to be told thousands of times

Cure: We can make it happen!

runningforthecure.blogspot.com

Posted by Grandpa John (aka John Raschke) September 26, 08 07:21 PM
212.

Thank you Mr. Taylor for doing this for Childhood Cancer Awareness. My sister is fighting a rare childhood cancer right now. The picture of AJ & his sister made me cry. Not just because we're friends with them but because that's how I feel everyday.

Posted by Matthew Keith September 26, 08 07:24 PM
213.

Thank you for the article, it is important to make people aware of National Childhood Cancer Awareness month. I am sure that there are many people who are not aware of the statistics, because they do not have direct experience with Childhood Cancer. They are probably not aware of the discrepancies between the amount of money spent on "adult" cancer research vs the small amount allocated to research for Childhood Cancers. I hope a followup article is written to provide this additional information.

Posted by Anita Turner September 26, 08 07:25 PM
214.

I first met Mimi and Ken Avery about 1-1/2 years ago. They and Julian (their then 3 year old little boy, with a vicious form of cancer) stole my heart with their great faith and love. I remember thinking that this was NOT the way it should ever be. While his older brothers talked to me, Juju lay covered up in a blanket sleeping hard as his frail little body was waging the fight of his life.

We all prayed, his family, his church family, people that this family had come to know in similiar circumstances all over the world, and others who were just touched by this heart breaking story; we prayed endlessly. God heard our prayers for Julian to be healed and took him to Heaven on January 19, 2008, to be healed for all eternity. We all cried with this family and still do.

But the time to stop crying has arrived. Instead, we all need to make the world aware that this is a very REAL, Monster of a Disease that takes these little ones from their families daily. There IS an answer somewhere. Let us bind together to pray and contribute until there is a cure.

To Ken and Mimi and their sons, I say thank you as, in spite of your heartache, you continue the fight. The day will come when families like your own, will not have to lose their children to this disease ever again. Juju touched my life and I will never forget. Never, ever!

My love to all of you.,

Posted by Karen Bunker September 26, 08 07:30 PM
215.

Thanks for running this story and bringing attention to a much neglected area of research!

Posted by Sara P. FitzGerald, PhD September 26, 08 07:31 PM
216.

Thank you so much for this article and for stepping up tp the plate to bring attention to the horrible fact that children are cancer patients, too.Cancer robs them of their childhood and ,too often, their lives. Thank you for giving a voice to the children and their families.

Posted by Beth Woodward September 26, 08 07:32 PM
217.

I am affected by this everyday as I am Concierge at Children's Hospital of Michigan.
I have the honor of doing things for these amazing children and their families. One of the favorites is getting food for them.
The children I have been blessed to meet and the children that I have not, but see your stories, thank you from the bottom of my heart for blessing my life.
You are all in my prayers every single day of my life.

Posted by Trish Trevethan September 26, 08 07:36 PM
218.

Thank you for helping to create Childhood Cancer Awareness by publishing these pictures, captions, and links. Through the caringbridge website over the last year I have seen many children suffer with cancer and treatment, some to become cancer free, and some to be healed in heaven. I believe a cure will be found eventually but until then, people need to face the fact that there are children suffering with cancer and money needs to be available for research for THEM.

Posted by Tamra Witt September 26, 08 07:38 PM
219.

My son ,John Eric, is up in heaven with his angel freind Juju. It's not fair is putting it midly. One day you are living your life happy without a care in the world and WHAM! the rug is pulled out from under you. I will be the first to admit that this time last year I was new to this world. John Eric was diagnosed Sept 7, 2007 and he earned his Angel wings on May 16,2008. He ws 23 months old.
Alan thank you for this article. If it touches one person who hadent been effected my Childhood Cancer you have done your job. Hopefully they will tell 2 of their freinds and they will tell 2 of their freinds and so on. Once again Thank You for taking the time to mention Childhood Cancer.
Thank You,
Alisha Bartels
www.carepages.com/johnericbartels
www.thejebfoundation.com

Posted by Alisha Bartels September 26, 08 07:43 PM
220.

I am 14 years old and just had a Bone marrow transplant. This is the first time the entire month of September that I have seen any media mention CHILDHOOD CANCER AWARENESS. September is Childhood Cancer Awareness month and I wanted to say thank you. I am still fighting with courage, faith and hope.
with courage Braveheart Sinjin
www.caringbridge.org/visit/sinjinandrukates
This is a poem my mom and I wroye.
"Walking On The Edge Of Life"

The world keeps moving forward

as time stands still for me,

I am the kid with Cancer,

locked in battle to be free.

For all us kids on chemo

our lives are put on hold,

As we fight to stay alive,

our chances good were told.

Our attitude is courage

we live this life each day,

Just waiting for tomorrow,

praying cancer goes away.

Walking on the edge of life

were never looking down,

United here in front of you,

until a cure is found.

©2007 By Lorna Mahan & Sinjin Andrukates


Posted by Sinjin Andrukates September 26, 08 07:45 PM
221.


It is about time!

Thank you Boston Globe and Alan Taylor for bringing this issue to the forefront where it belongs. The pictures were not only beautiful they also showed the reality of Childhood Cancer. I have had the pleasure of following the courageous battles of many special children who are fighting the battle known as Cancer at www.caringbridge.org and I have also followed the journeys of those who are now Angels. All children are precious and no child deserves to be put through so much in such a little time. The treatment now is not where it needs to be and frankly it is heart breaking to know that their treatment options are not only vigorous they are also guess’s and well when it comes to a child’s life a “guess” is just not good enough!

In loving Memory of Matty Dubuc, Arden Bucher and Cole Ruotsala all those angels I have not had the pleasure of reading about.

Keep fighting Sinjin Andrukates and Kennedy.

http://www.caringbridge.org/visit/matty
http://www.caringbridge.org/visit/sinjinandrukates
http://www.caringbridge.org/visit/kennedy1
http://www.caringbridge.org/visit/coleruotsala
Arden Bucher


Posted by Nicole A Arwood September 26, 08 07:46 PM
222.

Thank you for Showing the beautiful American children who have not benefited from our countries tax dollars, who have not received the support and attention they deserve nor do they all get to live in a dream world with a fairy tale ending. We as a country need to realize that these children deserve more than our pity – they need everyone to wake up and as the saying goes “smell the coffee”. Through the lack of awareness, it is often and erroneously assumed that children with cancer are “just” sad little bald kids and when you look away – poof the problem goes away. If only it was that easy. Cancer comes in all sizes, ages, race, religion - they area sons/daughters, sisters/brothers/, classmates and maybe only the kid next door. But, they are everywhere and rare isn’t really so rare. We have all seen the outside sign –a precious bald child. The inside of their bodies really show the real havoc that cancer has done to their bodies, mind, soul and childhood - more than you can even allow your conscious mind to image.
Wake Up America, it is not just our savings accounts that are in jeopardy while we look the other way, it is our future and our children’s future. We as human beings need to realize these kids matter. It is up to US to demand that the government allocate appropriate funding for research and help stop the madness known as pediatric cancer. Obviously years of ignoring the growing statistics hasn’t made long hospitalizations, forfeited childhoods, pain, surgery, shattered families, or any other of the “normal” suffering of the pediatric cancer package go away.
Thank you for helping to alert our citizens of a war in this country known as pediatric cancer. Your visuals helped to capture attention. What a great eye opener, but the kids need more attention – that is until this ongoing story has its proper ending. Pediatric cancer is an escalating disease, it is painful, heartbreaking, cruel and too often deadly!

Posted by r. weiss September 26, 08 07:47 PM
223.

Those are tearful photos. It's reality for a lot of children. My VERY HANDSOME four year old little boy was DX- 9-16-07 with leukemia (ALL). These kids are our future.

Posted by Amanda P. September 26, 08 07:50 PM
224.

This is all too heartbreaking and unfair! Thank you for making more people aware!

Posted by Anonymous September 26, 08 07:53 PM
225.

Thank you for this article, and for the beautiful photographs, which so vividly depict the horror of childhood cancers. I pray that this will heighten the awareness of what children are going through each day, and encourage the government to put more money in place towards finding a cure for these cancers which are taking the lives of our precious children.

Posted by Ruby McGill September 26, 08 07:53 PM
226.

Thanks for bringing light to a world that few know exist. We lived in oblivion until our world was turned upside down when our 3 year-old son was diagnosed with Ewing's Sarcoma, bone cancer. I pray that many view this world from the outside and fewer experience from the inside. Thanks again for your article and moving pictures. My tears have left many trails.

Posted by Terry Chumbley September 26, 08 07:55 PM
227.

Thank you for bringing attention to our children and their fight. So many people don't realize how many children are affected and how much they go through. My 3 year old daughter although in remission, is still in treatment for stage IV Neuroblastoma. She has been fighting for 2 years and 1 month. Everyone needs to get involved to help find the cure.
Jennifer Rathbone
www.caringbridge.org/visit/ilajean

Posted by Jennifer Rathbone September 26, 08 07:56 PM
228.

After having spent many, many months on a Children's cancer ward this past year, as my teenage daughter bravely -- and successfully -- fought cancer (with surgery and chemotherapy), I know first hand how devastating this horrible disease is and how it takes its toll on our very youngest, as well as on their families and their communities. Thank you so much for shining a spotlight on Childhood Cancer with your poignant and touching pictorial. May it be the first of many that can help this cause be seen and acknowledged by people in power who can make a difference by funding research to find a cure!

Posted by DAB September 26, 08 08:00 PM
229.

Thank you for this article. It is very well done. Even so, it just begins to tell the story of courage that these children demonstrate while fighting for their lives and the battles and heart breaks that the family of a childhood cancer patient endures. More must be done to get the word out about childhood cancer. It is woefully underfunded and woefully under reported in the media. i have to believe that if childhood cancer had the media interest of breast cancer, AIDS, diabetes and other illnesses that funding would increase and we would be able to fund more research for these horrific diseases.

Posted by Jill Schoetz September 26, 08 08:06 PM
230.

Thank you for doing this pictorial. Childhood Cancer is cruel. More research is needed to help these sweet children.
I have 4 young children (under 5) and pray everyday (really) that we do not have to go through cancer - for obvious reasons - and then because I know there is far too little research being done to help these young soldiers.
Please do more research to help them.

Posted by Stephanie B. September 26, 08 08:06 PM
231.

Our children need a cure. We must stamp out all cancer but especially for our future our chilren.

Posted by Sarah September 26, 08 08:09 PM
232.

An awesome tribute to the many children who are struck by cancer. Most people don't realize how many children are undergoing operations and chemotherapy when they should be playing and having fun. Too many of our little ones are undergoing months of horrendous treatments; many still don't make it. We need to step up the research to cure pediatric cancer.

Posted by Linda Kenny September 26, 08 08:10 PM
233.

Thank you so much for this post and for bringing awareness to childhood cancer. These pictures are beautiful and brought tears to my eyes as I think about how these children deserve better. These children deserve better funding and better treatments. What’s it going to take? These children deserve a cure. I don’t want to watch these families suffer anymore.

My son Payton was diagnosed in June 2007 with a Wilm’s Tumor. He underwent Radiation and extensive Chemotherapy because of his unfavorable histology. He finished up with treatment 6 months ago and we are holding out hope and faith.

To the families whom posted pictures. You all have beautiful children and my love and prayers go out to you all, for you have all endured so much.

Posted by Emily Larson September 26, 08 08:12 PM
234.

The pictures say it all. Heart-breaking and frustrating... It's simply unreal. How is it that in the year 2008 we have so many innocent children dying from this terrible disease? The treatments are extreme... and even they cause great sickness and pain. And then what? Parents still sit at grave sites, crying for the loss of their precious young children.
We need to get funding to go to the right places. Isn't there some incredibly smart person out there that can figure this stuff out already? Thank you to the strong parents who shared their personal pictures and stories here. Blessings to all the brave angels who are in a better place. Here's to finding a cure.

Posted by Danielle Mahoney September 26, 08 08:16 PM
235.

Thank you for taking the time to tell a little bit about our story.....Pictures say a thousand words however keep in mind the the strugles and the fight are a day to day living.
I am a mother of a 6 year old fighting cancer and I am trilled that finally I read an article about Sept being a Childhood Cancer AWARENESS MONTH !!!!most poeple don't know and mostly because no one ever thinks this could be your child, however it can happen to anyone and this is why we need to put it out out there and educate everyone as to how important it is to find a cure.
It's not that we are consumed with our journey is that somehow this journey has opened our eyes to reality and if we can spare just 1 chill from going through this hell is a job well done.....

Awareness , acknolodgement and research is all we ask for....
Thank you and God Bless all these kids including my little princess.
www.ourlittleprincess2002.com

Posted by Barbie September 26, 08 08:17 PM
236.

I would love to see more money go to Childhood Cancer research. I have 2 children affected by Cancer. One of my children is a survivor of ALL and my other daughter has a cancer that usually only affects older adults. She has had this for most of her life. Her disease only has a cure of a bone marrow transplant. There is research for her disease for Adults, but these treatment options are not available for children- so please- help the kids who are suffering from an adult form of cancer along with the children who have childhood cancers.

Posted by Margie September 26, 08 08:17 PM
237.

Thank you for this article! My son Samuel was diagnosed with stage 4 Neuroblastoma High Risk Aug 31, 2007 and his kidneys failed him during his third treatment of chemo, He could no longer get chemo. We took him home to enjoy what time we had left with him, He is a Miracle! He is NED! No evidence of disease as of now. But his cancer has a low servival rate, It almost always comes back. Thats why he is concidered ned and not in remission. These children need a cure and they need to be heard. They suffer greatly! again, THANK YOU for this article!

Posted by Sylvia Anderson September 26, 08 08:17 PM
238.

eAlan- Thanks you for these moving photos. Julian Avery is a friend of mins & it was so good to see his picture. I only wish he was here to see it too.

Posted by Margie Miller September 26, 08 08:24 PM
239.

Merci pour ces photos, qui montrent à la fois le courage de ces jeunes patients et de leur entourage, mais aussi leur résignation: que faire d'autre que de s'accrocher et se battre?
Les bien portants (les autres, nous) peuvent décider de les aider, de les soutenir. C'est toujours ça de pris.

Posted by Erwann September 26, 08 08:25 PM
240.

What beautiful pictures. I cried as they reminded me of getting a port, losing my hair, and ultimately leaving the hospital cancer free months after my initial diagnosis. I was one of the lucky ones who survived, but there are many kids/teens that do not. Before being diagnosed with a childhood cancer at age 19, I was unaware of the amount of children that were fighting cancer. I hope this helps bring awareness to a much needed cause.

Posted by Kylee Bornhorst September 26, 08 08:32 PM
241.

I am so thankful that Childhood Cancer Awareness is being made more public, we have lost to many children t this awful disease. My nephew just passed away on July 18th, 2008, he suffered (ALL) for five years, even a bone marrow transplant, only to have the cancer come back again. AT 13 years old he was my brothers only child, so very heartbreaking for everyone that loved him. He will never be forgotten, just like so many other children who have passed away to soon. Please find a cure.......thank-you Cathy Williams

Posted by Cathy Williams September 26, 08 08:34 PM
242.

Thank you so much for your story...the photos finish what the words started!
My courageous 16 year old boy, Carson was diagnosed with medulloblastoma, a mailgent brain tumor that spread through his brain and down his spine...
He is considered a survivor...cancer free since new years day 2008!

Carson and our family will never fully recover from hearing the words that our son has cancer...and these children...the ones that are fortunate enough to survive...have many side-effects from the treatment that saved their lives...the rest of there days are usually quite complicated. THANK YOU FOR HELPING US FIGHT FOR OUR CHILDREN...AND THOSE THAT WILL SOON BE DIAGNOSED
www.caringbridge.org/visit/cleslie

Posted by annette leslie September 26, 08 08:35 PM
243.

Thank you for allowing everyone to see what many of our children are going through. Our son Samuel had Neuroblastoma stage 4. We just about lost him three times. Many children lose their lives fighting with what treatments we do have. More research is needed. Thank you for opening eyes and hearts to childhood cancer. I hope everyone will join in on the fight for more funding for research for a cure. Enough children have died. Enough parents have lost a child, and Enough siblings have said good bye to their brother or sister.

Posted by Roy Anderson September 26, 08 08:35 PM
244.

With September being Childhood Cancer Awareness month, it is amazing to me how little has been said and done to make it better known. The families of these children live with this disease on a daily basis, the least we can do is acknowledge the necessity of more funds and research to defeat this demon. My heart breaks daily as I read updates of many children. Sinjin, you are my hero. You have been so brave through your fight and you consistently think of all of the other children first. Everybody, please pray for an end to this deadly disease,

Posted by Colleen Trogdon September 26, 08 08:39 PM
245.

Thanks for the article. As a friend of the Avery's I will always remember the grace and courage they showed in Julian's battle. They have now channelled their loss into all of the other children's battles. We should all be thankful for people like them.

Posted by Larry Robertson September 26, 08 08:41 PM
246.

I have to beLIeVE that the reason research and resources are not made available for childhood cancer is because "The world does not know what is happening to our kids". My son has a rare brain tumor that is inoperable, so he has been on four different kinds of chemotherapy for more than two years. So many of our kids have become "guinea pigs" in the world of cancer treatments, we are all grasping at straws to save their lives. What is lost in all of this, is their innocence, their dignity, their independence......but never their souls. These photos are representative of our children, not mine, not yours......the worlds kids. They are our WARRIORS, so valiantly battling a disease that we can cure. Please do not make our children fight this war on their own anymore.....we can do this, we can find a cure! People Against Childhood Cancer.

Grayson Arroyo-Smiley, 8 years old, Brain Tumor Warrior. Read his story at www.amazinggray.org

Posted by Michelle Arroyo September 26, 08 08:43 PM
247.

I would have never known September was Childhood Cancer Awareness month if I hadn't been following some children's stories through the Caringbridge website. To me, that is very sad. These pictures were very moving and I will contiue to pray for a cure and for more funding for research. Like some posts before mentioned, it is amazing how our country can get money for just about anything that seems unecessary and here we have children dying everyday and it seems to go unnoticed.

Posted by Kristie Elder September 26, 08 08:43 PM
248.

Thank you so much for the wonderful and moving story. My wish is that everyone who reads this passes it along to their local newspapers in other city and states. Maybe when they see the wonderful work that Alan has done they will also step up to the plate and raise the awareness.

Posted by Kelli September 26, 08 08:50 PM
249.

As the mom of 4 children I thank you for giving this awful disease a face. The beautiful face that could have just as easily been one of mine. These are our children and we need to get the word out in support of childrens cancer research. I have not seen a single commercial letting the public know that Septenber is Childhood cancer month. We know what pink ribbons are for - would the average person on the street know who the gold ribbon is for? I have been touched by a dear frineds little boy's battle with cancer.Thank you

Posted by Sara September 26, 08 08:51 PM
250.

http://www.carepages.com/carepages/SamuelAndersonCarePage
Please come visit my care page. Read my battle with Neuroblastoma. My friends and I NEED a cure. We NEED more research and funding for it. I know Im only two. But I have suffered more than most adults have in their lifetime. We children need to be heard. We need funding for a cure. My chemo had to be stoped because my kidneys failed. There wasent any other treatment for me. Im one of the few that is still here to fight. Will you join me?

Posted by Samuel Anderson September 26, 08 08:52 PM
251.

Thank you for the pictures. Pictures can often say more than words. Thanks to the online Caringbridge organization, we can see many more faces, feel their pain and share our encouragement with them. Now if we can only get funding so research can do it's part.

Posted by JD September 26, 08 08:57 PM
252.

Thank you for spotlighting the fact that September is pediatric cancer awareness month. It is not as well-known as it should be. Not many people are even aware that September has been designated as such. As the mother of a child who was diagnosed with a brain tumor who is a survivor, I have walked and lived and struggled and prayed and breathed and cried in the world of pediatric cancer...this has been the most heartwrenching painful experience and it's not pretty and it's not easy. No child, no parent, no sibling should have to go through this! Ever! God carried us through and still does each day and we are thankful for that.

Thank you again and God bless you!
Mary Dowell
www.carepages.com
Page Name: NoahDowell
J29:11
P139, P91

Posted by Mary Dowell September 26, 08 09:01 PM
253.

Thank you so much for this article on children who have cancer. This is a terrible, terrible disease, and it's great that you are getting the word out about it. Children are so precious, and it must be extremely heartbreaking for the parents and families to see their loved one go through such trauma. Keep the articles coming so that everyone will hear about this disease!

Posted by Harry E. Baird, Jr. September 26, 08 09:01 PM
254.

What a beautiful article. We need to save our beautiful kids from this disease.

Posted by Elvira September 26, 08 09:02 PM
255.

Thank you, for bringing Childhood Cancer Awareness Month to the attention of your readers at large, Mr. Taylor. You’ve done a commendable job. Please continue to keep Childhood Cancer on the minds of your readers as they join in the fight to find a cure.

My emotions ran the gamut as I looked at each of the photos and read the caption beneath every one. Amongst those pictures is our future, but for some of those bright young spirits/wise old souls the only future is having their families continue their fight for them!! If these photos don’t pull on the heartstrings and make you stop to think, then likely the only thing that will would be that your child is the next to be diagnosed. I truly pray that isn’t the case!

The children that get diagnosed every day, every week, every month, every year didn’t make the choice to have cancer, just as I can guarantee their parents surely didn’t choose for their child to take the path of cancer either. I’m one of the lucky ones, a survivor of Stage IV High Risk Neuroblastoma for 40 years and counting; but not all stories of childhood cancer end this way. Too many warriors in the fight against this beast called childhood cancer are taken far too soon! My one nagging thought through all of this is: Our children are our future, without our future what DO we have?

Together we can all make a difference. Standing up to cancer and making it a point to be heard; because it’s high time there was more funding for childhood cancer research. Now is the time, so we can have a future for our children to look forward to!

Come check out the website for People Against Childhood Cancer (PAC2): http://curechildhoodcancer.ning.com/

Again, thank you so much for getting the word out, Mr. Taylor.

Posted by Carla Hood September 26, 08 09:03 PM
256.

My heart aches everyday for these children who are suffering from this horrible disease. They should be playing and living the life of a normal child instead of worrying about scans, counts and etc. My husband was diagnosed with CMML 2 years ago and AML 1 year ago. I had no idea how many children were suffering from cancer until I became acquainted with the Caring Bridge. We have made many friends, most of whom are children with some form of cancer. So much research is needed for our children and their needless suffering.

Posted by LInda Turner September 26, 08 09:05 PM
257.

Thank you so much for this article to make more people aware of the disease that is devastating our childrens lives. My daughter was diagnosed with Neuroblastoma at the age of eleven which they say is unheard of. Well, it has been a roller coaster ride for my family and especially for her. She has gone through many treatments and has lost so much of her childhood in only the last eight months. When she was diagnosed in January 2008, we did not know anything about this disease, but are learning the hard way everyday. GOD BLESS ALL!

Posted by Karen September 26, 08 09:07 PM
258.

I see the pictures...some of the stories I personally follow (#10 Julian and #14 AJ). I can see my children in their faces. It breaks by heart. People are not aware of the staggering numbers and the statistics. We think we are doing enough but we are not. We need to educate our friends, family, community. Thank you for writing this article. One more educated is one step closer to a cure.

Posted by Theresa Krier September 26, 08 09:08 PM
259.

Thankyou so much for doing the article.And for all the pictures.Childhood Cancer Awareness needs to be raised and you have helped to do that.Thankyou from the bottom of my heart.It means so much.My daughter also has cancer and this has affected so many lives . You have helped give them a voice.And the pictures speak volumes.

Posted by Theresa September 26, 08 09:12 PM
260.

Julian Avery was three and a half years old when he was diagnosed with medulloblastoma. He was a beautiful, loving little boy who died from this terrible monster less than one year after his diagnosis. He just wanted to be five.

Posted by Lee Ann Robertson September 26, 08 09:18 PM
261.

Thank you for the wonderful feature. I never knew the number of kids that had to deal with cancer until I heard those words "your son has a brain tumor." We were lucky that they were able to fully remove the tumor but he still has to deal with the after affects of his surgery every day.

Posted by Char September 26, 08 09:18 PM
262.

Thank you so much for putting faces and a story to this cause. It is such an important fight that we need to support and make others aware of.... these precious children are our future and they need us to act now! I am a mother to two healthy children but my heart aches for those moms and dads who have lost children to the insidious disease, cancer and for those parents whose children fight every day to get better. I watched my Mum struggle against pancreatic cancer- and lose her life. Cancer MUST be wiped out!

Posted by Amy Fitzgibbon September 26, 08 09:28 PM
263.

My heart goes out to all of the children with cancer and to their families as well. With great hope that someday there will be a cure.
My God watch over each and every child and give them strength to face each and every day.
Amen

Posted by Jennifer Rose September 26, 08 09:28 PM
264.

Thank you so much for sharing. May it help get the word out about this monster we call childhood cancer.

In loving memory of Brett Norris Workman

http://www.caringbridge.org/visit/brettworkman

Posted by Amanda Brewer September 26, 08 09:35 PM
265.

Thank you for sharing these special faces. I lost my son Silas to cancer this May less than 8 months after he found out. He was 29 years old, and it was shocking to find out that the research and cures are not out there in the capacity that all of us looking for miracles would like to believe. I agree, funding is critical here.

Posted by Lorraine Kerz September 26, 08 09:39 PM
266.

Thank you so much for sharing what so many of our children go thru! To see the faces of the children was so powerful and hopefully will make the world realize we need a cure NOW!!!

Posted by Lisa September 26, 08 09:40 PM
267.

Thank you so very much for bringing awareness to childhood cancer. Your article is both touching and revealing. We must all work together to fight this disease for the sake of the children. I appreciate you publishing this. PRAYING for the cure!

Posted by Jan Lord September 26, 08 09:42 PM
268.

Thank you again, and again for this article. My Marlie made it, but I look at her every day and my heart breaks when I think about our friends, some we only know thru the carepages, that did not make it. I am just as proud for angle wing babies, walking with Jesus, what could be better. I value her every day, cancer ROCKED our world! We need to know more! Keep Spreading the word.

Posted by Sarah September 26, 08 09:43 PM
269.

Thank you for sharing the wonderful pictures of the children. I am moved by all what the children and family are going through.

Posted by Karen September 26, 08 09:44 PM
270.

The worst hell there is is to bury a child. You can only pray that a cure is found and that we all work together diligently in this most awesome of tasks. Children are the greatest gift that God gives. Please, please, please....let's do all we can to eradicate this disease and give these kids a chance to be adults.
In memory of Josh
1982-1997

Posted by Julia Stephens September 26, 08 09:55 PM
271.

Thank you for adding some awareness to Childhood Cancer Awareness month.

Posted by Maria Fleming September 26, 08 09:55 PM
272.

wonderful piece...much needed awareness!!

Posted by jess September 26, 08 09:57 PM
273.

Thanks for acknowledging Childhood cancer Awareness Month.
Debbie
http://www.caringbridge.org/visit/alyssadennewitz

Posted by Debbie September 26, 08 09:58 PM
274.

People across this country do know that this is Cancer Awareness Month. I have seen this same notifiction from a friend who e-mailed it to me. I have signed several notifications for our government to pass the Cancer Bill that just got passed. This has been on the news in my area of N.C. so it must have been on many news broadcasts and it was mentioned that this is Cancer Awareness Month.

Praise God.

Posted by nancy greer September 26, 08 10:00 PM
275.

Thank you so much for enligfhtening the public about some of the herrific effects of childhood cancer. The public needs to be made as aware of childhood cancer as it is about breast, lung and prostate cancer. Thank you for your contribution toward this effort. Pam Winton

Posted by Anonymous September 26, 08 10:01 PM
276.

Thank you for this beautiful piece. There has not been much media coverage of September as Childhood Cancer Awareness month, and it has been frustrating. These children are our country's greatest treasure--they hold our future in their hands. Can we not find a way to slay the evil cancers that steal our children? More awareness and more funding are urgently needed. Thank you so much for publishing this. Your work is as beautiful and heartwrenching as these children & their stories. Well done.

Posted by Deborah McCleary September 26, 08 10:05 PM
277.

Thank You for bringing attention to our cause.
I am Owyn Tyler Law's aunt & the outpouring of concern, care & support from total strangers continues to be a huge comfort during this difficult & scary ordeal.
May God bless all the families & bring them strength.
Someday I hope no child & the people who love them will never have to endure this nightmare.
Sincerest Thanks to you and your staff.

Posted by Jaye Zuidema September 26, 08 10:11 PM
278.

Breaks my heart to see what these sweet angels have to endure. No child should have to suffer like this and no family should ever have to bury a child. Thank you for recognizing Childhood Cancer Awareness Month. It is sad that more news outlets have not. God bless all the families and all children affected. They are so amazingly strong and brave!

Posted by Lauren in Florida September 26, 08 10:14 PM
279.

Wow Thank you for FINALLY!!!!! answering our PLEA!!! Sweet Sinjin asked us to do this and here we are.
THANK YOU SO MUCH!!!!!

Posted by Miriam Kearns September 26, 08 10:15 PM
280.

This is what this battle needs - high quality journalism - I had no idea how many children were affected - quite honestly it is too scary for people to think about, so most do not think about it. Incredible photographs, very moving stories. How can we allow this to continue to happen?

Posted by Phillip Ricci September 26, 08 10:18 PM
281.

Thank you so much for these beautiful photos--this is a subject that is very dear to my heart. I lost my dear, sweet nephew Jackson in May of 2008 from ALL leukemia. He was preparing for transplant and had lung complications. We are still reeling from the loss of such a special and brilliant child taken much too soon. We need much more attention and funding to go towards helping these innocent children.

Posted by Wendy September 26, 08 10:18 PM
282.

Thank you so very much for putting faces to "childhood cancer". Our family lived in that world for two years before losing our youngest to osteosarcoma at the age of 16.

May this article and others like it help to raise the awareness needed to conquer the beast. One new drug in twenty years is unacceptable. Childhood cancer needs funding and trials. We live in hope and faith that awareness will generate results.

Posted by Tine, Alec's mom September 26, 08 10:20 PM
283.

The Pathology report came back on May 29, 2005 verifying the fact that my 16 year old son has Neuroblastoma stage 4; already undergoing Chemo treatment, nine days after his surgery to remove the 8 pound tumor. I was horrified, how was this possible, this is a pediatric cancer..my son is a teenager. The news was delivered over
the phone by my oldest daughter who would become her brother's
caregiver for the next 3 years while he battled to beat the monster who took up residency in his body. Chemo, radiation, BMT and all the other drugs that were used to combat the side affects from treatment..to no avail. On May 1, 2008 I held my 20 year old son as he died..a promise kept.."I held him as he took his first breaths and I will hold him as he takes his last"The hardest thing for a parent to do is to watch thier baby struggle for life, helpless to do anything but pray and wait and hope for a cure..now today this instant. Cancer is a MURDERING MONSTER that needs to be stopped. There are too many of our babies out there that have this horrible disease and it needs to be plastered every where. We need this message to hit every NEWS MEDIA AVAILABLE..so thanks for this..now lets get bigger...


Posted by Denise Gottschalk September 26, 08 10:24 PM
284.

I am 13 years old and my best friend has bone cancer that has metastasized..I am SO GLAD this has been published, as I was beginning to wonder where CHildhood Cancer Month had gone....I want cancer to be a thing of the past, a dinosaur..I never want another kid to face his or her mortality from this beast!! Cancer needs to be eradicated!!

Posted by Zack Tavlin September 26, 08 10:31 PM
285.

THIS IS FOR YOU SINJIN, AND FOR ALL THE KIDS. YOU ARE ALL THE WORLDS MOST COURAGES HEROS. GOD LOVES YOU ALL, AND MAY HIS PEACE BE WITH YOU. WITH MUCH LOVE, TO MY HEROS.

Posted by CARLA WOOD September 26, 08 10:32 PM
286.

Thank you for brining awareness to childhood cancer. The pictures are so important in helping to get the word out. Our family was recently struck by the cancer tornado and it is devastating.

Posted by gbm September 26, 08 10:36 PM
287.

Thank you for your pictures and article. It is amazing to me that there is so little known about childhood cancer and the number of children and families that are affected. Maybe it is just easier for the world to pretend it doesn't exist, or to believe that it only affects someone else. We lost our sweet angel Cory after we battled the disease for 14 months. He spent more of that time in the hospital and clinic than he did in third grade with his friends. It is heartbreaking to see the pictures and follow the stories of these amazing children and their families, but it is reality once your child is diagnosed with cancer. I don't understand why this isn't more of a priority, but with the help of people like you maybe it will be and one less child and their family will have to endure the pain and heartache of cancer. I pray daily for a cure not only for childhood cancer, but for all cancer so no other family has to go through the horror of this disease.

www.caringbridge.org/visit/corymonti


Posted by Cory's Nana September 26, 08 10:40 PM
288.

Thank You Alan for recognizing "Childhood Cancer Awareness Month" As an adult fighting this demon I can feel for these parents. I know what I have endured during my journey and no child should ever have to go through this ordeal not for one day. We need funding for Pediatric Cancers. Look at all these little warriors on this page.We need to stop this "MONSTER" from denying our children a childhood. We need to make noise ~ our children depend on us to advocate for them.. . Thanks to A.J's Dad ~ and Ju-Ju's Mama ~ we are with you !!!

Posted by Kathy Waters September 26, 08 10:45 PM
289.

Thank you for this powerful article...the word needs to get out that more attention needs to be directed towards finding a cure for childhood cancers.

Posted by Lucianna Perlin September 26, 08 10:46 PM
290.

Thank you so much for bringing awareness to pediatric cancer. I think people assume we are taking care of these little warriors - WE ARE NOT! What a beautiful essay showing the pain that these families experience.

Posted by Amy September 26, 08 10:51 PM
291.

Thank you so much for this article. Reading it is one thing, but seeing the pictures attaches the emotions to it. My son has currently been free of his brain tumor for almost 14 months. After 12 surgeries and 84 days in the hospital, we are now watching him with MRIs every 3 months in the hopes the tumor never returns.
Thank you for bringing attention to our kids. The world needs to know what they are going through.

Posted by Amy Darnold September 26, 08 11:01 PM
292.

Thank you for posting these pictures and bringing more awareness to childhood cancer!

Posted by Christina Jay September 26, 08 11:05 PM
293.

Touching, powerful pictures. Great story...more awareness is most definitely needed for childhood cancers.(Hey Sinjin!)

Posted by L. Davis September 26, 08 11:07 PM
294.

Find out more www.icouldbeyourchild.org.

Posted by Amy Barlow September 26, 08 11:12 PM
295.

A dear friend of mine's niece has just been diagnosed with leukemia. This gives me hope that little Michaela aged 4 will be just fine. My heart does go out to all of the parents who have lost their babies to this disease. I cried my eyes out seeing and reading the photos. God bless you all and let's work at finding a cure for our children!!!

Posted by Anonymous September 26, 08 11:13 PM
296.

I wish there was no such thing as childhood cancer. But unfortunately there is and this article is much needed to raise awareness. Our kids deserve to have every resource possible trying to find a cure so that no child dies before their time.

Posted by Jaime September 26, 08 11:14 PM
297.

The article, the pictures, the fact that you Alan, are a pioneer in addressing the topic of Childhood Cancer Awareness Month, deserve BIG, BIG KUDOS. Thanks to your article and Boston.Com. Maybe next year in September the wearing of GOLD ribbons won't be such a mystery. Come on folks, be AWARE, Pray, Love, Donate, Walk, Sponser, Eat at Chili's on the 29th, visit a carepage or caringbridge page. Seek out childhood cancer websites. Fall in Love with the Kids. Be involved it will do your HEART good. Thanks Alan.....

Posted by louise mullen September 26, 08 11:14 PM
298.

Thank you, thank you, thank you for this piece. It is so nice to see someone covering this awareness month.

Posted by Megan Milbourne September 26, 08 11:24 PM
299.

i am absolutly in tears. thank God for your strength, compassion and determination. you are all making a difference. they say a picture is worth a thousand words. but, these pictures leave me speechless. all the parents who are living in this nightmare, God bless you. the fact that you can turn your sorrow into positivity in nothing less than inspiring. know that your efforts are not in vain. awarenss is beautiful.

Posted by jessica manneh September 26, 08 11:24 PM
300.

Thank you for this article! More awareness needs to be brought about concerning the horrific experiences and procedures that these kids endure.

Posted by Monica September 26, 08 11:25 PM
301.

This is a wonderful article and the pictures put a few faces to the many, many children and families suffering through this.

My duaghter Madison passed away August 2007 after battling for 8 years against her brain tumor. She was and always will be my hero. She fought with faith, courage and grace. Never for a moment wondering why her. She made the best out of every situation and often thought of others before thinking of herself. Myself along with a few other cancer kids mom's are trying to make a difference. We are determined to get childhood cancer awareness out there. A cure HAS to be found. NO other family should have to say good-bye to their child. Please visit Maddie's site at www.caringbridge.org/visit/princessmaddie

Posted by Brooke Hicks September 26, 08 11:27 PM
302.

Thanks for acknowledging Childhood cancer Awareness Month and thank you for sharing the wonderful pictures of the children. I am moved by all what the children and their families go through.

Posted by Paula Fry September 26, 08 11:32 PM
303.

CANCER BITES!! CHILDHOOD CANCER BITES TWICE!! THANKS FOR THE ARTICLE.. ANYTHING TO RAISE AWARENESS. GREAT JOB!!

Posted by Mary Harris September 26, 08 11:35 PM
304.

Thank you so much for this beautiful photo essay on childhood cancer, along with the very moving comments accompanying the photos.

I hope one day that childhood cancer gets the recognition that breast cancer, and the Susan Komen Foundation, receive, and that NO child will die from this disease or be subjected to the horrific treatments currently being used.

Posted by Candy Landers September 26, 08 11:41 PM
305.

Thank you for being a voice for childhood cancer! It just breaks my heart every time I read about another child dying. We have got to have more awareness and you have started that ball rolling!!!

Posted by Sandra Cox September 26, 08 11:42 PM
306.

There are SO MANY children right now who are fighting this horrible monster CANCER. It is so sad that the funding for childhood cancer is very small, and these children are our future. Thank you so much for this article. IF ONLY we could get more companies, networks, movie stars, musicians to get on the band wagon for the GOLD RIBBON of childhood cancer. Way to many precious ones have earned their angel wings fighting cancer. IT MUST STOP. Please pass this on and help fight cancer for these kids

Posted by J. McCullough September 26, 08 11:45 PM
307.

What brave and beautiful children! My heart and prayers go out to all of them and their families.
My brother, Tommy, passed away of a brain tumor at the young age of 14 years. It was heartbreaking to see all of the pain he went through, but it was so inspiring at the same time. He was suffering so much, but always had a smile on his face and a positive outlook.
I miss him like crazy and will never forget him, but I know he is happy with the angels now!

Posted by mary gawronski September 26, 08 11:46 PM
308.

For all the precious little angels in heaven that went way, way, way before their time...and for all the little heroes that are still fighting these horrible diseases day in and day out! Thank you Alan Taylor!

May the stories behind these photographs reach people with the authority to change the appropriation of funds...

Please take the time to read a few journals written by the parents of some of these heroic children, one of which is photo #14 here!

carepage website: juliansworld (...Sweet, Innocent Angel...Fly High King JuJu!)

Unfortunately, the below list is only a "drop in the bucket" of the thousands of children, in our country alone, that have endured so much pain and suffering...that in the end, leave their families with pain and suffering to endure every minute, of every day, for the rest of their lives.

www.caringbridge.org/visit/shelbyr (Beautiful Angel, beautiful family!)
www.caringbridge.org/visit/isaaclieser (Angel Isaac, so, so loved!)
www.caringbridge.org/visit/andrewmcdonough (dad reminds us to B+ in honor of his son)
www.ethanpowell.com (hard fought battle for nearly all his life, now a beautiful little angel in heaven)
www.tannerville.com (precious little girl who loved baseball!)

And the lone survivor on this list, 4 year old Coleman Scott Larson...
carepages website: colemanscott
(such a cutie - Team Larson "Neva Divs Up!")
Little Coleman and his twin brother Caden will melt your heart (and crack you up!)...please check them out and pray hard for little Coleman!!

These stories will absolutely tear your heart to pieces...and make those who have never been faced with such heartache, learn not to sweat the small stuff!

God Bless the Children!!

Posted by Kelly September 26, 08 11:52 PM
309.

I am overwhlemed by the comments -- almost as much as I am by photos #14 and 19. Thank you Alan for your great work. This one tops them all!

Posted by denheels September 26, 08 11:54 PM
310.

We must stop this disease from attacking our children! Thank you for raising public awareness.

Posted by Nancy Ziehl September 26, 08 11:54 PM
311.

The pictures say it all. Heart-breaking and frustrating... It's simply unreal. How is it that in the year 2008 we have so many innocent children dying from this terrible disease? The treatments are extreme... and even they cause great sickness and pain. And then what? Parents still sit at grave sites, crying for the loss of their precious young children.
We need to get funding to go to the right places. Isn't there some incredibly smart person out there that can figure this stuff out already? Thank you to the strong parents who shared their personal pictures and stories here. Blessings to all the brave angels who are in a better place. Here's to finding a cure.

Posted by Danielle Mahoney September 27, 08 12:06 AM
312.

Thank You, Thank You, there are so many children facing this monster, yet no one will put this out there for the world to see. We all need many more like you. PLEASE, won't you help too?

Posted by Katy Cloer September 27, 08 12:06 AM
313.

Thank you for this article. My son is 7, and a 4 year survivor of a malignant brain tumor. The day he was diagnosed changed me, for the better. Having a child, not even 3 yet deal with surgeries, chemo living in a hospital. It is hell on earth, and my child lives. What must life be like for the parents that don't have a survivor at home? I wish childhood cancer had the funding that breast cancer has. I wish.

Posted by Chrystine Windle Ammari September 27, 08 12:07 AM
314.

Thank you for bringing awareness to childhood cancer and for putting a "face" on it with your beautiful photo essay. Perhaps because they don't yet have the media savvy or the right adult connections, children are so often overlooked in the cancer discussion. Their parents are busy tending to their needs, so contacting the media is the last thing on their minds.

In the last year, I have become educated and aware of a terrible cancer diagnosis, Diffuse Intrinsic Pontine Glioma (DIPG). It is a tight-knot community, but tight-knit because they are bound together in a world with a devastating prognosis. Approximately 200 children are diagnosed with a DIPG a year in our country. During this past week alone, three of them passed away. There are many stories out there, but please look at Andrew Smith's. In addition to Andrew battling hi
s DIPG (with courage, I must add!), his mother Sandy was diagnosed with breast cancer days before Andrew's diagnosis. www.caringbridge.com/visit/aws

Again, thank you for sharing the story of childhood cancer.

Amy in Minnesota

Additional DIPG stories:
www.caringbridge.com/visit/gunnergillespie
www.caringbridge.com/visit/ellahope
www.caringbridge.com/visit/skylersmith (Skyler passed away last week)
www.caringbridge.com/visit/mariahklein (Mariah also passed away last week)
www.caringbridge.com/visit/teamalexis

Posted by Amy in Minnesota September 27, 08 12:09 AM
315.

Thank You so very much. As a family member of a 2 yr old niece who is currently at St Jude's getting her MRI to check for any regrowth of any tumors, this means the world to me and my family to get the awareness out there. This article needs to be published in EVERY major newspaper, magazine or publication for that matter. I know at times I feel like a broken record telling my niece's story and all the other cancer warriors I read about on caringbridge.org and carepages.com. But to me, it is on my mind all day long, as well as all the precious children I read about on these pages. But still I just feel I have not done enough, but keep trying to spread awareness!

Posted by Shirley Montgomery September 27, 08 12:15 AM
316.

Thank you Boston Globe for running this article. Along with many others on here this is the 1st I've seen anything about childhood cancer month being Sept.

Posted by Gail P. September 27, 08 12:16 AM
317.

I'm so thankful to see a piece on Childhood Cancer Awareness Month. My son Kellen was diagnosed with Acute Lymphoblastic Leukemia on June 22, 2008. He is 3 years old and thankfully currently in remission.

I wish I could say this was my first journey with the Beast, but it isn't. Losing my father in my teens to cancer and then realizing as an adult I was now in the fight with my son was devastating. Watching him cry, not eat or drink, not wanting to run and play with his brother or friends, to not want hugs or kisses because his steroids affected his mood, to not sleeping well because his bones ached...it is all horrible! This fight affects everyone. We have a long time before this is over so I pray God will give Kellen and us strength to hurdle the bumps in his journey to recovery. I pray for all the children and their families to heal and understand. It's unfortunate that it even comes to this point. You have done a wonderful thing bringing this to it's long deserved attention! We are our children's voice, we were their first heroes and now they are most definetly ours for being brave!

To People Against Childhood Cancer! Thanks Bob Piniewski for your efforts!
Thanks to all the Researchers working so hard to find the cure!

www.carepages.com/carepages/BollingSuperhero
www.caringbridge.org/visit/McKensie (keep fighting McKensie!)


Posted by Jill Bolling September 27, 08 12:20 AM
318.

Thank you so much for your article and actually doing a story that includes the mention of September being National Childhood Cancer Awareness Month. As the mother of a precious cancer warrior, Chelsea 17 months Leukemia (AML), the pictures and stories to go with them really hit home. My families life will never be the same and I can only hope the remission my daughter is in will continue. How is it possible that so little money is spent on research to help find cures for our kids? I can only think that like me before my daughters diagnosis most people just do not understand what our oncology kids are going through and how many will sadly lose their battle with the beast that is cancer. Please keep telling our kids stories and we can build awareness that can lead to cures.

Posted by E. Beyer September 27, 08 12:26 AM
319.

Thank you for the beautiful tribute to these courageous children. I knew that children got cancer, but never knew the extent of their suffering, the length of their treatment, the devastation of side effects, and the number of children losing their battle, until I heard the words "I'm sorry, your son has cancer." I now feel a bond with families I will never meet because of the battle we are fighting to save our children. Please continue to help spread awareness to those who do not know what these brave kids face everday.

Posted by Carol Merkel September 27, 08 12:28 AM
320.

Thank you for showing your photos. It is very painful to see a child or a child who just starts to live suffering from cancer. We can only give thanks to many doctors who always give their time and service to others. Thanks to them many children are still alive.

Thanks to all who wrote and thank all those who help these foundations.

Posted by Ricardo Terrones September 27, 08 12:33 AM
321.

Thank You, Thank You, Thank You for this article and for doing something about raising awareness about Childhood Cancer! I was led to this article by Mimi Avery, Mother of Julian, one of the brave little angels pictured in this article. I have followed many of these childrens Carepages, and cannot describe the heartbreak when reading about what these children and their families endure. To read about the unbearable gutwrenching sorrow these families go through when their little troopers lose their battle after everything they have gone through is heartbreaking. Please continue to raise awareness, and the need for funding to help find a cure for Childhood Cancer!!

Posted by Karen September 27, 08 12:42 AM
322.

Dear Mr. Alan Taylor,

Thank you for posting this article on childhood cancer and helping us raise awareness.

From the pictures in your article:

I met the Averys a few times and just visited them in their home. They are good and dear friends. I did have the honor of meeting their son Julian (King Juju as we know him) and he will always be in my heart.

Altough I did not meet the Piniewski family, I followed their son AJ's story and communicate with his father Bob.

In addition, I met and cybermet a few more families.

Thank you again.

Dan Cohen
North Miami Beach, FL
danco1968@hotmail.com
Conquer Childhood Cancer
Parents Against Childhood Cancer

Posted by Dan Cohen September 27, 08 12:58 AM
323.

Such awesome pictures. I am a mother of a 3 yr old boy diagnosed with neuroblastoma. Childhood cancer needs this kind of advertising, because people just don't know. I didn't until I was in the situation. It is not that people don't care, it is just there is not enough information about childhood cancer. The right folks need to go to the RMH in NYC and see the many many kids facing cancer and fighting for their lives and their parents that are standing behind them. Thanks for all you've done

Posted by Dana Hardee September 27, 08 01:03 AM
324.

Thank you so much for bringing awareness to these precious little warriors and heroes!

Posted by Sue Pompetti September 27, 08 01:06 AM
325.

Anyone who questions the effects childhood cancer has on a family should start visiting Caringbridge sites. You start with one and it leads to another, and another.....
The American public is not aware of the trauma surrounding these beautiful children and their families. It is about time the media gets the word out, start with one newspaper and let it spread!
People in this country jump on the "band wagon" for some of the silliest things-why not educate them so they can jump in the right direction!

Posted by Varie in Indiana September 27, 08 01:09 AM
326.

Thank you for your beautiful article. Two girls, one 15, one 13, have died of cancer in my small city in the past 2.5 years. Their families continue to suffer. Thank you for making people a little more aware of what childhood cancer entails.

Posted by Wendy Pennett September 27, 08 01:18 AM
327.

We must find a cure for childhood cancer. Our son had cancer 31 years ago and I thought we would be closer than we are of getting rid of it. There are still way too many brave heros fighting every day for their lives...like Gunner and Sinjin! We have to make everyone aware of Childhood Cancer!

Posted by Carmen Oslager September 27, 08 02:02 AM
328.

It is sad that not enough is being done to help and there is not enough awareness for childhood cancer. I have seen too many children that are suffering with cancer and have died. Something needs to be done.

Posted by Kelly W September 27, 08 02:07 AM
329.

Thank you for bringing awareness to more people about this horrible disease that can affect any child from any background or race!

Posted by Yvette Villanueva September 27, 08 02:09 AM
330.

Thanks for bringing awareness to the problem of childhood cancer this September!

Media is very important to increasing awareness and funding. Less toxic treatments are needed and the kids don't have time to wait. Please keep up the good work and encourage your friends to do the same.

http://www.caringbridge.org/ma/seanhanson~Almost 6yrs old, and a 5 year Stage 3 Neuroblastoma survivor

Posted by Ellen Hanson September 27, 08 02:11 AM
331.

MANY THANKS FOR BRINGING CHILDHOOD CANCERS TO THE FORE FRONT WHERE IT BELONGS! I KNOW SEVERAL OF THE CHILDREN IN THE PICTURES YOU POSTED AS I FOLLOW THEIR CAREPAGES. IT IS HEARTBREAKING KNOWING WHAT THESE CHILDREN MUST GO THRU. I ALSO JUST CAME FROM IOWA CITY HOSPITALS WITH MY GRANDSON AND I MET A FEW MORE. ITS JUST TO MUCH WHAT THESE KIDS FACE EVERY DAY AND HOW BAD THEY FEEL WHEN ALL THEY WANT TO DO IS PLAY AND BE A KID. WE HAVE LOST WAY TO MANY AND MY HOPE IS FOR "MORE AWARENESS"

Posted by SHELLEY HANSON September 27, 08 02:40 AM
332.

It is heart breaking to see the children in these photos and it is even more heart breaking to know that there are so many more children not featured. As a society, we need to do all that we can do to eradicate this invasive disease. The media needs to spotlight September as Child Cancer Awareness Month, and we need to start talking to our friends and family about doing all that we can do about taking an active role through money, blood, and platelet donations. Volunteers are needed in hospitals and home health to provide respite care. Thank you for taking this active role in making others aware of these children in need.

Posted by Karlene Mueller September 27, 08 03:04 AM
333.

Thank you for helping to raise awareness of childhood cancer. My eyes were opened to this epidemic (and that's what it is) and I can't look away. It is very frightening as this monster has no boundries and does not discriminate. It could be anyone including me. These children show amazing courage, faith, and hope and endure more than most of us ever will in a lifetime. There is far too little money spent on research for these kids. The treatment in some cases can be as bad as the disease. There are children that endure so much and in the end they die from complications from the treatments they have received but cancer free. All of these children deserve more than we have given them. So thank you for doing your part in raising awareness - everyone needs to have their eyes opened to what's happening to the children in this country.

Posted by Alex September 27, 08 03:28 AM
334.

We are not alone. We are here. We are fighting. We are praying. We continue to beLIeVE in our miracle. Think about your life for a moment. What is most important to you? What makes you get up each morning? When I think about those questions, one thing comes to mind. My family. We have a beautiful, vibrant four-year-old daughter named Alexa Renee. Alexa acquired a nickname over the past year. She is known to many as 'The little girl who FIRED CANCER'. In our home we call her 'Superhero Princess Warrior Diva Lexi with the Most Beautiful Soul'. That beautiful soul was born on May 13, 2004. That beautiful soul endured 6 rounds of INTENSE chemotherapy, radiation, a stem cell harvest & numerous blood/platelet transfusions as she was diagnosed with one of the rarest cancers in the world affecting only up to 20 children in the US per year at her 3-year-old 'WELL' visit. Her little body was its frailest at 22 pounds when she began TPN. I became a nurse, not by choice, but because I had to do whatever I could to help save our baby girl. Most importantly, I became an advocate for our daughter. Everyone on here has that same role-ADVOCATE. We need to speak for our children. We are screaming for help. We are searching for a cure. We are full of hope; faith, love and we will NEVER give up in this fight against pediatric cancer. September has come and gone once again with very little mention of Childhood Cancer Awareness, so we thank you for advocating for our littlest heroes. September may be coming to an end, but cancer unfortunately is not. On Monday when school ‘continues’, approximately 46 children around the world will be diagnosed with some form of cancer. We need awareness year round; we need you to join us in the fight every day. We need you to beLIeVE in our miracle too. Thank you for your support. Thank you for helping to spread awareness. Thank you for wearing gold. Most of all, thank you for taking time to read this & help Alexa reach her goal of ‘firing cancer’ worldwide! God Bless! Debbie Moore-proud mommy to SHPWDLWTMBS www.caringbridge.org/visit/alexareneemoore

Posted by Debbie Moore September 27, 08 04:45 AM
335.

I've followed Big Picture since day one, but this is the first time I've decided to post a comment. This is a truly inspiring yet heartbreaking essay. Including photographs from families as well as from photojournalists is an inspired touch. Thank you for publishing this essay and also to the families who have shared their stories of survival and loss.

Posted by Jeremy Tan September 27, 08 05:10 AM
336.

Thank you so much for this incredibly powerful piece. The pictures are just so moving. More importantly thanks for taking a lead on this important story about childhood cancer and showing what it does to the children and their families. Now the hope is that you will help to be the voice for the children and keep this story alive and well in the press.

Posted by Judy Moyer September 27, 08 05:13 AM
337.

My son had JMML LEUKEMIA .
Hehad 2 bone marrow transplants . Please read his amazing story.
www.caringbridge.org/visit/lanefickler

Posted by michaelle fickler September 27, 08 07:05 AM
338.

Hardly anyone seems to recognize September as being Childhood Cancer Awareness month, thank you for taking the time to dedicate an article to those children and families who are or have fought this horrible disease. My best friend, Courtney passed away from leukemia at the age of 19 in November of 2006. It' nice for her and her family to be recognized this month, thank you!

Posted by Carresa Gerhart September 27, 08 07:40 AM
339.

Thank you for putting this incredicle piece out there. I would like to see it on the cover of every newspaper and magazine around. We have to get the word out, far to many children are paying the price and that is wrong. WE HAVE TO RAISE THE AWARENESS AND THE MEDIA IS THE FASTEST WAY. This was wonderfully done and truely touch my heart.

Posted by Mary Prochotsky September 27, 08 08:03 AM
340.

Thank you for the article, my family has also been touched by this scourge and blessed to count a survivor of chidhood cancer. My son was diagnosed with a brain tumor soon after his thrirteenth birthday and was operated on September 21st 2006 by a neurosurgeon who was trained in the US. After surgery he went through chemotherapy and radiotherapy to eliminate the rest of the tumor and is presently doing fine, paying regular visits to the oncologist and endocrinologist just to check up. His oncologist is a regular collaborator at St Jude´s also. We live in Brazil, but we are really thankful for the first class treatment we have received in all areas. Keep the funds coming in, the whole world needs more research and investments in this area.

Posted by Helen Cruz September 27, 08 08:40 AM
341.

Thank you for finally getting something in the media about how serious is Pediatric Cancer Issues. Hopefully this will be picked up by other major media and the whole country will get on board to find cures for cancer in children, or at least less invasive treatments.
As a oordinator for fundraisers in N TX for the Pediatric Brain Tumor Foundation of the United States, I am constantly sending information to local media outlets to little response.

Posted by Evelyn Daniel aka Fetch September 27, 08 08:48 AM
342.

Thank you for helping us bring Childhoos Cancer awareness month to the community! We unfortunately have learned the hard way how important this is. Our son, Jake was diagnosed with Leukemia in July 2006. He is treated at Dana Farber and I was happy to see some familiar faces in those pictures. Happily for us Jake finished treatment 3 weeks ago and had his port removed this past Wednesday! But it does not make us forget that so many of our friends are still struggling and the awareness can never be enough until no child loses their courageous battle.

Posted by Kim Maguire September 27, 08 09:24 AM
343.

What a powerful article on childhood cancer. This needs to be brought to the attention of everyone as these children are our future and a cure must be found sooner than later. What a moving picture added to the article can do. [Brings you to tears] THANK YOU, we all need to wear GOLD ribbons and find the cure.

Posted by Becky Haugeto September 27, 08 09:35 AM
344.

We need to do more. Precious children are fighting, doing a battle they should never be involved in. Parents are having to say goodbye to their little angels bedside as they truely become angels and leave this earth because they have run out of treatment options. Why? This is the wealthiest nation and we have this many children passing? Please, stand up, be aware and help stop this monster by the name of CANCER right in it's tracks. THE CHILDREN ARE COUNTING ON US!

Posted by Tina Korpieski September 27, 08 09:39 AM
345.

How touching...and sad. Thank you for bringing awareness to this. I've followed a few kids through their caring bridge sites (mostly DIPG kids) and it's heartbreaking to understand a little what the children go through and what the parents have to endure (then consider their siblings and their grandparents, too). When is enough enough?! These kids are given months to live and treatment is experimental or only to help gain a few extra months. What parent ever wants to hear their child has cancer? What parent can accept that there is NO cure? My prayers are with these families and I hope this sees more attention in the months to come.

Posted by Kim Vaughn September 27, 08 09:46 AM
346.

My family has been blessed so far NOT TO personally have to go thru the HORRIBLE, SCARY TRAUMAS OF CANCER AND I THANK GOD EVERYDAY. I read alot of care pages everyday and I have never met any of these families but I pray for them each and everyday as if they are family. I do alot of crying for them as I can not imagine the pain they all suffer. WE NEED TO COME TOGETHER AND RAISE AWARENESS TO THIS HORRIBE AND DEADLY DISEASE. WE OWE IT TOU OUR CHILDREN AND THEIR FUTURE. GOD BE WITH THEM. FAMILES

Posted by Patty Kruckeberg September 27, 08 09:47 AM
347.

Never give up.
Max Mikulak 6/30/2001 - 8/31/2008
http://www.mikulak.com

Posted by Andy Mikulak September 27, 08 09:47 AM
348.

What is interesting, as I look at these pictures, is how I know a few of the children pictured. Childhood cancer gets people connected who would not normally know about each other, much less keep in contact. For some types of cancer, it is even more startling how many people the parents know, as the cancer is nearly always fatal. Thank you for showing the hard side of childhood cancer. We see so many bald kids without conveying the emotion of the moment.

Posted by Gregory A. Beamer September 27, 08 09:49 AM
349.

Although I have commented already, I want to personally thank Mr. Taylor and the Boston Globe for running this piece. I sincerely hope that you join us again next year to help in our ongoing campaign for awareness of this terrible tragedy.

Like most American's I did not know of the problem either. Until Fathers Day 2007, our personal childhood cancer awareness day. That's when AJ (Photo #10), my son, my best friend, was diagnosed with cancer. He had just turned 14 a couple months ago. He was looking foward to starting high school, playing football and simply having fun. Overnight our world turned upside down.

I have no idea if you have ever been on a pediatric cancer floor. If you have ever walked the halls and seen the smiles or tears on the faces of these little fighters as they play on the little trikes and big wheels. How the moms and dads race behind them with the ever present IV pole. How they have little child-sized masks on because they are at high risk of infection. How the teens hang together and still try to be cool, even though they’re bald and ready to throw up at any time. How the teens have added words like methotrexate and acronyms like ANC to their vocabulary, instead of LOL and "sweet". How the poor little baby's cry because they can't even relate what hurts. Or if you've ever seen a mom or dad alone in the break room at 3 am, with their head in their hands, feeling alone, helpless, scared and mad. I don't know if you've ever visited a Care Page or a Caring Bridge site, blogs where we tell our kid's stories. I've seen it all and more. In December 2007 I had AJ, my 14 year old son ask me, "Dad, what's hospice".

So I have seen enough. Please reader, support the links Mr. Tayor has given and those below. Next month, when you see all the pink, think gold for the kids too. This nation's parents need to stand up, shout enough, and focus funding and awareness on childhood cancer.

Remember dear reader, its 1 in 300, are you willing to make that bet?

AJs Dad
http://curechildhoodcancer.ning.com/
http://www.thepetitionsite.com/1/CureChildhoodCancer
http://curechildhoodcancer.blogspot.com/
http://www.carepages.com/carepages/AJsspace
http://www.curesearch.org/

Posted by AJs Dad September 27, 08 09:52 AM
350.

Thank you for your article and efforts in "getting the word out" about childhood cancer. I am the grandparent of a 4 yr old boy who has been battling Wilm's Tumor for over a year now. His diagnosis and battle has brought a whole new world into our lives. We all need to raise awareness and funds for research in battling this terrible disease.

Posted by Janet Robertson - grandparent to Nicholas in Michigan September 27, 08 09:56 AM
351.

Thank you for putting a face on the horrors of 'Childhood Cancer'. What you have shown is just a miniscule drop of the pain and horror these families face daily. We must do something to protect the greatest resource of our nation...our children.

Posted by darlene coury September 27, 08 10:06 AM
352.

Credit Schmedit Market Crisis -- Here is THE problem we should be throwing 700 Billion at. Those CEO Golden Parachutes should all be sent to cancer research especially childhood CA. I can accept an older person succumbing but it sure gets me to see these pictures and read in these comments that "he or she didn't make it
Tearfully
Grandfather of Evan the Warrior

Posted by Donald R. Fowler, M.D. September 27, 08 10:09 AM
353.

My son recently finished 38 months of treatment for Acute Lymphoblastic Leukemia. During those 38 months of treatment he only ask me twice "Why me?". As an almost 10 year old, he has endured more medical procedures, pokes, spinal taps,and thousands of pills than anyone should. The amazing thing, he has done it with a smile. Such courage, strength and bravery. Cancer kids are amazing!
I hope that the day will come with Childhood Cancer Awareness and the gold ribbon become as "popular" as breast cancer awareness. Today's child is tomorrow's future.

Posted by Lina September 27, 08 10:11 AM
354.

Thank you for giving this most important issue some publicity. My nephew has been battleing AML Leukemia for almost three years now. His family has been financially and emotionally devestated. They have lost everything and have had limited resources to help them as they continue to fight in their war against leukemia. This disease is awful. It is tormenting and we MUST bring awareness and help fund research to find a cure for all childhood cancers! Please visit his Lil b's website if you want more facts: www.caringbridge.org/visit/barryryanjr
This is REAL and it is going un-noticed!

Posted by Kimberlie Figg September 27, 08 10:12 AM
355.

Thank you for showing this series. I was thrilled to see Larry Theriault in one of the photos. I'm entering my 12th year as a member of the Dana-Farber Marathon Challenge Team, and see Larry every year the evening before the Boston Marathon as one of the patient partners. It's wonderful to see one of the children we run for look so healthy and strong. You may recall seeing my own patient partner, Amber, who has been featured on many Jimmy Fund ads as the little bald girl in pink sitting on David Ortiz' lap. She's also a very healthy young lady, thanks to the fantastic work at Dana-Farber.

Posted by Heather Hagerty September 27, 08 10:15 AM
356.

Thank you for the story and exposure on Pediatric Cancer. This type of exposure motivates people to donate and gets people involved that would otherwise have no idea just how terrible cancer is for these kids & their families. Pediatric cancer is the most overlooked and under funded segment of cancer research by a large margin, killing more children annually than asthma, diabetes, cystic fibrosis, congenital abnormalities and AIDS combined. In 2005 my son Zachary died from a Wilms' Tumor, the same cancer that little Diana survived in your story. Please consider doing a follow up story. These kids are suffering and dying and they need you. For more info go to www.curesearch.org

Posted by Steve G-Zak's dad September 27, 08 10:23 AM
357.

Thank you for bringing awareness to this horrific disease. My 9 year old nephew is one of the many beautiful children fighting this horrible battle. Our children ARE our future and we have to find a cure. Please give generously to childhood cancer research!
www.evanthewarrior.com

Posted by Aunt of Evan the Warrior September 27, 08 10:24 AM
358.

My name is Joy Chessher, ahnd I want to thank you for making people aware of pediatric cancer...the #1 killer of children. I am heartbroken for what children and their families go through. The suffering is so horrible. GOD please give us a cure for cancer. Help Your children LORD. Please LORD give the pharmaceutical companies a cure for cancer, and help them to realize that is is the right thing to do to find a cure, and not let money and greed stand in their way.

Posted by Mama Joy Chessher September 27, 08 10:41 AM
359.

THank you for your support for Childhood Awareness! And for getting the word out about the children that so need our help!

www.caringbridge.org/visit/riley7
Riley's Mom

Posted by Tara Frandsen Valerius September 27, 08 10:44 AM
360.

Until my daughter was diagnosed with a rare lung cancer at 19, I had no idea the number of children who were battling cancer. Just three weeks after being diagnosed, Brittany lost her battle. With more awareness and more research maybe those numbers will go down. Thank you for writing this article, for acknowledging Childhood Cancer Awareness Month. We all need to be more aware.
www.brittanysbattle.org

Posted by Tammy Coppedge September 27, 08 10:48 AM
361.

thank you for bringing awareness to this disease.
im pretty close to a little 4 year old who's been battling cancer sense he was two. his name is Coleman Larson. he's an amazing little boy.
he has a twin brother named Caden who is crazy fun. they both are! :)

Posted by Abby Redmond September 27, 08 10:56 AM
362.

My heart goes out to all those children who are suffering or have suffered through these dreadful pediatric cancers most of us have never heard about until it happens to one of our family members. Our sassy, bright, energetic and full of life neice, Kiersten Hickman-Perfetti, died at age 22 of a little known cancer, rhabdomyosarcoma which was diagnosed in her first year of college. She battled this dreaded disease for four years like the "Superhero" that she was. Thank you for the article keeping pediatric cancer in the forefront of todays news.

Posted by Toni Carruth September 27, 08 10:57 AM
363.

We are praying for ALL the families who are dealing with cancer.
We ALL are affected one way or another:
our precious children, mothers, fathers, siblings,
best friends, neighbors, friends at church, etc.
We will continue to pray until the CURE is found.
"God, please give EACH child with cancer YOUR special love, comfort,
peace and HEALING!!! And give each parent YOUR peace, comfort,
strength and wisdom to get through each day."

Posted by Janet H. September 27, 08 11:08 AM
364.

Thank you so much for the stories. It is so important to let people know how much cancer effects families. How important it is to give for more research and care for patients. I hope this will shed a light on how cancer effects all ages.

Posted by Sherry Jones September 27, 08 11:10 AM
365.

Thank you for continuing to bring awareness to this horrible disease affecting so many innocent children who deserve a chance at life.

Posted by Random Smith September 27, 08 11:12 AM
366.

These are the true heroes. I can only hope that the future is filled with awareness and cures for these and all the other warriors. I am a proud wearer of my gold ribbon. The families that shared these photos are amazing and I thank you. Any amount you give can help and you'd be surprised at what you are capable of doing when you put your mind to it. My family was not directly affected and yet we organized an event that raise more than $17,000. It starts with one person and a lot of hope. Do it for these children and our future.

Posted by Cindy Merkler September 27, 08 11:15 AM
367.

Thank you for posting this message about childhood cancer. I also have a son who was diagnosed with a high grade gleoma brain tumor. He is doing good so far. I also did not know how many children are dealing with this horrible monster they call cancer and also how many children have died from this disease until my own son was diagnosed with cancer. We need to make awareness of this disease and help these poor children who suffer so much going through treatment.

Posted by Jean Challenger September 27, 08 11:16 AM
368.

Thank you so much for printing an article on Pediatric Cancers so more people will be aware of the fact it can happen to any child on any given day. These could be my children or your children and oh the pain of seeing ones own child go through all this pain and suffering.
Some day I pray there will be a cure for this Monster so no other family will have to endure the pain of losing their child.

Posted by Sue Robinson September 27, 08 11:18 AM
369.

My daughter Janie passed away of cancer just over 2 months ago. But long before we lost her, we did not feel any more sorry for her or ourselves than we did for every other child and family that had to endure the tragedies of cancer or other life-threatening illnesses.

Most important, we understand that a big part of this tragedy is nestled in the lack of understanding and awareness, because they are minorities by age. Unfortunately, their diseases are treated the same. The only way out is spreading the word. Thank you BOSTON GLOBE!

Posted by Colleen Kashino September 27, 08 11:33 AM
370.

Thank you for supporting for Childhood Awareness! Please continue to get the word out so that we do all we can to best this monster called cancer.

Posted by mags September 27, 08 11:36 AM
371.

Childhood cancer is real and to look the other way as everyone else deals with it is not only selfish, but foolish. Making September childhood cancer awareness month is a way of giving back the hope. The hope we all feel we have lost as we watch our children go through this unending battle. Using September as child hood cancer awareness month can and will help prevent other children from having to fight this battle; at least this is my HOPE. Fly High Little Man!

Posted by Teresa September 27, 08 11:39 AM
372.

Thank you so much for sharing this information. More needs to be done to stop this horrific disease.

Posted by Sandy Heiniger September 27, 08 11:49 AM
373.

Thank you for spreading the awareness of this terrible disease.My nephew a 4 year old boy just died from adrenocortical carcinoma, can you imagine what a wonderful thing that you have done, if your article helps in any way to save just one of these little children. It very well may have for it is awareness of the public, politician, etc. that will help get things rolling toward a cure. Thank you.

Posted by Rick September 27, 08 11:49 AM
374.

It continues to amaze me that the government continues to spend millions and billions of dollars on a war in Iraq however continues to decrease the funding for childhood cancer research. We have made significant progress in working on cures over the last 50 years but still have so much left to do. With more and more cuts in funding every year the goal to cure every child is getting farther and farther away.

Posted by Jill September 27, 08 11:54 AM
375.

This is just so unfair that such innocent, sweet, and beautiful children have to suffer from such a horrible disease. I found out about this site from a guest book entry on Cole Ruotsala's Caringbridge page. It's impossible to understand why these things happen to our sweet babies, but we must keep FAITH that GOD knows what he's doing. He never makes a mistake and his plan for us is perfect. ALL OF US!!! I pray for all the sick kids who are suffering from this disease and anything else. I've never heard of so many childhood sicknesses as I have lately. It's horrilbe and seems SO UNFAIR. May God Bless You ALL!!!!

Posted by Shelly Lusk September 27, 08 11:58 AM
376.

You have done an incredible job of putting the beautiful faces that represent the ugliest disease out in front of the public. Only when we forced to confront the harsh realities of Childhood Cancer will others be compelled to increase funding for the research needed to erradicate this disease. I lost my son Cole to an DIPG brain tumor and there were no treatments avaialable that had any promise of saving his life. This is simply an unacceptable prognosis in this nation of wealth and intelligence. Please urge your colleagues to write about this hidden national tragedy and bring it to the forefront of America's concerns. Many of the kids that are diagnosed and die from this disease are the nation's best and brightest- we need kids like these to grow into America's leaders, not die an untimely death or suffer damaging side effects from treatment.
Lisa Marshall
Carepage: COOLCOLE

Posted by Lisa Marshall September 27, 08 12:19 PM
377.

I lost my baby girl on May 13, 2008 from Medulloblastoma a form of ped brain tumor. She was diangosed April 17th, 2006. She underwent A total resection of the tumor April 18th, 2006, 11 months of chemo therapy followed by a High dose chemo therapy and StemCell Trasnplant . She was off treatments for 4 months and relapsed May 23, 2007 with yet another Total resectin of this tumor. She then underwent Chemotherapy as well as radiation to brain with focal boost on the tumor site. She was Cancer FREE from August 2007-Feb 2008. She relapsed yet again and then passed away May 13, 2008. FIND A CURE and stop making these children suffer. I lost my child for what?? My angel, my best friend, This saddens me. Why are we not putting more money and more research into CANCER! Why are so many people dieing ?? FIGHT BACK!!! So someone else doesnt have to say good bye to there daughter, son, best friend, Sister, Brother, Cousin LOVED ONE!

Posted by Andrea Long September 27, 08 12:24 PM
378.

Thank you for your much needed publicity on childhood cancer. These kids are mighty warriors battling this beast and we need more research and funding so no parent ever has to bury their child who has lost their fight with cancer. We have made great strides with childhood leukemia. Now lets tackle Burkitts, Neuroblastoma, rhabdomyosarcoma, and the rest of the these killers!

Posted by Lisa Frieden September 27, 08 12:32 PM
379.

Thank you, and God Bless You, for sharing and supporting these brave souls.

Posted by Carolynn Johnston September 27, 08 12:35 PM
380.

Children are our future!! Let's get going and conqure Childhood Cancer!! Let's recognize it!! May God Bless all the FAMILIES out there that are enduring this battle!!

With much Love, Dawn

Posted by Dawn September 27, 08 12:36 PM
381.

Thank you for raising awareness of this monster! Half the battle is truly understanding the nature of the beast. These children endure more than most adults I know. There is a cure out there. We just have to find it. Kids deserve to be kids.

Posted by Kate Midkiff September 27, 08 12:50 PM
382.

My 4 year old son, Ty, is battling leukemia as I write this. He has been through more in his 4 years than most adults in their lifetime. These pictures are incredible and speak "thousand of words" but sadly, they do not tell the whole horrible cancer story. Cancer is an epidemic, a beast that needs to be fought from every angle. THANK YOU FOR DOING THIS STORY for my son and all of the other brave cancer kids out there!

Posted by Jen Nelson September 27, 08 12:51 PM
383.

I just turned 50 this year, and I know from what I read in the news that cures need to be found immediately in order for these children to have a chance at saving a country the adults are screwing up. Tom DeAngelo

Posted by Thomas DeAngelo September 27, 08 12:59 PM
384.

Thank you for sharing these beautiful photos and raising awareness of childhood cancer, and the importance of addressing it as a society.

Posted by Julie K September 27, 08 01:05 PM
385.

I want to thank you for showcasing Childhood Cancer Awareness Month. This month doesn't showcase one particular childhood cancer, but it encompasses all of them.

Please visit the following site, it will show you many wonderful children who have battled or lost their battle with a Diffuse Intrinsic Pontine Glioma, a fancy term for a brain stem tumor.

http://icouldbeyourchild.org

I am from Massachusetts and this is the first mention of Childhood Cancer Awareness Month I have seen anywhere. Thank you so much for honoring those warriors and angels. I will never forget them and I pray for their families and friends to be comforted...ALWAYS.

Please continue to give these children the recognition they justly deserve.

God Bless.

Rich (Angel Matthew's Dad)
http://www.caringbridge.org/visit/matthewmcgowan
http://curechildhoodcancer.ning.com/profile/RichM

Posted by Rich McGowan September 27, 08 01:07 PM
386.

Thanks for covering Childhood Cancer....there has been very little media coverage during the Childhood Cancer Awareness month of September.

The photo stories that you have touched upon are only the very small tip of a very large iceberg.

Joanna--www.caringbridge.org/visit/paigestibgen

Posted by Joanna--mom to ^Paige^ September 27, 08 01:24 PM
387.

What amazing pictures! Thank you so much for bringing awareness to Childhood Cancer! I had no clue how many children get childhood cancer, how many die every single day, and how much pain they live in. I did not know until my 4-yr-old son, Vinny got it. What a wake up call. Now we do what we can to change the viewpoint of others. Thank you for helping. The pictures are beautiful!
www.caringbridge.org/visit/vinnydigerolamo

Posted by Sarah Digerolamo September 27, 08 01:28 PM
388.

Thank you for the article and beautiful photos. My 3 year old son was diagnosed with Ewing's Sarcoma in October 2007. He was limping and complaining of pain for over four months before his diagnosis. His primary tumor was located on his right pelvis and had metastasized to his lungs. He has been in remission since May 17, 2008. He endured 7 rounds of intense combination chemotherapy, a surgery to remove the tumor along with his right pelvic bone, and high dose chemotherapy with a stem cell transplant. He now walks with a walker and receives physical therapy.
Carepage: AidensAmbition

Posted by Amanda Davis September 27, 08 01:33 PM
389.

Thank you for helping raisie awareness of childhood cancer. I would like to see some major corporations get behind supporting childhood cancer in the same way that they support breast cancer. We owe it the children and their families to do all we can to help find a cure.

Posted by Fran Miller September 27, 08 01:38 PM
390.

Thank you for taking the time to help us be more aware of this horrible disease that could happen to any of us, at any given time. I lost a friend to leukimia two years ago at the age of 20, almost 21. Horrible. All of these pictures brought tears to my eyes, it's not fair to these kids and their families.

Posted by Brittney September 27, 08 01:44 PM
391.

Thank you for raising awareness and putting a face on childhood cancer awareness.

Posted by Michelle Fuentes September 27, 08 01:44 PM
392.

Alan,
As the parents of a 4 year old girl who has been fighting a brain tumor at the Jimmy Fund for over 3 years, we thank you for bringing desperately needed attention to this horrible, devastating disease. We can not win this battle alone. So much more needs to be done for these children and they have waited much too long.
Sincerely,
Michelle and Jim Roderick, Hudson, MA www.caringbridge.org/visit/erinroderick

Posted by Michelle Roderick September 27, 08 01:53 PM
393.

As a Nana to a leukemia (ALL) and bone marrow transplant survivor, the devastation of diagnosis was life-changing. The treatment that Tristan received was almost beyond what he or our family could stand. No child should ever have to experience cancer, and every effort should be made to find a cure. Thank you so much for this article and your help to raise childhood cancer awareness. I pray that soon no child will ever receive a cancer diagnosis!

Posted by Debbie Willis September 27, 08 02:00 PM
394.

One more thanks for posting this incredibly touching slide show. My heart and energies go out to the kids and their parents who must fight these battles. After looking at these beautiful young people I have to say that any illness I might have is minimized by the heroic lives of these children and their parents. I can only hope that care can be given to many more that might be waiting in line for help. It is such a shame that each and every one can't recover but that isn't going to happen. I can only hopel

Posted by Wesley Norman September 27, 08 02:02 PM
395.

Thank you for being so brave to share what for so many is the "unspeakable."

These photos reveal that we not only need to find cures, we need better, less toxic treatments for children battling these horrific diseases.

With gratitude,
Amy, mom of ^^Arden^^, forever 3 (stage IV, high risk Neuroblastoma)
www.caringbridge.org/visit/ardenquinn

Posted by Amy Bucher September 27, 08 02:09 PM
396.

These photos are heartbreaking, and awe inspiring, just like these children.
Thank you for this. It feels good to know, someone recognizes the struggle.

Posted by warrior for hope September 27, 08 02:10 PM
397.

Thank you for focusing attention on these beautiful, heroic children and their families. No child should suffer in this way. What cause is more worthy than ending childhood cancer?

Posted by Jane Fischer September 27, 08 02:13 PM
398.

Alan, thank you SO MUCH for doing this article on Childhood Cancer Prevention month!!! This is a tremendous step forward (by leaps and bounds) spreading the awareness on a subject that because of its sensitivity and nature is very difficult for many to digest. However, it absolutely MUST be out in the public eye in order to create a healthier world for the children, and their families. My brother died of cancer at the age of 12. That was in 1968. Since then there have definitely been great strides made in working to help the kids and their families cope with their journey with cancer: support groups, web-sites (such as CarePages and CaringBridge) where people from all over the world can connect and offer words of encouragement and support to families going through it, so you don't feel alone; and hospice, as much as that hurts to think about "children" needing hospice care, it is so very necessary for the families. I can tell you that when my family went through our journey, it was not available yet. My mom and grandma were Donnie's caregivers, and they took it on without hesitation, and I so respect them for that. So I am very thankful that it is available to families now. I can see how far getting Childhood Cancer Awareness out has come since we went through it, and I applaud and thank every single person(s) who helps in any way to put a stop to this unforgiving disease. As I learn of other families who are having to go through the devastation we went through, that tells me there are still leaps and bounds that need to be made getting the awareness out even further. We cannot stop until childhood cancer is completely gone. We can't afford to look away when what we read and see hurts too much. Imagine those children who are fighting this disease, or their families who know that they might not be able to see them get well, that the parents might "outlive" their kids, and brothers and sisters won't have that "special" pal to grow old with. I know that nothing I have or ever will go through will ever compare how Donnie hurt. The word "hurt" doesn't even come close to describing what he actually had to endure. WE CAN'T LOOK AWAY. That's when we have to look at it right in it's face and say "CANCER IS NOT GOING TO WIN". Thank you Boston Globe, and thank you Alan for this article. Even though no one may know my brother, it does talk about him. He is one of the "statistics". He is one of the HEROES from this unimaginable fight. I know that he is right there to greet each new angel after their journey on Earth ended. This little sister will be fighting so that one day families can remain "whole" families and grow old together and have a FUTURE. Words could never express just how much the article and pictures meant to me! Thank you, thank you, thank you!!

Posted by Sally September 27, 08 02:15 PM
399.

Thank you for doing this piece on childhood cancer. This disease does not know or care what age you are and the suffering of children, familes is devistating. Thank you for bringing awareness to this disease and for putting so many beautiful, if sad and painful, faces to childhood cancer. People need to know, funding needs to increase, esp from w/in the American Cancer Society, a great % of funds needs to go to childhood cancer. Thank you for raising awareness on this topic - as those of us w/ healthy children count our blessings.

Posted by Paula September 27, 08 02:44 PM
400.

THANK YOU THANK YOU THANK YOU
For writing this great article. There is WAY too little national awareness concerning childhood cancer. My hero is my son Derek who is battling a medulloblastoma brain tumor. These kids all across the county have to endure more than they ever should. We need more articles like yours to increase awareness which will lead to more funding which will lead to a cure so no other child will have to endure surgeries, chemotherapy, and radiation. Carepage: DerekEllerbeck2007.

Posted by Kory Ellerbeck September 27, 08 03:00 PM
401.

Please, Please raise childhood cancer awareness, nobody realizes how many kids get cancer. They should get to be kids and not have to fight for their lives and lose all of their childhood. There is so much awareness for breast cancer, why isnt there any awareness for childhood cancer?

Posted by sherry September 27, 08 03:11 PM
402.

More attention needs to be brought to pediatric cancer and the kids who endure it! September is Pediatric Cancer Awareness Month, and what have we heard of it on the news or from the media? NOTHING.

Posted by Katherine September 27, 08 03:15 PM
403.

The travesties of childhood cancer are only real and ever present when it affects your family, yet it is a great problem. What these kids go through will have after effects for the rest of their lives, forever deprived of an innocent childhood.

Posted by Heather September 27, 08 03:22 PM
404.

I follow the stories of many children with cancer. My first was Julian, #14 in your story. He touched my life & broke my heart, I swore I'd never let a kid like that into my heart again, just too painful, but Juju's mom Mimi convinced me to check another carepage & I fell in love all over again. Now my heart is full with the blessings of these kids, they are so beautiful & fight so hard. Does is hurt? All the time, but I pray that my heart never heals until childhood cancer is but a memory. If your heart stops hurting it's easier to forget & I don't ever want to forget that there are families out there dealing with this monster every day. Thank you forf doing this sotry, I pray it will call more people into the fight!

Posted by Alane Michels September 27, 08 03:25 PM
405.

Childhood Cancer Stinks! What we thought was a sore shoulder, quickly became Acute Lymphoblastic Leukemia and the fight for my son's life! I HATE CANCER! Our kids are so brave! I hope and pray that more our government will see the importance of research so that someday Leukemia will just be something in a text book! If you are Fighting Keep FROGIN! www.caringbridge.org/visit/jacobwicklein

Posted by Christine Brantley September 27, 08 03:26 PM
406.

Nice to see an article dealing with cancer in children. Beautiful pictures of the smallest heroes in our lives. As the mother of a daughter who battled bone cancer as a child, it's great to see some attention put on cancer in children. Now let's see some money put towards research in children, so that we can avoid the pain that comes with this diagnosis.

Posted by Terri September 27, 08 04:09 PM
407.

Thank you for helping taking the "blinders" off of America aka your loyal readers. The ugly truth is that pediatric cancer is escalating and has a snowball effect as to its impact.
Now if the government could only "hear" what you allowed your readers to "see" - just maybe they could also "feel" compelled to help and "touch" the lives of so many. Pedicatric Cancer Stinks - in all "senses"!!! .....Even common sense!

Posted by Jason & Jarred's mom September 27, 08 04:11 PM
408.

19 pictures , just a few of our little soldiers :
AJ ALL dx 08/07 4 months
ALEX ALL dx 03/07
ALEX C. T-CELL LYMPHOBLASTIC LYMPHOMA dx 12/06 age 9
ALYSSA MEDULLO dx 5/05 age 6
AMANDA V AT/RT dx 12/07 age 3 months
AMANDA MEDULLO dx 11/03 age 10
ANDREW C MEDULLO dx07/05 age4
ANNA MDS
ASHLYN AML dx 09/07 age 2
BAILEY RHABDO dx 04/06 age 5
BEN ALL dx 07/07 age 4
CAMERON ALL dx 06/07 age 4
CARSON MEDULLO dx 10/06
CHARLOTTE MEDULLO dx 02/06 age 3 1/2
CHASE LEUKEMIA dx 01/07 age 1
CJ MEDULLO dx 12/06 age 3
CODY RHABDO dx 07/07 age 7
COLE S. ALL dx 06/05
COLE D. ASTROCYTOMA dx 05/07
COLEMAN MEDULLO dx 09/06 age 2
COREY IV NB dx 02/07 age 2
CRISTINA at/rt dx 02/07 at 6 months
DEREK MEDULLO dx 11/07 age 3
DEVIN RHABDO dx 08/07 age 2
DIEGO EMBRYONAL RHABDO dx 10/06 age 3
DYLAN D. MEDULLO dx 08/07 age 5
ELIAS MEDULLO dx 09/07 age 6
ELLIE SPNET dx 09/07 age 3
ELYCE MEDULLO dx 06/05 age 10
ERIK MEDULLO dx 11/92 age 1
ETHAN ALL dx 08/07 age 3
GINA MEDULLO dx 06/06 age 7
GLENN MEDULLO dx 07/07 age 15
HALEY H. WILMS TUMOR dx 12/07
HANNAH MEDULLO dx 02/07
HALEY P. NB dx 03/95 relapse 10/06
ISAAC NB dx 12/07 age 3months
JACK J. WILMS TUMOR dx 03/07 age 4
JORDYN ANAPLASTIC LARGE CELL LYMPHOMA dx 11/07
JORDAN
JESSICA ARMS dx 7
JOSH LEUKEMIA dx 12/06
JULIA OSTEOSARCOMA dx 9/06 age 12
KATELYN MEDULLO dx 12/06 age 3
KENNEDY G. AML dx 04/07 age 3
KENNEDY PW OSTEOSARCOMA dx 06/07
LILLI RETINOBLASTOMA dx 12/07
LUCAS MEDULLO dx 04/07 age 6
LUKAS NB dx 11/07 age 11 months
MACKENZIE WILMS TUMOR dx 01/05 age 1
MADELYN ALL dx 10/07 age 3
MADI NB dx 10/06 age 9
MARLIE PINEOBLASTOMA dx 06/07 age 4
MIKAYLA ALL dx 03/07 age 4
MIRANDA EWINGS SARCOMA dx 09/07 age 3
MORIAH NB dx 04/07 age 7
NATALIE MEDULLO dx 05/07 age 3 months
NICHOLAS IV HIGH RISK NB age 3
NIKKI MEDULLO dx 04/06 age 10
NOAH B. MEDULLO dx 07/07 age 9
NOAH D. BRAINSTEM GLIOMA dx 05/07 age 5 1/2
NOLAN RHABDO dx 12/06 age 10
PAYTON EWINGS SARCOMA beginning 07 age 3
QUINN MEDULLO dx 03/07 age 8
RACHEL ALL dx 08/06
REESE NB dx 07/07 age 2 months
RILEY MEDULLO dx 02/07 age 8
ROBERT MEDULLO dx 11/05
ROMAN NB dx 04/07 age 2
RYAN ALL dx 05/06 age 5
SAM B. MEDULLO dx 09/00 age 3 1/2
STEVEN PNET dx 09/03 age 9
TY ALL dx 02/08 age 3
TYLER Wilms Tumor dx 10/01 age 4 1/2
VANESSA MEDULLO dx 01/02
ZACH S. MEDULLO dx 11/06 age 5
ZEB. NB IV HIGH RISK dx 02/07 age 3
CARSON UNKNOWN CANCER age 3 months old
SINJIN BURKITT’S LYMPHOMA
OLIVIA PHL+ALL 5 years old
HAYDEN NB 4

AJ BURKITT’S LYMPHOMA dx 06/07 ^^ 01/08
ANDREW L MEDULLO dx 06/04 ^^09/07
ANDREW H MEDULLO dx 3/06 ^^ 2/07
CADEN GLIOBLASTOMA MULTIFORME dx 11/06 ^^11/06
CHARLIE AML dx 01/06 ^^ 06/07
CODY M AT/RT dx 01/06 ^^06/07
COLE M BRAIN STEM GLIOMA dx10/05 ^^08/06
CRISTINA AT/RT dx 02/07 ^^ 11/07
DINAH
DONNIE ^^ 05/68
DOUG ALL dx 06/00 ^^12/06
ELESHA NB dx 1/05 ^^ 06/07
GREG EWINGS SARCOMA dx 21
HAYDEN AT/RT dx01/08 ^^ 02/08
HAZEL AT/RT dx 01/07 ^^08/07
JABIN PINEOBLASTOMA dx 06/06 ^^ 08/07
JACOB ADRENOCORTICAL CARCINOMA dx 02/04 ^^ 06/06
JESSICA RANDALL ANAPLASTIC ASTROCYTOMA dx 05/06 ^^ 06/07
JOEL LCH dx 04/05 ^^ 02/08
JONH ERIC NB dx 09/07 ^^ 05/08
JELLY BEAN JEAN PNET dx 09/05 ^^ 03/07
JU MEDULLO dx 03/07 ^^ 01/08
KAYLA C PNET dx 02/07 ^^ 03/08
KAYLA W NB dx 12/06 ^^ 12/07
KYRA ANAPLASTIC ASTROCYTOMA dx 06/94 ^^02/96
MALACHI AML dx 01/07 ^^ 06/07
MICHAEL G. MEDULLO dx 11/02 ^^ 03/07
MILES RHABDO dx 05 ^^ 08/07
SARAH RHABDO dx 10/06 ^^ 11/07
SHAELYNN CHOROID PLEXUS CARCINOMA dx02/07 ^^02/08
SILIO DIPG dx 03/06 ^^ 12/06
TEVIS NB dx 06/04 ^^ 05/06
TRINITY DIPG dx 03/07 ^^ 10/07
VICTORIA PH+ALL dx 06/06 ^^ 10/07
ZACH T GLIOBLASTOMA MULTIFORME dx 7/05 ^^ 5/06
COLE ADRENOCORTICAL CARCINOMA dx 07/08 ^^ 09/08
ARDEN NEUROBLASTOMA dx 10/07 ^^08/08 ....
JUST A SHORT LIST ...


Posted by Myriam Avery September 27, 08 04:20 PM
409.

Thank you so much for your article on childhood cancer...we need to do all we can do to raise awareness and funds.

Posted by Angie Martin September 27, 08 04:31 PM
410.

My daughter is 5 years old and fighting AML. She was diagnosed on 9/11/06, relapsed 2/2008, and has just finished a bone marrow transplant. It has been a horrific course with complications which will last her lifespan. I connected with your photo #6 of Nathan Gentry--it showed simply the isolation these kids endure, the longing & loneliness, and a beauty that shines through in spite of what they face.

Posted by Cynthia Culpepper September 27, 08 04:39 PM
411.

Thank you for the article on childhood cancer. Hopefully more people will become aware of this devastating disease and more funding will be allocated to find a cure. No child should have to suffer like this.

Posted by Kathy Farnik September 27, 08 04:47 PM
412.

We were not aware that September was national childhood cancer awareness month until our son CJ, age 9, was daignosed with Lymphoblastic Lymphoma on September 12th. Our eyes are now opened to this horrible reality now that our son has cancer. We are desperate for a cure, answers and awareness for this disease.
You can read his story and our very personal jouney through his blog from the first day until now. We are only 2 weeks into his diagnosis and treatment and still feel liek the ground has fallen out from under us.

http://georgefamilybreakthemold.blogspot.com/

Posted by Dawn George September 27, 08 04:51 PM
413.

Thank you for the article about childhood cancer.

Posted by Tina Lundberg September 27, 08 04:59 PM
414.

Thank you so much for being brave enough to publish the FACTS! I am a mom of a wonderful 4 y/o who was diagnosed with Philadelphia Positive Acute Lymphoblastic Leukemia at the age of 3. People NEED to know that childhood cancer is out there..and its steeling these precious children from their families every day. Our warrriors deserve the support of their community, they are so worth it!

CAREPAGE: helpbenjamin

Posted by Benjamin's Mom September 27, 08 05:16 PM
415.

1 in 300 children will be diagnosed with cancer before the age of 20. My son is one of them. He will get to be at his sister's wedding tomorrow. He'll be wearing a top hat to cover his bald head. At least he will be there. We don't know what the future holds, so THANK YOU for raising awareness of CHILDHOOD CANCER. We know of 2 other children in our community who died this past year. One, on the day he was diagnosed. Help fund reasearch for CHILDHOOD CANCER. The pictures are all to familiar to what all children with cancer go through.

Posted by Carol Spaulding September 27, 08 05:42 PM
416.

Thank you for helping others become aware! I used to be naive and think that few children battled cancer, until one day I became a part of the dark world of cancer. My 1yr old son was diagnosed with T-Cell Leukemia (ALL) in June 2008. Our world had been turned upside down in a matter of seconds when we were given the news. This is serious and people need to be aware that cancer is out there and it is affecting so many children. We need to all fight to find a cure!

Posted by Jen DeSombre September 27, 08 05:50 PM
417.

Thank you so much for doing such a beautiful article! Hopefully more media outlets will start doing a better job helping to raise awareness. September is Childhood Cancer Awareness month, which far too many people are still unaware of this....but, let's not just fight to for more awareness each September. Stories need to be published like this weekly, heck daily! It's hard for people who have never experienced having a child with cancer to be aware of the magnitude of this problem, so more stories like this and more personal stories of what they go through will get more people to want to get involved.

Posted by Tressa West September 27, 08 06:24 PM
418.

Cancer is wicked. Childhood cancer is the most wicked. It needs to be eradicated. Thanks for your tireless efforts.

Posted by S. Rosenberg September 27, 08 06:35 PM
419.

Great article. How can you not be touched by these angels. My view for my own children has forever been changed. Some days you rejoice while others you are overwhelmed with sorrow....if there was one thing we should do as grown ups it should be to find a cure to save our babies.

Posted by Elechia September 27, 08 06:38 PM
420.

Alan, Thank you for raising awareness for Childhood Cancer...I lost my firstborn grandson at age five this year to DIPG (a form of brain cancer) no cure, no hope...no improvements in over 20 years!!! What is it going to take for the public to be aware that cancer can strike anyone at any time.... it can be your child, or your grandchild...the monster took the love of our lives...a healthy, beautiful, smart little boy. Childhood cancer needs awareness, and it needs funding.

Posted by Sheila Jones September 27, 08 06:54 PM
421.

Childhood cancer is not as rare as people would like to think. Childhood cancer has touched our family and we don't want it to touch anyone else. Thank you for helping bring awareness to Childhood Cancer during National Childhood Cancer Awareness month!

The children are our future, these brave kids see more than many adults, let's put a stop to it!

Posted by Christie September 27, 08 07:06 PM
422.

Thank-you for the pictures of these amazingly brave little warriors. I am a Team in Training athlete, and I follow many such warriors via their Caringbridge sites. Their spirit and courage just amaze me. They are an inspiration. We need to keep working to find cures and better treatments. Thanks again for this fantastic display of courage.

Posted by Allison Grotelueschen September 27, 08 07:11 PM
423.

Thank you for your article to increase awareness of childhood cancer. Unfortunately, so much more needs to be done. Increased awareness leads to increased funding. Research and treatment in the area of pediatric cancer is a necessity which has been long neglected. Please, continue to help keep a focus on this issue.

Posted by Diane Bishop September 27, 08 07:18 PM
424.

Thank You for the article on childhood cancer.My son is 6 yrs. old and is fighting stage 4 neuroblastoma. He was diagnosed in June 2007.

Posted by Brandy Benton September 27, 08 07:25 PM
425.

Numbers
Pretend there were pictures of 46 kids. All happy, healthy, athletic, having fun, goofing around, innocent. That's the number of kids who will be diagnosed with cancer today.

And tomorrow. And the day after. All through next week. All month. All year. Ad infinitum. Until we stop it.

Look again, totally randomly, 7, black, white, orange, yellow, brown, green, 2 days old, 20 years old, it don’t matter. That’s the number of kids who will die from cancer today.

And tomorrow. And the day after. All through next week. All month. All year. Ad infinitum. Until we stop it.

When you read the stats, when you see the numbers, NEVER EVER forget that those numbers have NAMES...faces full of love, Moms & Dads, brothers & sisters, friends & families, hopes & and dreams.......futures.

Posted by AJs Dad September 27, 08 07:33 PM
426.

Thank you for this!!!! We've been waiting for someone to bring SOME awareness to Childhood Cancer, and we applaud you!
The pictures were touching, our hearts go out to each of the families featured. Unfortunately we see this very often...our now four year old son Coleman has been battling medulloblastoma (brain tumor) for over 2 years now. The treatments (most adults would find VERY hard and cruel) seem to work, but the cancer keeps coming back. We've exhausted all treatments in Iowa and are heading to NYC to begin something new.
Cancer has turned our lives upside down, and we pray for the day no family has to have the conversations we've had with Coleman about how we're doing this to make him all better....when it makes him so sick.
It's just not right.
We need more funding for research, and articles like this help get the word out. THANK YOU!
The Larson Family/Team Larson
Scott, Peggy, Caden and Coleman
http://www.carepages.com/carepages/ColemanScott

Posted by Peggy September 27, 08 07:52 PM
427.

Thank you for highlighting this cause. Our beautiful 15 month old daughter, Jenna, made her journey home to heaven just 3 days before last Christmas after an incredible battle with infant leukemia. Jenna fought with love, many laughs, and lived every moment of her 15 months. She fought so hard, yet, even in 2008, they still don't have the answers on how to best treat this disease. Why? Lack of funding is a big one. Please keep this in the spot light, help another family not have to travel the same painful journey that we're on, Help another child have a full future with their family here on earth. Help find a cure.

Posted by Rosanna Mangini September 27, 08 07:58 PM
428.

My daughter Danielle was diagnosed with Wilm's Tumor on August 8, 2006 and after 19 long months of treatment, passed away on April 1, 2008. Thank you so much for bringing awareness to the public.

Posted by Anonymous September 27, 08 08:05 PM
429.

Please continue to publicize pediatric cancers, to raise awareness so that research dollars can be raised.

Posted by Laura Perkins September 27, 08 08:07 PM
430.

Thanks you so much for writing this article and raising the general public's awareness of childhood cancer. The people I have spoken to make a number of assumptions about childhood cancer that need to be addressed. They assume that childhood cancer is rare. They assume that children almost always survive childhood cancer. And they believe that research into childhood cancer is well-funded and common. Unfortunately, none of these assumptions are true.

We lost our daughter to rhabdomyosarcoma a few months ago. Our lives were changed forever from the moment Kiersten was diagnosed. Our lives will never be the same without her.

Please join us in the war against childhood cancer by giving what you can to childhood-cancer specific foundations, such as Alex's Lemonade Stand, by writing to your federal representatives to increase the recently cut funds for childhood cancer research, and by volunteering at your local hospitals and Ronald McDonald House. If you know someone with cancer, talk to them, be with them, show them you love them and help them however you can. If you know a child with cancer, be there for the family and the child.

Help however you can. Let's give kids a chance.

Thanks,
Larry Perfetti

Posted by Larry Perfetti September 27, 08 08:32 PM
431.

thank you so much for the articale on childhood cancer i see allot about breast cancer everywhere and almost nothing about childhood cancer. this issue is very important to me because my 4 year old son angel perez was diagnosed with sevier Leukemia ALL march 15th 2007 he got his wings on october 1st 2007 he is my hero .
please check out theses sites: www.caringbridge.org/visit/angelperez
http://curechildhoodcancer.ning.com/
http://www.thepetitionsite.com/1/CureChildhoodCancer
http://curechildhoodcancer.blogspot.com/

Posted by rebecca perez September 27, 08 08:58 PM
432.

We've got to find a cure for this disease. God bless all the little heroes.

Posted by Sharon H. September 27, 08 08:58 PM
433.

Please find a cure for childhood cancer! This 'Big Picture' brought tears to my eyes and brought back the memories of my 2 very special cousins who lost their battles with leukemia. I watched them go through so much in their short lives when they should have been playing and enjoying a childhood. Unfortunately, cancer robbed them of that. Please don't let cancer rob anymore children.

Posted by Maggi September 27, 08 09:16 PM
434.

Thank you for writing this article and including the pictures of our littlest heroes. I believe that EVERY month should be Childhood Cancer Awareness month. Gold ribbons should be everywhere, more dollars need to go toward research. Our children are our future, they need to be protected in every way possible.

Posted by Jane September 27, 08 09:21 PM
435.

This is not "their" problem, it is ALL of ours. We need to do all we can to save all of our kids.

Please keep up the fight.

Posted by meg September 27, 08 09:35 PM
436.

Thank you for putting a name and face to this HORRIBLE disease. We have to find the funding for research so a cure can be found!!! Enough chilren have lost their lives, now is the time for it to stop and we are the ones to make sure it happens by speaking up loudly!

Posted by Karen September 27, 08 09:38 PM
437.

The tears always flow as I read the stories and see the pictures of these precious warriors engaged in the fight for their lives. Thank you for helping to bring awarenes to childhod cancer and honoring some of the heros in this batle.

Posted by Katherine Dehne September 27, 08 09:49 PM
438.

I have followed the journeys of many children with cancer on caringbridge and carepages. This precious children are the bravest, sweetest, most special children that are fighting a battle NO ONE should have to fight. Most definitely not these sweet, beautiful children. They need help in fighting this monster! Thank you for helping to raise awareness.

Posted by michele chase September 27, 08 09:55 PM
439.

Thank you for recognizing during Childhood Cancer Awareness Month. I have kept my eyes and ears open in my area, but haven't seen any coverage. My sweet niece, Amelia, was diagnosed with ALL two days after her second birthday. After two and a half years of treatment, she is in remission, but her family will always consider themselves a "cancer family" and they continue to grieve as they watch some of Amelia's cancer friends become angels too early. Amelia, like all other cancer children I have read about, is truly a warrior.

Posted by Wendy Hill September 27, 08 10:48 PM
440.

Childhood Cancer Awareness Month? To be honest with you,until my 8 year old son was diagnosed with a cancerous brain tumor,I had never heard of such a thing.There is not enough public awareness on pediatric cancer.Maybe if we could send out a text message to each person with a cell phone with the devastating death toll each day from pediatric cancer ,people would take notice!!....Your article was great and genuine.Thank you !

Posted by Diane Tidmore (Quinn's Mom) September 27, 08 10:54 PM
441.

Thank you for publishing this ariticle...we must raise public awarenss. My daughter earned her wings on April 4, 2007. She fought so hard, but lost her battle to Ewing's Sarcoma. She was only 3 1/2...how unfair it is that she knew from "tubies" and finger sticks, injections to raise her white cell count, so many medications, a leg brace....the list is endless. No child should have to battle this monster. We need gold ribbons everywhere. We need to let people know that children do get cancer and they are dying from it.They should never have to live with it.

Posted by Emily Willens September 27, 08 11:20 PM
442.

Our beautiful 10 year old granddaughter has osteosarcoma and is now going through chemo - it stinks! Cancer stinks! With all our new medicines and tools there should be a better way to get rid of this terrible disease that robs our children of their childhood. They shouldn't have to be sick from chemo in order to be healed - how can they get better when the med's from chemo kill the good cells that are trying to make their body heal. How can we find a better solution???

Posted by Rudy Loeffler September 27, 08 11:31 PM
443.

Thank you for the pictures and sad but true facts about childrens cancer. I read and pray for many children on the carepages. Kids like Julian Avery (picture #14) who was a beautiful little boy who touched my heart and changed my life through his experience with cancer. His sweet face and memories will stay with me always. I pray for all the children who are fighting this terrible disease and all the children we have lost from this monster. I pray for the families of these children who have to endure so much pain watching their children suffer.

Posted by Vikki Jetter September 27, 08 11:38 PM
444.

What a beautiful tribute to all Pediatric Cancer Patients. People do not realize what these children go through on a daily basis. I fought for seven long years to keep my son alive and it wasn't long enough. He lost his battle to Neuroblastoma in October 2005. We need a cure!
Thank you Boston for putting the awareness out there. The Cancer world of Pediatrics needs more support and attention

Posted by Sharon Romano September 28, 08 12:16 AM
445.

Thank you, thank you, thank you..
The reality of cancer in children scares people to death, turning a blind eye and hoping it will go away is not enough for the thousands of children who are dying this very minute.. or for those who will die tomorrow, and the next day.. Please, we must continue to bombard the world with this knowledge until it can no longer be ignored.

Posted by Stephanie Spears September 28, 08 12:25 AM
446.

These photos are so moving! Childhood cancer affects so many children, and most people do not realize how hard it is on these young souls. Unfortunately, our family is experiencing cancer treatment with our teenage son. Thanks for putting some faces on these diseases. Children so desperately need funding for cancer. Perhaps this will open hearts up to better funding for childhood cancer research.

Posted by Leslie Dickerson September 28, 08 12:26 AM
447.

I am sitting here with tears of joy rolling down my face that my precious little girl has reached her one year cancer free mark. But I also have tears of saddness for all those other precious children out there still fighting this monster. Tears of pain for those parents who have lost their children. My prayer is that the world will take notice of childhood cancer and how bad we need a cure. My daughter Taylor along with all these other brave kiddos are now and forever will be my heroes.

Posted by Alicia Darling September 28, 08 01:37 AM
448.

Find a cure for "cancer" in general will lead to a cancer cure for all people fighting all kinds of different cancers. It strikes the children, teenagers, young people, middle age people, older people.
No one should have to go through the treatments they have to endure for any kind of cancer at any age.
I say this because I went through treatments for Breast Cancer. I am an adult. I deserve a chance to live too ! I can tell you that cancer treatment in a person any age is brutal. I at one point was ready to give up and go to be with my in heaven. I wanted to die. The treatments almost killed me. Cancer treatments are not any easy for anyone at any age. FIND A CURE FOR "CANCER" PERIOD SO NO ONE WILL HAVE TO ENDURE THESE HORRIBLE TREATMENTS THAT THEY HAVE TO DO NOW. BREAST CANCER EFFECTS ONE OUT OF EVERY SEVEN WOMEN ! THAT NUMBER IS UNREAL. There is no cure for any cancer at present. You only go into remission. If you live through the treatments, then you live everyday wondering if it will come back again? That is not fair , is it? FIND A CURE FOR CANCER, GIVE TO RESEARCH. !!!

Posted by Susan Ursry September 28, 08 02:12 AM
449.

Great Pictures and heart breaking stories. That's what Childhood cancer is, heart breaking! We need to find a cure.
My daughter April lost her battle with Cancer in 1990. She would be 25 years old, she was 7 when she died from Osteosarcoma.
The word is getting out there, lets keep it up. Each generation needs to be informed, so the fight for Childhood cancer never stops.
A Cure!!!

Posted by Glenda Black September 28, 08 02:17 AM
450.

Thank you for publishing these precious touching pictures to help raise public awareness that today the REAL killer terrorists are cancer cells invading our children, our young adults, ourselves and our parents in every family around the world.. Wake up folks, In our lifetime, abnormal genetic mutations in human cells hiding and growing inside our own bodies and those of our family, friends and neighbors are going to kill more of us eventually than anyone, any other group or anything else on earth. Our national government and religious community leaders around the world simply refuse to see human cancer cells as the biggest enemy and that fighting cancer cells ought to the most important pro-life international budget priority for all Earth dwellers.

Posted by Anne McGinnis Breen September 28, 08 03:51 AM
451.

Thank you so much for bringing awareness to childhood cancer. I haven't seen or heard many news outlets covering Childhood Cancer Awareness Month as I thought I would. My grandson was diagnosed at the age of 2 1/2 yrs old with Stage IV Neuroblastoma and recently underwent a stem cell transplant. We need a cure!!! Please, everyone,if you can, donate what you can to Childhood Cancer Research
www.caringbridge.org/visit/khalidamos

Posted by Joya Young, Khalid's Grandma September 28, 08 05:26 AM
452.

Absolutely all cancers should be cure comment #448. We are NOT saying otherwise. We are simply pointing out that CHILDHOOD CANCER is under-funded and under-publicized. Please, under these pictures of these beautiful children, do NOT argue that.

Let's simply think about the statistics. From the National Cancer Institute and the American Cancer Society -

Average age for cancer victims -
childhood 7 years old
prostate 68 years old
breast 61 years old

Five year survival rates -
childhood 78%,
prostate 99%,
breast 90%.

Dollars of funding per "person year life lost" (Avg life expectency - avg age of diagnosis)
childhood $25
prostate $896
breast $100

This means that prostate cancer with a 5 year survival rate of 99% recieves $896 for every year of "lost life" to find a cure. For men that are 68 years old, on average, when diagnosed AND have a 99% chance of survival for at least 5 years.

For the kids - $25 per year of life lost and an average age of 7 when diagnosed.

Please, if I am 68, am diagnosed with prostate cancer, have a 99% chance of survivial, take my $896 per person year life lost and give it to the kids......

It is a public health debate that needs to happen in this country. But it is not even KNOWN about much less debated. The ACS and NCI are not coming to us asking what should we fund. If they did, I can tell you what my answer would be......more research on childhood cancer, it is NOT a smaller version of adult cancer, it needs its own research and presents our best opportunity to add years of life per individual case........I dare say that most parents/grandparents would agree with me.

Posted by AJs Dad September 28, 08 08:07 AM
453.

We need to fight for our kids because we are their eyes and ears at this age. They deserve the best and cancer awareness needs to become a top priority at getting awareness out. People only see healthy kids in public because unfortunately cancer children have to keep sheltered. Get the word out!!!

Posted by Traci September 28, 08 08:40 AM
454.

Oh thank you thank you!!!!!!!!!! Thank for taking the time out for people like us -cancer parents- posting an article about these children we love so much. Some we can't even touch anymore, and there is NO excuse...there is plenty of money in the USA to help them. I bet if they were Katrina victims they could have gotten enough gov. money to cure ONE cancer at least. Our funding is a JOKE - laugh all you want I know tons of parents who grieve everyday and still are waiting to wake up from this nightmare, but this is our reality and guess what - RACE, STATURE, POLITICAL STANDING nor MONEY gets you a - get out of jail free card. So, start today so maybe you can help someone you don't even know is a victim yet! Thank you Bob, Mimi, everyone who loves our children so much they spend countless hours getting the word out! www.caringbridge.org/visit/jackjones

Posted by Natalie WIlson September 28, 08 08:42 AM
455.

Thank you! Thank you!!! For taking the time to write about this when it seems nobody else will! My son brandon had Stage III Hepatoblastoma, a i in a million cancer with slashed funding for research for a cure. After 6 months a brutal chemotherapay and a liver transplant he is currently in remission, but there are other Hepatoblastoma families that are not so furtunate along with thousands of other children fighting cancers. Thank you for helping us to spread the word.

Posted by melissa Heather September 28, 08 08:56 AM
456.

While it's hard for most to look at pictures of sick children, it is SO real for SO many people. Thank you for bringing awareness to this important effort and this important month.

Posted by Lyndsey September 28, 08 08:56 AM
457.

It is TIME to find a cure for this dreadful disease. Too many young children are suffering and the spotlight needs to be on childhood cancers. They are helpless. We are not. Let's do it NOW

Posted by Jill O'Connor September 28, 08 08:58 AM
458.

Thank you for your article, my son is 5 years old and has ALL, our lives have been changed like you can not believe, we have 3 other kids and everyone needs to understand that not only does this effect our youngest but it effects everyone in our family!! Thank you so much for bringing awareness to childhood cancers.

Posted by Wyatts Mom September 28, 08 09:01 AM
459.

Well Said AJ's Dad (Comment #452). I don't think anyone is saying that Childhood Cancer is more important than any other type of cancer. September is Childhood Cancer Awareness Month, in October people will see the pink awareness ribbon everywhere. Everybody knows what a pink awareness ribbon stands for, I think we can agree on that. But....how many people know what a gold awareness ribbons stands for? Exactly my point, not many, unless you have been affected by CC. I have not been affected by breast cancer but I know pink is it's color for awareness. Awareness=Money....Money=CURE.

Posted by Rich McGowan September 28, 08 09:04 AM
460.

PICTURES DO SPEAK A THOUSAND WORDS! DO YOU GET THE PICTURE? IT IS TIME FOR RESEARCHERS TO STEP-UP AND HELP FIND A CURE! MY 12 YEAR OLD SON IS IN REMISSION FROM BURKITT'S LYMPHOMA, AND NOT A DAY GOES BY WITHOUT FEAR....FEAR OF THIS DISEASE COMING BACK. EVERY DAY I READ STORIES OF CHILDREN STRICKEN WITH CANCER, AND EVERY DAY A CHILD DIES. CHILDHOOD CANCER IS UNDER-FUNDED AND UNDER-PUBLICIZED. I AM WAITING FOR THE DAY FOR OUR CHILDREN TO COME FIRST!

Posted by SUSAN RANDT September 28, 08 09:05 AM
461.

Thank you for bringing awareness to childhood cancer. There is nothing worse than watching your child battle cancer.

Posted by Bronwyn Dunn September 28, 08 09:07 AM
462.

I appreciate the Boston Globe for presenting Childhood Cancer Awareness...It is hard to see family members and their friends suffer from cancer, and what they endure to be treated with chemotherapy, radiation, transplants, trips to and from the home for long stays in the hospital....the young ones trying to adjust to daily life living with Cancer.. Once the diagnosis is made; the whole world as they know it dramatically changes forever...the treatments, the fears, doubts, hopes, prayers lifted up to God for a "good" day, for healing...through my grandniece Emily Barber's rare Neuroblastoma (one in 1,000 children diagnosed each year in the U.S. alone); I have become aware of many other cancers in children...and I have been in the medical field for 20 yrs or more. God is the true healer, but facts must be learned, cures must be discovered and treatments have come a long way...there needs to be more Awareness...I live in the DFW area of Texas and we only know what we read or see on television... Every State and City needs more awareness.. We need more Children's Cancer Sites on the web for buying gifts and needed items for these children.... When my grandniece was diagnosed with cancer, a friend at Sunday School told me about Caringbridge.org...What an amazing weblink for families to come together and share there experiences and gain hope for the future through the connection of friends, and friends of friends, and family members to become aware of the high number of children being treated...Thank you, Sinjin, for posting this link on Noah's site.

Posted by Jane Mashburn September 28, 08 09:12 AM
463.

I am one of those many people who had no idea how many children were affected by cancer until my own daughter was diagnosed with leukemia, at age 7 in March '06. She went through 26 months of chemo, x-rays, bone scan, MRIs, physical therapy, and surgery to place and remove her port. She lost and regained all of her hair. There were times when she was too weak or had too much bone pain to even walk. Thank God she is now 4 months off-treatment and doing well; I pray she will be a long-term survivor. Advances in research will ensure that all children who develop cancer will be long term survivors; and one day, there will be a cure and no one will have to suffer through treatments or lose their life to these diseases.

Thank you, Boston Globe for running this story; and to AJ's dad for the tireless work he is doing to spread awareness of childhood cancer.

Suzanne Meacham
www.caringbridge.org/visit/abbymeacham

Posted by Suzanne Meacham September 28, 08 09:15 AM
464.

As a parent who recently lost a child to cancer - thank you from our entire family for bringing some awareness to this horrible disease
Planning your childs funeral is something no parent or sibling should ever have to do. Visiting your childs grave is the most gut-wrenching, heart breaking experience that I have ever encountered and I do it every week. Every day parents are being taken into a conference room and being told "your child has cancer" and their lives will be forever changed. Thank you so much for bringing a voice to a "parents worst nightmare".

Posted by Debbie Smith - Mackenzie's mom 5/1/01 - 2/12/08 September 28, 08 09:21 AM
465.

Kudos to your article and newspaper for bringing attention to this heartwrenching subject. My 7-year-old-daughter has been battling cancer for 8 months. The cancer world is very arduous, lonely, costly, and much more. Everyone can help in some way.

Thank you!

Posted by Debbie Witter September 28, 08 09:26 AM
466.

I was directed to this photo-essay artlicle by AJs dad through the PAC2 website. Thank you for helping to bring awareness to childhood cancer. Hopefully by next September, we will see as much about childhood cancer as we do about breast cancer in October. Everytime I see a product - in pink - I want to scream, "why aren't the kids with cancer as important as the adults with it????" See, I'm allowed to scream and cry, because my own precious baby passed away in April of this year. His name was Walker and he was four years old. He was diagnosed with Ewing's Sarcoma/PNET in November of 2007. At the time of his death he was a cancer survivor - there was no evidence of disease according to the autopsy. The treatment for his cancer is what took him from us. I hope that more money will mean more research, which will lead to safer, more effective treatments for these kids.

Posted by Laura Gorney September 28, 08 09:36 AM
467.

A heart felt thanks from me and my family. As the parent of a 5 yr old boy who is being treated for medulloblastome at st Judes Childrens Research Hospital, this topic is in much need of public awarness. It is under funded, and it costs the lifes of way too many children each year. Unfortunately, most people are unaware of this problem, untill it effects them. if we can raise awarness and help raise funding for research, maybe we can get the cure rate of it up as high as say breat cancer..
Thanks Again

Posted by Jim Perry September 28, 08 09:36 AM
468.

Thank you for helping to raise awareness about pediatric cancers. My 8-year old daughter Nina died of rhabdomyosarcoma in Nov. 2007 after a 2-year battle. Research on many types of childhood cancer is totally underfunded but so desperately needed. These children and their families deserve an investment into research geared specifically towards childhood cancer as it is NOT just little people with an adult disease. We must find a cure!

www.caringbridge.org/visit/ninahermes

Posted by Stephanie T. (Angel Nina's Mom) September 28, 08 09:38 AM
469.

I posted a comment earlier, but forgot to add the link to our CaringBridge page. www.caringbridge.org/visit/walkergorney. You can read about our journey there.

Posted by Laura Gorney - mom to Walker, 2/2004 - 4/2008 September 28, 08 09:40 AM
470.

First, thanks very much to the folks at the Boston Globe for helping to raise awareness about pediatric cancer. I hope that they continue and that folks from other media outlets also demonstrate this kind of leadership. We would very much welcome other effective articles communicating the importance of childhood cancer. Pediatric cancer is a horrible group of diseases which differ from adult cancers in many significant ways; children affected by these diseases deserve much more help and attention from the leaders of their country, even during elections, wars, and financial crises.

I am a pre-med student at Yale and have been engaged in advocacy work on Capitol Hill for CureSearch National Childhood Cancer/Children's Oncology Group for over 5 years. I'm also a survivor of acute lymphoblastic leukemia (ALL). And I understand that childhood cancer is the number one disease-killer of children in the United States, and that the treatment, if it exists for certain kinds of childhood cancers, is painful, long, and horrendously draining (physically, mentally, and financially).

I also understand that our country is in a very, very bad financial state right now---the "Wall Street-Main Street" issues, the War in Iraq, the potential (and need) for health care reform, and of course the federal debt that is approaching at least $10 trillion. Certainly, these problems are very grave and potentially devastating.

Yet I cannot help but wonder where our priorities are as a nation when we repeatedly refuse to fund live-saving disease research for many children who have no hope of living without significant scientific and medicinal improvements. This past summer, the Caroline Pryce Walker Conquer Childhood Cancer Act 2008 passed unanimously through both houses of Congress and was signed by President Bush. This legislation authorizes the Congress to allocate $150 million over five years----specifically for childhood cancer research. Without question, we are grateful for the passage of this very needed legislation.

However, to be most effective in advancing science and medicine, many more dollars are needed. Scientific research offers tremendous potential for the development of cures for all kinds of disease, including childhood cancer. Our children are---OR SHOULD BE--a national priority. When compared to the funding for other national priorities, e.g., the $700-800 BILLION plan to bail out Wall Street, the many BILLIONS of federal (tax payer) dollars that are allocated to fight other kinds of diseases, and the waterfall of money that continues to be streamlined to the Middle Eeast, it is difficult to see how we can take people seriously when they tell us that children are among the top priorities in the national agenda.

Here, I am not taking a position on any of the aforementioned issues and financial problems. I agree that they are all important and that they deserve everyone's attention. My point is simply that the number one disease-killer of children also deserves this kind of attention and increased financial support. This is not simply a numbers game, especially if we consider the numerous short-and long-term HARMS which accompany a cancer diagnosis.

This past year alone, I know of 2 Yale students who have died of recurrent childhood cancer. So I hope that others, perhaps even the leaders of our nation, will reflect on these comments and think about how they might be able to help with easing the suffering of some very sick young people.

Posted by Carolyn E. Brokowski September 28, 08 09:40 AM
471.

I was so thrilled that one media outlet chose to feature childhood cancer during childhood cancer awareness month. We have to fight to get our children noticed. These brave, beautiful children go through so much -- typically much more chemotherapy than adults -- and they seem to go unnoticed. What most people don't realize is that approximately 73% of all childhood cancer survivors will deal with at least one "late effect" from their treatment ... ranging from infertility and hearing loss all the way to secondary cancers and life-threatening heart conditions. My son is a surivivor, but his long-term effects really speak to the need for better, more effective, less toxic treatments for these children.

Posted by Jennifer Weir September 28, 08 09:44 AM
472.

Childhood Cancer can hit any ones child; it's so heart breaking to know not much is being done to find cures and research for our children. Not one more child or family should have to suffer through this horrible disease! Raise your voices make a difference; push for a cure! My love and prayers to all the families that are going through this disease...

Posted by April Rodriguez September 28, 08 09:46 AM
473.

No child should have to be strticken by this horrific disease before they have had a chance to experience life. We are losing young brilliant minds and brave souls who should be our future generations. In their courage and the lessons they teach us as they endure this terrible disease, their suffering MUST become a priority in being told by the media. Substantial funding MUST be given to Pediatric Cancer Research. When will the Media give the attention to this wicked killer of our precious children, that the headlines they give to a murderer..

Posted by Rene Smith September 28, 08 09:49 AM
474.

I think there should be more awareness for childhood cancer. Thank you for doing this and for helping to raise awareness.

Posted by Laurene Bucci Trio September 28, 08 09:53 AM
475.

Thank you for supporting for Childhood Cancer Awareness! You must continue to get the word out so that fair funding can be put in place! We need to wipe out childhood cancer... just watch a child go through this & you will realize something needs to be done sooner rather than later!

Posted by Gina Rogers September 28, 08 09:54 AM
476.

I also feel for breast cancer fighters, but I am tired of seeing Pink on everything. Kids cancers never get talked about, nobody wants to think about children fighting this awful disease! Our kids are our future! MORE FUNDING NOW!

Posted by Stella Turnkey September 28, 08 09:55 AM
477.

Thank you for bringing awareness to Childhood Cancer Awareness Month. The number of children that are stricken with this disease each year is overwhelming. Wouldn’t it be amazing if Childhood Cancer could have received the same amount of publicity and funding as the Wall Street bailout? Thank you!

Posted by Sue B September 28, 08 09:55 AM
478.

Thank you for running this story. My nephews little boy(John Eric our angel) passed away from Neuroblastoma. Unless you know someone with childhood cancer you do not hear enough about it to let the people know how this needs all the help for a cure. Please put more of this out there to help people understand. Children with the desease and ones that might get it in the future need a CURE.Children so desperately need funding for cancer. Perhaps this will open hearts up to better funding for childhood cancer research.

Posted by Aunt Anna & Uncle Bob September 28, 08 09:59 AM
479.

Thank you for helping to raise awareness about pediatric cancers. My 6-year old daughter Mackenzie died of Wilms Tumor February 12th 2008. Research for childhood cancer is put on the back burner compared to Breast Cancer - What about the future women of the world? People open up your eyes - childhood cancer is no longer rare. It is running rampage throughout our children. Take your child to school on Monday and look in 2 classrooms - that is how many kids that are diagnosed everyday. . Please make a donation to St. Jude's or Curesearch.org and help stop it. The child you save may be your own. (Mackenzie 5-1-01 to 2-12-08)

Posted by Jeremy Smith September 28, 08 10:01 AM
480.

This, too, is the first time I have seen something in the media about Childhood Cancer Awareness. Our five year old son, Zack, was diagnosed in 12/38/05 with Stage III diffuse anaplastic Wilms tumor of the right kidney. He then relapsed 5/1/07 and again 6/13/08 to his liver. After multiple complications (hearing loss and a fragile bowel requiring a colostomy then an ileostomy as a result of treatments for his cancer) over those two year and a half years, he passed away July 31, 2008.
Thank you, Boston Globe, for helping us give our children a bigger voice.

Posted by Sara September 28, 08 10:08 AM
481.

Thanks for helping raise awareness....

Posted by MPM September 28, 08 10:13 AM
482.

Thank you for raising awareness about the need for more funding for childhood cancer. These children need a voice!

Posted by TC September 28, 08 10:15 AM
483.

Finally someone mentions this...mind you it be the tail end of the month! Kudos to Boston for standing up to this and raising awareness of this tragedy. One step forward in the fight to save the worlds future.

Posted by Bre Bunnell http://tx.campqualityusa.org September 28, 08 10:22 AM
484.

My bestfriend is battling this beast, please help me help him. Lets find a cure.

Posted by Emerson September 28, 08 10:23 AM
485.

Thank you Alan for helping to raise awareness of childhood cancer and for these amazing pictures.

Posted by Angela Warne September 28, 08 10:25 AM
486.

Our daughter is 11 years old. Pearce Quesenberry has brain cancer. She was featured on STAND UP TO CANCER...My baby girl as well as our whole family has had to endure way to much suffering and pain.Awareness is the key to sucess the more people are forced to see what kind of life our children live.The more willing they are to open their hearts and money for research. Theese children are our future. 46 families today and everyday will be told the news..Their child has cancer. Will your child be next ???? I hope not. This life is nothing I wish on anyone mostly children. My childs careffree childhood has been stolen. Please help make sure know more children loose there beautiful chilhood to this monster.
www.pearceqfoundation.org
www.carepages.com pagename Pearcerock

Posted by Debbie Quesenberry September 28, 08 10:31 AM
487.

Thanks for doing this article! This is the first article I've seen about pediatric cancer awareness month. I have a daughter with a brain tumor. I am appalled and saddened by the lack of new research and it all comes down to funding. In her elementary school last week they were selling pink hair extensions to raise money for breast cancer. I think it would be more appropriate to be selling gold hair extensions to raise money for childhood cancer due to the fact that there are students attending the school with cancer.

Karen, mom to Katie, 7 year old recurrent JPA (brain tumor)

Posted by Karen September 28, 08 10:33 AM
488.

Wow what an impact this article has. It needs to be brought out to more websites, newspapers, the TV news. we never know when the next kid will be yours or mine. Many childhood illnesses are underfunded. We need to help save our kids. Find out why cancer is so prevalent. Clean up the environment. My prayers are with the many kids who are in the midst of this terrible illness. Kids shouldn't have to know medical terms as toddlers. Please please support Childhood CAncer awareness
Maureen

Posted by Maureen Gare September 28, 08 10:35 AM
489.

Beautiful pictures highlighting an often overlooked group of cancer warriors! Although it may be difficult to face, the reality is these kids are suffering and living with things that many of us grown-ups could hardly endure. Let's see what can be done to make this reality history!!

Posted by Jennifer September 28, 08 10:39 AM
490.

My good friends baby was diagnosed shorlty after being born with stage 5 brain cancer his name is George Giakos. He was given a couple months to live we were devastated . I'm am proud to say we just celebrated his first birthday. However baby George will never be the same after many rounds of chemo and brain surgery. Since all of this I have come to fall in love with so many children that I can't possibly help alone. I just want to thank you Alan for your article because now you have become part of their journey. Thank you on their behalf.

Posted by Harmony Lazo September 28, 08 10:44 AM
491.

Thank you for bring awareness to Pediatric cancer.

Posted by Renee September 28, 08 10:44 AM
492.

Thank you so much for this beautiful, heartwrenching, but very real story and pictures. No one knows like the parents, siblings and family of these little warriors. The nightmare that these children live through daily, the prayers for "good lab results" ('Please just let him need a blood transfusion...or have infection...please please no cancer cells'). After over 40 hospitalizations for chemo and/or fever, over 23 spinal taps with chemo, after at least 5 bone marrow aspirations; all at the age of 2 and 3;, we lost our own warrior April 6, 2008.

Posted by Amy Mitchell September 28, 08 10:47 AM
493.

Awesome pictures. I have a son with a brain tumor. The pictures reminded me of all the other kids going through this. This needs much more attention.

Karen, mom to Russell, 14 year old recurrent PNET (brain tumor), 10 year leukemia survivor

Posted by Karen Witek September 28, 08 10:56 AM
494.

Only a parent that has gone through this can identify with this but here are the numbers. My son has had over 2000 doses of chemotheraphy meds related to his diagonioses of Leukemina. He has had about 20 spinal taps! He has been poked with needles over 100 times! He has been hospitalised, had an emergancy filght, missed his 4th garde school year, and lost his hair 3 times. THIS HAS TO STOP!!!!!! If it were your child you would want nothing else.

Posted by Pat Stone LaPine Oregon September 28, 08 10:57 AM
495.

Thank you for this article, I pray that it will bring more attention and research funding to childhood cancers. Hopefully they will find a prevention and a cure, so that it can be wiped off the face of the earth soon. I following many CaringBrige and CarePages sites of families trying to cope with this horrible disease in their children. God bless each of you!

Posted by Betty September 28, 08 11:04 AM
496.

This is a plea - from the heartbroken mom of a child who died because of Childhood Cancer (ALL). I am begging every one of you who have read this article and seen the pictures to PLEASE don't stop here. Take another few minutes to visit these websites - to sign the petition - and to show that you care:
http://curechildhoodcancer.ning.com
http://www.thepetitionsite.com/1/CureChildhoodCancer

Debbie - freewebs.com/courtneynicole


Posted by Anonymous September 28, 08 11:13 AM
497.

THANK YOU for bringing awareness to childhood cancer. I always thought cancer in children was a very rare thing, until I was introduced to Caringbridge and Care Pages. The trials and tribulations these young one go through each and every day is unbelievable. They are my "HEROES"

My prayer is that EVERYONE will donate whatever they can to childhood cancer research so a cure can be found and childhood cancer be stopped in its tracks.

Posted by Tina September 28, 08 11:14 AM
498.

Thank you for doing this beautiful story - The photos need no words and beautifully bring to light an issue that few want to discuss but that all want to see eradicated. We are getting so close and need every ounce of awareness and of support to see our clinical trials funded. Through clinical trials, we have gone from Childhood Cancer being a very grave situation to having a 78% overall cure rate. That has happened just in the last 40 years! Awesome! But that still means that we lose 1 in 5 of our kiddos that are diagnosed every year. Please continue to bring attention to our fight! I believe that we will see this disease cured in my lifetime, but to do that we need the necessary funding for clinical trials research and the awareness to make a big push and get it done!

Posted by Tiffany, Pediatric Oncology Nurse, friend and "honorary mom" to many little cancer warriors September 28, 08 11:14 AM
499.

Thank you for helping to raise awareness of Childhood Cancer. There needs to be more articles written like this one.

Posted by Kristy September 28, 08 11:15 AM
500.

Thank you Alan. 17 years ago my 10 year old cousin became an angel 16 months after being diagnosed with a brain stem tumor. 10 years ago my daughter's classmate became an angel due to the same type of tumor. A year ago I became aware of the carepage support system and through this have realized that children with the same daignosis as Jenny and Joe have no better chance at survival than they did. I just can't believe that we have not made any more advances and I truely believe that the cure is out there. We need to give as much attention and thus funding to childhood cancer as we do to other cancers. It's not even October yet and I am seeing pink everywhere - and while that's great I Want to see that much gold in September!

Posted by Mary September 28, 08 11:16 AM
501.

These photos are very moving and remind me of my sweet great-niece Nina Hermes, who passed away from rhabdomyosarcoma last November. Finding cures for childhood cancers should be a priority. So many young lives have been cut way too short from these terrible diseases.....not to mention all the pain and suffering they cause.

Posted by Kim Thompson September 28, 08 11:16 AM
502.

Somehow Childhood cancer is forgotten, thank you so much for bringing attention to it. Next month is breast cancer awareness month, I pray someday children get the same attention. It just isn't right or fair!

Posted by Postcard Cindy September 28, 08 11:16 AM
503.

As a mother to a 2yr old fighting Neuroblastoma it is amazing to hear of the many people in this world who do not know that KIDS GET CANCER TOO! Although, it is sad that these poor, innocent kids get sick and have to fight everyday of there lives to stay alive- they have some amazing strength and seem to handle this better then many adults could even think about handleing it! These kids need us though-they don't have a voice in this fight, we are there voice! No child should have to go through this!

Posted by Brandi G. September 28, 08 11:16 AM
504.

After battling breast cancer this year I know the trials of treatment and the life changing effects it has. I cannot imagine a child going thru it. My prayer is that you can be as aggressive in your search for dollars for research as Susan Komens sister was in her promise to her sister. Instead of a race for the cure maybe a race for the child walk worldwide, Get to those big corporate sponsors that are wondering what to do with their money.

Posted by Becky September 28, 08 11:18 AM
505.

My daughter, Mallory was diagnosed Sept 13,2006 with ALL Acute Lymphoblastic Leukemia, she was 11 yrs old, she underwent 9 months intensive chemo therapy until June 2007 and has been in maintenance therapy since then. Now she takes oral chemo (6mp) nightly as well as oral methotrexate weekly, steroids monthly, spinal taps bi- monthy and a quick push of chemo through her port monthly as well. Mallory is in Remission. She will finish treatment Jan 15 2009, she will be 14. It has been a long road and we are almost to the end! But not to the end of spreading awareness. This year Sept 13 was the first ever Natl Childhood Cancer Awareness Day. Mallory along with many of our friends from Curesearch was apart of initializing that day back in March at a meeting w/Senator Allards(CO) chief of staff. Fight for our kids and raise awareness, Thanks to AJ's dad and little Julians mom, we are able to find out different ways to spread the word and make a difference. I thank God everyday for Mallory's miracle and also shed many tears for how many friends we have lost senslessly, we need funding for RESEARCH...we need to find a CURE for our kids!!!! Please visit Mallory to read more about her journey at carepages.com mallorysgraceland06

Mary Evans


Posted by Mary Evans Centennial, Co September 28, 08 11:19 AM
506.

Thank you for a news media finally giving attention to childhood cancer during childhood cancer awareness month. My 14 year old son died from Rhabdomyosarcoma after a 3 1/2 year battle on August 1, 2008. We must get funding for a cure so kids do not have to go through this suffering.

Posted by Helen September 28, 08 11:20 AM
507.

Thank you for writing and posting this very important article. It's hard for a lot of people to see children and adults suffering from the effects of cancer. However hard it is, it needs to be seen and learned about by the world. This illness is robbing people of a lifetime of experiences with their loved ones. Please share this with other stations, media and other methods of communicating the need for awareness of this disease. A friend of Mackenzie C. Smith who left us this year.

Posted by Denise Cherry September 28, 08 11:21 AM
508.

Thank you so much for helping to raise awareness for such a worthy cause. These children and their families are true heroes!! We need more articles like this, more awareness and more funding for pediatric cancer! Thank you, thank you!

Posted by Lisa Maddocks September 28, 08 11:22 AM
509.

Thank you for raising awareness. You just don't know if one day it could be your own child.

Posted by lynda September 28, 08 11:24 AM
510.

Thank you for this article and the beautiful photos. I'm a mother of a nearly 4 year old miracle. My daughter was diagnosed with a brain tumor before the age of 2 & has been fighting for her life since then. She wasn't and still isn't expected to live a long life. The doctor's say this cancer will take her life. We have to believe otherwise. We have to believe in a cure. But that can only happen when there is more awareness & funding for childhood cancer.
I tried to get local & national papers to run something, even mention childhood cancer awareness month to no avail. Thank you for making people aware of the devastation this disease is inflicting on our children.
Liz Devins
www.caringbridge.org/visit/clairedevins

Posted by Liz Devins September 28, 08 11:34 AM
511.

Thank you for being a voice for our children. Cancer is horrid, no matter how old you are. However, the lack of funding for pediatric cancer research is beyond despicable. We must find a cure for cancer, ALL cancer. The children should be in this equation. If we spread the awareness that there is a huge need for pediatric cancer research, I believe a cure will be found. The cure will be for all cancer victims.

Helen Jonsen, Forbes.com senior editor and mother of a child who recently underwent treatment for osteosarcoma, stated in a September 12th article, "Cancer is the No. 1 disease killer of children in the U.S. ...We tend to talk about it in hushed tones instead of screaming for help. But scream we should." The article goes on to say, "The funding for pediatric cancer clinical trials has gone down every year since 2003, and is currently $26.4 million. By comparison, NCI funding for AIDS research was $254 million in 2006; funding for breast cancer topped $584 million the same year."

How many children have to die before it is considered research worthy, news worthy, just plain worthy? Will your child, grandchild, niece, or nephew be next? Please HELP today!

Eat at Chili's September 29, 100% of all proceeds go to St. Jude's for research.

PROJECT BRAIN CHILD - Voting ends on Monday, September 29th....IF we stand together, we stand to win this grant! Please encourage your constituents to VOTE as follows:

1. Go to http://www.membersproject.com/project/view/NN934A
2. Scroll down to "Vote for this Project" (located under the video/photo window)
3. Click on "Vote for this Project"
4. Click on "Log In"
5. Log in using either your American Express Card number* or your on-line account
information
6. After logging in, you should have returned to the Project Brain Child description page -
http://www.membersproject.com/project/view/NN934A
7. Scroll down AGAIN and click on "Vote for this Project"
8. You're done!

EVERY VOTE COUNTS!!!

www.caringbridge.org/visit/drewb

Posted by Gina Goodman September 28, 08 11:38 AM
512.

I also feel for breast cancer fighters, but I am tired of seeing Pink on everything. Kids cancers never get talked about, nobody wants to think about children fighting this awful disease! Our kids are our future! MORE FUNDING NOW!

Posted by Stella Turnkey September 28, 08 11:39 AM
513.

Thank you so much for taking the time and interest to put this piece together. It touches the very depths of my heart as I lost my 15 month old daughter to cancer last December. She was only 15 months old and had battled for 12 of those months. Cancer, chemotherapy, the OR, scan rooms, surgeries, etc. were the only thing she knew. It is devastating for these children who should truly have just one thing on their minds - being a child! There was not enough research available to provide my daughter with a life saving treatment. Thank you for helping us bring attantion to this!

Posted by Julie Weber September 28, 08 11:39 AM
514.

Thank you for acknowleding the fact that September is national Childhood Cancer Awareness Month! Far too many people don't realize just how many children suffer from this horrible disease. I know I wasn't aware until my 9 year old daughter was diagnosed with a rare brain tumor, although her tumor was not cancer we have since met many kids and their families through carepages. As we follow along their journeys we realize that pediatric cancer is in great need of funding to help find a cure! Please don't forget about our children!!

Posted by Lisa Hemberger September 28, 08 11:45 AM
515.

There definitely needs to be more funds available for cancer/tumor research. Too many kids are being affected by this disease. My daughter does not have cancer, but she has been fighting a very rare, extremely aggressive, destructive, and re-occurring tumor. I may not understand everything these families are going through, but I have a glimpse. I wouldn't wish it on anyone in the world. Especially a child.

Posted by Deanna Buchanan September 28, 08 11:53 AM
516.

Thank you so much for your article in raising awareness of Childhood Cancer .. It's devistating as a cancer mom not only seeing my own son Zebadiah dx feb 07 with high risk IV Neuroblastoma fight for his life , but also so so many other children and families that are effected by cancer .. I never knew until we were effected by this how many of our children and their families are fighting the horrible disease , this monster .... These children are our future , they are our hero's !!!!

Posted by Yvette Dodge September 28, 08 11:58 AM
517.

Thank you for writing an article on Childhood Cancer. There is still so much more to be done to spread the word and help save the kids.

Posted by Lori Ramey September 28, 08 12:07 PM
518.

Thank you so much for this poignant reminder of what cancer does to these beautiful, innocent chldren. The majority of the public is unaware that September is Childhood Cancer Awareness month. The public is exposed to "PINK" but not "GOLD". This has to change. These children are true "warriors" in a battle they shouldn't have to fight. When will ALL of the media sources stand up and fight for our kids? Thank you for a job well done.

Posted by Gloria Venezia September 28, 08 12:11 PM
519.

Kids cancer affects so many families and what these little ones go through many of us as adults couldn't. I hope and pray more will be done to raise awareness and money for childhood cancer. You rarely hear that September is Childhood Cancer Month.

Posted by Janet Zingen September 28, 08 12:11 PM
520.

Thank you for doing the article on Childhood Cancer Awareness. All children are a gift from God and do not deserve to suffer from this horrible disease. They are stronger and braver than most adults. God Bless all Children that have been affected by this disease.

Posted by S Wert September 28, 08 12:13 PM
521.

Thank you for posting this article and raising awareness for this important cause. My 2 year old son is a cancer survivor--one of the "lucky" ones. We are fortunate that we were in Boston for his diagnosis and treatment. We had access to both MGH (treatment) and DanaFarber (second opinion, plus partnered w/MGH on our son's treatment plan and tumor board reviews) Pediatric Cancer centers. We also had access to proton radiation therapy at MGH (1 of 2 centers in North America that accepts pediatric cases). All children w/cancer deserve more and better treatment options!

Posted by Julie King September 28, 08 12:16 PM
522.

Alan Taylor you have done a great job in helping to raise awareness during Childhood Cancer Awareness Month. You offered some beautiful(and heart wrenching) pictures to go along with some ugly statistics. 46 children a day are diagnosed with cancer. The National Cancer Institute budgets only 3% to pediatric cancer research. Go to People Against Childhood Cancer to learn so much more. You have done a great service to highlight the need for more funding and research.

Posted by Jodi Atar September 28, 08 12:20 PM
523.

Hello, my name is Vicki Cotton. My youngest daughter was diagnosed with diffuesed intrinsic pontene glioma on 08-26-08. Her name is CAITLYN. She has gone from running and playing and jumping on a trampoline, to being just short of bedridden in one month. Our family is suffering, and she is going to die. Why is it that there are so little funds designated to support childhood cancer?? Are our children not worthy of at least some media attention? Why aren't the facts and numbers put out to the public where everyone knows about this horrible disease?

Posted by Vicki Cotton September 28, 08 12:21 PM
524.

des photos d'une force incroyable, nul besoin d'entendre, de lire, regarder suffit...pour ressentir.
merveilleux reportage, même si on souhaiterait ne jamais pouvoir croiser cela

Posted by Aurore September 28, 08 12:21 PM
525.

There is so much awareness of many adult cancers, and so little done for our children. Thank you for taking this important step in raising awareness of pediatric cancers. Most people are not aware of the battle these children fight, day after day, month after month, and for some, year after year. We are fortunate in that our daughter, Emily, fought the good fight for 2 1/2 years and so far is winning (4 years off chemo for Leukemia). But even the children who survive have long-term effects from the poison spread throughout their body to keep them alive. Much more research needs to be done to find a cure for all pediatric cancers, and ultimately to lessen the negative effects of the treatments these kids get to save their lives. savetheir

Posted by Michelle Valicevic September 28, 08 12:22 PM
526.

THANK YOU so much for doing this article. It seems that childhood cancer awareness is often forgotten, and not recognized like many other cancers.
My little sister lost her life almost 2 years ago. She battled ALL twice, and we spent a lot of time in the hospital with her. Children with cancer are the most amazing, strong, heroic people on the planet. They all deserve the recognition you just gave them.
I could never thank you enough.. This was amazing!
www.freewebs.com/courtneynicole

Posted by Ashley Keen, sister of Courtney Nicole September 28, 08 12:22 PM
527.

Thank you for publishing this and finally giving attention to childhood cancer. Too many children are suffering and fighting this monster. I am glad that you took the time to raise awareness for this cause.

Posted by Lissete September 28, 08 12:29 PM
528.

While watching a St Jude program on TV, weeping uncontrollably, I looked at my husband & said, "My god honey, that's us!" You see our youngest child was diagnosed with Acute Lymphocytic Leukemia on 2/2/08. After the diagnosis, the nurse picked me up off the bathroom floor & gave me the strength to move forward, one step at a time toward a cure. We need more publicity, we need more funding for medication that doesn't make our babies deathly ill, we need an end to childhood cancer.
I would like to share a poem from an unknown cancer mom that exemplifies how we feel.

A Pair of Shoes
Author Unknown

I am wearing a pair of shoes.
They are ugly shoes.
Uncomfortable shoes.
I hate my shoes.
Each day I wear them, and each day I wish I had another pair.
Some days my shoes hurt so bad that I do not think I can take another step.
Yet, I continue to wear them.
I get funny looks wearing these shoes.
I can tell in others eyes that they are glad they are my shoes and not theirs.
They never talk about my shoes.
To learn how awful my shoes are might make them uncomfortable.
To truly understand these shoes you must walk in them.
But, once you put them on, you can never take them off.
I now realize that I am not the only one who wears these shoes.
There are many pairs in this world.
Some women ache daily as they try and walk in them.
Some have learned how to walk in them so they don’t hurt quite as much.
Some have worn the shoes so long that days will go by before they think about how much they hurt.
No woman deserves to wear these shoes.
Yet, because of these shoes I am a stronger woman.
These shoes have given me the strength to face anything.
They have made me who I am.
I will forever walk in the shoes of a woman who has a child with cancer. ~Author Unknown

My shoes hurt today....
Mary
www.caringbridge.org/visit/katherineprokop


Posted by Mary Prokop September 28, 08 12:30 PM
529.

There is no way to justify what all these children and their families have to go through. It is so important that people become aware of what is going on. There is so much hardship in the world, but closing your eyes to it will not change a thing. Thank you for opening my eyes to this.

Posted by Stephanie Schmuck September 28, 08 12:31 PM
530.

Thank you so much for this article and bringing awareness to Childhood Cancer, which there is such a lack of this month and every month. My daughter is fighting glioblastoma, a very aggressive brain tumor for which there is no cure. She has missed her freshman year of high school, which normally should be such an exciting time in a teenager's life. After 4 surgeries, radiation, gamma knife radiosurgery, she is on chemotherapy indefinitely. That is hard to keep going through when there is no end in sight. But she marches on with a smile on her face, finding all the positive things in her life and focusing on them. We have learned a lot from her.
More awareness = More funding = Cures. We need cures for these kids so they don't have to miss their childhoods and face endless chemotherapy, or worse, instead.
For more on Kelly's story, go to
http://thelaudes.blogspot.com/

Posted by Kathy Laude September 28, 08 12:36 PM
531.

Thank you, thank you, thank you! Now if only we can get more news outlets to show the realities of childhood cancer. My 5yr. old daughter is fighting a cancerous brain tumor, and we need all the help we can get.

Posted by Stacey Pruitt September 28, 08 12:39 PM
532.

Thank you for your article in raising awareness of Childhood Cancer.

Posted by Stefanie September 28, 08 12:47 PM
533.

Thank you so much for taking the time to put this article together! These kids, and all others deserves all the publicity(awareness) they can get.... which sadly has been very little. So thank you for taking a stand!

Posted by Morgan September 28, 08 12:48 PM
534.

Thank you for the great article on Childhood Cancer. There needs to be a bigger awarness of this horriable disease in children. Why is there so little funding for this disease of our future generation? The only way to stomp Childhood Cancer out is through awarness, through awarness funding, through funding research, through research a CURE!

Posted by Vicki September 28, 08 12:58 PM
535.

CANCER SUCKS! This phrase has changed my life. I have no kids with cancer. But as one other message mentions, after you follow one of these kids you end up falling in love. I have fallen in love with these kids. And they have changed my life forever. Trinity was the first. And then there was King JUJU. And then Cole. And now Carson. Also along the way has been Cody Lee, Ethan, Jessica, and more. Julian's picture is on my office wall. Cole's is there too. Trinity's also. These kids are warriors like no other Marine I have ever known. My son has not developed cancer but is at risk. I pray it never happens but if it does, I have been shown strength and courgae from these little ones that will help my family get through it. I will forever fight until I see cancer defeated. Thank you Mimi, you have changed my life and added much passion to my days. Julian, Trinity, Cole, I miss you guys! See you on the streets of Gold! Hooorrrrraaaahhhhhh and Semper Fi!


Posted by Richard Carter September 28, 08 01:00 PM
536.

Thank you, thank you for finally doing a story to spotlight childhood cancer! It is way underfunded and unnoticed by the general public, that is, unless you have a child with cancer. This week Oprah is doing a show with Christina Applegate and talking about her battle with breast cancer. That is great, but there are already THOUSANDS of pink products everywhere! We need to raise just as much money and awareness for childhood cancer! We need new drugs, and more money for research. These kids shouldn't have to sell lemonade themselves to raise money! They are our future-we must protect them. Thank you, thank you!!

Posted by Betsy Bushbaum September 28, 08 01:01 PM
537.

Thank you for raising awareness of Childhood Cancer. As I see each child and what they have to go through and how many of them do not survive. We have to find a cure to stop loosing our innocent children. They didn't ask for it and they certainly don't deserve this terrible illness. Thank you for letting more people know that we have to STAND UP and fight!!!

Posted by Jacqueline Guerrazzi September 28, 08 01:02 PM
538.

Thank you for showing these brave, beautiful faces fighting this terrible disease. We need funding for research so no parent ever has to see any of this happen again to their precious little ones. Thank you for stepping up and helping to bring awareness.

Posted by Julie Gibson September 28, 08 01:03 PM
539.

My son Zachy died in my arms at home from an Anaplastic Astrocytoma, a Grade III brain tumor. He fought with everything he had for almost a year and always worried about the other children battling Cancer. It amazes me that our children worry about all of the other children battling this disease while fighting for their lives, but it seems that Childhood Cancer Awareness is forgotten by others. It is not forgotten for the parents that watch their child suffer through endless treatments, for the parents that watch as their child dies in their arms, or for the children that fight every day for their lives. What if it was your child? Thank you for publishing this much needed article, and helping to bring awareness to Childhood Cancer....together we CAN make a
difference!

Posted by Kelly Johnson September 28, 08 01:14 PM
540.

Thank you for bringing childhood cancer to light. I am in awe of the number of comments listed above, and the heart-wrenching stories of family members who have been assaulted by this beast. Breast Cancer awareness, although extremely important, was not always publicized as it is now. Maybe, with the support and constant reminders of this horrible disease and it's affect on children, we can raise the awareness to a place where it is given the attention and funding to successfully develop a cure. I pledge my support and prayers for anyone who has been, or is, connected with a child or family that has felt the touch of cancer.

Posted by Liz September 28, 08 01:14 PM
541.

Childhood Cancer has already claimed too many lives. What will it take for this horrible disease in children to be recognized. I have raised three healthy children and cannot imagine the pain of losing even one of them. Voices need to be heard loud and clear....HELP OUR CHILDREN!! There has to be more research to stop their suffering. Something is very wrong when even Childhood Cancer Awareness Month is overlooked. Yes, the media is the key to everything and I cannot understand why they haven't given this more publicity. Come on people....let's get it going.

Posted by Sally Eanes September 28, 08 01:29 PM
542.

Cancer, whether it strikes children or adults is devastating. Let's fund a cure!

Posted by Megan September 28, 08 01:31 PM
543.

I experienced watching a 7 year old boy many years ago go through severe pain and suffering due to Leukemia. His mother was my friend and I often stayed in the hospital with him during his numerous treatments. If no one has never walked in these shoes with a child and cancer they could not know the heartache of suffering and pain the entire family and friends experience. Thank you Boston Globe for posting the comments for others to be aware of Cancer in Kids.

Posted by Terry September 28, 08 01:33 PM
544.

September 28, 2008

Have you seen a gold ribbon? Do you know what it stands for? Have you heard that September is Childhood Cancer Awareness Month?

I am the mother of a child living with brain cancer, a diffuse intrinsic pontine glioma. I finished breast cancer treatment on July 10th and flew from Michigan to West Virginia that day for the funeral of another child...a beautiful fourteen year old girl who lost her battle with the same rare brain cancer.

Everywhere I look I see pink ribbons, I feel gratefulness...and I feel anguish. According to an article published in the New York Times on September 22, 2008, as a result of advances in treatment “...98 percent of women with early-stage [breast] cancers survive at least five years….” Why is this true? Because we have banded together to raise awareness and funding for our mothers, our sisters, our aunts, and our daughters. Our children who are living with—and dying from—cancer desperately need that same attention...and funding.

Helen Jonsen, Forbes.com senior editor and mother of a child who recently underwent treatment for osteosarcoma, stated in a September 12th article, “Cancer is the No. 1 disease killer of children in the U.S. ...We tend to talk about it in hushed tones instead of screaming for help. But scream we should.” The article goes on to say, “The funding for pediatric cancer clinical trials has gone down every year since 2003, and is currently $26.4 million. By comparison, NCI funding for AIDS research was $254 million in 2006; funding for breast cancer topped $584 million the same year.”

September 13th was our nation's first Childhood Cancer Awareness Day. When I didn't see anything about it in the news—but I did hear about National Talk Like a Pirate Day a couple days later, I made some calls to our local news stations. For some reason I can't get the words of one of the story editors out of my mind. “So...what's your event?” Later…”Pitch me a story.”

Let's see...ummmm...would the deaths of 2,300 children each year be newsworthy? What about the diagnosis of 46 children each and every school day? What about the fact that only 2/3 of children diagnosed with cancer will survive? We could move on to funding. Is it newsworthy that for every dollar spent on a patient with prostate cancer, less than 20 cents is spent on a child with cancer...or that a patient with breast cancer has triple the research resource allocated to her when compared to a child?

When I mentioned that Child Cancer Awareness Day--and month--are a national thing, I was told, 'We put local news first.' Okay...I can handle that. A local event...I have a list of them.

The shock of a family receiving a breast cancer diagnosis on an October Monday afternoon, and taking their six-year-old to the Emergency Room on Thursday only to be told, “There is a large area of swelling in the brainstem; we suspect a mass.” We could always throw in the comic relief of the words, “My mom has a mass!” coming out of the mouth on that happy little face.

How about a mother leaving the Pediatric Intensive Care Unit late that night to go home because she knows she needs to get a good night's sleep before attending an Interdisciplinary Clinic early the next morning...where her own treatment plan will be recommended?

How about a local pastor, husband, and father being given the specifics of his son's grim diagnosis and prognosis in one hospital while waiting for news of the specifics of his wife's diagnosis and prognosis from the Cancer Center at another hospital?

How about an 11-year-old boy and an 8-year-old girl being abruptly pulled out of the routine world of reading, writing, arithmetic, language, history and science as taught to them by Mom at home...and being thrown into a class on brain anatomy and abnormalities (specifically their little brother's) taught appropriately and compassionately by an MSU med school professor...who also happens to be their brother's new oncologist?

How about a six-year-old who finds himself no longer able to play the piano, the violin, or the cello because he has lost the strength on the left side of his body?

How about a mother waking up in her child's hospital room one morning, showering, and walking downstairs for her lumpectomy...while her husband takes over the duties of hospital parent and waits anxiously in his son's room for news of his wife's surgery?

Looking for a human interest story? Try the same mother moving back into the hospital early on a Sunday morning four days later so that her husband, a pastor, can be in church...only to watch in disbelief as her fun-loving, active six-year-old--determined not to have an accident--becomes too weak to sit up to go to the bathroom on a bedside commode. What about the willingness of that little boy to allow the nurses to help him even with the most private of things...because he knows his mother is recovering from surgery and he is concerned for her well-being?

Not sensational enough? Let's fastforward to Saturday, November 24th, 2007...two days after Thanksgiving. A mother sits in a hospital room with her sleeping son. She ends a phone call because she hears an alarm she has never heard before, an alarm letting the nurses know that her son's oxygen level is dropping. Soon the room is full, and it is determined that the child is disoriented, then staring ahead...completely unresponsive. Somehow everyone moves with the child on that bed through the hallways to the Pediatric Intensive Care Unit where the intensivist begins the work of saving a precious life. Aside, the question parents never want to hear, though one that must be asked, “Given his prognosis—do you want us to resuscitate him, if necessary?” The father, who has just arrived, breaks down in the unbelievable stress of the moment. The mother realizes the urgency of the situation, pushes emotions aside, and asks, 'Do we know what is happening?' The answer is no. 'Then, yes, we want you to do everything you can for him.' She stands at the foot of the bed with one of her son's oncologists. Together, they watch the PICU team work...with purpose...like a machine. The mother steps outside the room only when the child is intubated. The drama continues, as the entire department revolves around that one room...that one little boy.... The eyes of those outside the room...every nurse, every resident, every doctor...are looking in the same direction. The parents sign permissions as they are handed to them, and the work goes on. Everything seems to be happening in slow motion. Finally, the intensivist approaches. The child is critical, but stable...on life support....

I have just highlighted the first month of our new life in the pediatric cancer world. I am aware of five precious children who died last week—within five days—as a result of just one type of rare cancerous brain tumor, the same as my son’s. Skyler...Adam...Mara...Brynne...and Lauren. They belonged to all of us. What will it take for people outside of the childhood cancer community to notice what is happening to our children? What will it take for everyone to understand the urgency of the situation? What will it take for the federal, state and local governments to finally engage in the fight? Will it be the cancer diagnosis of a celebrity’s child or the child of a political leader? Will it be the death of a child belonging to someone in the media? Will it be your child?

Please, join the effort to raise childhood cancer awareness. Show your support by wearing a gold ribbon, and by making the issue an important topic of conversation. Distribute copies of this letter in your place of employment, in your place of worship, and in your community. Contact government officials, and express your concern.

A decade ago, we noticed a person wearing a pink ribbon on a t-shirt or lapel. It didn't take long for pink ribbons to raise breast cancer awareness in the public eye, and to mobilize our society to action. I hope that in 10 years gold ribbons will be as common as pink ribbons...and that the survival rates for pediatric cancers will be comparable to those for breast cancer. With your help, it will happen...one gold ribbon at a time.

With Hope for Our Children,

Sandy Smith

Breast Cancer Survivor & Mother of a Child who is Battling Brain Cancer

www.caringbridge.org/visit/aws


www.JustOneMoreDay.org © JustOneMoreDay@cfl.rr.com

Posted by Sandy Smith September 28, 08 01:34 PM
545.

This year has raised our awareness of Childhood Cancer. Our Ben was diagnosed at 6 with Osteosarcoma and gave the bottom half of his right leg to cancer, he is one of the lucky ones!
Please continue your awareness in every month of the year, I know my family will!
http://www.caringbridge.org/visit/benbaltz
http://www.teamunite.net
God Bless,
Ben's Dad

Posted by JC Baltz September 28, 08 01:36 PM
546.

American Cancer Society Funding - FY 2006-2007
Area of Research $ Awarded
Prevention $ 22,517,000 16.34%
Detection $ 5,332,000 3.87%
Treatment $ 23,092,000 16.75%
Psychosocial and Behavioral $ 17,651,000 12.81%
Health Policy/Health Services $ 8,634,000 6.26%
Poor and Underserved $ 15,862,000 11.51%
Childhood Cancer $ 4,076,000 2.96%
Environmental Carcinogenesis $ 5,985,000 4.34%
Epidemiology $ 8,055,000 5.84%
Cause/Etiology $ 15,915,000 11.55%
Survivorship $ 7,822,000 5.68%
End of Life $ 2,890,000 2.10%

$ 137,831,000 100%



Posted by AJs Dad September 28, 08 01:41 PM
547.

BEAUTIFUL !!

Thank you for this article highlighting what I like to call "America's dirty little secret". It is the elephant in the room no one wants to talk about because it is "uncomfortable" to talk about and think about. It is something that happens to "other people".

I, too, never wanted to hear or think about it until MY SON became one of "those kids".

I was shocked to learn that childhood cancer is THE NUMBER KILLER by disease of our children!!

NUMBER ONE!!

Thanks again for highlighting the need for awareness and this important month in our lives!!

HUGS,

Rene' Losurdo
Illinois

www.caringbridge.org/visit/christianlosurdo

Posted by Rene' Losurdo September 28, 08 01:43 PM
548.

We need more publicity, we need more funding for research and new medications, we need to end childhood cancer.
Thank you!

Posted by karla September 28, 08 01:46 PM
549.

My son Seth Tyler Simpson died at the age of 14 from a ten month battle with Leiomyosarcoma. The diagnosis was a complete shock and the path we were on was horrible! This is 2008, come on everybody. We should not have to see an innocent child go through what Seth did. Please help support childhood cancer. We need help now. Don't wait until your child is diagnosed cause it may be too late!

Posted by Debbie Simpson September 28, 08 01:46 PM
550.

why should kid's have to sell lemonade (Alex's Lemonade Stand) and their parents get their heads shaved (St. Baldrick's) to raise money for a cure?

Posted by AJs Dad September 28, 08 01:56 PM
551.

Thank you for this tribute.
So many of our children are still fighting.
So many families are still mourning.
So much pain.
So much fear.
HOPE keeps us going...

Posted by Carmen A. Justiniano September 28, 08 02:01 PM
552.

I am a mother of a 9-year-old boy who is battling a relapse of Burkitt's Lymphoma. I cannot bear to think that I may loose him to this disease. He has so much to offer! I had not idea that childhood cancer is so under funded until we were right in the middle of it. Chemo, surgeries, wheelchairs, hair loss, and even a coma. My son is still battling and with God's help he will overcome this cancer. However, far too many parents have already lost their precious children. This should not happen in 2008! We need more awareness for the children fighting this disease. How many more children would live through cancer if the money were at least doubled or tripled? Our children are the future, and they deserve one!
Amy from Atlanta, GA

Posted by Amy McLeod September 28, 08 02:15 PM
553.

Thank you so much for the attention to this issue. We have been touched by childhood cancer. We lost our son Caleb Whan to Leukemia on March 28, 2008, just 11 days after his 4th birthday. This is real. Childhood cancer does not descriminate. It effects all nationalities and all socio-economic groups. Our children are dying and very little is being done. Thank you again for your help. Beautifully done piece. God Bless. www.caringbridge.org/visit/calebwhan

Posted by Rob Whan, Caleb's Dad September 28, 08 02:16 PM
554.

It is good to see that someone is speaking up on behalf of the many children suffering from childhood cancer. I pray that those who have the financial resources will answer the call to invest their money into a worthy and lasting cause such as that of research to end this very devastating disease.

Posted by Threcia Walls September 28, 08 02:19 PM
555.

What wonderful pictures of these young warriors. Everyone needs to be aware of how evil this disease is and how desperately we need to help these children - they are our future and our hearts.
Thank you for the awareness.

Posted by Heather Moffett September 28, 08 02:20 PM
556.

Thank you so much for this beautiful tribute to these couragous warriors. We must continue our battle against cancer and find a cure for these precious children.

Posted by Cara September 28, 08 02:24 PM
557.

My nephew, Corey (carepages: coreynickell) deserves better and so does Roman, Coleman, AJ, Cole, Chloe H., Chloe P., John Eric, Eli, Kieran, Eliza, Laura, Miles, Nolan, Regan, Victoria, Julian....the list goes on and on...
We MUST find a cure....here are my sister's words...the fear she and her husband face EVERY moment of EVERY day!!

THUNDERSTORMS
There is a storm coming at you. The warnings are out. Prediction is 75% chance of heavy rain, damaging winds, large hail, and a threat of tornados. What do you do? Do you carry your umbrella? Do you park your car in the garage? Do you secure loose items? OR Do you rely on the 25% chance that GOD willing the storm will die out? Your car already has scratches and dents from a previous storm. Your hair is a frizzy mess when it gets wet. You have on a nice outfit today. You have an old tree in your front yard, will it be able to withstand the storm. Do you risk leaving everything out there in the threat of the storm? There is a 25% chance that everything will be FINE. Why worry about it? Why take precautions? There’s no guarantee that you or your possessions will be damaged further. There’s also no guarantee that your world won’t be destroyed in an instant.

This is my life. How do I live my life as if everything is FINE! There’s a 25% chance that Corey won’t relapse. There’s a 25% chance that he will live a full and healthy life. But what if the storm hits us again. There is a 75% chance that it WILL! He is already scarred physically and emotionally. Our family is scarred. Our spirits have been lifted with the second chance at life but the storm is coming. Will it reach us? Will it be worse than the last storm? The prediction is the next storm will come back with a vengeance and won’t stop until it has destroyed everything. Is everything FINE! NO it is not. This storm is not over. Corey has been wounded several times but he did survive the first big storm. Will he survive the next one? The storm is coming. There is a 75% chance that it will hit hard and destroy everything! Help us take cover so it doesn’t hurt us again! How do we live with this fear and threat? Why doesn’t the rest of the world get it? Why can’t they see this storm looming over us? When will it go away? Why does it have to stay there for the rest of Corey’s life? We don’t know how long he will live? We don’t know if he will grow up to be an adult and have a career and a wife. We know that he won’t be able to have children because his battle has left him sterile. He will always need hearing aids and struggle to be “normal” like everyone else because he has permanent hearing loss. He still has so many storms to take cover against just to live. Why can’t everybody see that this storm is NEVER going to be over? HELP US! We are fighting so hard and we just want the storm to be over. We want the storm to go away. Please GOD make this storm dwindle into a soft rain shower. NO it can’t go away, there is a 75% chance that it will destroy us! A 25% chance that it will go away is not enough. We need better odds. We need a secure place to take cover. How do I protect Corey from this storm? There is no cover. There is no safe haven. There is only hope and faith. Live your life on that alone. You know we do have a 25% chance that the storm will miss us

Posted by Karla September 28, 08 02:27 PM
558.

The warrior in our family is applying to colleges today. There is hope.

Posted by Mike September 28, 08 02:43 PM
559.

Thanks a lot !

Posted by D September 28, 08 02:47 PM
560.

My six year old son is an Osteosarcoma survivor. I HATE CANCER! Even though it didn't kill our Jonah, his life has been changed forever. As a part of his treatment he had to have his leg amputated. You can read more of our story at www.jonahsjourney.net. Thank you so much for this story and bringing awareness to our families who are fighting this terrible disease. May God bless all of the families fighting childhood cancer.

Posted by Amy White September 28, 08 02:47 PM
561.

THANKYOU FOR YOUR SUPERB EFFORTS IN GETTING THE MESSAGE ACROSS. AS A PARENT OF A CANCER SURVIVOR OUR LIFE CHANGED DRASTICALLY 2 YEARS AGO. NOT ONLY FOR OUR SON BUT FOR HIS FOUR SIBLINGS AND THE ENTIRE FAMILY. DEVASTATION SETS IN AND THEN YOUR PRAYERS FOR A DEFINITE CURE. THANKYOU WE NEED OTHERS AWARE OF WHAT IS GOING ON. WITH HOPES WE PRAY THAT ONE DAY THE YELLOW RIBBON WILL BE ALL OVER JUST AS WE SEE PINK. ONE YELLOW RIBBON AT A TIME WE PRAY FOR REASEARCH AND DEFINITE CURES. GOD BLESS STEPHANIE AND FAMILY

Posted by STEPHANIE CAPIZZI September 28, 08 02:50 PM
562.

Please let this be the beginning to the end of childhood cancer BE AWARE

Posted by Valerie Wilbur September 28, 08 02:50 PM
563.

Amazing story and breathtaking photographs. I want to thank you for taking the time to publish something so dear to so many hearts, yet so underfunded and WAY overlooked. You have done something that not many other news publishing companies have done - publish the BIG PICTURE about childhood cancer. These are our children, our future. If we don't give them a chance to grow, thrive, and become the doctors, lawyers, and teachers they want to be, who will?

Again, thank you.

Posted by Stephanie September 28, 08 02:51 PM
564.

Thank you for writing this article to raise awareness for the fight against childhood cancer. The photos show the bravery of these innocent little ones who are fighting for their lives. We must get the attention of the world on this problem, increase funding, and find a cure for this horrible plague. I don't want my grandchildren to become one of the statistics and if something isn't done soon, they very well may be facing this curse. Again, thank you -- for these precious children.

Posted by Virginia September 28, 08 02:57 PM
565.

Incredible pictures of very brave youngsters. Thanks for sharing and thanks to all for their efforts in raising funds to combat cancer. Just devastating for any individual or any family connected to a cancer patient...no matter the age.

Posted by Marla September 28, 08 03:03 PM
566.

Thank you for bringing awareness for childhood cancer. There are far too many children affected by this awful disease. I have been following quite a few of them including Julian. It is so much for them and their families to have to deal with. They should be playing and enjoying life. Let's put more into research for a cure! Your article is definitely a start to save these children.

Posted by Kathy (Amman,Jordan) September 28, 08 03:04 PM
567.

Thank you for agreeing to do this piece to raise public awareness to Childhood Cancer Month. Like many who have responded we would've never known how many children and families are really affected by cancer until it struck our own daughter. It's impossible to make the public aware of every type of cancer out there but it's a start to recognize that children get cancer as well as adults and should have the support likewise (research, awareness, fundraising, etc). Thank you for this story.

Posted by Jennifer Keith September 28, 08 03:06 PM
568.

Thank you Mr. Taylor, for publicizing childhood cancer. As the mother of a cancer survivor, I am grateful.

Posted by Elise September 28, 08 03:08 PM
569.

I am a 23 year old female who was diagnosed with DSRCT which is a childhood cancer in Jan 08 No one even knows what that cancer is! There is so little information on it and so many other childhood cancers. Someone said it, next month you will see breast cancer stuff everywhere and donations being made. I was a big donater because I lost my aunt to it last year but there is NO CURE NO INFORMATION on majority of these diseases and the least funding. The only time I saw a gold ribbon anywhere was when I was in the hospital and parents and employees would be wearing them. Something needs to be done.

Posted by Shannon Yoder September 28, 08 03:08 PM
570.

Awareness is the catalyst to change. I pray that more can be done to erradicate this insidious disease that takes the lives of these precious children. Thank you for this site to inform and

Posted by Lori J September 28, 08 03:14 PM
571.

I posted earlier...but failed to say "Thank you, thank you, thank you, Mr. Taylor" We need this and so much more! Thank you for posting these sweet innocent faces that are "Childhood Cancer". Each picture speaks volumes. I hope and pray that this is the beginning of a rolling stone!

Posted by Karla September 28, 08 03:18 PM
572.

This is for Jordan! He is fighting his battle against Leukemia. He looks great! he has hair, he is active, but what people don't understand that
This is for Jordan! He is still in treatment for Leukemia. Oh, Leukemia that is very curable it’s like going to the Dr. and getting a few pills right? His hair is back he looks great! But what does a child on treatment look like? They are not always bald and when his hair grows back does not mean he is done.
Jordan is doing great! He is back to school and has great curly hair thanks to the chemo and has stayed out of the hospital. We are hopeful he will be cured…
But…..We can’t forget our friends who have lost the battle. It has been a hard year for us.
So many children…..too many….I never thought MY CHILD would get cancer and I never thought I would have attended so many children’s services. My mom said that she went to a child’s service once…It was the saddest thing she has ever seen...my mother will be 78. I have been to too many.

I was really disappoints in different parents magazines that the covers did not say “Support Childhood Cancer.” Shouldn’t they all have written something? Every Newspaper? Its not that I did not write them months ago reminding them what September was. Maybe I will start early next year. Many I need to write them everyday and say Yeah. Just wanted to let you know! In case you forgot. I didn’t I had to reorder his meds today. Oh, yes we are getting a spinal tap tomorrow. Have you ever had one?

I have spoken to many parents that have gone through a great deal in their lives from being homeless, abuse, loosing everything they own…What they all said that having a child with cancer surpasses all this…..

We need to band together, not just the parents, but the community bringing awareness to Childhood Cancer. Please keep writing and spreading the word to bring awareness.

Posted by DeAnna Inglese September 28, 08 03:22 PM
573.

I never knew the extent of children with cancer, nor did I know there were so many types of cancer for them. Wake up America!!! There needs to be more research for cures and treatments for all these children!! How can we short change our future? Thank you for your article and praying more like it get out to the public and in turn to our people responsible for the share of funding CHILDHOOD CANCER gets. Which is way too little!

Posted by Carolyn D. September 28, 08 03:42 PM
574.

Thank you for sharing these beautiful pictures and amazing stories. I myself wasn't aware that September is National Pediatric Cancer Awareness month before this. Children are our future. They deserve the chance to lead full, cancer-free lives. There should be a public outcry to demand more funding be directed toward resarch and cures for childhood cancers. Again, thank you for rasing awareness and speaking up for our children.

Posted by D. Goetz September 28, 08 03:44 PM
575.

Thank you for bringing more awareness to Childhood Cancer. The pictures are poignant and show how this really touches everyone... more should be done to raise awareness for this and these kids. Kudos to the Boston Globe organization for stepping up to the plate.

Posted by Marion September 28, 08 03:51 PM
576.

Thank you for this wonderful article and incredible photos. We're friends with a family that lost their son to this horrible disease and I hope and pray for all the brave people facing such a horrendous journey.
For Seth, Donnie, Debbie and Allison
Peace #13

SFC and Mrs. AJ Pierce, Pensacola, FL

Posted by Robbie Pierce September 28, 08 04:02 PM
577.

Thanks so much for at least closing out the month of September with this article. My family is bewildered by the lack of media focus on Childhood Cancer Awareness. We finally got a month in honor of so many children that have been diagnosed, fighting every day to survive and to many that have passed. Its a shame that the month has gone by and not much has been mentioned.

Great photos to show what we go through.
These children deserve more than just a "month" and we will continue to fight for them until we get the funding needed.
We are sorry that there are so many other cancers out there; but I'm also tired of all the pink too. Something should be done for the children like it is done for Breast Cancer Awareness. It is truly unfair and I know my daugther and many other children fighting deserve more.
Why can't these deserving children get some help with rising money?
Why hasn't a company stepped up to the bat? Or a celebrity/musician?


Posted by Brenda Sims September 28, 08 04:03 PM
578.

Thank you for these pictures. We need to come together and battle this illness that is taking these precious young people away. There is something out there for all of us to do, we just have to take the time to do it.

Posted by Lori Richards September 28, 08 04:20 PM
579.

What a beautiful and sad tribute. Please keep fighting for more awareness and more funding for pediatric cancer. My life is forever changed by the life and death of the sweetest little girl Hazel Camille. She introduced me to cancer and now I will never forget and will forever be working to put and end to this useless suffering.
Milae Weiser
(Her carepage.com site is HazelCamille.)

Posted by Milae Weiser September 28, 08 04:22 PM
580.

Thanks for bringing awareness to childhood cancer. There definitely needs to be more research for a cure. No child deserves this!

Posted by S. McCarty September 28, 08 04:22 PM
581.

Thank you for raising awareness of Childhood Cancer. There needs to be a cure and with people like this we can do it.

Posted by CBE September 28, 08 04:24 PM
582.

Thanks you for running this story.

Posted by Dianna September 28, 08 04:28 PM
583.

Thank you for publishing this very important article about Pediatric Cancer, these children are lost in the bureaucracy of the massive amount of red tape in Washington. Our children have no voice as they are minors, should they not have a greater voice because they are minors? It is our responsibility to save our children. How many more parents and children must suffer from this demon called CANCER. Please help us get more funding today, not tomorrow. God Bless, Susan and The Bunch of Bergs

Posted by Susan Berg September 28, 08 04:35 PM
584.

Thank you for being the voice for our cancer kids. My oldest son was diagnosed with leukemia March 2005. After 2 1/2 years of chemo he is currently in remission. Reality, is too many of his fellow hospital mates can't say the same. It saddens me our society doesn't acknowledge the truths of childhood cancer. Thank you for all your efforts to make society look hard at the reality of childhood cancer.

Posted by Alyson Dreer September 28, 08 04:44 PM
585.

Thank-you soooo very much for posting this article on Child hood cancer. they are such beautiful young kids.No child should ever have to go threw such a horrible disease. I Pray for all that has to go threw this. God bless them all.

Posted by Gina. B September 28, 08 04:47 PM
586.

Thanks so very much for honoring the children and families that have been affected by childhood cancer. Our children are our future, and you have helped give them a voice.

Posted by Jacquie Terry September 28, 08 04:51 PM
587.

I cannot look at those pictures without crying , my 14 year old daughter was diagnosed with osteosarcoma in July 2007. There are only about 400 cases of osteosarcoma diagnosed in the entire USA every year , my daughter and my neighbor's son were diagnosed of the same thing within four months. Later on we found out that another two other cases were diagnosed in the months before in the same area and one of them passed away.
I never imagined that something like this would happen to us but when it did it really turned our world upside down , I felt completely helpless when I had to watch my daughter being poked and proded and get chemotherapy that would make her sick for weeks on end. On top of that she needed limb salvage surgery and luckily she was able to save her leg.
I thank you for doing this article as we need as much awareness as possible out there.

Posted by Olga Whitman September 28, 08 05:08 PM
588.

Very touching. I am glad to see some publicity for Childhood Cancer Awareness month.

Posted by Amanda September 28, 08 05:15 PM
589.

Thank you so much for sharing these pictures. I'm so glad that someone is doing something to help bring awareness to childhood cancer. As the mother of a child with cancer, I very much appreciate it. We need to find a cure, and we need to increase funding to find better treatment plans.

Posted by Amber Baumbach September 28, 08 05:15 PM
590.

Great article to bring awareness to the absolute travesty of our underfunding of all pediatric cancer research.

Posted by Susan Wright September 28, 08 05:19 PM
591.

Thank you for caring enough to remember that September is Childhood Cancer Awareness month. My little friend Coleman continues his battle with medulloblastoma.... At 4 years old, almost half of his live has been spend battling this horrible disease. He deserves a cure. So do all the other children fighting this fight.

Posted by Becky September 28, 08 05:22 PM
592.

Thank you so much for doing this. September is Childhood Cancer Awarenenss month and this is the first news article I've seen about it. I don't have a child with cancer, but I follow many children's carepages and you kind of feel like you know these children. No child should have to go through this and no mother should ever have to "feel her child's last heartbeat". If more new organizations would stand up and get the word out maybe we could beat this monster. What's it going to take a famous person's child to get cancer? I hope not, I wouldn't wish it on any child.

Posted by Cristina Hatt September 28, 08 05:22 PM
593.

Until my 19 yr old daughter was diagnosed with rhabdomyosarcoma (a childhood cancer) last year, I didn't know what I know now about Childhood Cancer. I, like most people, would turn the channel when the St. Jude's telethon came on TV. It was too sad. This year is the first time I didn't change the channel. I didn't save my child from getting cancer by ignoring that it exists. Yes, it's scary for parents to admit that this could happen to their child, but raising awareness will only save more children. Many childhood cancers go undiagnosed for too long. By the time some children are diagnosed, it is too late. Don't turn away from these pictures and these children. Gold ribbons symbolize Chidlhood Cancer Awareness. My hope is that some day, you will see GOLD ribbons everywhere and know what they mean, just as we all know what a PINK ribbon stands for. And I also hope that childhood cancer will receive its fair share of research dollars very soon.

By the way, my daughter had 10 months of chemo and 5 weeks of radiation. She finished her treatments in May and her scans have been clear ever since. Too many children and parents are not as lucky as we are.

Posted by Judy September 28, 08 05:26 PM
594.

Thank you for this powerful article. It's tragic to see pure innocence suffer.

Posted by Cara M September 28, 08 05:27 PM
595.

Thank you, thank you, thank you so much for this story! It is so disappointing to know that childhood cancer is so overshadowed by so many other cancers. I am a mother of a leukemia survivor. Even though my son is now 1 1/2 years off treatment and doing well, there are so many other children that don't get that chance to live. And even though he is done with treatment, we will have to deal with late effects and constant monitoring for the rest of his life. It is an ongoing battle and the only way we can win is by having funding for childhood cancer research done and we can't stop until EVERY child is cured!

Posted by Mandi Lopez September 28, 08 05:28 PM
596.

I'm really glad to see you posting pictures and articles about childhood cancer. It does happen and it is out there, unfortunately, but the more known, the more help and support can be given to those in need. It's also encouraging for parents and family members to know that people are fighting for their children.
Thank you!

Posted by Shirley Morse September 28, 08 05:33 PM
597.

I had no idea there was a special month just for our children. Thank you for this site, bring awareness to all. I lost my daughter the day before her nineteenth birthday just nine years ago this month (September) from bone cancer. My heart hurts just as much now, if not more than it did then. I do all I can to support a grieving parent through my web site. www.hopeforparents.org This is my way of reaching out to other hurting parents. Many family and friends cannot relate to the grieving process a parent goes through. Others feel there is a timeline on grief, but it's life long. My heart goes out to all families going through the nightmare of cancer. God Bless you

Posted by Lynette Norton September 28, 08 05:35 PM
598.

Thank you for this moving article on childhood cancer. Photos speak much louder than words. This is the first article on childhood cancer I have seen all month. September is Childhood Cancer Awareness month! I know because my daughter, Jean, was diagnosed on 9-11-05 with a Primary Neuroectodermal Tumor. She was 19 at the time and normally this tumor shows up in children under age 3. She fought a courageous battle. I could certainly share a few inspiring photos of her battle with cancer. Thank you for sharing the 19 photos of children with cancer. I hope next year to see much more exposure from media. I have been wearing a gold ribbon all moth and spreading the word.

Posted by Carol Hatcher September 28, 08 05:42 PM
599.

I lost my daughter(Taylor) last November to (AML)Leukemia, after only a 7 month(hard battle) Prior to being diagnosed she was the healthiest kid around.......She was only 10 years old, and our whole family is suffering now. We need help, we need more funds, we need more people working for a cure, she was to young it is unfair..

www.caringbridge.org/visit/taylorbaum
Tanya(Mom to Taylor)

Posted by Tanya Baum September 28, 08 05:57 PM
600.

Thanks for your article and raising awarness about childhood cancer. Please continue to speak out!

Posted by Ali September 28, 08 06:14 PM
601.

My heart breaks for all the children fighting this disease and all the families who suffer watching their children in such pain. Thank you for this powerful article and the beautiful, stunning pictures.

Posted by Jane Black September 28, 08 06:31 PM
602.

Thank you for helping to spread the word ... AJ was (and still is) my daughter's best friend, and the Piniewski's are VERY special to our family. We love that AJ is working his miracle in getting his sister and Shannon's sister together at ECU! We love you, AJ, and miss you so very much.

Posted by The Yelminis September 28, 08 06:37 PM
603.

My beautiful son Levi was diagnosed with medulloblastoma in 2004. The surgery to save his life stripped him of every capability he had. After surgery, his eyes did not even focus together. This hero has relearned everything - from swallowing to running. He almost died from treatment. How sad that the treatment to save my sweetheart almost killed him!! I had to make the decision between continuing treatment or stopping - and risking a relapse that will almost certainly have killed him. No parent should have to make that decision and for the love of God, no child should have to go through this living HELL! In the past week, I have learned of two other medullo kids who have relapsed six years off of treatment. I live in constant fear for my Levi. You can watch the St Jude's specials and read the articles, but until you have lived through this, you cannot begin to understand. And I'm glad of that. I wouldn't wish this hell on anyone.

PLEASE - we need to make childhood cancer a distant memory.

Please - for Levi and his friends.

God bless our children and God bless you for supporting our cause.

www3.caringbridge.org/va/levi

Posted by Melina Brown September 28, 08 06:47 PM
604.

Too many children, too many broken hearts.

Posted by Tami Hayes September 28, 08 07:02 PM
605.

I am so very happy and proud to watch my 10 yr. old niece (leukemia survivor) do gymnastics and talk about silly 10 yr. old girl stuff. Seven yrs. ago I wasn't so sure of her outcome. On one hand, she's here living a great life, thanks to the HORRIBLE drugs that killed her cancer. On the other, I'm worried about the HORRIBLE drugs and long term effects they will have on this sweet, intelligent,beautiful little girl. We have to do something for all of our children to end this terrible disease! Thanks for the insight! God Bless you all.

Posted by Kim September 28, 08 07:14 PM
606.

Hello, I would just like to thank you for your article on Childhood Cancer Awareness Month. There are so many little ones and their families suffering because of what cancer has done to their lives. Please help them by covering more of their stories. Please if you would, keep writing about these special kids that touch our hearts, let them touch the hearts of all your readers by featuring in depth stories of their journeys. It's only by raising awareness that we can expose this horror, and hope to get more funding to save our children.

Posted by Sweet little Julian Avery's Aunt Liz Marton September 28, 08 07:27 PM
607.

We need to do something more to see an end to childhood cancers. It is destroying the future of our world!

Posted by Maggie Barnhard September 28, 08 07:29 PM
608.

AMAZING! Thank you for posting this, we need to bring awareness! My heart goes out to all these kids and they're families!!

www.freewebs.com/courtneynicole

Posted by Laura September 28, 08 07:30 PM
609.

Thanks so much for this article. Awareness must be raised for childhood cancer. I am a mother of a 4 year old battling Acute Lymphobastic Leukemia. The pictures in this article bring tears to my eyes. It makes me sad that childhood cancer is so overshadowed by other cancers. I hope this article opens some eyes. We need to find a cure so no other parents have to go thru what we are going thru.

Posted by Michelle Konish September 28, 08 07:32 PM
610.

http://www.coleruotsala.com/
This 3 year old child is DEAD because of cancer. This 3 year old child touched hearts all over this world. This 3 year child can't speak for himself anymore. We must do MORE to stop childhood cancers.

Posted by MaggieZ September 28, 08 07:33 PM
611.

MASHAALLAH!! Beautiful pics! I'm in Egypt visiting family at the moment and WOW Ramadan is definately lovely here I have too of my own lanterns (fanus) I'm also Egyptian but since i live in London I never realised how amazing Ramadan can be in muslim countries GOOD JOB!

Posted by Sara September 28, 08 07:58 PM
612.

Thanks for the article. It seems so logical to me that childhood cancer should be the most important, most prominent cancer that gets the most research money and most attention. It is shocking that it doesn't.
I would love to see Childhood Cancer month get more attention!

Posted by Terry Jenkins September 28, 08 08:11 PM
613.

Thank you to the article on childhood cancer awareness. My high school friend's little boy was diagnosed in Feb. and it has been so difficult. I am also a mother of a 4 year old and my heart aches for her and her family. We need a cure. There are many prayers being lifted up for children with cancer. My prayer is that the article would inform more people and they would somehow get involved. My heart goes out to all the families that have been attacked by cancer.

Posted by Tara Jaeger September 28, 08 08:14 PM
614.

Thank you for this article. May others media follow your lead!! We are forever grateful to the attention this has undoubtedly generated!

Mom of Grant the Great, survivor of Clear Cell Sarcoma of the Kidney. Diagnosed at age 7 MONTHS!

www.caringbridge.org/visit/granthaar

Posted by stefani haar September 28, 08 08:21 PM
615.

Thank you for the great article. There are far too many people out there whom have no idea that September is Childhood Cancer Awareness Month, or how many families childhood cancer affects. I became aware following families CarePages and it just breaks my heart to see what these innocent children go through. There definitely needs to be more funding for childhood cancers and the only way that will happen is if awareness is raised. Thanks again for your wonderful article!

Posted by Danielle Letellier September 28, 08 08:21 PM
616.

WOW!!! Unbelievable pictures. Thanks for taking the time to make sure we are all aware of the amount of children and families affected by this horrible disease! I HATE cancer! Let's keep searching for a cure.

Posted by Janette September 28, 08 08:27 PM
617.

I am with a group called Quilts of Love.We make virtual online quilts for children who have a terminal or life long illness.Being with this group we have made over 900 quilts for children.We are able to keep up with these precious children on a daily basis.We have lost so many children to this "C" disease.I have never met any of these children personally.But have grown to love them very much.When Heaven receives a new "Angel" there are many, many heartbroken followers of these heroic, children and their families.I just wanted to say thank you for running this story, you have helped do BIG part in finding a cure!!

Posted by Steff September 28, 08 08:28 PM
618.

My prayers go out to all the children suffering with childhood cancer and their families. Also to all the families who have lost their children. I hope that more people are made aware of these terrible diseases that affect so many children, so that more funds can be raised to help with medical costs and research to find cures.

This article was posted on a caring bridge guest book and that was the only reason I heard about September being Childhood Cancer Awareness month. Let's spread the word...

Posted by Mona DeFilippis September 28, 08 08:31 PM
619.

THANK YOU FOR SOME MUCH NEEDED ATTENTION TO CHILDHOOD CANCER!! Before my child was dianosed with Ewing's Sarcoma at the age of 5, I was like many other people who just truly have no idea how horrible this disease is. I had no idea that just in the local hospital in my area, many children are losing their battle to cancer at such a young age. My son, like many, endured a year of chemotherapy, hair loss,vomiting, mouth sores, isolation from friends and family and has had more surgeries than I can remember on his leg to try and salvage his limb after a tumor took over 2/3 of his thigh bone. He has finally learned to walk again after over a year in a wheelchair, but still has many surgeries ahead to deal with the limb discrepancy he is left with. He is one of the lucky ones, and I am grateful everyday that he is still with us. Childhood cancer is in desperate need for recognition and funding! Please continue to shed some much needed light to our public and government.

Posted by Marcia Grogan September 28, 08 08:46 PM
620.

Childhood Cancer... Awareness , Research, better treatment...Cure....There should be no Question...why is it that childhood cancer seems to take the back burner , ...more children are lost to cancer than any other disease!!! Publicity seems to zone in on the children for advertisement ...but yet is the most under funded?
Until you are struck with such an awefull event as childhood cancer,sit through chemo, radiation, surgeries all the suffering & pain, loss of your child & your life forever ruined... maybe you do not really get it!! It is DEVASTATING.....

Posted by robin badding September 28, 08 08:48 PM
621.

THANK YOU so much for the touching and beautiful photos of these precious children. THANK YOU for raising awareness for Children's cancer!!!! There are so many children suffering...and the children are not alone. When they suffer...they parents, sibling, grandparents, friends, schools, etc. suffer. It is the most heartwrenching because these precious souls so often don't understand and have lived so little of their lives. They lay in hospitals and on couches while all the children around the grow up. PLEASE continue to raise public awareness!!!

Posted by Sandy Daron September 28, 08 08:51 PM
622.

Lets find a cure & put our children 1st.
Thank you for your article.

Posted by L. Swatek September 28, 08 09:09 PM
623.

Thank you so much for bringing awareness to childhood cancer. My 7-year-old daughter, Emily, passed away June 24th of this year from Rhabdomyosarcoma. Another couple from our area also lost their 5-year-old daughter to Rhabdo just 3 weeks later. In their memory, we have formed The Butterfly Fund to raise money for childhood cancer research. More research needs to be done so other parents do not have to go through what we have. Nothing is worse than losing a child.

Posted by Misty Barger September 28, 08 09:12 PM
624.

Thank you for helping bring this topic to the attention of others. More information and public display about pediatric cancer must happen. We all need to unite and spread hope for these children who are suffering each and every day. Thank you again!!!

Posted by Heather September 28, 08 09:15 PM
625.

Cancer must be beaten. Now!!!!!!

Posted by Frank Cain September 28, 08 09:17 PM
626.

I want cancer to STOP & DESIST IN JESUS NAME!! Thank you for your article.

Posted by Lisa Stephens September 28, 08 09:26 PM
627.

Hope you can get the word out there as I have been following some children who have died recently from cancer and are also fighting and/or suffering from it now on the Caring Bridge site. God bless the children and their loved ones in a really huge way.

Posted by Sally Glenn September 28, 08 09:26 PM
628.

Thanks for this story. These kids and their families go through so much. For most of us, our worst day or worst memory is nothing compared to what these children must face. Please do all you can to support and make people aware of the need for research funds and help for the families fighting so hard to live through childhood cancer.

Posted by Elizabeth Holt September 28, 08 09:30 PM
629.

Thank you for an excellent way of bringing a visualization of cancer and how it touches the families of little children. Hopefully it will touch the hearts of many. Sadly, my heart wasn't touched by the importance of supporting the fight for funding until a friend's teenage daughter was diagnosed with Leukemia. Since then I have realized the importance of spreading the word of Childhood Cancer Awareness. Julian (#14) was the first little child I'd ever followed on CarePages. Julian's Mom wrote from her heart and her writings change my way of being a mom and grandmother forever.

Posted by Diane Ellerbee September 28, 08 09:38 PM
630.

We need more awareness of Childhood cancer and more funding to get more research done to not only treat these children but to have the cancer cured and gone forever. Please don't continue to make parents, siblings, grandparents anyone go through what these poor children have to or what the family has to seeing what is going on with their child, brother, sister, etc. it tears at everyones heart and even breaks families apart. Please help us to get the funds to do what we need to. KILL CHILDHOOD CANCER!!!!!!!!!! Tonya & 2 girls

Posted by Tonya Spillman September 28, 08 09:41 PM
631.

On behalf of the the kids, thank you for helping to raise awareness.

Posted by Emily Schmidlin September 28, 08 09:45 PM
632.

Thank you for bringing light to Childhood Cancer Awareness month. My son has ALL and will have to endure chemo for 39 months.

Posted by Crystal Vernon September 28, 08 09:47 PM
633.

WOW!!
Thank you so much for writing about CHildhood cancer. We have got to get the word out and you did an excellent job.

Our family was devastated by cancer on June 15, 2007, 10 days before our son, Cameron's, 4th birthday. Cameron was diagnosed with Acute Lympho-Blastic Leukemia. Our hearts broke as so many parents heart do finding out your baby has cancer.

I want the "GOLD" ribbon to be just as known as the "pink" ribbon. We parents will continue to fight and give our children the voice they deserve. We are saddened at the lack of media attention our children have gotten. We need so much more funding to cure this monster.

Thank you for your efforts in helping each family. You will never know how much we all appreciate this wonderful article!!!

carepages.com cameronweddle

Posted by Misty Weddle September 28, 08 09:49 PM
634.

There is no more important story you all could have written than this one. The children and families who deal daily with childhood cancers are some of the bravest people I have met. What a wonderful world it will be when parents no longer watch their children suffer with cancer.

Posted by Chandra Dunbar September 28, 08 10:07 PM
635.

Thank you so much for helping raise awareness for Childhood Cancer with your photo tribute to these brave children and their families as they fight battles most of us adults will never have to face in our lifetimes. Pediatric cancer is woefully underfunded when compared to other cancer research. All of us need to change this, and raising community awareness is where it starts!

Posted by Donna Hilderbrandt September 28, 08 10:08 PM
636.

Many thanks to the Boston Globe for highlighting such an important story!! The youngsters who survive cancer have an amazing constitution! Many become the oncologists, nurses, and child-life specialists that will help children of future generations. And those who do not survive......become the inspiration, the wind beneath the wings of those who do. God Bless Them All.

www.amysheartoflove.org

Posted by Linda Johannessen September 28, 08 10:08 PM
637.

My 2 1/2 year old daughter, Paige Victoria Beth, died last November from AML Leukemia. She was funny, and smart, and bossy, and loving. She loved to watch Madagascar, and Babe, and The Incredibles. When she could still walk, she would stand at the top of her slide, raise both of her arms and say, "To infinity and beyond!" She walked the long hallway at Dartmouth hospital toward the chemo area with a bounce in her step, and her arms swinging. Sometimes she would hop like a bunny. I honor her spirit and courage. Please support research that will save other little children who are fighting cancer! paigevictoriabeth.blogspot.com

Posted by kerri hansen September 28, 08 10:14 PM
638.

Thank you for your article, everyone needs to know about childhood cancer wether it is uncomfortable to talk about or not. It could be your child that is next to be diagnosed, then wouldn't you want something to be done. My daugher was diagnosed on 8-9-07 and died on 2-6-08 from a DIFFUSE PONTINE GLIOMA, and there is no cure, shouldn't there be.

http://www.caringbridge.org/visit/kayleyharper

Posted by Kristina Harper September 28, 08 10:23 PM
639.

PLease make this a topic that every one is aware of and is trying to fight!!!!

Posted by elissa Komishock September 28, 08 10:33 PM
640.

I can not thank you enough for this article! Such a beautiful piece with amazing pictures showcasing kids who are going through or have gone through their treatments. I especially love how adorable #8 is but I am VERY partial being a proud uncle of Lukas... He's one of the strongest kids I know!

Will Perkins
Treasurer
www.ANewYearOfHope.org

Posted by Will Perkins September 28, 08 10:34 PM
641.

Thank you for helping to raise awareness of childhood cancers. Our familiy has personally been effected by my nieces diagnosis of Leukemia. I pray for all children and families who have been impacted by these horrible diseases. No child should ever have to suffer the way these children do. My thoughts and prayers are with all of you.

Posted by Jill September 28, 08 10:34 PM
642.

Krista touched my life in so many ways. What I will never forget about her is her laugh. It seems so simple, but what touched me most about Krista was her sense of humor. She had a sense of humor I could relate to, especially with her sarcasm. Whenever I see Krista's picture or she crosses my mind, I always picture looking over at her in the many different classes we had together, and seeing her laugh. And it always puts a smile on my face and gives me courage, that no matter how hard things can get, to always have your sense of humor.

Posted by Ciera September 28, 08 10:35 PM
643.

This site of all of these wonderful children remind us all of how fragile life here really is....and how all of these babies to young adults live life with a deeper meaning of love and courage.
Why some and not others is a question that is always asked? Why is a question that seems to always be undersand.
After 10 years of fighting cancer, my nephew, Stephen W. Jordan's courageous life's journey came to the end of "his path" one day after his 25th birthday. We miss him and love him always. And, I am on this site in loving memory of Stephen and Seth Simpson. Two courageous men.

Posted by Austin's Mom September 28, 08 10:35 PM
644.

I already posted a comment, but, today while watching football-I noticed the referee's have pink ribbons on their uniforms. This is the NFL. I thought a yellow ribbon would have covered a few more bases...sorry, wrong sport. But, seriously, pink ribbons on NFL referees, that is such a suck up to current trends. How do we get gold ribbons on NBA officials? There is still time, the season doesn't start until November.

Posted by Chrystine Windle Ammari September 28, 08 10:35 PM
645.

I am an aunt of a sweet girl, that at the age of 18, was diagnosised with Non Hogkins Lymphoma- stage 3. This occurred on 21 months ago. We, as a family, were devastated by the diagnosis. The second devastation, was barbaric treatment we were told, that was to be administered to try and save her life. Instead of picking her second semester courses, her first year in college, she was picking out a wig to replace her beautiful long signature hair. She has and continues to be treated at Memorial Sloan Kettering Cancer Center in New York. Since the time she was diagnosised, she has undergone- scans, surgeries, 17 months of intense chemotherapy, radiation and a bone marrow transplant. She continues to be given 40 pills a day and shots to build her bone marrow. She is in isolation and is constantly vommitiing, internally and externally bleeding and is in pain. THIS IS NO LIFE. My neice just had her post transplant scans, that unfortunately showed signs of her cancer. She is now going to have another pulminary surgery- to determine if its the same canceer or a secondary cancer. I spend about 3 days a week on the pediatric floor
of Memorial Sloan Kettering- I never thought I would see infants, toddlers and children spending thier youthful days attached to an IV with chemotherapy in it. The faces on the hopeless tired parents are so sad to watch. WE NEED MORE FUNDING!! WE NEED TO FIND WAYS TO TREAT AND CURE THESE POOR SICK CHILDREN. I have attended more children's Funerals and Memorials then I ever imagined in my worst nightmare. The last wake, was a little boy, in his small coffin- wearing a mets shirt, shorts and sandals. His little brother was asking his mom, why his brother was not getting up to run around with him?
The devastation, of torturing and then burying children, MUST END!!!



City.

Posted by Sheerlee Mischel September 28, 08 10:37 PM
646.

My God Child had a migrane headache back in January...Thank God the emergency room in the Poconos said lets do a Mri...and CAT SCAN...She has a brain tumor chop in philadelphia was only able to get 50 percent...She is only 15years old I dont understand how come this is the United States of America and we spend all that money at war...and cant find a cure for Childhood Cancer ..Tell me Mr President how this is fair...I just dont understand...You spend all this money and cant find a cure for childhood cancer...Thank You MARYANN

Posted by MaryAnn September 28, 08 10:37 PM
647.

Once again, I want to say thank you for this eye-opening article for Childhood Cancer Awareness! I just returned home from the grocery store - pink ribbons hanging from a line across all the aisles, employees all dressed in pink, pink donations slips at every checkstand. The "PINK" campaign started in this store last week - 2 weeks before "Breast Cancer Awareness Month". I pray that with more articles like yours - we will have a voice that will be heard. It is too late for my child - but it might not be too late for yours. Visit this site and sign the petition - http://curechildhoodcancer.ning.com
http://www.thepetitionsite.com/1/CureChildhoodCancer

Posted by Courtney's Mom September 28, 08 10:41 PM
648.

Cancer is bad, but when it affects and innocent child who has yet to live life, it is even worse. Breast cancer is known worldwide, why isn't Childhood cancer?!

Posted by Casey September 28, 08 10:46 PM
649.

My baby , my beautiful son .
I just hope that more and more people
understand children with many sicknessess
and families.

Posted by chihiro machuca September 28, 08 10:52 PM
650.

I am a mother who found out first hand what cancer does to a family. We lost our 2 1/2 Down Syndrome son, Conner to two different forms of cancer. AML and brain cancer. I watched him fight for 5 1/2 months before he lost his battle and there are no words to truly describe what his family or he went through. What do you say to his siblings when they are crying from the pain of loosing him and asking why? There is nothing you can say. To say it simply cancer destroys a family's peace, tranquility, hope, happiness and out look on life. You can never again have a so called normal life for you are forever changed and all you what is a cure to be found. Of the nine children who where in treatment with my son only one is still alive and we do not know if she will beat her cancer. WE NEED A CURE AND FOR POEPLE TO HELP US GET THE WORD OUT>

Posted by Gayle Merimee September 28, 08 10:55 PM
651.

Thank you for raising awareness of Childhood Cancer. I am very saddened by the fact that there is such low funding for childhood cancer. These kids are our future. What are we doing??? Who can tell me why our children mean less that the elderly population when it comes to funding for cancer! I would give anything for a cure and for my granddaughter to never have to worry about this again. She has retinoblastoma and a gene that will predispose her to all kinds of cancers and she should be helped now instead of waiting until this has progressed into something else. Pray that your child or grandchild never has to go through what mine has.

Posted by Laurie September 28, 08 11:01 PM
652.

Alan,

Thank you so much for this beautiful story. I am no stranger to the world of cancer. In 1995, my mother was diagnosed with breast cancer. My world was rocked. My mom went through her treatments with little disruption to her daily life, and we moved on. In 2002, my world was rocked again as my husband was diagnosed with throat cancer and was given 20% chance of survival over 3 months. We went through 8 weeks of treatments, then 3 years of recuperation. I had to be stronger than I ever imagined, because that is what a wife does. My husband is now a 6 year survivor.

On November 15, 2007, my mom told me that her breast cancer had returned. While I was shocked, I knew we would get through it again, with God's help. But nothing prepared me for November 19, 2007, just 4 days later. My 11-month-old grandson Lukas (pictured in #8) was diagnosed with stage IV metastatic Neuroblastoma. Our world was changed forever.

Lukas has been through 8 chemos - the first round was a 72 hour continual drip! He also had 13 rounds of high dose focused-beam radiation, a peripheral blood stem cell harvest, a craniotomy to remove a tumor next to his brain, a resection of the tumor in his abdomen, two port placements, several bone marrow aspirations, and more scans, finger pricks, and tests than you can imagine.

Today, Lukas is almost 22 months old, and is considered NED (no evidence of disease). He will go through scans every three months, with the first set of scans scheduled for this week. Although he has lost his sight, he still has his spirit. Children are resilient, and he is adapting well.

Going through this with Lukas, I have "met" and fallen in love with so many other families through the Caring Bridge and Care Pages sites. I never knew before that childhood cancer was so prevalent. My heart has broken for the families who have buried their children, and has rejoiced with the children who have been declared cancer free!

We must draw attention to our childrens' plights. Without awareness, the funding will continue to diminish. Thank you, Bob, for your tireless work in helping to create awareness. Thank you, Mimi, for your advocacy for the children on the sites. You two are amazing testimonies to your convictions of eradicating pediatric cancer in our lifetime. May God bless you two, and Alan, and all of the families who have joined our "cancer family". It is not the path we've chosen; it is the path we must follow.

www.caringbridge.org/visit/lukasmacdonnell
www.anewyearofhope.org

Posted by Grandma Jena (Jena Perkins) September 28, 08 11:03 PM
653.

It's great to finally see some attention given to this serious disease! We have two sons (2 and 5), both with optic glioma brain tumors. There are no FDA approved drugs for these tumors. There is outstanding social and corporate support for breast cancer, prostate cancer, leukemia, skin cancer, etc... There is outstanding social and corporate support for heart disease and diabetes. What about childhood cancers? Is it too painful to think and talk about?

I have met many great children and their families that are battling cancer. It's time for America to recognize the problem and to do something about it. Help these brave, beautiful children survive and thrive. These are very young chidren that are suffering and dying; losing many years of their life; or at the lease sacrificing quality of life due to lack of funding, research and attention.

Please help! These kids would do anything for you. They adore adults...it's time for adults to adore the kids and recognize the problem and give back. Kids are the future.

Thanks to everyone providing awareness for childhood cancers!

Posted by Chaun Steiner September 28, 08 11:08 PM
654.

Thank you for the photos and article about childhood cancer. It is overlooked which is both sad and infuriating. Why do children have to do their own fundraising?

Posted by Marlene September 28, 08 11:09 PM
655.

I am a grandmother whose oldest grandaughter had a brain tumor that was cancer. The surgeon with our Heavenly Father's help removed the tumor but because it was a stage 3 she had to have radiation. I did not know how many children were effected by this terrible disese until it happened to us. We have to find a cure for all types of cancer because we are losing to many of our precious children. I pray that our Heavenly Father will guide all of us to do the right thing and I believe that it is to raise awareness to all people and ask for their help.

Posted by Sherry W Schuman September 28, 08 11:13 PM
656.

What incredible photographs - pictures worth many thousands of words - that tell stories of love and courage and ultimately victory - even for the children that are taken to Heaven before their time - we will beat this terrible scourge - and we need more articles and more pictures and more publicity and more resources so that families are spared this heart wrenching pain - in loving memory of Nina and her very special family.

Posted by Andy Landrum September 28, 08 11:16 PM
657.

I am the mother of a 17 year old boy battling leukemia. Thank you for running these photos to help raise awareness of Childhood Cancer. The thought of the kids that will be diagnosed this year and the treatements they will have to endure sickens me. We need research and treatments targeted to children.....now!!

Posted by Cindy Hendren September 28, 08 11:18 PM
658.

A big thank you to the Boston Globe for covering this story. September is Childhood Cancer Awareness month, yet with so many people talking about it, we have seen little press. A photo is worth a thousand words so maybe this will help. The photos are haunting and beautiful. We need a cure. Too many kids are suffering. Please help whenever you can.

Posted by Brenda Wiesman September 28, 08 11:21 PM
659.

For Ty and Aiden - the fighters in my life. I am praying for all the children and their families that are fighting for their lives.

Posted by Jessica Cegielski September 28, 08 11:40 PM
660.

Thank you for bringing attention to this ugly disease for Coleman and all the other courageous little people fighting.

Posted by Jessica September 28, 08 11:45 PM
661.

We must have faith that one day there will be a cure for this dreaded disease. Awareness is a crucial link to that hope.What poignant pictures these are. My heart breaks when I think of what these precious children have to go through. We must continue to fight the fight and to keep these children and their loved ones in our prayers.

Posted by Terrie Landrum September 29, 08 12:25 AM
662.

Again, Thank you Alan for posting these pictures...
The word needs to get out soooo much ... I never want mothers, fathers and sibblings to ever have to live in our shoes.
My 10 year old held Julian's lifeless body minutes after he passed . No kid should ever have to know how that feels ... And no mom should ever have to feel how I felt watching him do so ...
No parents should ever hear the words " Time of death " referring to one of their babies ...
Because the government doesnt , we will find the funds to find the cure .
To all of you ,little ones out there still fighting , know that WE wont give up on you , EVER....

Posted by Myriam September 29, 08 12:29 AM
663.

Thank you for helping show people that we need to do something to stop this terrible disease called cancer. Children especially should not have to go through this at their tender ages. God bless all of you who put this together.

Posted by Tara September 29, 08 12:32 AM
664.

This is so big! Yet I walk into local hospitals and see nothing about Childhood Cancer. I spent the month in shock over the lack of attention for our children. Thank you for posting and sharing your lives.

Posted by Angi September 29, 08 12:50 AM
665.

Thank you for this article to try to raise awareness of childhood cancer. Unfortunately too little is being done to find answers as to how to kill the many forms of cancer that can kill our children. With more media coverage comes more awareness of the pure hell these kids and their families go through; with more awareness comes more empathy, and once you reach the hearts of people, it is then that people are motivated to DO something to help this cause. So again, thank you.

Posted by Carol September 29, 08 12:56 AM
666.

Thank you so much for writing this article on Childhood Cancer (CC) Awareness Month. It is disappointing to all of the CC families when CCA goes unnoticed by the public. WHY can't the media and TV hear us when we plea with them to let others know that thousands of kids are suffering and dying from cancer? We need the awareness for a change to be made. Our son Christian (14) died almost 9 months ago after a brutal 20 month fight with leukemia. We are driven and dedicated to doing whatever it takes to make a change so other kids have a chance at life.

Posted by Sandy Barker September 29, 08 12:58 AM
667.

As a Mother of a 7-year old boy who was taken away from me by cancer: please, let's DO something. My son was my only little boy. We need more funding and awareness of this killer of children. Please.

Posted by Donna Childers September 29, 08 12:59 AM
668.

Easily the most powerful set of images I've seen since becoming a regular reader (or is that viewer).

Posted by Grant September 29, 08 01:10 AM
669.

Thank-you for this article. You have started the ball rolling and now with all the comments from folks it should snow-ball it's way into the hearts, minds and pocketbooks of many. Wear GOLD to support the kids. Help get them the recognition and funding they are so deserving of. No child, parent, or sibling should have to endure what these cancer families do. Without everyone's awareness and support far too many are now and will continue to be affected. Thanks for the beginning to make a difference.

Posted by jean September 29, 08 01:29 AM
670.

Thank you Mr. Taylor for this article on childhood cancer.We need to stand up and fight to try and find a cure for these beautiful children. My heart and prayers go out to everyone of them and there families.Please we need funding for research so no little child will have to suffer anymore from this horrible disease.Lets kick Childhood cancer in the rear and right out the door.

Posted by Lisa Jaco September 29, 08 02:12 AM
671.

This series has put a lump in my throat. My heart goes out to all those who have suffered and struggle to fight cancer.

Posted by Andy September 29, 08 03:16 AM
672.

My life was forever changed when I was introduced to a precious 4 year old boy named Julian Avery. I followed his care page site, fell in love with him & wept & prayed many a night for him. Words cannot descibe the sorrow that I felt ( and still do) when he passed away, never to fulfill his wish of attending kindergarten & to imagine the pain & sorrow that his parents and three brothers who all adored him felt & still do.

My heart then expanded to know & love Cody Robinson, John Eric Bartels, Coleman Larson and Kami Chauncy. Unfortunately, John Eric & Cody also passed away ( and way too many more too mention right now) I continue to watch & pray for Brave Kami (9 years old) & Coleman( 4 years old).

The things that these kids face on a daily basis is far more than most adults could handle. Yet they all have one thing in common - they don't complain , they keep a smile on their faces & they constantly look out for others- amazing kids!

Thank you from the bottom of my heart for writing this article. I hope and pray that there will be a day soon that childhood cancer has as much awareness and funding as the other cancers & I look forward to the day when childhood cancer is a thing of the past.

Posted by Loriann Ketcher September 29, 08 03:45 AM
673.

Thank you for doing this pictoral article on Childhood Cancer Awareness & giving much-needed attention to this important & under-recognized issue, in such a great (& Global) way.

Over the past few years I have followed the stories of scores of families whose worlds have been turned upside-down when childhood cancer took their children (& families) hostage – obliterating the life that was… & all-too-often taking life-itself, of their dearest & most-innocent loved ones.

Awareness brings change. Thank you for your part in bringing the issues forward, & being a voice for the children (& allowing them to speak "thousands of words" more, via their photographs)!


Let us not look back in anger, nor forward in fear, but around in awareness. - James Thurber

Care-Aware: http://care-aware.spaces.live.com

Visit CureSearch: www.curesearch.com

Join People Against Childhood Cancer: http://curechildhoodcancer.ning.com

Posted by Care-Aware September 29, 08 04:42 AM
674.

I have no words to describe the impact of these photographs...

Posted by Jess September 29, 08 05:24 AM
675.

Thank you for helping the world find out about this monster called Childhood cancer.
Hopefully this will help the wonderful little children by having more scientists investigating to find a cure for the horrible monster.

Posted by Cristina September 29, 08 05:58 AM
676.

My name is Colin Wilson and my son Dillon just past his second birthday when he became ill. It was immediately diagnosed as Leukemia and a port was placed to begin treatment. They then say inconsistencies in his test results. It took over a month and trips to Philadelphia and Boston to come up with a diagnosis of myelofibrosis which is an adult cancer. This meant that basically after consulting Drs from all over the country and every big hospital you have ever heard about, exactly 2 Drs had ever seen it in children before. One each. He was set up to have a bone marror transplant which was sort of a guess as a cure. He had a 6 out of 6 match donor from Europe and after spending a month and a half in the hospital in Hartford CT was transferred to Boston's Childrens hospital to start conditioning. Dillon was four days from transplant when his heart stopped. They don't know why and they were unable to revive him. He was the sweetest boy and never had his chance to be cured. It was lack of knowledge that delayed his treatment and left him to weak to make it through. I am writing today on what should have been his third birthday September 29th. Please donate to an appropriate fund get involved and help get this moving. Since 1976 one drug has been approved for childhood cancer treatment. One new drug. How is that possible? Why are we all not demanding more to be done. Please, this has to change.
Thank you

Posted by Colin Wilson September 29, 08 06:03 AM
677.

Thank you for giving our children a voice.

Posted by Jill September 29, 08 06:50 AM
678.

Thank you very much.

Posted by Chris September 29, 08 07:40 AM
679.

My heart aches, but it goes to the families of these and all the kids suffering any kind of health issues.

This is by far the best set you have shown.

Thank you!

Posted by Mau September 29, 08 07:56 AM
680.

Thank you for promoting awareness for these precious children.

Posted by Lisa Muldowney September 29, 08 07:58 AM
681.

I lost my 10 yr old niece to AML Leukemia last November (Taylor Baum). Precious, Priceless photos and you can almost feel what they are thinking. There needs to be way more childhood cancer awareness. Breast cancer awareness is everywhere and maybe it's because adults get breast cancer and let their voices be heard. Children get childhood cancers and their voices maybe are not as loud so let us as the adults speak up for all these children who are dieing everyday from childhood cancers and let the voices of the dieing children be heard as loud as adults with cancer. It's an awful disease no matter what the age but I don't feel the awareness for children is as great. These pictures speak 1000 words.

Posted by Cheryl Czajka September 29, 08 08:20 AM
682.

Thank you for your article/pictorial on Childhood Cancer. So much more needs to be done to find a cure for this beast!

Posted by Debbie Pyszka September 29, 08 08:24 AM
683.

Thank you publishing this article. My daughter Kiersten Hickman-Perfetti died 4/23/08 after 3 years and 9 months fighting Rhabdomyosarcoma. She had over 80 round of chemo, 72 rounds of radiation, 2 craniotomies and open heart surgery as well as minor things like blood clots an kidney stones. throughout her struggle, she lived life! She skied in Montana in January 08 at Camp Mak-a-dream a camp for young adults with cancer, she made a list of things to do before you die and did most of them. Coach Stringer of the Rutgers Women's Basketball team presented her with her own Jersey and made her an honorary member of the team.
Please continue to highlight the need for pediatric cancer research. Kiersten wanted this so badly. We are doing Kier's Kidz in her honor and donating money to Alex's Lemonade Stand where 90% of the money goes for pediatric cance reserh.

Posted by Mimi Hickman-Perfetti September 29, 08 08:24 AM
684.

Thanks for the story!

Posted by Missy September 29, 08 08:30 AM
685.

My name is Melanie and I am from Miami, Florida. I was never really aware of this beast until it hit close to home. Just this past year 2 of my friends have been faced with this beast. There babies are suffering and going thru all kinds of treatments and pain they should not be going thru. Dustin age 6 Leukemia and Princess Amanda age 1 AT/RT!!! These kids should be playing and laughing, running and skipping. They should not be lying in bed connected to machines!!! Getting medicine that might make them better or might not do anything at all. There is nothing that can cure these kids 100%. Why aren't we aware of these things and all these kids that are going thru this and all the kids that have earned there ^^^wings^^^!!! Why?? We need to spread the word so that they can find a cure!!! Aren't kids "Our Future Leaders of America"?? So why are they dying and nothing is being done to stop it??? Let’s stand up and fight for our babies. No one is safe from this. It could happen to any of us with no warning!!! Let fight for our babies!!! Let’s pray for all of those that are affected as we speak!!!

na

Posted by Melanie Cadet-Hernandez September 29, 08 08:46 AM
686.

Thanks for taking your time to post the pictures. I don't understand why they are not wanting to do more for these kids. The kids are the future they should be healthy & not have to experience all this pain that they have to go through.

Posted by Patricia September 29, 08 08:46 AM
687.

What a great job covering such a terrible, terrible disease as this! Thanks for letting these children speak through your photos. We NEED A CURE!!!!!! There is still soooooooooo much research to be done! Thanks for helping spread the word!

Posted by emy joe September 29, 08 08:46 AM
688.

Thank You for helping to make everyone aware of what children go thru with cancer. Praying for all the children and their families that they soon will find cures.

Posted by Pam McDaniel September 29, 08 08:53 AM
689.

Thank you for sharing these children's stories. There are so many more that aren't being told and no child, parent, or sibling should have to endure what these cancer families do. Thanks for raising awareness and let's find a cure.

Posted by Christie Schoenrock September 29, 08 08:56 AM
690.

Thank-you for doing this article. Awareness is the key to finding cures.

Posted by Karla September 29, 08 08:56 AM
691.

This would be my second post and I was shocked to see the huge respond .......Thank you !!!!
I will leave you all with this poem that we love and I think it fits right in here with all these wonderful messages.
My Purpose
www.ourlittleprincess2002.com
I have cancer. There isn't an explanation as to why I became sick. All I know is God has a plan for each of us and for each plan there is a purpose. Some of us know what our purpose in life is and others will never find it. Then there are those like me who accomplish it without ever realizing it.
My journey with cancer will not and has not been without purpose. It is through my illness that I have helped doctors understand this disease a little more so they may find a cure. It is through my illness that I have opened the eyes to those around me to how precious life really is. Something we all to often take for granted. It is through my illness that some of those around me have realized that life is too short to be afraid of our feelings.
My cancer has been beaten back by the power of love. It is the most powerful of emotions, one not to be afraid of, but to be embraced. To be loved by someone unconditionally and completely is to reach into your soul and feel warmth. It is through my illness that I have shown there is no guarantee for the future--only dreams for it.
Whether the future is just another day or another 75 years, we should all dream big and live fully everyday. It is through my illness that I have seen the strong cry, only to find more strength. It is through my illness that some of us who haven't talked to God in a while have once again begun to pray. It is through my illness that I have joined the hands of those familiar to those of strangers, to form one long chain. I have already accomplished so much in such a short amount of time and each day I continue to touch the hearts of many.
That is my purpose.

Sincerely


Posted by Barbie September 29, 08 08:58 AM
692.

God have mercy! My heart feels so heavy and the knot in my throat is their to stay. These images will be imbedded in my memory forever. I will think of these children every time I look in the face of my own little one. I pray a prayer of healing, hope, strength, and comfort over these children and their family. Thank you for bringing all of this to light. We need to know things that we can do to help. Many people think they can not make a difference or help, but there are things we can do. We absolutely need more awareness. We need more testing. Let's keep fighting! And let's always remember.

Posted by Michelle Free September 29, 08 09:00 AM
693.

As a former journalist, I know the goal is to have meaningful stories that impact people long after the newspaper is closed or the tv is turned off... This story did just that. No one can look at these precious faces and ever forget them. Especially little Julian (#14) a four year old with the weight of the world upon him- battling a disease that eventually took his life. He should have been playing on that slide. I just wonder what thoughts were going through his mind as he sat there?

Posted by Karen September 29, 08 09:04 AM
694.

Thank you so much for these beautiful pictures and inspiring article. It makes you want to go out there and do something, ANYTHING to help the children. There needs to be more funding and more awareness of this monster that is hurting our children, and this story has opened our eyes. Thank you SO MUCH.

Posted by Gina Rodriguez September 29, 08 09:14 AM
695.

Thank-you for running this article and raising awareness!

Posted by Scarlett September 29, 08 09:15 AM
696.

Thank you for caring and sharing. We can't forget these children or the thousands of others just like them across the world. We are a nation of change and action. We right wrongs and provide assistance across the globe. Surely we can find the money to increase research into a cure for the #1 disease killer of our children. Awareness is the key. Thank you for helping to spread the word. We are entrusted with our children to care and protect them and that includes the really hard and scary stuff like cancer.

Posted by Cindy Mann September 29, 08 09:19 AM
697.

These pictures are heartbreaking and amazing....so much money to fund lots of trival things, but saving our children doesn't seem to be a national priority!!!!

Posted by Colleen September 29, 08 09:20 AM
698.

I have a cousin that was diagnosed with Medulloblastoma in May 2008. It is hard to see her fighting this horrible disease and to know that there are so many other children out there fighting right along with her. We need to find a cure for childhood cancers.

Posted by Amanda Wessels September 29, 08 09:22 AM
699.

Thank you so much for your post on childhood cancer. This is a horrible disease and needs to be stopped! More attention needs to be paid to our little warriors and the fights they are fighting. Our children are our most important asset. Keep up the fight. We will win this!

Posted by Karrie Long September 29, 08 09:24 AM
700.

This is truly touching. We need to keep raising awareness to do our part in battling this monster. In working for Make-A-Wish, I have been touched all too many times by these amazing children. We need to raise awareness and get the deserved funding so that I can hopefully be out of a job and these children can have their lives back.

Posted by Laurian September 29, 08 09:25 AM
701.

Thank you for bringing attention to the cause! While heartbreaking, the pictures are beautiful. Hopefully together we can make a difference!!

Posted by J. Barber September 29, 08 09:27 AM
702.

Thank you for sharing pictures of the BRAVEST WARRIORS ever. I continually pray that a cure is found soon, there are far too many of our precious children who are lost to this dreadful disease. LET'S ALL CONTINUE TO SUPPORT NATIONAL CHILDHOOD CANCER RESEARCH, by volunteering, donations and awareness.

Posted by Dawn P September 29, 08 09:32 AM
703.

Thank you for the photos. It is nice to see someone worry about the children and the families that are affected by this terrible disease. NO parent should have to bury their child. It just isn't how God intended for the grand scheme of things to be.

Posted by Nickie September 29, 08 09:32 AM
704.

Thank you for highlighting childhood cancer awareness month. It seems that so many other cancers steal the spotlight and raise the most money, but this one is the one that takes our most precious treasures. We need to raise awareness and funds for this merciless disease!

Posted by Lindsay Phillips September 29, 08 09:38 AM
705.

This was a very moving pictorial article. Thank you for publishing it and increasing awareness of children's cancers.

Posted by Steve Montgomery September 29, 08 09:39 AM
706.

Thank you for fighting and giving hope & love to all those in the battle!!

Posted by R. Fatla September 29, 08 09:47 AM
707.

THANK YOU! THANK YOU! THANK YOU! It is about time we see an article like this. So many people know this is happening to our kids, yet so many have no idea what they are going through. They have no idea how these kids are suffering. We need to let America know something has to be done....Pediatric Cancer needs to publicized and gold ribbons should be in full view every day! We need funding.......we need a cure!!!! Help save our little ones.

Posted by Kelly T. September 29, 08 09:47 AM
708.

I simply cannot believe the number of children with this horrible disease. I have been advocating all month for childhood cancer awareness and am actually participtating in a walk on Saturday, October 4th.

Thank you so much for publishing the article in an attempt to raise the awareness of these many suffering children. I was in a BJ's store on Sunday and couldn't help but notice all of the "breast cancer awareness" symbols and absolutely nothing regarding childhood
cancer awareness. They even contribute to breast cancer awareness/research for each pack of PAMPERS sold...come on now, PAMPERS sales...this is a no-brainer as this is definietely an infant/child commodity. Again thank you for the publication.

Posted by Anonymous September 29, 08 09:51 AM
709.

Thank you for helping us tell the world about our children and the terrible ordeal of fighting childhood cancer. I never heard or knew of Ewings Sarcoma until my son was diagnosed. We need to educate everyone about all childhood cancer. As adults we all know about the importance of breast and prostate exams. No more funding has to go to this. Lets get the money where it is needed to give our sons and daughters a better chance of surviving the treatments and disease of cancer..

Posted by Linda Reagan September 29, 08 09:54 AM
710.

I simply cannot believe the number of children with this horrible disease. I have been advocating all month for childhood cancer awareness and am actually participtating in a walk on Saturday, October 4th in Fredericksburg, VA.

Thank you so much for publishing the article in an attempt to raise the awareness of these many suffering children. I was in a BJ's store on Sunday and couldn't help but notice all of the "breast cancer awareness" symbols and absolutely nothing regarding "childhood

cancer awareness. They even contribute to breast cancer awareness/research for each pack of PAMPERS sold...come on now,
PAMPERS sales...this is a no-brainer as this is definietely an infant/child commodity. Again thank you for the publication.

Posted by Anonymous September 29, 08 10:08 AM
711.

Cancer is always horrible, but cancer in children is almost Inconceivably devastating. I hope that articles like this can translate into more funding for research to look for treatments and ultimately a cure.

Posted by Chris M September 29, 08 10:21 AM
712.

We must do everything we can to eradicate childhood cancer. These kids need us to speak and act for them. We are losing to many young lives and must stop it NOW.

Posted by Sharon Gauvin September 29, 08 10:23 AM
713.

THANK YOU, THANK YOU, THANK YOU.
You have given a voice to sooooooooooooo, many little warriors that are not being heard. It is very heart breaking that our kids are not getting enough press or media attention.
In honor of Madi Meacham, Cryslyn Hannah, Baby Carson Terrell, and Little Alexis Hatchett. In loving memory of Caleb Larson, Julian Avery (#14), and John Eric Bartels.

Posted by Ann Chambers September 29, 08 10:29 AM
714.

Thank You for this article. I walked beside a family last year who lost their beautiful daughter Taylor to AML Leukemia after 7 mos of agonizing treatment. I also followed Paige who passed the same month. What warriors these children are and through all the hope of survival they lose the battle here on earth. But we can work harder to find a cure and to fund the research without that effort and funding so many of our most beautiful and brightest will be lost to us.

Posted by Sheryl Greene September 29, 08 10:42 AM
715.

These pictures should make others be more aware of childhood cancer. It is something that needs to be recognized NOW for our children.
Thank you for putting these pictures on the internet, my heart goes out to each and all children with this monster desease!! There are way too many for sure!!
I continue to pray for all children with this dreadful desease.

Posted by Judy September 29, 08 10:43 AM
716.

Thank you.

Posted by Jan Kuhlers September 29, 08 10:49 AM
717.

THANK YOU FOR BRINGING AWARENESS TO Childhood Cancer

Posted by Janine September 29, 08 10:51 AM
718.

Thank you for the graphic, touching pictures. No child should have to endure this. September as Childhood Cancer Month, and gold ribbons should be as obvious as pink ribbons and breast cancer month. Our children are our treasure and our future. Thank you for this spread.

Posted by Sherry Rauter September 29, 08 10:52 AM
719.

Thank you for spreading the word. If the pictures dont get them I dont know what will. Our children need all the support and recognition they can get. We have to conquer this monster.

Posted by Tammy September 29, 08 10:53 AM
720.

Thank you for this article. We need all the awareness that we can get for the children and their families. Let's all go to Chilis today.


Posted by Tommy Jean Jones September 29, 08 10:53 AM
721.

Thank you so much for your article. There needs to be so much more awareness for this topic! May others follow your lead and hopefully realize just how important funding is for this nasty monster!

Posted by Sheila September 29, 08 10:57 AM
722.

Thank you for drawing attention to Childhood Cancer Awareness Month. I followed Mimi Avery's postings on Care Pages as her son Julian (photo #14) endured chemo, radiation, MRI's, and countless needle pokes in an attempt to conquer a brain tumor. Julian wanted so much just to "be five" years old, but died before his fifth birthday.
AJ Piniewski's (photo #10) dad says it best - "why should kid's have to sell lemonade (Alex's Lemonade Stand) and their parents get their heads shaved (St. Baldrick's) to raise money for a cure?"

Posted by Jamie McDonald September 29, 08 10:59 AM
723.

Thank you for bringing awareness to Childhood Cancer. If anyone knows somebody dealing with this horrible disease, it is heartbreaking.

Posted by Candace Bold September 29, 08 10:59 AM
724.

Thank you for bringing awareness to this horrible disease of cancer. We need to make sure these children get the help they need!!! We need to make everyone aware of their struggles and get them funding to stop this pain and heartache!

Posted by Sara Lambert September 29, 08 11:00 AM
725.

WE NEED A CURE!

Posted by PAM September 29, 08 11:01 AM
726.

Our Children are the Future and we have to take a stand for them and to bring more Awareness to Childhood Cancer. All I see is Pink Ribbons and things in the Month of September not the Gold Ribbons. Lets keep the Pink for October and the Gold for our Children in September. Where is the Gold? Hardly anywhere except for us parents/grandparents who are living through a nightmare with this beast. My granddaughter Lenzie (4 years old) has been through the cancer ordeal and cancer free. Hoping it stays that way. Please lets all help to raise awareness for our children against this awful beast and fight for a CURE. I have wrote to a few companies like Pampers, Johnson & Johnson in hopes that during the month of September they could add Gold Ribbons on there Products to bring more awareness. If more people would write to them then maybe we could get this done. All the Pictures in the article are so very touching and heartbreaking to see what our precious children have to go through.

Posted by Sue Jeffries September 29, 08 11:02 AM
727.

THANK YOU FOR BRINGING AWARENESS TO CHILDHOOD CANCER. IT BREAKS MY HEART TO SEE THESE CHILDREN AND THEIR PARENTS GO THROUGH ALL THAT THEY DO.

Posted by SHERI SHEERING September 29, 08 11:04 AM
728.

Thank you for the photos. I know some of these children and the hurt that is felt when they leave us is huge. I have a four year old with Neuroblastoma and he is yet one more motivation for us to keep searching for cures so that these kids don't have to hurt.

www.elihorn.com

Posted by Aaron Horn September 29, 08 11:05 AM
729.

Thank you for doing this article and publishing the photos to make childhood cancer real! Much more needs to be done. Please help in this fight as the media is the only way to get attention that the research is way under funded. Thanks again for your efforts!

Posted by Sheryl Williams September 29, 08 11:09 AM
730.

Thank you for bring awareness to this cause - it needs to stand out just like the pink does with Breast Cancer. Gold - here we come!

Posted by Carrie Coke September 29, 08 11:11 AM
731.

Thank you for this article. The pictures say it all. If anyone can look at these and not wonder why there is no cure, they are heartless. A cure must be found for these children. Each day there is a another child whose parents are being told "There is not anything left to do. Take you child home and love him or her while you can." How can we hear this day after day and not have childhood cancer's cure the frontrunner? They and their families need us desperately.

Posted by Shelby Scott September 29, 08 11:11 AM
732.

Thank you for the article, and bringing AWARENESS to Childhood Cancer! We NEED to get the message out...... way to many kids are suffering from this beast. Sadly, so many are not fighting on this earth any more.

Posted by Lisa Turner September 29, 08 11:12 AM
733.

Thank you for posting these pictures of ALL these beautiful kiddos!

I SO miss the Little King Julian (#14)

Posted by sarah September 29, 08 11:12 AM
734.

Thank you for helping childhood cancer gain the attention it needs so that funding and energy can be directed to better treatments and cures.

Posted by Joan Dunn September 29, 08 11:13 AM
735.

I was introduced to the Carepage website when I followed Miles Levin. Since then I have followed tmany of these childrens journeys. Being in my 40's it would be sad if I were diagnosed with cancer but you know what? I would be ok. I would rather fight the monster a trillion times over before I would ever want to see my children fight for their life. I applaud the organizations that have brought cancer awareness to the public but I believe childhood cancer should be in the front of finding a cure!!!!!!!!!!!!!!!!!!!!!!!!!!!!! These children are here for such a short time and it seems most of that time they are fighting for their life. That shouldn't be.

Posted by Bridget September 29, 08 11:14 AM
736.

Thank you for this article. Hopefully it brings awareness to more people. Somebody out there right now, has the training, intelligence and drive to find a CURE for childhood cancers. Let's make sure the funding is available for that person(s).
I was shocked when my 13 year old nephew was diagnosed with a deadly sarcoma. And when I saw him endure the treatment for that cancer, and survive it. I was shocked that as soon as all the surgery, radiation and chemo was over he died anyway one month later. I was equally shocked to see how many brave kids and their families shared the same pediatric oncology floor in just our community. I did not know that cancer was killing so many kids.


Posted by Marie September 29, 08 11:16 AM
737.

Thank goodness for the story. They are the heros that fight more than they should have to, but keep on. We can't forget them!!

Posted by Heather September 29, 08 11:21 AM
738.

Thank you for this article; my 8 year old granddaughter was diagnosed with a brain tumor (Ependymoma) in April. Until then I had no idea how many sweet children are diagnosed with cancer every single day.

By the mercy of God our little girl is doing well; and I am so very grateful to God, her doctors, nurses, hospital, etc; however she was mis-diagnosed for months! There needs to be more pediatic cancer awareness. I agree with an earlier statement , with more awareness there is more empathy. We need to see more TV specials like the "Stand Up for Cancer" special.

Until cancer has touced your life....especially the life of a child, it is just hard to understand how devasting it is for families. Many families suffer not only emotional but financially also...we need to help them!

Posted by Jeanie Preston September 29, 08 11:23 AM
739.

Thanks so much for increasing awareness on childhood cancer!!!!!!!

Posted by shana September 29, 08 11:23 AM
740.

I agree with all the other comments left. Cancer sucks especially when it's a child. There are a lot of lives taken way to soon because of the horrible disease. Everywhere you look there are things promoting breast cancer, you see NOTHING for Childhood Cancer. Thank you for the article along with the many pictures. More people need to become aware.

Posted by Rebecca Davis September 29, 08 11:23 AM
741.

My son has a brain tumor that the main treatment has not changed in 20 years. Only 10% of kids make it more than 12 months. Making the world more aware of Pontine Gliomas (a cancerous brain tumor in the pons of the brain) could really help push for more research for this disease. Childhood Cancer needs more funding as more and more child develop it every year. It has to stop, more research and money= more treatment options for our children.

Posted by M Sanders September 29, 08 11:26 AM
742.

My son, Mac, was diagnosed with Stage IIIB Hodgkins disease on Sept 3, 2008. I keep hearing how rare childhood cancer is, if it is so rare, why am I seeing 5-8 kids in the waiting room at my pediatric oncologist during every visit? The reality is that too many kids are suffering from this disease around the world and WE are responsible for finding a cure. For the sake of all of our children and your future grandchildren, let's not delay. Let's get everybody out of their comfort zone and start participating in the cure for childhood cancers.

Posted by Jennifer Killewald September 29, 08 11:27 AM
743.

My 7 year old son Daniel was diagnosed with Burkitt's Lymphoma in Feburary 2008. Thankfully he is finish with his chemo and feeling well, but I had to witness my child suffer, something a parent should never have to do. We need to find a cure for childhood cancers. We need money to do this. We need to get our voices heard. The Big Picture is just a start!!

Posted by Dawn Bentivegna September 29, 08 11:31 AM
744.

Incredibly heart-wrenching photos! Thank you for posting this article. More awareness needs to take place for people to really understand this awful disease.

Posted by Terri P. September 29, 08 11:34 AM
745.

Thank you so much for the article. I personally do not have a child with cancer but am continually inspired by the carepage families. It is my prayer that childhood cancer get as much funding as breast cancer or more. This article was a step in that direction. THanks again.

Posted by Krystal September 29, 08 11:37 AM
746.

Thank you for taking the time to print an article about childhood cancer and for giving these families and children a voice.

Posted by Emilia Lopez September 29, 08 11:47 AM
747.

God bless these wee warriors.

Posted by Jan September 29, 08 11:47 AM
748.

I want to say THANK YOU!!! for taking the time to cover this horrible disease. I lost my gorgeous, previously healthy 11 year old son STEFAN (http://mysite.verizon.net/BlueTruly) last year from a pediatric brain tumor diagnosis. For gliomas - there is NO cure - and treatment trickles down from adult trials. The side effects of the drugs used to buy time for our children are often worse than the cancer itself. We need help - we need American's to know it is not rare any more - way too many children stricken with and dying from cancer. It is not sick or "inferior" children stricken - it is ANY child - It could be your child. It was MY child - my family - and we need to make a difference for other children down the road.

Posted by B'Lynn, Proud Mommy to Stefan, Forever 11 September 29, 08 11:50 AM
749.

It's hard to believe that something so important gets so little attention. Sad is the only word I can think of.

Posted by Nick September 29, 08 11:52 AM
750.

I am a grandmother who lost her 15 year old grandson on February 12, 2008. Until you have sat and helplessly watched your loved one not only suffer from Leukemia, but also contract a flesh-eating bacteria (Fornia Gangrene), you cannot imagine the hell one goes through. Tyler was diagnosed on January 21, 2008 and passed on February 12, 2008 and there was nothing I nor his mom, dad, or sister could do to help him, except pray and be there with him.
We have to kill the beasts that are taking our children so young. Please let everyone you know, what these cancers can do to our children and contact your government leaders to allocate more funding to fight this disease.

Posted by Joanne D. Cross September 29, 08 11:54 AM
751.

Incredibly heart-wrenching photos. Praying for more awareness as kids & families battle childhood cancer. In memory of Paige Stibgen & Taylor Baum.

Posted by Kim Gunderson September 29, 08 11:56 AM
752.

We definitely need to RAISE AWARENESS about SEPTEMBER being CHILDHOOD CANCER AWARENESS MONTH! Main stream media NEEDS to be involved! What can we EACH do in our own Communities? Are there POSTERS to download? YELLOW Ribbons for sale somewhere? I am willing to WORK MY CITY next SEPTEMBER to make a difference in the lives of these children!
I have 3 beautiful healthy children, and for that I am so thankful! But my life has been touched by so many children, that I am PASSIONATE about this disease, and RIDDING IT from these young lives!

Posted by Marcy Stout, Taylorville, IL September 29, 08 12:08 PM
753.

I look at these children with tears in my eyes and grief in my heart. Their journey has been difficult. I commend you for bringing childhood cancer awareness to the table across our nation. Please continue to do what you do to help these children. Journalism is a wonderful tool which can inspire millions to join forces to rid our world of such terrible cancers that invade our young. Props to you and the photographer who told some amazing stories but most importantly props to the children in battle ... May God's blessing and healing rain down on each and everyone of them.

Posted by Anonymous September 29, 08 12:09 PM
754.

Save the kids-Support Childhood Cancer!!

Posted by Leslie Rowe September 29, 08 12:09 PM
755.

Mr. Taylor, thank you for writing this article and for bringing awareness to Childhood Cancer. Please continue to follow stories of children who are battling this horrible disease so that everyone throughout the world becomes aware of the lack of research that is not being done to help children. You have the resources to make this issue be known! I beg you to take on this mission and help these innocent children.

Posted by Suzanne September 29, 08 12:09 PM
756.

THANK YOU, THANK YOU, THANK YOU,....for bringing AWARENESS to CHILDHOOD CANCER. NO CHILD should have their name mentioned in the same sentence with the word CANCER. We've all got to come together to BEAT CANCER!!!

Posted by Gaye Phillips, Oxford, AL September 29, 08 12:13 PM
757.

Thank you so much for publishing this article. I am all the way over in San Diego California and I read it and am thankful for it. We need funding and support for our children battling cancer. We need awareness. We need these beautiful faces to be seen my as many people as possible. I know people out there care. I know they will help. They just need to know how. Is there a way to get this to a syndicated paper? Do you have sister papers elsewhere? Please help us continue to spread the word. Thank you again and please visit this subject again.
I do this for my son, Greg Muskewitz and all of the other children and young adults.

Posted by Diane Rohrbach September 29, 08 12:15 PM
758.

Thank you for raising awareness for our KIDS! They are our future and not near enough is being done for them. Much is being done for adult cancers, but who is looking out for our children? Thousands of children are suffering each year right here in the US from Cancer and no new cures are being found for them. Parents are watching their children suffer and are begging God to let them suffer and not their child. 7 families every day are having to say good-bye to their child due to cancer. I know, I am one of them. We lost our oldest daughter to cancer 5 years ago, just one day after her 8th birthday. She spent her last birthday in a comma, she spent her last Christmas and New Years in PICU. These are not memories of Christmas and birthdays parents and children should have to have. PLEASE HELP continue our fight for the children that are fighting cancer now and for the angels that have lost their battle here on earth, so other families do not have to watch their children suffer with no hope of a cure, so no other family has to say good-bye to their precious child.
Thank you, Kim, forever mom to Angel Marissa Faith

Posted by Kim Burghart September 29, 08 12:16 PM
759.

I am a mom to a wonderful son who was diagnosed on his thrid birthdaqy we are 4 years off chemo and still to this day suffering terrible side effects from all the chemo some days the side effects are worse then the cancer. We as a nation need to step up to the plate and take notice how much our children are suffering. I started a company Beads of Hope (R) to raise awareness through jewelry with the hope that when they wear my jewelry they will remember the children that are diagnosed everyday and suffering. Hopefully one day it will be in stores nation wide and we can raise even more funds for childhood cancer research. You can read my son's story and struggles on our site

Staci
http://www.beadsofhope.com

Posted by Staci September 29, 08 12:18 PM
760.

19 photographs. 16 beautiful children. 16 lives changed or stolen by some form of pediatric cancer. 16 families affected. The ripple effect will continue. We need more awareness, more funding, more resources available to families. Thanks for spreading the news.

Posted by Sheila September 29, 08 12:20 PM
761.

Thank you for opening eyes to chidhood cancer....please keep this topic up and going....it is too easy for people to foget!!!

Posted by Lisa LaFollette September 29, 08 12:28 PM
762.

It's so horrible to think of cancer taking the life of a precious child that most people do not want to even think about the possibility. I was one of those before reading about Coleman and his wonderful family. It's still excruciatingly painful to think about what a tragedy it would be if either of my beautiful grandchildren had to fight this horrible disease. But I can at least understand a small part of the struggles that Coleman, his familiy and others face every day. Cures need to be found for all the childhood cancers now!

Posted by Anonymous September 29, 08 12:29 PM
763.

I see my child in each of your photos, she too is valiantly fighting this horrilbe disease. Thank you for bringing awareness to the need for more to be done for our children...no parent should ever have to watch their child suffer this disease, WE NEED TO FIND A CURE!!!!!

Posted by Kelli September 29, 08 12:34 PM
764.


What beautiful children and young people. Our nation needs to
see where our commitment should be focused. Thank you for
these incredibly touching pictures and comments. Our family has
felt the heartbreak of lukemia - with the loss of our Shelby Rodriguez.
Childhood cancer will always be foremost in my thoughts and
prayers. Ann Sahadi

Posted by Ann U. Sahadi September 29, 08 12:37 PM
765.

Thank you so much for caring about our children (they all are "our" children) enough to bring awareness to childhood cancer.
Keep up the good work.

Posted by Diana September 29, 08 12:39 PM
766.

Thank you so much for the photographs of these children. It is time to get more awareness of this horrible disease that is changing our children's lives forever!!
I hope someday we can see as many gold ribbons in the world as we see pink ribbons.

Posted by Beth Marston September 29, 08 12:40 PM
767.

Thank you for the article and photos here. My four-year-old daughter is happy and healthy, but I look at that differently than I used to because I took it for granted. Tomorrow it could all change. I have followed a few CarePages for about a year now, and I try to count my blessings every day and not take anything for granted anymore. Too many have been like me - going through each day blind to and ignorant of the horrors and pain these precious young ones must endure because of a lack of funding and research. Hopefully your article will open many eyes and help make a difference and help other media outlets pay attention. There is no reason things can't change tremendously by the time next year's Childhood Cancer Awareness Month rolls around in Sept. 2009.

Posted by Lora Cowan September 29, 08 12:40 PM
768.

Thank you for helping to raise awareness of childhood cancer. Childhood cancer awareness needs to be out there just as much as the pink breast cancer awareness needs to be. These are our kids!!!!!

Posted by Kami Missant September 29, 08 12:41 PM
769.

Thank You for bringing Childhood cancer to everyones attention. God Bless the families who live with this every day.

Posted by Teresa September 29, 08 12:43 PM
770.

My heart hurts for the families and friends that have been affected by this horrible disease. Thank you so much for helping to spread awareness.

Posted by Sam Stark September 29, 08 12:57 PM
771.

Thank you for making so many people aware of the faces of childhood cancer. This disease in children is under funded and under researched. We need a public outcry for more help for our precious children who through no fault of their own, becomes victims of this dreaded disease.
Keep on bringing awareness for the need to do more for our kids.

Posted by Susan Wolf Sternberg September 29, 08 01:02 PM
772.

More needs to be done to protect and save our children. Let's find a way to get the job done.

Posted by Carrie Heck September 29, 08 01:03 PM
773.

As a parent of a 2.5 year olf with an inoperable brain tumor, I am horrified at the manner in which this country treats children with cancer. As one of the leading causes of death for our children, it is an outrage that more is not done to fund reseach and treatment options. The month of September has essentially passed by and there has been very little mention of the National Childhood Cancer Awareness month. I thank you for mentioning it and highlighting it. We do not need a month to raise awareness, we need every day to raise awareness. We need to ensure that our elected officials are aware of the plight of these children.

Thank you for the article.

www.caringbridge.org/visit/teamalexis
www.justonemoreday.org

Posted by Jonathan September 29, 08 01:05 PM
774.

Thank you for this article and raising awareness by touching people's heart through photographs. A photo is worth a thousand words.

We are currently battling a brain tumor in our 6 year old daughter. She is at St. Jude Children's Reseach Hospital and is doing well and almost through her chemo. St. Jude is another place that deserves much recognition. Please support them as well.

Posted by C September 29, 08 01:05 PM
775.

my daughter Lizzie is a 6 yr survivor of an aggressive brain tumor..noone can understand but other families, but your pictures help the world see as best they can. How sad is it that I know so many of the children posted here...
our lives are forever "before" and "after...
thank you

Posted by mary alice Dorschel September 29, 08 01:09 PM
776.

Thank you so much for doing this article on Childhood Cancer. Awareness brings funding and funding brings a CURE!

My heart breaks for all the children today who are going through treatments and the families affected by childhood cancer.

I lost my grandson, John Eric Bartels, to Neuroblastoma at the age of 23 months.I stand strong on doing anything I can to get awareness out for Childhood cancer and I truely appreciate you doing this article! These children are precious and deserve a chance at life being kids, not patients going through treatments adults would have a hard time facing.

God Bless you!

Posted by Carol Brothers September 29, 08 01:10 PM
777.

Thank you for raising awareness of the ugliest, most cruel beast of all--that of pediatric cancer. Everyone reading this needs to emphatically inform their state representatives to get busy and support and pass the legislation needed for funding and research if they care to stay in office. These are our sweet babies we are losing by the thousands daily. There IS a light at the end of the tunnel and there IS a cure out there somewhere that is yet to be discovered...could be just around the corner. Let's all get hot and make it happen! Jamie

Posted by Jamie Swift September 29, 08 01:13 PM
778.

Thank you & well done!! Thank you for raising awareness of Childhood Cancer. These children need our help. For the thousands of children who are fighting now and the thousands of children who will be diagnosed this year - they're fight should not be in vain. We need a cure for each and every one of them now. And for all the childhood cancer survivors who are dealing with the battle scars from the treatment that saved them, we need to take care of them too.

mom of a 9 year old childhood cancer survivor

Posted by Maria September 29, 08 01:23 PM
779.

My heart breaks for these children and their families. Thank you for bringing this to light for everyone.

Posted by J. Kasey September 29, 08 01:26 PM
780.

We desperately need a cure for childhood cancers....I say "cancers" because there are many, many different types that mainly affect only our children. Many of them are diagnosed when the disease is already in the later stages and there is little hope of a cure and many of our sweet, innocent little ones & their families courageously battle this horrible disease....only to die in the end. We need more research dollars specifically designated to childhood cancers. Thank you for putting a face(s) on the suffering these children & families endure and spreading the awareness of this horrific disease. My hope is that you would follow a few of these families during their fight and publish it as an on-going series. I believe, just from the responses you have had to this one article, you would be surprised at the readership.

Posted by Sybil Bowman September 29, 08 01:27 PM
781.

Thank you for writing this article. You have a wonderful opportunity to spread the word of Childhood Cancer and to help raise funds for the research.
We hope this will not be the last thing you write on this subject.
May God bless you and all the families touched by this article.

Posted by Jessica Lovett September 29, 08 01:28 PM
782.

Thank you for reporting on this important issue. Unfortunately, so few realize how many children are affected by cancer. We need to work together to inform everyone that children do get cancer. Most of us find out the hard way. Together we can get the word out and help find help for the new 46 children who will be diagnosed everyday.

Posted by Margaret Tomaska September 29, 08 01:30 PM
783.

Thank you so much for the beautiful photos. Awareness is the key in helping children survive this awful disease. Thank you for giving the children a voice! My daughter was diagnosed with Leukemia on 6/16/2008, 2 weeks before her 14th birthday and one week after 8th grade graduation.

Posted by Pam Wildeboer September 29, 08 01:31 PM
784.

Thanks for sharing your families with us . May God bless each one of you.

Posted by W. Lovelace September 29, 08 01:35 PM
785.

Thanks to all of you for raising awareness for childhood cancer! God Bless!

Posted by Lindsay Kammerer September 29, 08 01:38 PM
786.

Thank you for running this article. Awareness has to be raised about this horrible disease! These are precious children!!! I lost my 7 year old son to a diffuse pontine glioma, one of the types of brain tumors 15 months ago. He was my only son and my hero. Oh, how I wish I could hold him in my arms once again.

www.justinfund.com
www.icouldbeyourchild.org

Posted by Jeff Bissett September 29, 08 01:39 PM
787.

Thank you so much for helping to raise awareness of Childhood Cancer. Our daughter lost her 23 month battle after a very courageous, heroic journey...she was 16 years old when she earned her wings....we are glad that the techonology has grown considerably over the years but it should be growing faster - not to take away from any other form of cancer as I have personally lost close family and friends to adult cancers but if you lived in the hospital pretty much like we did you see such tragic suffering by this young children....their lives are taken away from them in just the snap of a finder.

Posted by Kim Anderson September 29, 08 01:43 PM
788.

Thank you for bringing awareness to childhood cancer

Posted by Sarah Dean September 29, 08 01:46 PM
789.

Childhood cancer does not receive nearly enough attention. Thank you for your article in attempts to raise awareness. Cancer is an ugly monster that NO ONE should ever have to face, especially innocent children. Spread the word!!!!!!!

Posted by Erin September 29, 08 01:48 PM
790.

Thank you for this article to raise awareness of childhood cancers. We lost our beautiful 11 year old son to a brain tumor and still miss him terribly. I had no idea how many people have to go down this road...it is more than people know. Our public is very ignorant of how painful and damaging our current cancer treatments are...it is more barbaric that we practice them on our children. We need to find a better more humane way to treat a body that has an immune system that needs to be fixed. I would like to have Dr. Nobuto Yamamoto's discovery of the Gc protein made public knowledge to help save our children.

Posted by Anonymous September 29, 08 01:54 PM
791.

I work at United Blood Services in Ventura, CA. I had the pleasure of helping Krista Romero and her family put together a blood drive and bone marrow registry event while she was battling Leukemia. Her strength and courage throughout her battle was a true inspiration to me. She lost her battle in June of 2007. I still think about Krista and her Mom, Lorraine, often. I hope that raising awareness will help to fund the road to a cure so that more children can win their battle and beat cancer.

Posted by Elizabeth Nees September 29, 08 01:56 PM
792.

Thank you so much for publishing this article we need to educate the public and raise more money for finding cures. My 12 year old daughter was diagnosed with Acute Lymphoblastic Leukemia in February of 2007, she is currently receiving treatment and will not be completely done until May 2009. It has been a long battle not only with the treatments, but with the education system as well. I am tired as are so many other parents. So many are not even aware that September is childhood cancer awareness month? why? why? why?

Posted by Vickie September 29, 08 01:59 PM
793.

Thank you very much. I have a 2 year old daughter who is currently fighting Leukemia. She was diagnosed on July 26th 2008. Our newspaper was suposed to do a story on childhood cancer, but I never heard back from them for information. Again, thank you very much. Parents never thing cancer could effect their children, at least i never did. Its important for parents to know that it is out there, and it could effect your children.

Posted by Alison Miller September 29, 08 01:59 PM
794.

Thank you for sharing these childhood cancer stories with your readers.
My youngest granddaughter just had her 7th birthday and has been fighting leukemia since she was 23 months old. These "cancer kids" are incredibly tough, courageous children who should not be spending years of their childhood in medical treatment. We give thanks that she has survived over 3 and half years of chemotherapy, cranial and total body irradiation with a bone marrow transplant 17 months ago while we mourn her lost childhood and pray for her future.

Posted by Suzanne Stoltz September 29, 08 02:01 PM
795.

Thank you for bringing awareness to Childhood Cancer. More needs to be done to raise awareness so we can find a cure. Please keep these stories coming, even after Childhood Cancer Awareness Month has ended.

Posted by Jaci Gehling September 29, 08 02:14 PM
796.

Thank you for sharing these heart-wrenching pictures. I have worked with families whose children have cancer and have seen the devastation and the impact on the entire family.
We have to do more. I would encourage everyone to be tissue-typed for possible bone-marrow donation. YOU could be someone's only match. Please consider how you might save someone's life.

Posted by Lynn September 29, 08 02:15 PM
797.

Thank you for shaking me out of complacency just because I don't personally know a child suffering with cancer right now. These pictures and stories were heartbreaking and brought me to tears. They and their families will be in my thoughts and prayers as I will be even more grateful for the healthy grandchildren I've been blessed with so far.

Pat Greene, September 29. 2008

Posted by pat greene September 29, 08 02:19 PM
798.

Thanks for this article and the pictures and personal stories. More people need to know about Childhold Cancer so mcuh more can be raised to find a cure. This is a very devasting disease that is attacking our babies. Keep up the awareness!

Posted by Lisa Revils September 29, 08 02:25 PM
799.

Thank you for sharing these stories. What a tear jerker. I will keep all of the children in my prayers.

Posted by Jill September 29, 08 02:34 PM
800.

Thank you for making people aware of Childhoold Cancer!!

Posted by Candie Zahradnik September 29, 08 02:40 PM
801.

Your pictures are very poignant. Thank you for capturing just one moment, in a million, in the lives of children undergoing care for cancer.

Our daughter is a survivor. Diagnosed at age 3 with leukemia, she is now healthy and a first grader. But, she endured more than TWO YEARS of chemotherapy.

So few people really realize just how the lives of the children and their families are changes by just hearing those few words, "Your child has cancer." People don't like to think of innocent, little children fighting for their lives, but it happens every day. My plea is for funding for research, so that we may one day find a cure.

Posted by Marie Lappin September 29, 08 02:43 PM
802.

Thank you! There are WAY too many kids fighting for their lives, it's just not right. And most people don't even know it's happening.

Please keep writing...these kids need a voice. Thanks again.

Posted by Abbie September 29, 08 02:46 PM
803.

God Bless these children, their families and the doctor's who treat them. As a parent with an adult son with an anaplastic oligodendroglioma/astrocytoma, Brain Tumor and an 8 year Survivior, I pray that awareness and a cure is forthcoming, to end the battle of broken hearts. The diagnosis of cancer devastates a whole family, on many levels.

Each photo is beautiful, each child, gentle, each parent saying, 'Please, not my child.'

www.virtualtrials.com

www.braintrust.org

Posted by Cynthia Baumann September 29, 08 02:46 PM
804.

Thank you for helping to bring awareness to the fight that these young hereos (and their families) go through every single day.

Posted by Megan September 29, 08 02:52 PM
805.

Ditto on the thanks for helping to raise awareness. These little heroes need more attention - we need to fight the cancer beast. Kudos to the Boston Globe!

Posted by LB September 29, 08 02:53 PM
806.

Thanks for bringing this to the attention of the media. Beautiful but sad pictures - these children are REAL & deserve to be noticed.

Posted by Lori McCleskey September 29, 08 03:02 PM
807.

Thank you, thank you, thank you!! Our kids (and yes, they are all "ours") so desperately need people to wake up and see what they endure as they fight for their lives. Even those who make it too often pay a steep price for survivorship..

My son Andrew was diagnosed with a brain tumor when he was just 11 months old, grade II diffuse astrocytoma. His tumor was discovered exactly 1 month before his first birthday. Today he is 3 years old. He's endured brain surgery and countless MRI's to moniter his tumor. As of today, what's left of his tumor is not growing. This won't be the case forever,, but I thank God for the fact that today he is stable.

Posted by Jessica m/o Andrew, www.caringbridge.org/visit/andrewcruise September 29, 08 03:02 PM
808.

WOW----thank you, thank you for making Childhood Cancer awareness an article in your paper.. There is NOT enough funding for these childhood diseases and the public needs to be made aware of hard situations families have to deal with everyday! Thank you for the heart wrenching pictures and please continue to make Childhood Cancer a priority in your paper! Thank you, Thank you....

Posted by Donna Thomas September 29, 08 03:02 PM
809.

Thanks for a job well done! We need to continue to fight for our kids. If more people were aware of the statistics something would happen! Everyone of those kids is a HERO! I don't think we as adults could do what they do with the heart that they do it (and their parents) Thanks for spreading the word.

Posted by Pam H September 29, 08 03:02 PM
810.

Thanks for sharing these stories, more of them need to be told! Childhood Cancer Awareness needs to be just as big and well known as breast cancer. Please continue to post these stories.

Posted by Rachel September 29, 08 03:11 PM
811.

Thank you so much for bringing awareness to childhood cancer and for sharing the pictures! Children need help in fighting the battle!!

Posted by Jessica Greenfield September 29, 08 03:12 PM
812.

GREAT Job!!!!!!!

Thank You So Much for giving this very important issue and subject matter "more" light!!!!!!!

Believe me these pictures say what words cannot properly convey!!!!!!!

GOD Bless You and the Ministry GOD has given You All by touching so many readers with this "very" important topic.

PLEASE keep more articles along with pictures of this very important matter at the fore front!!!!

Thanks Again!!!!

Posted by Stacy A. DuBose September 29, 08 03:20 PM
813.

Thank you for publishing this story. My daughter was diagnosis with Medulloblastoma when she was 5 1/2 months old. 4 rounds of chemo, 2 surgeries to remove the tumor, total of 9 surgeries from Sept. 2006-March 2008. Countless visits, countless times she was on a vent. WE NEED AWARENESS. I am happy to report that Karlie is now 27 months old. We have a lot of surviors and we also lost a lot of warriors. All these kids are an inspiration to someone.
www.caringbridge.org/visit/karliespurlin

Posted by Theresa Spurlin September 29, 08 03:24 PM
814.

Thank you for your article. More papers should publish articles like this one year round and not just during Childhood Cancer awareness month. My 5 month old was diagnosed with Neuroblastoma just 2 1/2 months ago.

Posted by Becky Bishop September 29, 08 03:37 PM
815.

I had the honor of photographing a little boy , Justin, that was diagnosed with this horrible disease. I didn't know much about it before. Sadly, he was taken from all of those who loved him. I thank all of you who are helping bring this information to our attention. We will never forget these beautiful children who fought a good fight and those who are still fighting with the hopes of beating these diseases.

Posted by Melissa Wong September 29, 08 03:43 PM
816.

Thank you for listening and bringing this article to the world.

Unfortunately we were one of the unfortunate ones to face it, with our brave, beautiful son Tyler. Our Halloween baby, Tyler passed just shy of his 7th birthday
on Aug. 26th, 2005 of Stage IV GBM.


Posted by Grace SooHoo September 29, 08 03:45 PM
817.

My heart goes out to all of these families and all the ones we do not know about.. I will continue to pray for all these families and for a cure. Prayer is strong and God will prevail.

Posted by Kathy September 29, 08 03:47 PM
818.

Thank you for this article, we need more awareness!!

Posted by Carla September 29, 08 03:48 PM
819.

Thank you for bringing awareness to this devastating disease.

Posted by Nikki September 29, 08 03:48 PM
820.

Thank you for the article and pictures, they brought tears to my eyes as always. I'm currently training for a marathon with Team in Training to raise $ for LLS after my cousin's 5 year old son was diagnosed with leukemia this past July. No child should have to endure this & we are long overdue for a cure!!!

Posted by Jamie September 29, 08 04:09 PM
821.

Thank you for this article, and for raising awareness of childhood cancer.

Posted by Kristen September 29, 08 04:10 PM
822.

Thank you for your touching photos and bringing the faces of cancer to our public eye. We need to continue our focus on improving medical treatment, as well as prevention, so nonone, espcially our children, need to suffer.

Posted by Greg Lubimiv September 29, 08 04:10 PM
823.

Thank you for bringing awareness to this very important and heart breaking issue. Not enough funding is going to childhood cancer. Look at what research has done for the statistics in the fight against breast cancer. Everyone should know what the gold ribbons stand for. The pictures say it all.

Posted by Janette September 29, 08 04:22 PM
824.

Thank you for the article and photos. People need to be aware of how many children have cancer. I used to be clueless myself until my son was diagnosed
with ALL leukemia in 2004. Nobody ever thinks their child will be the one to become ill or die. As a parent we never have ben prepared to deal with a child fighting for their lives or passing away. There are so many more children becoming ill every year. It is like a widfire terrorizing our children and our families.
We are helpless and at the mercy of doctors trying whatever they can do to help save our children. We need a cure now. .

Posted by Diana Johnson September 29, 08 04:32 PM
825.

Thanks for raising awarenessto childhood cancer. Let's all do what we can!

Posted by Pam Zuchowski September 29, 08 04:54 PM
826.

What a beautiful group of photos and testimonial to the courage and suffering of so many children with cancer. Two beautiful young girls from our church died of AML last fall, and we have a 14-year-old boy with a brain tumor still fighting. What a tragedy! I pray that God will provide a cure and hope for all of these suffering children and their families.

Posted by Beth Bello September 29, 08 05:08 PM
827.

This is an issue that needs to dissapade forever.

Posted by Betina September 29, 08 05:13 PM
828.

Thank you for publishing this story and raising Childhood Cancer Awareness. Our little warriors appreciate your help.

Posted by Amy September 29, 08 05:16 PM
829.

tTHANK YOU FOR BRINGING AWARENESS TO CHILDHOOD CANCER

Posted by Dolores Blanchard September 29, 08 05:20 PM
830.

I have followed the journey of two of these beautiful children from beginning to end… It was a heart-breaking journey to say the least. It has made me so very aware of the need for funding for childhood cancer research. I would like to challenge everyone who reads this to pick a charity, organization or hospital and donate (to childhood cancer research) whatever amount you can on a monthly basis.

Posted by Becky September 29, 08 05:21 PM
831.

Thank you from the bottom of my heart for this article and photo's. My grandaughter is one of the mightly warriors this beast has affected. AWARENESS is a must . Thanks for spreading the news.

Posted by Llynn Jaster September 29, 08 05:27 PM
832.

Thank you for this article, and for raising awareness of childhood cancer.

Posted by Stacey September 29, 08 05:30 PM
833.

Thank you for keeping the faith of a cure alive--

Posted by Sharon September 29, 08 05:33 PM
834.

Save the kids!!!
Support Childhood Cancers!!

PLEASE!!!

Posted by terry rammel September 29, 08 05:40 PM
835.

Thank you for your concern for OUR children.

Posted by D. Johnson September 29, 08 05:53 PM
836.

Thank you for sharing these familes with us. God Bless

Posted by Monique Masset September 29, 08 05:55 PM
837.

Thank you for publishing this article. I am fortunate that my children have not been directly touched by this horrible disease. Sadly, though, I think too many of us float through our lives not aware of the fact that we too could be stricken with this awful fate. We just don't think about our kids getting sick!! But I simply cannot imagine anything MORE HORRIBLE than my kids getting sick!! As a society we have so much work to do to inform people that if only the research was being done then IF we do become one of the statistics then maybe the cure would be there when we need it.

This cause needs a BIG NAME champion!!! Someone whose face everyone knows. Someone who can make everyone STOP in their tracks and make this happen!!! All you have to do is watch ONE family go through this, watch ONE child die from this horrible disease and you are changed forever. I have watched more than one and it is an awful thing to watch and an awful thing to try and imagine what these people have been through, let alone what the kids have been through. As adults we can understand treatments we may have to face and WHY we have to face them. How do you explain to a 2-year old why they have to lie still and get poked with needles every day? How do you explain to a 5-year old why they can't go to kindergarten because they have to be in the hospital for treatments? How do you explain to a 3-year old why they hurt so badly and no one can make the pain go away? How do you explain to that same 3-year old why there is a tube down his throat and he can't tell his mommy & daddy that he loves them?

This is real-life. This goes on EVERY DAY. While we go to work, while we share good times with our friends and family, while we take our walk on a beautiful sunny day, while we sleep peacefully at night, while we live our NORMAL lives. Be thankful for your normal life.

Champion this cause. Tell your friends. Give your time. Do whatever you can with the resources you have.

Posted by Lynn September 29, 08 05:57 PM
838.

Thanks for helping to bring awareness of childhood cancer to the hearts and minds of your readers.

Posted by Sandy Marcks September 29, 08 05:58 PM
839.

Thank you so much for this article. It is nice to see awareness for these kids and their families. I hope this will be the start of more awareness for a cancer that is rarely heard about or publicized. These children need our help.

Posted by Jennifer September 29, 08 06:01 PM
840.

We really need to make people aware... Thank you for doing your part!

Posted by Denise September 29, 08 06:02 PM
841.

My 2 grandsons have optic glioma brain tumors. I love these 2 boys very much!
This is a real live challenge for so many families.
We need more research which takes money. We need awareness!
Thanks for the info.
We need everyone's help!

Posted by Charlie Steiner September 29, 08 06:05 PM
842.

Thank you for your article and raising awareness for childhood cancer. We need to find a cure.

Posted by Patty September 29, 08 06:06 PM
843.

Thank you for bringing childhood cancer forward to the powers that be. People need to be made aware of the devastation that this brings to families. The children that face their treatment do so with such dignity and have a courage that is unbelievable. The parents that have to endure the pain of watching their little ones struggle each day and the siblings that have to watch the day to day survival of their best friend is heart wrenching. The Dr.'s that daily to try to find a way to cure these children has to be so frustrating, thank you for trying. So to all the little heroes out there keep on fighting and to all that read this article keep up the fight sign the petitions and support the children's cancer research programs.

Posted by Rene' Hill September 29, 08 06:11 PM
844.

April 25, 2007, the day that our baby boy, Roman Fariello was diagnosed with High Risk Stg 4 Neuroblastoma at the ripe age of just 18 months old. The world ended for us that day...well, OUR world ended for us that day. I tell everyone we do not look thru the same old eyes as we used to since before April 25, 2007. We have new eyes that we look thru now. We had no clue what we were about to be tossed into on that horrible day. Over 18 months later, Roman is NED by the grace of God. Thank you for your beautiful pictures. It means alot to us families who are in the Childhood cancer world still fighting the fight of their lives. We need to do more.

Posted by Jody Fariello (Very Proud Cancer Mom) September 29, 08 06:12 PM
845.

Thanks for the article, keep it up. Kids are our future, if we don't save them, where will be be?

Posted by Michelle Worman September 29, 08 06:16 PM
846.

Thank you so much for bring attention to children with cancer. The photographs were beautiful, but heartbreaking. My heart goes out to those families featured in the pictures, and all families that are dealing with cancer and the terrible side effects from treatment their children endure. There needs to be more funding for research.

Posted by Pam September 29, 08 06:20 PM
847.

WE NEED A CURE!! THIS COULD BE OUR CHILD TOMORROW!!! GOD BLESS YOU FOR THIS ARTICLE!

Posted by JULIE GRELL September 29, 08 06:25 PM
848.

It's time for all the media to get together and tell this (sadly suppressed) story to the rest of the world. If we had not been touched by it...we would not have believed it could be possible that children die EVERY DAY....and for some reason there isn't an OUTRAGE or it isn't well known.

thank you so much for your efforts to RAISE AWARENESS.

Posted by Barbara September 29, 08 06:25 PM
849.

In November 2006, my then-11-year-old daughter was diagnosed with T-cell ALL (leukemia). The "cure rate" we were quoted is about 75 percent, and as my husband said, "That's great for the lottery, but bad if it's the life of your child." My family knows first hand that there needs to be improved options on how to treat childhood cancer -- options with increased cure rates, options that cut down on side effects and on the long-term effects of treatment.

Awareness is good, but what can you do? One concrete way to help is to donate to CureSearch so that the Children's Oncology Group can continue their research into finding better and safer treatments for childhood cancer. (For a link to CureSearch, see the “More Links and Information” section following the photographs.)

My thanks go out to The Boston Globe for running these photos.

Posted by Lisa September 29, 08 06:27 PM
850.

There is a huge need for this awareness ! we are so 'aware' of everything else,in this world , but our cancer kids need it too!!

Posted by patti September 29, 08 06:28 PM
851.

I just want to Thank You for letting people be aware of childhood cancer. There are so many children out there that have a form of cancer. My heart and prayers go out to all of these families. Childhood Cancer needs to be noticed by others. The pictures brought tears to my eyes. They are beautiful children. Some of them their lifes were cut way too short. We need to find a cure and get the word out that September is Childhood Cancer Awareness Month.

Posted by Kathy September 29, 08 06:37 PM
852.

I am a prayer warrior for these children and am amazed by the strength, courage and hope the muster up each day to face their challenges.

I am also a prayer warrior to the families of children/teens/adults who lost their battles but who have deeply touched hearts across the world with their legacies of hope, love and enduring-to-the-end.

We must find a cure. . . .

Posted by An Angel_Wings Prayer Warrior September 29, 08 06:43 PM
853.

How can anyone turn away from this and not be touched - FIGHT, FIGHT, FIGHT!!!! Shame on those who don't!!!

Posted by G. Gonabe September 29, 08 06:53 PM
854.

Thank you for publishing this.

Posted by Billie September 29, 08 06:55 PM
855.

Thank you for spreading the word!!

Posted by Anonymous September 29, 08 06:56 PM
856.

The pictures don't even begin to show the magnitude of childhood cancer. Where are the photos of fear? Of throwing up over and over again? Of screaming in pain because you are scared and cannot stand to have another needle stuck into you? Of stomachs swollen from tumors that are growing out of control? Of children whose faces are no longer recognizable, because their eyes are swollen shut, or they have gained so much weight from their treatment? Where are the photos of little bodies covered in scars from multiple surgeries? Where is the photo of the central line and the faces in pain from sterile dressing changes? Where is the face of the mother or father who just lost thier child? There is more to see.

Posted by Dr. Robin Hood September 29, 08 06:57 PM
857.

Thank you for taking the time to acknowledge that September is Childhood Cancer Awareness month as many (most) publications have not. My son was only a couple of weeks old when he was diagnosed with a rare blood disorder (not a cancer but treated the same way) called HLH. He received many months of chemotherapy and other toxic medications in preparation for his life saving bone marrow transplant. He is now 2 1/2 years old and doing great. Please, please, please spread the word and help support the research that will ultimately lead to a cure and save the precious lives of our children. Thank you!!!

Posted by Erika September 29, 08 07:10 PM
858.

Thank you for brining awareness to Childhood cancer, this is a great start.
I have read all the comments and see several upset people over the Pink Breast Cancer Ribbons.
I am a breast cancer survivor and it has been a beast to fight and survive. I get my inspiration from severl of the children mentioned on several post above.
However, it was one sisters pledge to another that she would fight and try to find a cure. That was over 20 years ago, and it has just been within the past few years that you have noticed the pink items and ribbons everywhere. I hope it doesn't take that long for Childhood Cancer awareness to get noticed.

I think we are on the right path to get the ball rolling to find a cure for Childhood cancer and get awareness in the public eye, but please don't act like Breast cancer is a piece of cake or a walk in the park, trust me, it's not.

Praying for a cure for ALL cancer!

Posted by Anonymous September 29, 08 07:13 PM
859.

Thank you so much for bringing attention and awareness to these little heros! Keep spreading the word so that NO other family has to hear the words that their precious baby has CANCER!

Posted by Allison S. September 29, 08 07:19 PM
860.

Thank you for writing this article and making the "unknown" known. These children certainly are heroes and deserve just as much hope, technology, and treatments as anyone. Thank you for oberservance of Childhood Cancer Awareness Month and I can only hope many more are to follow.

Posted by Kendra September 29, 08 07:24 PM
861.

These are amazing kids. We cannot even begin to imagine what these kids and families are going through. I am saddened that more recognition is not given to Childhood Cancer Awareness Month. This should be on the forefront of every newspaper and newscast. However, it sadly, is not! These kids deserve a cure, and attention by the media. We all need to be advocates for these kids because you never know when it can hit your home. Cancer is not discriminating, it CAN and does hit and destroy children's lives. Thank you for the article and pictures of these amazing kids.

Posted by Roxanna September 29, 08 07:24 PM
862.

I'm in....Lets stop childhood cancer. No child deserves to go through this!

What else can I do?

Posted by Domenica September 29, 08 07:43 PM
863.

I posted yesterday about my son Levi. I also wanted to say THANK YOU for bringing attention to our fight. I think many people turn away from our stories and pictures - it's "too hard" to deal with. My own mother made me turn off a St. Jude's program while Levi was still hospitalized because she didn't want to "see all those poor sick children". Umm - hello - your grandchild IS one of those sick little children!!

Another horrible thing about cancer - long term effects. I won't go into all of them, but since Levi had to relearn how to walk, his balance is that of a drunken sailor most days, especially when he is tired. He fell yesterday and we spent a majority of our day in Xray to see if he broke his arm.

Cancer SUCKS!

www3.caringbridge.org/va/levi

Posted by Melina September 29, 08 07:51 PM
864.

I am a fortunate mom, my three sons are healthy. My heart aches for those families who have been attacked by cancer. I can't imagine worse when it comes to your child. My niece has been battling brain cancer (medullablastoma) for 2 1/2 years, fighting with everything she has. These kids are amazing! They fight so hard through unbearable procedures, and yet they always smile for you. Please help these little heros. Childhood Cancer needs to be stopped. I am committed to do everything I possibly can to bring the needs of these kids to the forefront iwhere I live, in Canada. Please help us to help our kids!

Posted by Jackie Klompas September 29, 08 07:54 PM
865.

How can any family live daily with pain involved with cancer.It breaks my heart daily to read of another child has cancer or another child has died from cancer.How can these children not have the recognition they need and deserve.We need a cure so badly and fast.Thank you for writing article and the pictures are heart wrenching.Thank you for bringing awareness..We need so much more

Posted by THERESA STANLEY September 29, 08 07:54 PM
866.

Thank you for your article and pictures raising the awareness of Childhood Cancers. As the mother of a 1 1/2 year osteosarcoma survivor I can tell you first hand that this needs as much attention as possible. Please continue to spread the word

Posted by Dena September 29, 08 07:54 PM
867.

thank you for bringing attention to this. hopefully next year it wont be the end of the month when something is published.

Posted by Kara September 29, 08 07:59 PM
868.

I so agree Dr. R. Hood (?).......you are seeing the calm side here, the hopeful side, the public does not want to see or hear the horrific images.....understood. BUT - know that horrific images exist, in many parents minds. They are the reality each of the children in these picture went through. Operations, Zofran, morphine, throw up buckets, wheelchairs because they are too weak to walk. Even just the bald pictures are enough to create caring......if you saw those...... if you and your child are watching the clock waiting for the next 10 min so he can have another hit of morphine, if you ever have to answer the question, "Dad, what's hospice?" like I did..... you want sad........think about that........

Posted by AJs Dad September 29, 08 08:00 PM
869.

I thank you for putting the word out there about Childhood Cancers! So much more needs to be done for these kids! I personally had the knowledge of loving and knowing Julian pictured above. I have cried with his parents, giggled with Julian and felt my heart burst when Julian was diagnosed as being disease free! Only just a few weeks later to find that the cancer had returned and there were no good options! WHY? Can anyone explain why? Underfunded research that is why!! I dare anyone who is not or has not been involved with a Child and Family with Cancer to read just one Carepage from beginning to end and continue to do nothing! You can start with www.carepages.com Juliansworld . After you have dried your tears get up hug your children and go find someway to get involved! I dare you!

Posted by Sherry Jones September 29, 08 08:02 PM
870.

Thank you for running this article. This is just a start! These are amazing kids, and families and it is very sad that Childhood Cancer doesn't get the funding it so desperately needs. Articles like this should be all over the media and on the cover of every newspaper and magazine across the nation to raise awareness and get funding to help save the lives of innocent babies and children that are suffering from this beast.

Thank you again for the article and pictures of these amazing angels.

Posted by Donna September 29, 08 08:07 PM
871.

Thank you for helping to raise awareness to childhood cancers. No child and no family should have to endure the pain of cancer. Together we can all help to stamp out this dreaded disease.

Posted by Lisa September 29, 08 08:07 PM
872.

Thank you for bringing awareness to those children fighting this horrible monster.

Posted by Nancy September 29, 08 08:12 PM
873.

What a well written article...if only more papers/tv shows/etc had covered this. Something needs to be done to protect our children...they rely on us to protect them! Not one more family should have to watch their child suffer! Not one more family should have to lose their child to this horrible disease! Pediatric cancer deserves more attention. Thank you for doing your part with this article.

Posted by holly aytes September 29, 08 08:20 PM
874.

Thank you for bringing attention to this VERY important issue.
Hoping, praying, and working to hasten the day that no parent ever has to bury a child because of this awful monster again...

Paula Salter
Tampa, Florida

Posted by Paula Salter September 29, 08 08:21 PM
875.

I started reading on carepages about 2 years ago. The one child I started with has now turned into 36. Of the 36, 13 have passed away. These children and families are amazing and deserve so much more. Something has got to be done to stop this horrible monster.

Posted by Pam September 29, 08 08:24 PM
876.

Thank you for doing this article. I am a mother of a 5 yr. old boy who was diagnosed with a 5 cm cancerous brain tumor on Jan. 1, 2008. My son's tumor has been totally removed. My Blakey (my son) has 11 rounds of chemo, 3 of which were in his spine, and 3 were high dose chemo, 3 stem cell transplants, 7 surgeries, 3 different ports for chemo and stem cell transplants. Blakey spent the month of January in Arnold Palmer Hospital for Children in Orlando, FL and February through March receiving rounds of chemo. March through May, he received his high dose chemo and stem cell transplants at Shands at Univ. of FL. He currently is in remission and attends "Brain Clinic" for the next 10 yrs. The 1st 2 yrs he goes every 3 months.

Posted by Miranda Appleton September 29, 08 08:26 PM
877.

I am a breast cancer survivor, diagnosed at 47, and experienced chemotherapy, radiation, and surgery. It was not easy, and I had massive support. But the awareness that children and young people suffer daily humbles me. Thank you for placing this information out into the public eye. It should be the cancer demographic on billboards, food packaging, magazine ads, and maybe one day soon, will be. Keep up the news about Childhood Cancer. You are a wonderful voice.

Posted by JoAnna September 29, 08 08:26 PM
878.

Childhood cancer need much more funding to find a cure for the awful disease. No child needs to do all of this suffering, along with their parents and siblings. We need more funding for childhood cancer!

Posted by Kim Roberts September 29, 08 08:27 PM
879.

If only more websites, magazines, and the like would publish more articles such as this to show people that these children need our help. My heart breaks for these families and I will continue to do what I can to help. I just hope others do the same.

Posted by Andrea September 29, 08 08:34 PM
880.

Something must be done! Please keep spreading the word.

Posted by Johanna Welch September 29, 08 08:36 PM
881.

We need a cure, we need one, to many have lost there lives due to this, please God.

Posted by Zack September 29, 08 08:39 PM
882.

Please continue to raise awareness to childhood cancers.

Posted by Barbara September 29, 08 08:51 PM
883.

Thank you for raising awareness. My 2 year old granddaughter is fighting aggressive brain cancer. There is too little awareness of Pediatric cancer awareness month. I can tell you from someone who is living through this that there is little help for our families. I guess people don't want to think about it. We must come together as a nation to fight this terrible plague on our children.

Posted by Jane Cartwright R.N. September 29, 08 08:51 PM
884.

Thank you for this article. I am so far fortunate to not have a child with cancer, but I do specialize in teaching them. This awareness is SO important. Childhood cancer is something we just don't want to think about, but it's really there. We need more funding to help get rid of it, so that children can live their life out. Again, thank you!!

Posted by Kris Ness September 29, 08 08:55 PM
885.

We need to do more to bring awareness and fight this monster called childhood cancer. Why do we let these young heros fight alone. Childhood cancer hit our family -- my cousins little 2 1/2 daughter old fought a long battle but ended up with her wings 2 years ago. A little girl you captured your heart, a young lady that shared my own son's birthday. When I look at him, at him, I can't help but to think her and what if. And what do you say to your own child when he looks at his birthday photos of past years and asks where is that other girl, the one that shared my birthday, the playmate, my friend. I miss her.

Posted by tammy September 29, 08 08:55 PM
886.

Thank you for helping bring awareness to childhood cancer.

Posted by Sheila Manelli September 29, 08 08:57 PM
887.

I want to say THANK YOU !!!! for posting this article. It helps to see some one pickd this up and run with this. My princess was only 6 months old when she was diagnosed with a rare brain cancer called AT/RT. She was not expected to live long but she lasted 9 months with us. Only 3 of those months were "good " months. My child was murdered by cancer and no one seems to care. If cancer wasa human he would already be on death row. Please continue to support childhood cancer awareness. Dawn Princess Cristina's mom
carepage: CRISTINA 6

Posted by alethea vazquez September 29, 08 08:59 PM
888.

Childhood cancer does not receive nearly enough attention. Thank you for your article in attempts to raise awareness. Cancer is an ugly monster that NO ONE should ever have to face, especially innocent children. Spread the word!!!!!!!

Posted by Mandy September 29, 08 09:01 PM
889.

Too many beautiful lives lost and the words a parent never wants to hear "there are no further treatment options". We were told that one year ago this week and our son died on October 4th, 2007 from infant leukemia. This was a disease that I never knew existed before March 15, 2007 when I was told my 7 week old baby boy had leukemia. Infant leukemia, like many other childhood cancers takes the lives of so many children and we need more funding for research to find the cure. More public awareness leads to more funding. Our children are our future--we must find the answers. Thank you for shedding some light on this topic no one wants to talk about. www.caringbridge.org/visit/willembolan

Posted by Christine Bolan (mom of angel Willem) September 29, 08 09:03 PM
890.

Thank You for the article and the photos. They are amazing and so sad.

Posted by Dee September 29, 08 09:16 PM
891.

to everyone saying if only more magazines, more websites, more publicity...........do something about it......write a letter, your congressman, senator........ask the American Cancer Society why on 2.96% of its funds go to childhood cancer......that's right, dont be fooled by them parading bald kids around in their ads........give to CureSearch, St. Baldricks, Alexs Lemonade......please, all of you DO SOMETHING BEYOND COMMENTING.....it might be YOUR childs life you help save

Posted by AJs Dad September 29, 08 09:18 PM
892.

Thanks for bringing light to this horrible tragedy. Too many people want to close their eyes and pretend childhood cancer doesn't exist. Maybe it's easier that way?? The friends and family of these children don't get that luxury...why should we???

Posted by mama2many September 29, 08 09:28 PM
893.

Thank you.

Posted by Kirsten Ramsey September 29, 08 09:33 PM
894.

Thank you for helping to raise awareness. Many people don't know much about childhood cancer unless it involves a loved one in their life. Pictures can speak a thousand words but when you are there with those that are suffering it really means a lot to have support. Any support that we can get will help no matter how little or big. My son was diagnosed with medulloblastom (Childhood Brain Tumor) in June of 07 followed by 5 rounds of chemo and stem call transplant and was in remission. The tumor came back in August of 08 and he is now going under radiation. We need all the help we can get to Raise Awareness. Thanks!

Posted by Leticia Garcia September 29, 08 09:34 PM
895.

Thank you so much for this photo essay! Thanks for adding to the awareness of childhood cancer.

Posted by Dawn Gawel September 29, 08 09:54 PM
896.

Thank you so much for writing an article on childhood cancer. THANK YOU. Thre is hardly ANY funding for our children with this monster of a disease. I am happy that breast cancer has the awareness that it has (my mom & aunt had breast cancer) but.........I would like to see childhood cancer receive the attention too. We are losing to many young lifes with this disease. One of these beautiful lifes was my brother at the age of nine, whom I never got to meet. I was born two years later and robbed of a brother. People need to be aware of the funding that is so desperately needed for a our children, our future. Thank you! Michelle

Posted by michelle September 29, 08 09:58 PM
897.

So many children are dying from different cancers but mainly brain cancer and their is way to many types for me to tell you but i know that someone with a child with cancer can tell you. So their you have it , we need to raise awareness and get more money to finance and have the researchers get busy finding a cure for all of the cancer for children and exspecially brain cancers. I don't know so how can anyone else know all the brain tumors? They can't because until i got on this web site i didn't know anything about childhood cancer. What a shame that tells you that the world we live in is engrossed in other things and not in childhood cancer, that is truely a shame and we need to let the world know about it. Tonya & 2 girls .everyone

Posted by Paul and Mary Spillman September 29, 08 10:04 PM
898.

I thank you from the bottom of my heart for your help to raise awareness of childhood cancer. I've been to this page several times now and have always left speechless, but as A.J.'s dad said "All the your in my prayers and I'm so sorry, just doesn't help anything get done." I hope your article will be the start of an avalanche of funding for the cure and prevention of pediatric cancer.
Thank you again. I hope to see a lot more of your good work.

Posted by Kathy Powers September 29, 08 10:16 PM
899.

Thank you for sharing these photos. I will keep all these families in my prayers. We need to do more!!

Posted by Debbie trent September 29, 08 10:22 PM
900.

It is so nice to see someone taking sometime on Childhood Cancer...My son was diagnosed at the age of 3 and passed at the age of 4. This should not happen to any child. He is a true hero!!! All of these children are. It is much appreciated that you have taken time to bring awareness to childhood cancer. God Bless
monique whan
www.caringbridge.org/visit/calebwhan

Posted by monique whan September 29, 08 10:22 PM
901.

Now is the time to stand up. No more messing around, making excuses. Children are dying. Our future is dying. What will it take to make people understand?
Thank you for taking the time to show us the many faces (and ages) of cancer.

Posted by Karen R. September 29, 08 10:23 PM
902.

I cannot imagine a more worse evil. I cry for all of the kids and their families. I never want to have to go through that. We need to stop this now.

Posted by Alicia September 29, 08 10:25 PM
903.

Thank you for making all of us more aware of childhood cancer and the immediate need for funds and research. Childhood cancer should make alarm bells ring for all of us who have children, love children and care about children. That means everybody.
Please add more stories to promote awareness in the general public.
Thank you again.

Posted by Joyce Merrill September 29, 08 10:29 PM
904.

What a blessing you are from God to create such an inspirational message of awareness about this nasty disease. We NEED more people to get involved and help find a cure for ALL childhood cancers. THANK YOU & GOD BLESS!

Posted by Jill September 29, 08 10:30 PM
905.

Thank you for sharing these stories and bringing awareness to Childhood Cancer. God bless these littlest warriors.

Posted by Kristin McKean September 29, 08 10:30 PM
906.

Thank You for posting this article! I am a mother of 3 beautiful, healthy children and I Thank God everyday! We have friends from church who's daughter has a brain tumor, it breaks my heart! She is fighting, but we need a cure! We need to get awareness out there! Time is running out for so many of these children. We need a cure and we need it now! I read websites and follow the horrible journeys of these families. Their stories need to be told. Cancer is a monster! None of our babies should have to endure this, not one! Thank you again! and God Bless all our babies and families of cancer.

Posted by Brenda September 29, 08 10:31 PM
907.

PLEASE PLEASE PLEASE WE NEED MORE MONEY FOR RESEARCH!!! THERE ISN'T ENOUGH MONEY PUT INTO CHILDHOOD CANCER RESEARCH, WE ARE LOSING TOO MANY CHILDREN AND ITS A SIN. OUR CHILDREN NEED TO BE NORMAL NOT ENDURING CHEMO, SURGERIES, RADIATION AND EVERYTHING YOU EXPECT TO DEAL WITH WHEN YOU ARE OLDER. ITS NOT FAIR FOR OUR CHILDREN TO SUFFER, OR FOR THE FAMILIES TO HAVE TO DEAL WITH. MY SON WAS DX AT 3 WITH MEDULLABLASTOMA, THEN 9 YEARS LATER WITH GLIOBLASTOMA MUTLIFORME. ITS A DEATH SENTENCE. HE'S PAID HIS DUES! ONCE SHOULD HAVE BEEN ENOUGH. BUT HE'S FIGHTING AGAIN! HELP US HELP THEM!!!!!

Posted by KAREN HERTZ MOTHER OF MY HERO KEVIN September 29, 08 10:31 PM
908.

Thank you so much for bringing much needed awareness for this MONSTER called CANCER. I pray for these kids and their families daily.

Posted by Deanna Limon September 29, 08 10:34 PM
909.

Thank you for raising awareness to Childhood Cancer!

Posted by Hollie Gober September 29, 08 10:38 PM
910.

Thank you for bringing awareness to childhood cancer!!!!!!

Posted by Bonnie September 29, 08 10:39 PM
911.

I am not a mother of a child with cancer, but I have prayed for many of the children in the pictures. Thank you for bringing more awareness to children with cancer. These children should not be overlooked in cancer funding!

Posted by Lee Farrow September 29, 08 10:39 PM
912.

Thank you for helping to raise awareness. Far too many families are affected by childhood cancer. By raising awareness, you are keeping hope alive. Thank you!

Posted by Denise Brooks September 29, 08 10:41 PM
913.

We need more publicity like this.Thank you AJ's dad and the Boston Globe for doing this. My 4yr old was diagnosed at the first of this year and you cannot imagine what it's like to hear dr's say your childs prognosis is not good. Maybe two years! Before that i had no idea that there were so many children just like mine. Now instead of planing his future i get the horrible task of wondering when im gonna plan his funeral. Thats sompething no parent should know they are gonna have to do. Please help raise awareness.

Posted by Anonymous September 29, 08 10:54 PM
914.

Each picture seemed to tell a story. This has made it much more personal for me. I will be praying. Steve, Nashville. Tn.

Posted by steve sechler September 29, 08 10:56 PM
915.

Thank you for getting the word out about childhood cancer. My son Tyler was an energetic, happy, intelligent 14 year old who loved basketball and football when he was diagnosed as having Ewing's Sarcoma (a form of bone caner) in May 2007 at St. Jude Children's Research Hospital. Tyler passed away on May 31, 2008 after bravely fighting cancer for over a year. My son's diagnoses was put on hold for eight months because of the lack of knowledge and awareness about childhood cancer in our area. This allowed the cancer time to travel throughout his entire body.. Continue spreading the word and informing others...

Posted by Barbara Bartlett September 29, 08 10:59 PM
916.

We can't thank you enough for this touching article. As a mother of a child with cancer, I appreciate the honesty, hope, sadness and courage the photos displayed. I hope this article raised a lot of awareness...every bit counts.

Posted by Megan Sweeney September 29, 08 11:10 PM
917.

Hundreds of prayers are going to the Throne of Grace daily for all the children sticken with horrible disease and their families.

Posted by Laverna Moore September 29, 08 11:14 PM
918.

Thank you for your most imformative article about childhood cancer. How can it be that more childern die from this than anyother thing and yet no one is aware of it. There is such limited funding and such a great need. Thank you for you efforts on this matter.

Posted by William Winton September 29, 08 11:16 PM
919.

As a mother of four little ones, I can hardly stand the thought of the pain these families go through. Thank you for exposing the public to the truth about childhood cancer. May God give us all strength to endure well whatever lies ahead.

Posted by Gina Peacock-Byrd September 29, 08 11:21 PM
920.

I believe these pictures speak volumes!! What amazing children these cancer fighting warriors are. Thank you so much for bringing about awareness through your photos. They are incredible and these families deserve to be able to get their stories out there to help raise awareness about Childhood Cancer!

Posted by Teresa Falco September 29, 08 11:22 PM
921.

Please keep informing the public about the epidemic of childhood cancer. Please do more. Thank you

Posted by Craig Winton September 29, 08 11:36 PM
922.

Thank you for bringing awareness for Childhood Cancer.

I donated to St. Jude, monthly, for twenty years...imagine my shock when I was told on March 2, 2007 that the "stomach flu" I thought my little girl had was actually alife-challenging leukemic cancer.

My sweet little girl has now celebrated two birthdays under the umbrella of the StinkN cancer...she has 55 more weeks of debilitating treatment left.

No child should have to suffer the debiliation of the nasty, StinkN cancer. No parent should ever hear the words that their child has StinkN cancer...and no parent should ever have to watch their chiild cry and moan in pain, lose half their body-weight, and suffer the stares and whispers as their beautiful, bald heads pass others. No parent should have to bury their child. It's not right and goes against the grain.

We need more funding to find a cure...and the only way that can happen is with more awareness.

So I thank you for this article.

May God bless all of our cancer-empowered Warriors...we need a cure.

Jill and Kami www.caringbridge.org/visit/kamisroadhome


No

Posted by Jill Chauncy, proud mom of 9-year old Warrior, Kami September 29, 08 11:47 PM
923.

Thank you for this story. I asked around and was unable to find anyone who knew that September is Childhood Cancer Awareness Month, except of course those that are battling this disease. I hope the media continues to shine a light on this issue so that next year things can be different. Thanks again for the touching story.

Posted by Dynette Hockenberry September 30, 08 12:03 AM
924.

Thank you for helping to spread the word! NO CHILD deserves to have to live a life with cancer, as NO FAMILY should ever have to sit back and helplessly watch their precious child go through this. I don't have a child with cancer but there is too many children out there that do, and I don't want my child being the next victim. Keep spreading the word. We NEED a CURE!!!

Posted by M. Nelson September 30, 08 12:03 AM
925.

Those children are the faces of Childhood Cancer and everyone needs to see that Kids DO get cancer. We need cures to save the lives of the children fighting today and for those who have gained their angel wings so that no other child has to fight to live another day. Cure Childhood Cancer!

Posted by Tawny September 30, 08 12:40 AM
926.

Thank you for opening a door for Childhood Cancer Awareness. Hopefully the article will encourage more and more people to take a stand in having Childhood Cancer moved from the back to the front burner and be recognized as a force to be agressively reckoned with. How can a politician or anyone for that matter look into the eyes of a child with cancer and not fight for the life of that child? Cancer free children grow up to be cancer free adults. Lets do whatever it takes to raise awareness and funding for a cure for Childhood Cancers.

Posted by Leonarda White September 30, 08 12:47 AM
927.

This is the story of my beautiful young eighteen year old daughter Krista DeNa Romero.
She was a good girl in our estimation, not very tall, of fair complexion with long brown beautiful hair. A nice girl, and a little shy, she was intelligent, bright and original. Gifted and talented in a variety of ways such as sports, music, lettering and word puzzles. At times you would hear her laugh out loud while watching her favorite TV shows. She radiated a certain degree of poise, dignity, and calm composure all her life, all of which we admired. She was self-willed and stubborn at times but mostly was quiet pleasant and good natured.

In March 2, 2004 she was diagnosed with leukemia. We were quite surprised because she had always been so healthy all of her life. She was active in sports ever since she was a little girl. While in High School she played volleyball and basketball. Watching her play were some of the highlights of my life. As she approached her high school graduation she relapsed, the leukemia came back, and we were informed she needed a bone marrow transplant.

On January the 9th 2007, she received a bone marrow transplant at the City Of Hope. The doctors were pleased with her progress until her counts began to drop. They tested her marrow and it was discovered that the leukemia had returned once again. They informed us that the leukemia was very resistant. Krista never gave up, she was determined to keep fighting. She did so with great courage and grace. I think because she was Christian she knew she could not lose. On June the 9th 2007, she received the ultimate healing as she ascended into our Lords loving arms. She was complete, whole and healed to perfection. He took her home to a better place. Although we miss her and at times the emptiness and grief seem unbearable we look forward to seeing her one day in God’s Kingdom.

I miss her so much. I miss her with every breath I take.

I know the pain that the other parents are going though. My heart breaks everytime I read their stories. There are just too many.
Thank you for helping bring awareness for Childhood Cancer.
Lorraine
http://carepages.com/carepages/kristasupdates

Posted by Lorraine Romero September 30, 08 12:48 AM
928.

Thank you for your beautiful montage of photos, for sharing so many familes' stories, and for giving childhood cancer some attention. Hopefully your article will inspire people to act, and change and save children's lives!

Posted by Candice September 30, 08 12:50 AM
929.

Thank you, My precious 3yr old grandson was diagnosed with pineo blastoma a rare and malignant aggressive brain tumor...............................my tears are for all the children and their families. Life changes in a nano seconed......I knew nothing about pediatric cancer until May 2008 with the diagnosis of my grandson so thank you for opening the door. Doris S, grandmother to Jackson

Posted by Doris Sternberg September 30, 08 01:04 AM
930.

Thanks for the pictures and stories. I follow several Carepages of children who have cancer or have had cancer. Keep putting out the word. More should be done in the media to make people aware of all the children suffering from cancer.

Posted by Sherrie Giezentanner September 30, 08 01:13 AM
931.

Thank you for helping to spread the word about this horrible disease that is taking so many of our precious children.

Posted by Jan Hamilton September 30, 08 01:29 AM
932.

Thank you bringing awareness to Childhood Cancer. CANCER SUCKS! We need a cure now.

Posted by Lynn Janes September 30, 08 01:41 AM
933.

As a Pediatric Intensive Care nurse, I have cared for kids fighting cancer & it is truly heart breaking to see them go through all they go through. The families are amazing & the kids are true heroes!!!
Thanks for publishing the article!

Posted by Kami Roecker September 30, 08 02:37 AM
934.

Thank you for bringing light to such a ugly disease!

Posted by Jeanne Bartle September 30, 08 05:36 AM
935.

Thanks for the awareness. Look at those faces! You might almost forget they have cancer if you don't know them, especially the angels in heaven. We need a cure!

Posted by Jeannette Weil September 30, 08 06:21 AM
936.

Thank you for bringing awareness to childhood cancer.

Posted by Julie Dubie September 30, 08 08:03 AM
937.

Thank you for helping to bring awareness to this dreadful disease!! There is still so much more that needs to be done, but at least we got our foot in the door.

Posted by Adina September 30, 08 08:04 AM
938.

Thanks for these nice pictures.
C M
http://zoumzoum.blogs.liberation.fr

Posted by caroline Manas September 30, 08 08:31 AM
939.

No child deserves this.....it's time to find cures and stop it!!!

Posted by Jen September 30, 08 08:36 AM
940.

Thank you for printing this article and these beautiful, heartbreaking pictures. We live with our heads in the sand, but that doesn't change the fact that our babies are dying. We need research dollars and attention for childhood cancers, or we will never be rid of it. Prayers go out to all the kids and their families.

Posted by Terri September 30, 08 08:51 AM
941.

Thank you so much for your stunning photo editorial. Your pictures are magnificent and are a melancholy but beautiful tribute to these children and their families. Pictures truly do speak a thousand words.

Before June 6, 2007, I only thought about childhood cancer once or twice a year during the St. Jude Telethon. Since my childhood best friend's 10 year old daughter was diagnosed with Osteosarcoma on that date, I have thought about it every day since. I wear her bracelet on my wrist, check her CaringBridge website (www.caringbridge.org/visit/kennedy1) daily and have bruised my knees praying for God to take her cancer away and now thank God for her NED (no evidence of disease). But the bubble that I once lived in has burst. We can no longer afford to turn a blind eye to childhood cancer awareness and research because who among us is safe from it's cruel lottery? I am the mother of three, healthy children. I thank God for their health every day but are they immune to cancer? My children are 9, 5 and 5. Beautiful Kennedy was 10 when she was diagnosed. I think the answer is clear. It is written upon the face of every child affected by this disease.

Posted by Suzette Cochran September 30, 08 09:01 AM
942.

Thank you for bringing more awarenesss to childhood cancer.

Posted by Barbara Klink September 30, 08 09:02 AM
943.

I have been praying for several children in the last year with DIPG an inoperable brain stem tumor. So far since March 4 have passed away.
Please get more research for this horrible and devastating tumor. No family should have to go through what these families are dealing with.

Please hear our plea.

Posted by Shel Roddan September 30, 08 09:12 AM
944.

What touching pictures Thank you for your article and raising awareness for childhood cancer.

Posted by Cathy September 30, 08 09:27 AM
945.

Thank you so much for bringing this awareness to the forefront. I have asked our local newspaper to do an article on childhood cancer...and have received nothing. We are the only voices for our children and they need to be heard!

thank you again

Posted by Alicia Hutchins September 30, 08 09:48 AM
946.

To KinG JuJu (photo # 14).......we miss you little man !!
To all the parents, siblings, and friends and family who are missing alittle one today as a result of this monster, CANCER. We need to find a cure and stop it in its tracks before another little one (yours or mine) is DX !!!
Thank you for showing us the 'reality' of life that so many of us didn't want to know existed. Thank you to all the parents who share their journey and lives with us.
KinG JuJu - dance little man dance, fly little man fly, and give GOD a great big HUG for us (and feel us hugging you back - all the way to China and back).

Posted by Lisa Brooker September 30, 08 09:59 AM
947.

Thank you for the wonderful article on Childhood Cancer. And thanks for raising the awareness of this awful childhood disease.

Posted by Brenda Griggs September 30, 08 10:28 AM
948.

THANK YOU BOSTON GLOBE for raising awareness for Childhood Cancer! You have my utmost respect for doing this, I hope you will continue to do stories on these kids' journeys...It is so important to give them a voice - you have that POWER!!

Posted by Nikki September 30, 08 10:35 AM
949.

Thank you for posting this, the media needs to give it a heck of a lot more attention! Children are dying and that should not be happening!
thank you again

Posted by Laura September 30, 08 10:43 AM
950.

Gotta keep up the fight against cancer and we gotta keep fighting to make Childhood Cancer a priority with our lawmakers! Families can't do it alone and these children are our future!

Posted by Les September 30, 08 10:46 AM
951.

Please keep this going! These children need all the attention and awareness they can get so funding will be distributed fairly! Beautiful story, beautiful children, and hopefully someday there will be beautiful outcomes more often than not!

Posted by Katie September 30, 08 10:57 AM
952.

We must find a cure.

Posted by Barb Diehl September 30, 08 11:19 AM
953.

This story is unbelievably moving...and MUST be seen by more people. The statistics on childhood cancer are staggering, but the worry and grief experienced by the children and their parents is even more heartbreaking.

A friend of mine told me "We turn our eyes away from the things that hurt us most." And witnessing children in pain is the worst sight we can experience. But we can't ignore childhood cancer. Too many children's lives are at stake. Thank YOU for not ignoring it and for creating such a beautiful and moving story that will help others see past the pain of childhood cancer, but the beauty of the children who face it.

Posted by Amy September 30, 08 11:43 AM
954.

Peace 13.....

Posted by Steve September 30, 08 11:52 AM
955.

Thank you for spreading the word! Please keep spreading it!

Posted by Christine H. September 30, 08 11:59 AM
956.

Thank you for bringing awareness. It is much needed.

Posted by Jennifer Nibblett September 30, 08 12:04 PM
957.

Thank you for trying to raise awareness. We can't "look away"...these children need a cure.

Posted by Lisa September 30, 08 12:05 PM
958.

THANK YOU FOR BRINGING AWARENESS TO Childhood Cancer

Posted by Ariel September 30, 08 12:10 PM
959.

I have to admit that is saddens me, breaks my heart, makes me cry...........but most of all it REALLY TICKS ME OFF that we are not doing more to stop all of this. I can not imagine that we can't find a way to stop this if we really put our mind/money to it. We are so concerned with bailing out this company or that bank or making sure we don't pay too much for gas or if we are being green and using plastic instead of paper, when in fact NONE OF THAT WOULD MAKE ANY DIFFERENCE if this was your child! We must stop this or all of the rest won't matter!

Posted by sue ellen knepper September 30, 08 12:15 PM
960.

Heart breaking photos, but all too real-I am a nurse working in pediatric oncology/cancer. Cancer does stink, but the awareness needs to get out there more. Thanks you to all who ARE actually doing something-it will someday most likely touch everyone's life in some way-a friend,family member,friend of a friend. Survival is awsome, but loss is so great and no one should have to endure the loss of a chld.Donate funds, relay for life,leukemia runs-there are so many ways to increase awareness, not hide it behind closed doors. Thank you to all the patients and families that have commented and submitted photos-I am praying for you all

Posted by Debra September 30, 08 12:25 PM
961.

A picture is truly worth a thousand gut-wrenching words for these, and other families, who are/have battled the front lines of cancer for the sake and privilege of their precious children.
Thank you for lifting the veil so others may witness this horrific ordeal for these dear children and their families.

Posted by Angela September 30, 08 01:04 PM
962.

There are so many more storys to be told and so many more BRAVE and INSIRATIONAL children to acknowledge. Let's help them with whatever support we can give them.

Posted by Barbie September 30, 08 01:11 PM
963.

Let's help these kids out!!!! Childhood cancer needs awareness! I watched a child in my family fight this battle with AML and it was horrible. She won the battle finally when Jesus took her home. It would be so good to know that something was finally being done to try and put an end to all these suffering kids! They are amazing fighters and deserve to have more awareness to what they have to face.

Posted by Jennifer September 30, 08 01:14 PM
964.

These pictures are truly heartbreaking. Thanks for bringing awareness to such a horrible disease. My heart goes out to all these children and their families! They are truly inspiring!

Posted by Stacey Labell September 30, 08 01:41 PM
965.

Please bring this issue to the forefront and lets wipe these diseases out. These are brave beautiful children who have much to contribute to the world. Let's be sure we give them a chance.

Posted by lab September 30, 08 01:41 PM
966.

Thank you for raising awareness of childhood cancers.

Posted by MF September 30, 08 01:46 PM
967.

Thank you for bringing awareness to Childhood Cancer. Keep it up!

Posted by Susan September 30, 08 01:57 PM
968.

Thanks for raising awareness. It is ever parent's worst nightmare, and the parents who are in the middle of the nightmare need to know they are not alone. Here's to funding research that will end the seemingly growing reign of terror cancer has in the lives of children.

Posted by Jean F. September 30, 08 02:02 PM
969.

Excellent Article. These little fighters are incredible. I am blessed to have 2 healthy boys and I thank God everyday for that. I read about these beautiful children who have to endure such a fate and it just isn't acceptable. Cancer needs to be stopped. These little people are such warriors. Thank you for bringing attention to such a horrific disease. I hope that more articles like this will be written and bring attention to this so that funding can be allocated so that Childhood Cancer is like dinosaurs!!! EXTINCT!!!!! God Bless you little warriors, keep up the fight. Together we can all help to win this battle!!!

Posted by Jill September 30, 08 02:04 PM
970.

Thank you for bringing this to the public's attention...not nearly enough is being done to find a cure for this evil disease that ends so many lives before they have hardly started. We need a cure!

Posted by Kristen Whitt September 30, 08 02:08 PM
971.

My nephew, Trevor was diagnosed four years ago on October 6th, 2004 with ALL. It stunned our entire family, although we always knew in our hearts that he had the strength of 10 men and that he would fight this disease with everything that he had, it was the scariest, most heart-wrenching 3 1/2 years of our entire family's lives (but especially to my sister and my brother in law and my niece and nephew). But they all stood up and put their best foot forward and got my nephew through some very rough times. I am so thankful to anyone who brings awareness to this horrible disease and I hope that more people will finally get how very important it is to get involved and be apart of the awareness and need to stop this deadly disease once and for all. To all of the families out there going through the struggle and pain of watching their child fight this horrific disease, please know that you are not alone and that your children are being prayed for and with God's Blessings, all of your prayers will be answered and one day we will have a cure and then no other family will ever have to go through what all of you have been through. Please keep the faith and know that there are people out there who truly do care.

Posted by Donna Murphy September 30, 08 02:40 PM
972.

Thank you so much for putting this photo essay together. That any child and any parent and any grandparent, or sibling or aunt or uncle has to go through this is unacceptable. Until I had my daughter I didn't understand how unacceptable. I hope I never find out first hand how truly unacceptable. Please continue to fight to get more exposure for these brave kids and their struggles and triumphs.

Posted by Amelia September 30, 08 02:55 PM
973.

Childhood Cancer is real.. You don't realize how many kids are being treated for cancer until you are thrown into the battle. My son was diagnosed with a brain tumor two years ago on Oct. 2, 2006, at the age of six. We need to find out what causes this disease and how to stop it!!!!.

Posted by Sheila McQueen September 30, 08 03:02 PM
974.

Thank you for bring awareness to Childhood Cancer. We can no longer “turn our heads”. These children and their families deserve a cure. They have waited long enough. Now is the time.

Posted by Robbin September 30, 08 03:08 PM
975.

Thank you for raising awareness for childhood cancer! My daughter, Mara Jane was diagnosed with bilateral retinoblastoma in June 2006. We had never heard of it before that time. Now at 2 1/2 years old, she is stable and doing well despite her loss of vision.

Posted by Roxanne Hug September 30, 08 03:30 PM
976.

Thank you, thank you, thank you for your article on childhood cancer. Although I have never been "directly" affected by pediatric cancer, I follow tons, TOO MANY children's webpages documenting their journey (some of which you show above) that are battling cancer or who have won their battle and are in Heaven. What an amazing, touching, gut wrenching, thought provoking peace. It's about time that Childhood Cancer got some sort of recognition!

Posted by Christina Gomez September 30, 08 03:40 PM
977.

THANK YOU SO MUCH FOR DOING THIS STORY AND SHOWING THE PICTURES OF SOME CHILDREN AFFECTED BY THIS ALONG WITH THEIR FAMILIES!!!!

KEEP UP THE GREAT WORK!!

Posted by KARLA WAGNER September 30, 08 03:46 PM
978.

There needs to be more coverage like this to help raise awareness....these awful cancers are taking our children. September was Childhood Cancer Awareness month.....and unfortunately I heard little about it!

Posted by kim fallis September 30, 08 03:48 PM
979.

Your pictures are incredible although I wish that there were no pediatric cancer patients to take pictures of. Thank you for your bravery in documenting this and sharing it with the world. I pray that this will open people's eyes to the immensity of this problem. I urge anyone and everyone to get involved, donate your time and/or money to the cause, and really make a difference.

Posted by Jennifer, RN, PNP September 30, 08 03:54 PM
980.

It is so good to finally see so much attention brought to our poor sick children. Thank you for sharing your article and all the photos and we wish EVERY month could be cancer awareness month!

Posted by Cookie Klahre September 30, 08 04:04 PM
981.

Yes, we certainly need to raise awareness and funding participation for less invasive and less toxic treatments and ultimately for cures. The public should also be aware that over 75% of the drugs used in treating adult cancers originated from studies in children with cancer. Therefore, there should be strong support for the pediatric studies since they benefit a large population of adults and children.

Special thanks go out to organizations like the Pediatric Brain Tumor Foundation www.pbtfus.org that have raised over $40 million in private research funds and have created collaborative efforts among multiple researchers that did not exist because of the natural competitive forces in the field. Now, we need to be able to invest that kind of money each year rather than over 25 years.

Posted by Gary September 30, 08 05:09 PM
982.

There are 12,500 new faces and family stories just like these -- each and every year in the US. Childhood cancer remains the leading cause of death in children by disease in our country. Only research will improve these images and these odds.

Thank you Boston Globe for sharing these faces of childhood cancer.

Posted by Tricia Benson, RN September 30, 08 05:53 PM
983.

Thank you for taking the time to make notice of this nasty disease that is affecting our innocent children. Please continue to spread the word!
Bless these children and families.

Posted by Beth September 30, 08 06:20 PM
984.

Thank you for your article on Childhood Cancer Awareness month. Like so many others have said, we must find a cure as these young children do not deserve to go through this nor do their families and loved ones. We hear so much about other cancers but how much do we really hear about childhood cancer? They are our future as much as they are ours now and we can't stand to see them suffer the way they do. Just visit www.caringbridge.org and you will find thousands of kids that are battling for their lives. Please continue to help spread the word, not just during this month, but always. You can also sign up to be a Marrow Donor and potentially save someones life that is currently in need of a transplant. Visit www.marrow.org

Posted by Donna - love 4 laiken (RIP 3/6/95 - 4/22/08) September 30, 08 06:35 PM
985.

Thank you for helping spread the news about childhood cancer. The pictures were very touching.

Posted by Emily September 30, 08 07:06 PM
986.

thanks for helping us all become aware of this devasting disease. it is so sad to see these little ones suffer and battle through this horrible disease--you helped bring childhood cancer to the front of the pack--i only wich that it could be in every newspaper and legislatures hands...prying for this to happen

Posted by kim peterson harcourt, ia September 30, 08 07:23 PM
987.

Photos say so much. Thanks for sharing about these beautiful children.

Posted by Diane September 30, 08 08:05 PM
988.

Thank you for drumming up awareness. Childhood cancer marched into our lives on February 3, 2006 and we will never be the same...our entire family has been changed. Our son is still on treatment for his luekemia, but will finish treatment next spring. Please keep the awareness going! We need to bond together to make a difference in this battle! Please check out our newly formed website to support cancer families! www.kidscanmn.org

Posted by Mary Botz September 30, 08 08:46 PM
989.

Thanks for doing this story to help raise awarness. I pray this gets the ball rolling and more awarness is shared. Beautiful job.

Posted by A September 30, 08 08:59 PM
990.

I am the mother of a child with cancer. He is 26 now, but still my child. I am so grateful for the research already done that has enabled him to still be with us. It's terribly sad to see these babies who did not make it, but I hope their families know that they have not died in vain. Thanks to them for their courage.

Posted by Lynn September 30, 08 09:23 PM
991.

I pray daily for a cure for this horrible disease. God bless these children and their families~~~~~

Posted by Pat September 30, 08 09:55 PM
992.

Thank you for bringing awareness to this. It's frustrating -- some cancers, like breast cancer, get so much funding and advertising -- it's even taken on an aura of being about empowerment. But childhood cancer is so hard for people to think about ... so they don't. Bald children with big dark eyes make people feel sad, so it's easier to just not think about it. Until a doctor says, "I'm sorry, but your child has cancer."
http://lovethroughaction.blogspot.com

Posted by Little Warrior's Mom September 30, 08 10:31 PM
993.

Thank you for your story to raise awareness. The photography was ... stunning and positively heartbreaking. I am a parent of three (praise God) healthy babies ages 4 and under and I can't even imagine being faced with this disease. It is truly amazing to see how people from all over come together and pray and hope and ........ fight........ together. Your bringing awareness is truly the most important thing that you can do. Hopefully one day, we'll see as much gold in September as we do Pink in October.

To all the parents who have lost your little angels - my heart breaks for you and I hope that they can find a cure to this horrible disease one day so kids don't have to keep going through this.

Posted by Rachel September 30, 08 11:14 PM
994.

This article brings so much NEEDED attention to childhood cancer. Just because some of us do not want to think about it, it does not make it go away. We need to come together as a whole to protect our children. Our children are the future. It is our job as parents and people to give these children HOPE. To give them their lives back. We need to come together and do all we can to raise awareness for these childhood diseases, to raise money for research, to donate our time, to volunteer. It is important that we work together to help heal our children.
Take a stand. Make a difference. Thank you for this article. Thank you to the families who let us into their world . you are all in my prayers.

Posted by Kristen October 1, 08 12:20 AM
995.

This is so important for the public to realize how many kids and their families are affected by this horrible disease. My sister just lost her 7 year old grandson - he had neuroblastoma cancer. My granddaughter-in-laws 14 year old brother is battling Burkitts lymphoma. There are thousands of children that need a cure found NOW. Thank you for spreading word.

Posted by Judith Mena October 1, 08 01:15 AM
996.

Thank you so much for this article - the pictures speak volumes. My 4 year old son was diagnosed 2 years ago with a cancerous brain tumor - NO child should have to endure this - it robs them of their childhood and so much more. We pray the chemo and radiation will be the cure, but the treatment is also poison to their little bodies and can continue for years to wreak havoc on these incredibly brave warriors! You can never know how much we appreciate this article!!

Posted by Mary lee Carrigan October 1, 08 01:43 AM
997.

Thank you for soing this article.
I have been wondering why Childhood Cancer doesn't seem to get the attention it deserves.
One child is too many!!!
The magazines are full of PINK right now
But i hardly saw a blip for Childhood cancer awareness
I am hoping people will start to relize just how serious this is!

Posted by Kel October 1, 08 02:22 AM
998.

Having went through the childhood cancer experience with my now adult son, I am well aware of the hard work and under-funding for research our pediatric oncologists operate with. Local parent groups provide much of their research capital through fund raising efforts which are as varied as the groups themselves. My son was one of the lucky ones - they had found a fairly successful protocol just a few years before his diagnosis, and it's now over 15 years since his remission, and 8 years since he's been considered cured. He's presently studying engineering technology. But so many others are still waiting for a cure ... a friend of mine just lost her son a few days ago to AML. And I watched so many others lose their battle during treatment and since. Thank-you for helping to publicize this issue.

Posted by Vernita October 1, 08 03:31 AM
999.

I never dreamed there was so much child hood cancer, until I started following the Caring Bridge site of many families. This is so scary!!!!! There needs to be more awareness to the public. There also needs to be drugs to treat these children with and not have to use adult drugs. We all need to pray for these families and doctors.

Posted by Charlotte Moore October 1, 08 05:19 AM
1000.

Your pictures show so much! Thank you for taking time to promote Childhood Cancer Awareness! Please continue to support this with more articles as the need for a cure is so high!

Posted by Billie October 1, 08 08:20 AM
1001.

It is time for a cure...

Posted by jody October 1, 08 10:28 AM
1002.

Thank you for helping people see what families are going through. The Govt. is using BILLIONS of OUR tax dollars to bail out big business and fight wars, but what about these brave children...the war they & their families fight every day. There needs to be someway to funnel money into looking for a cure, treatment, and helping these families cover what insurance doesn't.

Posted by L Durec October 1, 08 11:23 AM
1003.

My husband died of cancer in November of 2006. As ill as he was, he constanlty talked with me about how hard it must be for children to have to undergo treatment. He said' "I know why I have to have to have these treatments, surgery, chemo and radiation, but a child cannot comprehend why they have so much pain."

We were always grateful that our children were healthy. That was truly a blessing. I pray for all the children and their families. that cancer affects.

Posted by Marilyn October 1, 08 11:32 AM
1004.

Thank you for doing this article on childhood cancer. I thank God every day that this horrible monster (otherwise known as cancer) does not live at my house. Unfortunately, it is living at too many homes of people I love and care about. We have to have more funding for research for all these little ones fighting this monster. They should not have to endure more in their little lives than most adults who live to be very old. Thanks for helping to raise awareness about this problem.

Posted by Anne West October 1, 08 12:19 PM
1005.

Thank you for the article on Childhood Cancer. We need to bring awareness so next September every where you look you will see GOLD ribbons.
Fighting for sweet Shaelynn Sue, my angel in Heaven!!!

Posted by Samantha Kelly October 1, 08 01:10 PM
1006.

Thanks much for sharing the stunning pictures - each says a story that touches my heart. We need to find a cure.

Posted by Prabitha and Bala Ganesh October 1, 08 03:32 PM
1007.

Thank you very much for sharing these pictures. So many people take life for granted, but yet there are children who have such strength and courage to fight against this disease without complaint. We need to do everything in our power to find more ways to research , fund and find a cure against child cancer. My heart goes out to all the children and families that are affected by this.

Posted by Terika Davis October 1, 08 03:56 PM
1008.

As the grandmother of a little girl diagnosed at age 6 and going through a horrific 42 weeks of chemo and many radiation treatments, I can only say it is indescribable to take part in this sad sad sad scenario, let alone being little more than a baby and having to endure it and not understand why. Please give our children ( our future) more attention and funding. Let's stop this horror.
Jean Johnson

Posted by Jean Johnson October 1, 08 03:59 PM
1009.

I have been working endlessly to get awareness for this DEVASTING DISEASE. Please know that we have lost over 12 friends this past year as my daughter was just declared cancer free after 14 months of osteosarcoma. (bone cancer) Age 12. You can follow her story and get info on other children to pray for at
www.caringbridge.org/visit/kennedy1
Go SOX!

Posted by Stacy Moriarty proud mother of Princess Warrior October 1, 08 04:12 PM
1010.

"Until there's a cure, there's camp!"

Special Days Camp is one of the longest-running camps (30 years!) in the United States for children with blood or bone cancer, and their siblings. It is held in Jackson, Michigan in late July / early August each year. There is also a short winter camp session where the kids can see each other in February and play in the snow.

The best part about camps like this? Recharging your batteries. Actually getting to be a kid instead of a patient for a week (with Ped Hem/Onc docs and nurses on site, of course!) Having others there who know exactly what you're going through because they've been through the exact same thing themselves.

Please check out the website and pass the info along to anyone who might be interested. There are links to other camps and organizations on the site as well.

Special Days Camp

Posted by Thom Brooks, Special Days Camps October 1, 08 05:57 PM
1011.

Thank you so much for helping to raise awareness for kids cancer! These kids can't advocate for themselves. They have experienced things that no child should ever have to know. Their stories are heartbreaking - their courage is inspirational. We, as a caring society, should not let our kids down - they deserve our financial and emotional support. Let's check our priorities, and not let another child face the horrors and uncertainty of cancer.
www.caringbridge.org/visit/jjlee

Posted by heather lee October 1, 08 09:31 PM
1012.

Keep awareness alive. Reading of the children that live give "hope" but reading about the ones that don't bring dispare. Why is it we can fight wars, put a man on the moon and have computer technology that is unbelieveable but we can't find a cure for cancer? Our prayers are with the children that suffer and their families who witness the suffering and try to ease their pain. Keep cancer awareness alive and let's pray for a cure!

Posted by Charlene October 1, 08 10:00 PM
1013.

Thank you for your help in raising awareness. We hope that this leads to many more stories about childhhod cancers. It is such a devastating diagnosis for a family to hear. We too have experienced this first hand. We hope and pray that the awareness continues. Thank you so much for bringing this to the public's attention!

Posted by Wendy Marecle October 2, 08 12:01 AM
1014.

Thanks much for sharing the stunning pictures, i am writing from Nicaragua. can You imagine so hard in this poor and little country help this kids fighting cancer?
Prayers go out to all the kids and their families.

Posted by Jose Guillen October 2, 08 11:09 AM
1015.

Thank you for spreading some awareness. These children can't stand up for themselves and fight for more funding. It's up to us their families & friends to do that for them. I wish there was as much awareness regarding childhood cancers as there is for breast cancer. Thank you again!

Posted by cheryl coppola October 2, 08 11:50 AM
1016.

I'd love you to come down to the Royal Childrens Hospital in Melbourne, Australia. In the midst of absolute agony there's a fountain of hope, joy and love. It's reflected in the kids faces and their parents too. See if you can capture that on film. Thank you for these images. God bless to each child,family and medic portrayed here

Posted by reinier bouman October 2, 08 12:48 PM
1017.

thank you for your pics. very touching.

Posted by ttzzt October 2, 08 01:04 PM
1018.

We need even so much more awareness of the necessity for more funding to be directed to Childhood Cancer Research. Please keep using the powerful impact of the media to draw attention to this!

Posted by Nancy Blount October 2, 08 03:31 PM
1019.

Thank you for bringing some much needed awareness to such a critical topic. These kids deserve our help.

Posted by Maureen Hilton October 2, 08 07:12 PM
1020.

I being a cancer myself am so grateful for the focus on kids. They are our future! They need our love, guidance and support. We must speak for them today as one they day they will speak for us. Thank you for running this story. What a reality check for what is really important!

Posted by Mary Ann Stef October 2, 08 09:44 PM
1021.

Oh my goodness, these pictures moved me so much.. Im in so many tears right now..

Posted by Manjari Sharma October 3, 08 05:47 AM
1022.

These pictures really hit home with me. I just lost my mom to cancer Aug 8, 2008. She found out she had cancer 3 weeks prior to her passing. She did not even have a chance. I am glad to know there are so many people out there who care enough to try to help children or anyone with cancer. I am a member of St. Jude, and I will definitely do whatever I can to help with making these kids life a little better. It is just so hard to believe how many people are being hit with cancer, and to me it is worse knowing these children are being hit so hard with it. I hope this story makes it everywhere to make sure any and everyone possible is aware of this.

Posted by Vicki Gomez October 3, 08 10:07 AM
1023.

Thank you for sharing these poignant photos with us. Each picture tells a story of the journey of a child. Many of these journeys ended with triumph, but some of these journeys ended with families mourning the loss of their children. This should never be the case.
In July of 2005, we lost our daughter Rachel to Hodgkin's lymphoma. We were told that she would be fine-that Hodgkin's was the "good" kind of cancer to get. No kind of cancer can ever be considered good. She had months of chemotherapy, radiation, two stem cell transplants, several surgeries, but nothing could defeat the monster. Now we try to live life the best we can-without her.

Posted by Marilyn Barnes October 3, 08 10:12 AM
1024.

Thanks so much for sharing these pictures...as a childhood cancer survivor this really hits home hard and brings back lots of memories...

Posted by Kristin Speed October 3, 08 12:46 PM
1025.

We need to see these pictures more often....if only to put a real face and story to the terrible statistics that we read so frequently. Owyn is member of my future grand daughters' family so it really hits home God bless all these children....I pray that a cure comes soon.

Posted by Melinda Bandow October 3, 08 11:11 PM
1026.

I have read so many of these entries and am so glad to hear other voices speaking up. I urge you to donate to St. Jude Children's Research Hospital, a place where my 8 year old son is receiving treatment, because my husband and I fully believe 100% that a cure will come from those doors. While there are many worthy cancer organizations out there, please look at their statistics BEFORE you donate of how much money goes to childhood cancers. (Much is usually steered towards adults.) St. Jude is all about children! We will have a cure one day for every childhood cancer, but we need to raise our voices and shout!

Posted by Susan Willman October 4, 08 09:41 AM
1027.

Thank you for publishing this article...one of the few efforts I have seen among the media to bring attention to childhood cancer awareness. My then 6-year-old son was diagnosed with a diffuse intrinsic pontine glioma (an inoperable brainstem tumor) just a few days after I was diagnosed with breast cancer in October 2007. My treatment was standard. There is no treatment for him. In fact, there has been no progress made in treating Andrew's particular form of brain cancer in over thirty years. It is only when people like you have the courage to stand up and say something that we will see change.
www.caringbridge.org/visit/aws

Posted by Sandy Smith October 4, 08 01:01 PM
1028.

Such moving and heart breaking photographs. Thank you for sharing those with us.

Posted by Lori Barrett Photography October 4, 08 07:56 PM
1029.

thank you for publishing this article----we need more attention given to childhood cancer . . . a parent's worse nightmare is to have a child suffer through any illness- and childhood cancer continues to grow

Posted by patti October 5, 08 08:05 AM
1030.

I think this is it, I'm joining the folding@home today.
http://folding.stanford.edu/

Posted by ypctx October 5, 08 02:12 PM
1031.

It hurts a soul to see pictures like that. We have to continue to pray for a cure!

Posted by shon October 5, 08 08:54 PM
1032.

I love'em all, just can't describe my feelings.
God Bless those beautiful angels.

Posted by Willy October 6, 08 01:54 PM
1033.

God bless these tough souls!

Posted by Rachel October 6, 08 01:59 PM
1034.

It breaks my heart to see anyone go through such a hard journey. Please find a cure !!!!

Posted by Melanie Hopper October 7, 08 12:09 AM
1035.

I can only imagine what it must be like for the kids and families that deal these situations.

Posted by Grant October 7, 08 01:40 AM
1036.

Thank you for bringing awareness to this life and death issue. God Bless all families touched by this horrible disease.

Posted by Sherry Stout October 7, 08 10:35 AM
1037.

thank you for publishing this article and sharing the photographs and bringing awareness to childhood cancer.

Posted by debbie October 7, 08 01:21 PM
1038.

I was surprised to see on the yahoo page that this article was supposed to be by Karlene Mueller. I am Karlene and I received it through an email on caringbridge.com. A father that lost his son, AJ put this together. He did a beautiful job of showing the innocent, beautiful children affected by this horrible disease called cancer. I merely passed it on to other caring people. AJ's dad is trying to make the world aware of childhood cancer. We need to eradicate this ugly life taking disease.

Posted by karlene mueller October 8, 08 03:37 AM
1039.

I found out i had Cronic Myloid Leaukemia when i was 8. Now i am 12 and i am fully recoverd i look back and realise how many children like me wer in the hospital. i know wat its like to have it. So young, so confused. Its Terrible and i wish it was extinct, it changed me, my life and my family. i was so shocked. Please cure this horrible disease.

Posted by Beth Smith; Age 12 x October 8, 08 12:09 PM
1040.

I can't understand how Breast Cancer gets so much funding compared to Childhood Cancer!! Cancer is terrible for everyone, but I think most people would agree that nothing is more painful than seeing a child die. We need to think outside the box and learn better ways to get the donations flowing.

Posted by Sue Visbal October 8, 08 06:17 PM
1041.

SIXX has done in again with over $500,000 for the make a wish founddation, no matching funds here.

Posted by Vince Neil October 10, 08 09:30 AM
1042.

Thank you for doing this article. More people need to know that cancer is killing our children, more than any other disease and needs more awareness in the public eye.

Posted by Krissy Keelan October 12, 08 12:48 AM
1043.

Thanks for spreading the awareness.

Posted by sanil shanbhag October 12, 08 08:50 AM
1044.

I am a grown man of 53 years, and I am not ashamed to admit that I cried like a baby when I saw these pictures.

Perhaps it will help others to believe that these children are going to a better place...

Posted by Frank October 12, 08 05:56 PM
1045.

A sad reality but beautiful pictures... We will always be grateful Julian for everything you brought into our lives. Have fun in Heaven!

Posted by Anne October 15, 08 01:55 PM
1046.

speechless

Posted by amalia October 16, 08 10:47 PM
1047.

This problem is worldwide. I think we should make effort so help such patients.

Posted by Manish-India October 17, 08 01:19 AM
1048.

It is too easy to believe that chldhood cancer happens only to OTHER families, not to our own. The reality is that childhood cancer can happen to any family. For years, we had two happy, healthy children. One day, our older son started having headaches. Ten days later, he was diagnosed with an aggressive, malignant brain tumor. He is fortunate to be alive today - but, like so many of the "lucky" ones, he has been left with devastating permanent impairments. It is critical that we, as a nation, devote significant attention and the resources to fight childhood cancer. This article is a first stsep.

Posted by J Banks October 17, 08 06:23 PM
1049.

Frank, of 1044; Youre not alone in that, mate.

Posted by Hansen, Sweden. October 20, 08 07:49 AM
1050.

Thank you for making us aware.

Posted by Rachel October 24, 08 09:21 AM
1051.

We lost our beautiful 10 yr old daughter, McKenna, on my 36th birthday to complications after receving her 2nd bone marrow transplant to try to cure her Non-Hodgkin's Lymphoma. She took her last breath on November 27th, 2007 at 5:30pm. This year, November 27th happens to also be Thanksgiving. How cruel is that? How can I possibly give thanks or celebrate a birthday ever again?
The only thing I want to do now is fight for others and raise awareness for other children. Please help us!
https://www.caringbridge.org/mn/mckenna

Posted by Krista Johnson October 24, 08 09:38 PM
1052.

Thanks for spreading awarness for our children!!

Posted by The Gunty Family October 26, 08 04:21 PM
1053.

God may bless all these childrens and their families. CRC

Posted by Carlos RC October 28, 08 05:23 PM
1054.

Oh my God! i never thought..........................this!!!

Posted by Saheli Rudra October 29, 08 05:03 AM
1055.

You can run programs in the background on your computer to help medical research.

I've found three trying to help cancer research (but not specific to childhood cancer):

http://www.worldcommunitygrid.org/

http://boinc.bakerlab.org/rosetta/

http://cels-at-home-dev.dyndns.org/cels/

The last two do not always generate workunits fast enough to take up all the spare time on most computers. Since all three use BOINC, you can tell your computer to run all three of them; I did. Some computers may need more RAM memory to help them do this without slowing them down for other purposes; mine needed about $50 worth. Also, computers doing this often need up to 50 cents worth of extra electricity a day

Note - I believe the US has restrictions on using computers containing medical records to run such programs, so computers at doctors' offices may not be able to participate.

Posted by Robert Miles November 1, 08 09:19 PM
1056.

I feel bad for people with cancer. I bet it is painfull.

Posted by Kimberly November 11, 08 05:04 PM
1057.

Man i feel sorry for thes kids

Posted by skipskipson December 6, 08 05:01 PM
1058.

Quando vedo immagini del genere penso sempre che Dio non possa permettere che delle creature innocenti subiscano tali sofferenze e finisco col non credere più a nulla. Spero solo che ovunque essi siano possano correre, ridere e girare in tondo come è giusto che i bimbi facciano. Spero che le mamme e i papà di quei splendidi bambini trovino la forza per superare il crudele destino che la vita gli ha imposto. E spero che medici, case farmaceutiche e ricercatori trovino presto soluzioni affinchè tali barbarie non debbano mai più accadere.

Posted by mario December 14, 08 03:19 AM
1059.

Thanks you for this article -- and may we all continue to support cancer research and to volunteer in whatever way we can, for all children who are battling cancer. In our part of the world (Philippines), a lot of children also suffer from cancer, and we observe Children's Cancer Consciousness Month in April.

Posted by T. Hope March 5, 09 12:16 AM
1060.

Hi, cool site, good writing ;)

Posted by Zemsdrieste March 19, 09 06:12 PM
1061.

One wonders as I look at these children why a loving God would call these children home so soon. Why do they have to suffer? I pray for a cure dear God.

Posted by Judi Singleton March 25, 09 10:01 PM
1062.

Very nice site!

Posted by John431 March 31, 09 10:41 AM
1063.

Hi folks!

I just want to say hello to you all,
and see you in next posts!

cheers
IntessVoini

Posted by IntessVoini August 15, 09 03:13 PM
1064.

that is so sad i would hait that.But i like it that thoes kids are brave and not scared because they are braver then i am.I could not do it.

Posted by alyssa September 3, 09 08:55 PM
1065.

We sure do need to wipe this disease. I thank God every day for my children health. I also try to help out when I can, and where I can.

Posted by Joanne Kolod September 8, 09 11:33 PM
1066.

Thank you for helping to raise awareness and promoting advocacy. This beast, known as Childhood Cancer, is primarily championed by families who experience it firsthand. We NEED support, advocacy and research. Now! Not just from those of us that are affected by it. Thank you......

http://thegreginator.livejournal.com/

Posted by Mindi Finch ~ Mommy to The Greginator. Juvenile Myelomonocytic Leukemia, Dx 02/23/09. Bone Marrow September 26, 09 02:07 AM
1067.

This should be the headlines in every Major newspaper and news show at least once this month. My son is a brain cancer survivor, dx. 2 years ago. He has been through and overcome much more than most adults and with courage and determination. There are so many children fighting with all their might. Childhood Cancer Research should be fully funded. Fight for the Children and young adults.

Posted by Carol Spaulding September 26, 09 09:42 AM
1068.

thats sad

Posted by Anonymous December 15, 09 07:56 PM
1069.

i run this research from the university of Washington in hopes of finding a cure someday http://boinc.bakerlab.org/rosetta/

Posted by help find a cure February 21, 10 04:12 PM
1070.

Ready to get back to that childhood leukemia lecture.

Posted by LW April 22, 10 06:24 PM
1071.

Hi I had a child that went through childhood cancer and I have written a book that will help get the message out. If interested please contact me. Thanks.

Posted by Merlon.Blizzard May 13, 10 01:30 PM
1072.

Speechless.

Posted by Kim Adair June 18, 10 04:30 PM
1073.

THANK YOU FOR ACKNOWLEDGING CHILDHOOD CANCER AWARENESS MONTH!

http://main.acsevents.org/site/TR/Events/MosaicofHope?pg=fund&fr_id=9910&pxfid=753019

Posted by Ranae Christensen "Angel Shane" June 18, 10 11:02 PM
1074.



wow, seriously?!

Del please

Posted by mutamonstr January 22, 11 03:56 AM
1075.

love it
may god bless all

Posted by sapna February 14, 11 10:13 PM
1076.

never give up

Posted by rebecca February 23, 11 03:10 PM
1077.

Hello, I new yours frient on this forum)

Posted by Allode March 11, 11 04:35 PM
1078.

good luck to all of the fighters out there !!!!!!

Posted by Anonymous March 22, 11 01:57 PM
1079.

we just need hope to survive: cancer can never deprive us of happiness

Posted by HAJER March 26, 11 07:16 AM
1080.

острые кромки, заусенцы и шероховатость на поверхностях оборудования, материалов; повышенное напряжение в электрической цепи, замыкание которой может пройти через тело человека.

Posted by Leitenantnika March 30, 11 09:49 AM
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